🧡 Did My Latest MRI Show Progression? | Opening My MS Results
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- čas přidán 22. 04. 2024
- 🧡 Discover the latest chapter in my MS journey as I document my visit to the hospital for an MRI scan and reveal the results. I take you through the experience of waiting for and opening the results, sharing my thoughts and reactions along the way.
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Sorry to hear this LIAM I was diagnosed in 2018 also. Lost everything myself just got to remember the GOOD times far out weight any bad times.The kids and family support you are in my PRAYERS.
I’m so sorry to hear that Liam. My son was diagnosed Dec 2022. He has been on Kesimpta ( self injections once a month ) He had his MRI and thankfully no new lesions on his brain or spine. I really hope your next DMT helps you. 🤞🏼 take care ❤
I am waiting for an opening to see a neurologist since my GP suspects nerve damage (numbing pain in my left arm and chest area; mini shooting pain under my feet; neck pain which was found a pinched nerve in the X-rays, and other issues), but stopped short of saying MS. I've been watching your vids and been comparing notes and understanding the disease more. Even if I don't have it, I appreciate you sharing your journey and updates. Hope you do get better soon and something works for you.
I am so very sorry Liam, Mahalo for sharing with us.
Sending you my prayers and all the Aloha from Hawaii 🙏🏽
know that you are wonderful man, such a positive light for us all on here, keep being amazing, and take it day by day, we are all thinking of you, and are so grateful for you. You got this ok 🙏🏽🤙🏽
Aloha for now 🌈☀️🌴🌊
Naomi 🤙🏽
Hi Liam ! I'm sorry ... I don't know ( don't remember ) where you live but on Québec Canada we have an MRI every year. Si we can catch lésions sooner. Talk to tour doctor about this.
I also have MS. And I'm gonna Do my second year with Mavenclad. The first hear, 6 months into I had a lésion on my optic nerve. I was on Ocrevus for 4 years and IT was fantastic !!!! You migth want to try that. Don't worry about the number of DM you tried. I'm on my fifth !!! I had to stop Ocrevus because I had to Many infections, I would not have stopped IT. Take care !
Hello Liam, I'm so sorry you've got some bad news. I wish you the best with a new treatment.
Personally I just switched from Tecfidera to Kesimpta, my first injection was yesterday. Best luck!
Sorry to hear this bud. We’re all here for you dude. Best of luck with the next treatment 🤞🤞🤞 will be thinking of you x
Hi Liam. I totally get it and understand the emotional weight of the findings. I’m loaded up with lesions on brain cervical and thoracic spine. I’m on ocrevus and one more mri to see if more lesions and do they stop it. I’m with ya bother….sending warmth and light during the digestion of this latest news.
Beautiful and immersive video. Sorry for the lesions findings. Thank you for sharing your experience, this helps. Stay strong.
Feel for you Liam. Have you looked into HSCT? I get how it feels when you get that confirmation of what you already knew - that little bit of hope that youve got it wrong gone.
Keep going we really dont have a choice do we? There are other options, hope your team get you on a new DMT asap.
Brave of you to share this 🙏
Praying for you buddy 🙏 ❤️ hope all goes well
I’m sorry to hear that brother! I also have a cervical spine lesion and 10 brain lesions, not the news I want to hear at 31! But there’s HOPE, I’ve been on Ocrevus for nearly 2 years now, turning 33 in May and no new lesions! Between switching to a stronger DMT and changing to the Whals diet you will be in MUCH better hands! I’m rooting for you buddy, you got this and you’re not alone, we’re ms warriors to the end!! 💪
Much love and light Liam Stay strong brotha Warriors through and through
You've got this! 🙏🙌🤙
Sorry to hear this mate. Keep fighting and I'm certain you will find something that works
Love x
❤Hi Liam, I hope everything works out for you. Your really great, take care
I’ve been on Kesimpta for a year and a half now. For me it’s a monthly injection, took a little to get used to it but it’s a self injection pen so that made it a bit easier. For the most part things have felt pretty stable since starting it, except I do get frequent numbness in my hand, however, I am being sent for studies as this could be carpal tunnel and not MS related. I just had a recent request for an MRI submitted. When I get my results, I can share them but I would say based on how I feel, I would suggest looking into Kesimpta. I know everyone’s different but I hope this helps.
Hang in there brother. I just had to switch from Ocrevus to Mavenclad
Keep up the faith
Hey Liam, currently taking tecfidera also after seeing some activity on a 3 month scan (early on) - first yearly scan was also clear - will getting my second in 1-2 months time (2.5 year mark) . I am hoping it is clear but also worry I may have something new - cog fog on some recent days makes me feel like I am tipsy (not a pleasant feeling). Sorry to hear about the new lesions - mavenclad* was a good one to have regardless I feel as I think long term it provides some form of immune reconstitution so may mellow things down up to 10 years from what I have read in literature (I am also considering it if I have new spots). Perhaps ocrevus as a next step? I have heard it works very well for many people. Keep up the good fight you are doing well :) We are here for you, even though you may have 1-2 new spots it may have prevented even more damage, I suppose all of us on DMTs will never really know what was prevented.
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Hey Liam, i am sorry to hear this news. I am on Techfidera and was diagnosed Oct 23. Dr Petreczky is also my neuro. I am sure between her and the MS nurses at JCUH you will get the best support and care. Sending massive hugs. xxx
Sending prayers. You got this.
Dang Liam, I am sorry that you didn't get a better result from the MRI. Thinking of you. Keep taking exquisite care of yourself!
I'm sorry to hear about the latest results. Ocrevus has worked wonders for me over the last 2 years with great results. No new set backs or lesions in 2 years. Prayers to you brother ❤❤
I'm so sorry Liam, it probably wasn't the news you wanted to hear. I'm thinking about you and sending love and hugs. I'm still awaiting my MRI 🙄 Keep on being positive, and remember you have a supportive community here, always wanting the best for you ❤❤
sending best wishes 😀
So sorry to hear Liam that the uninvited invader is on the move again🤬 You've got this and everyone on here is with you too. Hope the meeting with your Neurologist comes up with a plan b that really helps you .🤗 x
Sorry to hear, Liam. Pls keep us updated, we are here for you!
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Hi Liam, sorry to hear about the bad news 😢 are you able to use Ocrevus? 💚💙💜
Good to have you back! :D I hope you're doing well. Maybe Keseptia, maybe Ocrevus, but I'm pretty sure you will be fine. My best wishes.
Sending prayers, never give up brotha, your story is truly inspirational and was genuinely uplifting for me. Lets all power through these tough times, MS family :)
I've been in the MS fight as well and had the same results after my second MRI. It's been over 16 years since then and I've been doing fine. Keep moving forward brother, we're in this together and you are certainly not alone. ✊
That's great to hear you are doing well after 16 years - have you had no relapses in that entire time? :)
@@__Wanderer I'm now primary progressive which means I get no breaks in the MS flares. It's been that way for more than 10 years now. I'm sure you know how random and customized this disease is, but I've been very fortunate to manage without DMTs for this long.
@@smokeyjoescafe ah, sorry to hear the flares are continuous. It's sad to know all of us with MS will transition to ppms at some point or another. Glad to hear you've managed without DMTs though, they're not a lot of fun that is for sure. I take tecfidera and I turn into a bright red cherry tomatoe with skin burning consistently 2 hours after taking the pills... 😅
@@__Wanderer even with the ppms I'm physically stil moving and keeping myself challenged. Sometimes I'm my toughest critic and push myself more than I should, but I feel very lucky. The MS has always added an extra layer of challenge to everything, so to be able to still have a somewhat normal existence is something I'm very grateful for. I'm sorry you're having reactions to the pills. I used to take Rebif and would feel like I fell out of a window onto my back. Stay positive brother! We're warriors.
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Praying for you..
Carnivore?
Carnivore?
Keep us updated. Sending you love and stay strong.