Beyond Celiac Town Hall: Manifestations of Untreated Celiac Disease with Stefano Guandalini, MD
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- čas přidán 8. 09. 2024
- Join Beyond Celiac for a Q&A session with renowned celiac disease expert Dr. Guandalini, professor emeritus at the University of Chicago and the founder of the University of Chicago Celiac Disease Center. Dr. Guandalini’s clinical and research efforts have greatly influenced the way celiac disease is diagnosed and treated today. His work contributed to the revision of 20-year-old guidelines for diagnosing celiac disease.
Dr. Guandalini has been ranked among America’s “Best Doctors” since 2008. In 2012, he received the prestigious title of “Master of Pediatrics” from the Italian Society of Pediatrics. In 2016, he published Textbook of Pediatric Gastroenterology, Hepatology and Nutrition.
Dr. Guandalini is also the medical advisor for Beyond Celiac partner, and sponsor of this Town Hall, imaware™.
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Love that there was so much great info by Dr. G.. I'm one of the tiny percent of people that have not responded to a complete gluten free diet UNTIL I also deleted grains, dairy, & sugar.. After over a year of chronic diarrhea , I am finally getting back to normal.
Me, too. DX 22 yrs ago, still can't do much if any of grains, dairy, & sugar
I cannot express how thankful I am for your channel and your efforts to scale this topic. I'm 52 years of age, and believe that I've had Celiac for 10 to 12 years. The most notable symptom presentation that I had was very slow and very steady weight loss. 4 years ago I started to notice the onset of increasing fatigue. By the time I decided to get tested and start a gluten free diet my fatigue symptoms were in the extreme. I just so happen to have Multiple Sclerosis which was diagnosed in my early 20s. As a result I had developed a narrative self diagnosis to explain the weight loss and the fatigue as multiple sclerosis related. I was also experiencing more and more loss of neurological function. After starting the gluten free diet it no more than 48 hours later that I noticed marked decrease in the symptoms of fatigue. At the end of the week following the start of the gluten free diet I noticed improvements in the area of neurological function: e.g. issues related to balance. I have an annual neuro-function follow up with my neurologist where over the previous 5 years prior to starting the gluten free diet in February of 2022 I had started to fail on two specific neuro-function tests. At my last neuro-function follow up in April of 2022, I had passed these two tests. In summary, I am baffled by the correlating factors of neuro-functionality related to Multiple Sclerosis, and Celiac Disease. My biggest concerns now are complications related to long-term damage of the small intestine prior to receiving my diagnosis of Celiac Disease. I am astounded at just how easy it is to eat gluten free. I was a died-in-the-wool anti-gluten free diet believer prior to starting. The impacts on my physical health and resulting mental health (i.e. positive life outlook) were so dramatic that I have no problem with cravings for going back to the blessed non-gluten free diet. I do miss pizza, philly cheesesteak sandwiches, breakfast toast, McDonald's breakfast sandwiches (english muffin or biscuit), hamburgers, hotdogs, and beer battered cod (i.e. fish & chips) but I wouldn't trade the world, i.e. anything in the previous, for the positive results that I've achieved immediately following the start of a gluten free diet: specifically as it relates to the fatigue. I am deathly afraid of consuming anything non-gluten free as a result of these improvements. I have discovered that Peanut M&Ms are gluten-free, same goes for a plate of nachos, and opting out of the flour tortilla or naan (bread) at a Mexican or Indian food restaurant that you can partake of 90 = 99 percent of the menu items. Again, I cannot express how thankful I am for this channel, your efforts and your organization. PS - the improvements to my overall (general) gastrointestinal health and function have been glorious.
Great information by Stefano Guandalini, thanks for sharing this valuable information!
Really appreciate the great information!!
My grandson has short bowel syndrome and malabsorption,he's 17 now and is suffering from depression dysphagia low vitamin counts,should he be checked for celiac
my 55 yr old husband health issues started 6 months after he was treated for food poisoning,could that have set off his celiac and pancreatic issues
Another question, my husband has just been diagnosed with celiac hes 55,he also has a inflamed pancreas and has 2 pancreatic attacks,now he has severe fatigue, depression bloating??any ideas what we should do
Mediterranean diets have lots of red meat. Spanish, Italian, Greeks, etc, they all eat a lot of red meat and animal products.
They all have red meat, but I’m going to disagree with “lots”
I have HLA DQA1:05 and I have Celiac Disease......please explain that?
What about people with a Marsh 3c diagnosis with zero antibodies?
Where can i find information about rice and corn is it permitted for celiac disease?
Rice and corn are gluten-free and safe for those with celiac! You can also check out our website, beyondceliac.org, for information.
@@BeyondCeliac thanks for your response, I will check the link also 😊