I have had eczema for my whole life. I have fasted for 9 days and then some. First it was dairy, then bread, then rice, then oats, then eggs, now soy. I fell like committing suicide. I don’t know why my body is acting this way. I’m 26 years old and I haven’t even seen the world yet. And now I live in a world With a pandemic and all this craziness, makes me wish I was a teenager in the 80s or something with better genetics…I hate myself at this point. I don’t know what to do…I was able to eat all these things when I was younger. And not to mention going to the allergist and things is expensive! Thanks for sharing your videos, and informing others of your own struggles and successes, Godspeed. 💫
My daughter at her highest was 27,000. They freaked out and tested her for jobs disease. She doesnt have it thank god. She fought mrsa for over a year. She is 11 and every environmental pollens, anything with fur but guinea pigs. 15 different foods, at least 4 are life threatening. At one point she tested allergic to beef, pork and chicken but the reaction was mild. So they said dont stop giving it to her. It can make it worse. She had a delayed anaphylactic reaction to allergy shots. She had a serious reaction to peanut dust.Today we had dermatology again she is finally getting Cyclosporine. We have been fighting this for 11 years. We see the allergist again tommorw. Going to ask for more food tests. Corn hasnt been tested yet. But over the years her ige levels are at last test 14000. High but not scary as it was before. We have had one positive celiac test but 2 negative, and she isnt allergic to wheat. This is hard. My heart goes out to you.
Hi Nicole, thanks for your comment and so sorry to hear your daughter is going through the same thing. It seems severe allergies are more common for kids these days than when I was growing up (I’m 36). Here’s the list of medications on I’m that you can ask your daughter’s doctor about ( czcams.com/video/txNbJdROVuk/video.html ). I’m also on cyclosporine as well as other safer medications. Glad her IgE levels have subsided. Anything over 5000 isn’t very accurate due to limitations of laboratory technology, so don’t let the 27,000 or 14,000 discourage you too much!
Is your condition different then Mast Cell Activation or Mastocytosis? I’ve all of a sudden become allergic “like” to everything. So far I haven’t had full blown anaphylaxis. I’m on high dose allergy meds. Sodium cromolyn and Xolair.
Definitely what ran through my mind too. MCAS is so poorly understood that it didn’t even get a name until 2007. I knew it was a common comorbidity of my genetic disorder, but didn’t know enough about it. I had been seeing an allergist for a long time and she missed it too. Because it can be so subtle sometimes, and when you’ve been so close to the problem for so long, it’s easier to miss stuff. I got lucky that my neurologist (of all people; it’s a long story but more logical than it seems) caught it (and the allergist manages it now). I hadn’t seen him in several years because my neuro issues had chilled out a lot. So he did a complete, extensive exam and history because anything could have happened in those 3+ years. And he had just happened to learn about and then study much more extensively the relationship between a specific subgroup of his patients and MCAS. Now I have more appropriate meds and understand triggers better, and have taken steroids for bad flare ups before, but symptoms have improved dramatically in a couple years (someone without MCAS might not consider my current state an improvement, but for me it is).
I'm very thankful I just randomly stumbled across your videos. I relate so much on the terrible eczema, feels like my skin is that of a 90 year olds and I'm only 34, constant flare ups, secondary infections, no doctors dedicated to find my triggers, they just shove steroids onto me but tell me it's not a long term fix. I'm desperate. Thank you for the info!
Hey Jen! Thanks for stopping by and saying hi. Great to connect with other eczema sufferers and help each other. Hope you survive this winter and the cold/dry air!
A dermatologist or an allergist should be able to pinpoint exactly what you're allergic to with a skin patch test and give you allergy shots to help you...
@@mercedesbenzs600bash I'm on Dupixent now and my skin is almost completely better. It took a long battle with insurance companies to get to this point.
@@jennifergalloway7804 Oh ok good,how long have you been on Dupixent,any side effects??? My dermatologist had suggested Dupixent to me,I might try it...
@@mercedesbenzs600bash I've been on Dupixent for about 3 1/2 months now. The shots themselves are very painful, and I notice my face still flares, and my eyes need to be cleaned every morning, but I'll take all of that because my body is completely normal now!!! Highly recommend.
Jeff, what do you think about eosinophils? How eosinophils fit into the overall picture of allergies? Abnormal count in the blood but doctors can figure out what is the cause.
I answered this already when you asked on another video. An overactive immune system can cause eosinophils to be higher, or the eosinophils may be the source of the reaction. " Hey, I also have very high eosinophilic count. Specific treatments for that are Nucala (Mepolizumab) and Fasenra (Benrolizumab) to eliminate eosinophils, which seem to be unimportant to have in the body. I tried Nucala ( czcams.com/video/SobWlQsAtr8/video.html ) but it backfired and actually made my asthma worse, apparently the only case when that’s happened ( czcams.com/video/OKrDq3XEufk/video.html ). Benralizumab theoretically should be safer as it cuts off eosinophils at the source, but I haven’t tried it since I’m only testing Dupixent right now. Or, immunosuppressants will calm down all inflammation and reactions, and you can see if eosinophils are still high when there's no inflammation."
Bonjour Jeff, je suis Français et comme toi asthmatique , eczema et allergies . Je me retrouve beaucoup dans tes vidéos et expliquent bien tous les aspects de la maladie. Bon courage :)
Wow. I suddenly get allergic to fish and polyester clothes before 3 years. It's so weird. I can understand your position, bad I can't feel it. It must be so difficult to live like this.
Hey, sorry to hear you're developing allergies. Sometimes it's the environment or allergen (like fish or polyester). Other times it's your body's immune system changing as you get older. This is harder to fix.
after 30 over years, I am still very confused by my reactions as well... all that you mentioned e.g. delayed, compounded, etc. then I have those that I only react after a certain amount..... so I stay confused hahahahahhaha I guess, it really takes years to figure out.
The immune system is much more complex than people think. I’m only slowly able to figure out certain reactions after other major reactions have calmed down a bit so it’s not chaos everywhere. When everything is blowing up, it’s hard to pinpoint each specific source. It’s taken a long long time to build the complex treatments I’m on now that’s finally helping and allowing me to notice the nuance in reactions : czcams.com/video/txNbJdROVuk/video.html
I really admire your spirit. Dupixent has been a miracle regarding my severe excema. (Unfortunately, it does not help my severe allergic contact dermatitis.) But, I too am concerned that I may develop problems. I recently read there is an oral medicine in clinical trials, by Pfizer, to directly compete with Dupixent. It is a relief that new drugs are in the works. You likely already know this, but just in case you don't... Anecdotally, nothing helps itching when I do itch. I'm allergic to most all topicals and prednisone. The only thing that remotely works is a cotton swab dipped into a mix (a teaspoon of organic apple cider vinegar and cup of water) and lightly applied to the skin. Yes, it dries out the skin, but the itch is gone and I can put vaseline on later. Best wishes to you.
Hi, thanks! Great to connect on youtube ! How long have you been on Dupixent? I’ve been on it for over 2 years and only just started feeling improvements for allergies and asthma (see this video update: czcams.com/video/OzkmRjI64Ik/video.html ). I take dozens of other medication. Here’s all the medications I’m using right now. Ask your doctor about these, especially the ones for allergy and LDN ( czcams.com/video/txNbJdROVuk/video.html ). Yes, I know about the Pfizer JAK inhibitor pill. Dupixent is still 100x safer and more natural way of healing the skin. The JAK inhibitor affects the same eczema “off switch” as dupxient, but it also affects several other “switches” that can cause many more side effects and problems. JAK inhibitors are also known to cause severe gut issues. There have been many other JAK inhibitors already in the market that’s usually used for psoriasis but sometimes helps eczema. A friend of mine on the Pfizer clinical trial completely destroyed her skin and set her back many many years. I think this Pfizer pill is only for basic to moderate eczema. It will not handle severe eczema. Dupixent is by far the safest option right now, but there are new medications based on Dupixent (like V2.0) that are coming in the. Next 5 years that should be better. I would not try the Pfizer pill unless you get anaphylaxis from Dupixent and have no other option.
Thanks for the suggestion. I have considered it but I cannot survive any type of surgery, including stem cell at the moment. If I get well enough to do that type of surgery, I will review it again.
@@JeffreyLin It's not a surgery, it's only an injection, Like Dupixent. Just google atopic dermatitis and Mesechimal Stem Cells. There are a couple trials that have shown very positive results.The only thing is it's pretty expensive. Like 15 grand.
When you say you didn't eat/couldn't eat at all... what did you do then? I know you don't mean that you literally didn't eat, but what did you do then? What did you eat? Edit: Nevermind, I see you described it in the description... never heard of an elemental diet.
I have had eczema for my whole life. I have fasted for 9 days and then some. First it was dairy, then bread, then rice, then oats, then eggs, now soy. I fell like committing suicide. I don’t know why my body is acting this way. I’m 26 years old and I haven’t even seen the world yet. And now I live in a world With a pandemic and all this craziness, makes me wish I was a teenager in the 80s or something with better genetics…I hate myself at this point. I don’t know what to do…I was able to eat all these things when I was younger. And not to mention going to the allergist and things is expensive! Thanks for sharing your videos, and informing others of your own struggles and successes, Godspeed. 💫
R u ok now? I know how you feel😢
My daughter at her highest was 27,000. They freaked out and tested her for jobs disease. She doesnt have it thank god. She fought mrsa for over a year. She is 11 and every environmental pollens, anything with fur but guinea pigs. 15 different foods, at least 4 are life threatening. At one point she tested allergic to beef, pork and chicken but the reaction was mild. So they said dont stop giving it to her. It can make it worse. She had a delayed anaphylactic reaction to allergy shots. She had a serious reaction to peanut dust.Today we had dermatology again she is finally getting Cyclosporine. We have been fighting this for 11 years. We see the allergist again tommorw. Going to ask for more food tests. Corn hasnt been tested yet. But over the years her ige levels are at last test 14000. High but not scary as it was before. We have had one positive celiac test but 2 negative, and she isnt allergic to wheat. This is hard. My heart goes out to you.
Hi Nicole, thanks for your comment and so sorry to hear your daughter is going through the same thing. It seems severe allergies are more common for kids these days than when I was growing up (I’m 36). Here’s the list of medications on I’m that you can ask your daughter’s doctor about ( czcams.com/video/txNbJdROVuk/video.html ). I’m also on cyclosporine as well as other safer medications. Glad her IgE levels have subsided. Anything over 5000 isn’t very accurate due to limitations of laboratory technology, so don’t let the 27,000 or 14,000 discourage you too much!
Is your condition different then Mast Cell Activation or Mastocytosis? I’ve all of a sudden become allergic “like” to everything. So far I haven’t had full blown anaphylaxis. I’m on high dose allergy meds. Sodium cromolyn and Xolair.
Definitely what ran through my mind too. MCAS is so poorly understood that it didn’t even get a name until 2007. I knew it was a common comorbidity of my genetic disorder, but didn’t know enough about it. I had been seeing an allergist for a long time and she missed it too. Because it can be so subtle sometimes, and when you’ve been so close to the problem for so long, it’s easier to miss stuff.
I got lucky that my neurologist (of all people; it’s a long story but more logical than it seems) caught it (and the allergist manages it now). I hadn’t seen him in several years because my neuro issues had chilled out a lot. So he did a complete, extensive exam and history because anything could have happened in those 3+ years. And he had just happened to learn about and then study much more extensively the relationship between a specific subgroup of his patients and MCAS.
Now I have more appropriate meds and understand triggers better, and have taken steroids for bad flare ups before, but symptoms have improved dramatically in a couple years (someone without MCAS might not consider my current state an improvement, but for me it is).
Thanks for sharing this information. It is frustrating to deal with these things. Your explanations are helpful.
Oh Jeff, I'm so sorry man..It's almost as if our bodies are rejecting themselves. I often get disassociated with my eczema and identity.
Thanks. Even though eczema and allergies shape every part of my life, I actually don’t think about it much. I focus on my projects and interests
I'm very thankful I just randomly stumbled across your videos. I relate so much on the terrible eczema, feels like my skin is that of a 90 year olds and I'm only 34, constant flare ups, secondary infections, no doctors dedicated to find my triggers, they just shove steroids onto me but tell me it's not a long term fix. I'm desperate. Thank you for the info!
Hey Jen! Thanks for stopping by and saying hi. Great to connect with other eczema sufferers and help each other. Hope you survive this winter and the cold/dry air!
A dermatologist or an allergist should be able to pinpoint exactly what you're allergic to with a skin patch test and give you allergy shots to help you...
@@mercedesbenzs600bash I'm on Dupixent now and my skin is almost completely better. It took a long battle with insurance companies to get to this point.
@@jennifergalloway7804 Oh ok good,how long have you been on Dupixent,any side effects??? My dermatologist had suggested Dupixent to me,I might try it...
@@mercedesbenzs600bash I've been on Dupixent for about 3 1/2 months now. The shots themselves are very painful, and I notice my face still flares, and my eyes need to be cleaned every morning, but I'll take all of that because my body is completely normal now!!! Highly recommend.
I am so sorry for all your pain and suffering, if it’s ok I would like to put you on my prayer 🙏 list and pray 🙏 for you daily ❤
Jeff, what do you think about eosinophils? How eosinophils fit into the overall picture of allergies? Abnormal count in the blood but doctors can figure out what is the cause.
I answered this already when you asked on another video. An overactive immune system can cause eosinophils to be higher, or the eosinophils may be the source of the reaction. " Hey, I also have very high eosinophilic count. Specific treatments for that are Nucala (Mepolizumab) and Fasenra (Benrolizumab) to eliminate eosinophils, which seem to be unimportant to have in the body. I tried Nucala ( czcams.com/video/SobWlQsAtr8/video.html ) but it backfired and actually made my asthma worse, apparently the only case when that’s happened ( czcams.com/video/OKrDq3XEufk/video.html ). Benralizumab theoretically should be safer as it cuts off eosinophils at the source, but I haven’t tried it since I’m only testing Dupixent right now. Or, immunosuppressants will calm down all inflammation and reactions, and you can see if eosinophils are still high when there's no inflammation."
Really good informative video,thank you...
glad it helped!
Have you ever considered doing Wim Hof breathing and cold showers, my allergies seem to be a lot less severe when I do it regularly.
Bonjour Jeff, je suis Français et comme toi asthmatique , eczema et allergies . Je me retrouve beaucoup dans tes vidéos et expliquent bien tous les aspects de la maladie. Bon courage :)
Merci pour votre commentaire! C'est formidable de se connecter avec d'autres personnes atteintes des mêmes maladies.
Wow. I suddenly get allergic to fish and polyester clothes before 3 years. It's so weird. I can understand your position, bad I can't feel it. It must be so difficult to live like this.
Hey, sorry to hear you're developing allergies. Sometimes it's the environment or allergen (like fish or polyester). Other times it's your body's immune system changing as you get older. This is harder to fix.
after 30 over years, I am still very confused by my reactions as well... all that you mentioned e.g. delayed, compounded, etc. then I have those that I only react after a certain amount..... so I stay confused hahahahahhaha
I guess, it really takes years to figure out.
The immune system is much more complex than people think. I’m only slowly able to figure out certain reactions after other major reactions have calmed down a bit so it’s not chaos everywhere. When everything is blowing up, it’s hard to pinpoint each specific source. It’s taken a long long time to build the complex treatments I’m on now that’s finally helping and allowing me to notice the nuance in reactions : czcams.com/video/txNbJdROVuk/video.html
I really admire your spirit. Dupixent has been a miracle regarding my severe excema. (Unfortunately, it does not help my severe allergic contact dermatitis.) But, I too am concerned that I may develop problems.
I recently read there is an oral medicine in clinical trials, by Pfizer, to directly compete with Dupixent. It is a relief that new drugs are in the works. You likely already know this, but just in case you don't...
Anecdotally, nothing helps itching when I do itch. I'm allergic to most all topicals and prednisone. The only thing that remotely works is a cotton swab dipped into a mix (a teaspoon of organic apple cider vinegar and cup of water) and lightly applied to the skin. Yes, it dries out the skin, but the itch is gone and I can put vaseline on later. Best wishes to you.
Hi, thanks! Great to connect on youtube ! How long have you been on Dupixent? I’ve been on it for over 2 years and only just started feeling improvements for allergies and asthma (see this video update: czcams.com/video/OzkmRjI64Ik/video.html ).
I take dozens of other medication. Here’s all the medications I’m using right now. Ask your doctor about these, especially the ones for allergy and LDN ( czcams.com/video/txNbJdROVuk/video.html ).
Yes, I know about the Pfizer JAK inhibitor pill. Dupixent is still 100x safer and more natural way of healing the skin. The JAK inhibitor affects the same eczema “off switch” as dupxient, but it also affects several other “switches” that can cause many more side effects and problems. JAK inhibitors are also known to cause severe gut issues. There have been many other JAK inhibitors already in the market that’s usually used for psoriasis but sometimes helps eczema. A friend of mine on the Pfizer clinical trial completely destroyed her skin and set her back many many years. I think this Pfizer pill is only for basic to moderate eczema. It will not handle severe eczema. Dupixent is by far the safest option right now, but there are new medications based on Dupixent (like V2.0) that are coming in the. Next 5 years that should be better. I would not try the Pfizer pill unless you get anaphylaxis from Dupixent and have no other option.
d.e. books I’m going to try this. I’m desperate. Thankyou
Im☺ not allergic too nothing
You have to try water fast for minimum 30 day. That will heal and clean your body.
Dried Figs and corn I think are my triggers
A skin test will let you know...
You should look into stem cells! I am doing much better after receiving 150 million msc's! It's the future for sure.
Thanks for the suggestion. I have considered it but I cannot survive any type of surgery, including stem cell at the moment. If I get well enough to do that type of surgery, I will review it again.
@@JeffreyLin It's not a surgery, it's only an injection, Like Dupixent. Just google atopic dermatitis and Mesechimal Stem Cells. There are a couple trials that have shown very positive results.The only thing is it's pretty expensive. Like 15 grand.
FreeSky 542 hi can you send me the information to my email! I feel like I’m loosing my life. Can’t touch water, food, odors, noise etc. 😭😭😭😭😭
FreeSky 542 yeah. Like with NO INSURANCE? GOOD FOR YOU
FreeSky 542 RIGHT. Keep it to yourself then.
When you say you didn't eat/couldn't eat at all... what did you do then? I know you don't mean that you literally didn't eat, but what did you do then? What did you eat?
Edit: Nevermind, I see you described it in the description... never heard of an elemental diet.
Can I give you a suggestion.
You have to consult Ayurvedic consultant.
Your cure lies there.