Long COVID survivor discusses her long journey to recover from COVID-19 thanks to a USC recovery cli
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- čas přidán 11. 09. 2024
- Morgan Stephens, a USC graduate on the verge of beginning her dream journalism job, suddenly had her career derailed when she came down with COVID-19 in late 2020. Jasmine Viel spoke with both Stephens and her former professor at USC, Dr. Caitlin McAuley, on the COVID recovery clinic at her alma mater and how it saved her life.
Ive had this for 17 months now. The first 5 months were the worst thing I think a human can possibly go through. I had auditory hallucinations, a feeling of impending doom or extreme fear for no reason, The brain fog was so bad I couldn't drive a car, I also would vomit 3-4 days a week. It can me an allergy to basically every food. The fatigue was so intense that I basically would have to lay down after walking down the street. I pushed through and im at the end of this hopefully. The last few weeks I started feeling like myself again. Anyone who gets this understand the mental anguish it creates. Its not a normal flu. The panic attacks, depressive episodes, severe anxiety, sensitive nerves, and the heart rate stuff is terrifying. Look back at how I was about a year ago, I don't know if I could possibly handle that again. You can physically feel death on your finger tip. It has changed me mentally though for the better. I no longer need material goods, I no longer need to be satisfied by drinking or going out with friend to make me happy. True happiness is being able to wake up without suffering with your health. " A healthy man wants 1000 things, a sick man only wants one"
yeah im 4 months post covid dealing with a plethora of health issues. Problem is nobody wants to treat you when your tests come back "normal".
You’re in the heart of it 🥺 my labs were normal ironically until things started to get better, now my labs are all over the place. I hope you have support ❤️
@@BIEN.XINGONA - what symptoms did you have? How far along are you? Are you feeling better? I’m 5 months in and it’s getting worse. I have fever, headaches, flue like symptoms, brainfog, dizziness, sore throat, burning throat, burning mouth, burning tounge, burning nose, inflamed sinuses, heart palpitations. And so many other things 😢
@@camilla3996 how is all of the symptoms doing now?
@@falynnarnold2279 - it’s basically still the same. Some days are a bit better and the fever is not coming on a daily basis at the moment. But I have the flu like symptoms and my burning mouth/tounge/throat/nose is killing me! 😢 My mouth is totally raw. Inflamed with blisters and sores as well. The inflammation in my nose and sinuses is really bad and most days it’s really hard to breathe. My heart is not racing as much as before 🙏🏻 but my breathing is really heavy most days.
Do you have similar problems?
How are you now??
I just past the 5 month with LC. I have severe muscle loss, inflamation in my tendons, ligaments, joints. I take supplement GF-9 growth hormone stimulant. It helped me alot, greatly reduced inflamation. I went from 170 to 135 lbs in 3 months and now back up to 153. I have a war still raging inside but pain levels are way down. Still get fatigued at times. People want to help but they are typically clueless to what's going on.
I wish you recovery, my sister. I completed a year after my injury and got better, thank God, but the symptoms still come and go. Do you have joint or leg pain or coldness in the extremities?
@@sehamsaud786 I have noticed improvements, I am getting better, slowly. I hope you recover fully. I still get numb like tingling and some Edema in left ankle. All my symptoms are slowly improving, I'm grateful!!!
Hello OC，how are you now?
@Gary Geng I'm slowly improving. Hyperbaric Oxygen Therapy is helping. I bought a unit cost 8k, best purchase ever. You can pay for individual sessions at some wellness clinic. I plan on letting others use my chamber.
How are you doing ? Have noticed anything else that helped. I feel like im dying ...I can't take care of my kids I'm terrified😢
She should sue the hospital for not providing her with the proper medications.
There is no proper medication for long covid in existence as of now.
Long covid since March 2020. Mine is 20 percent right-side weakness. I walk 5 miles a day and doing better. Look into research on night histamine and night gut health. Also b vitamins for neuropathy and c foods for skervy. I also take cold ease as daily vitamin. Research benefits of zinc
🙏🏽
Totally worthless interview. No info on what they did.
Cause they they don't do anything lol. Its PT pacing and time . I went to go see this doc and was a useless appointment. No new alternative therapies for long C
It is the post exertional malaise for me. Anything that involves any type of exertion makes me crash. It’s horrific. 7 months post Covid infection. I felt like I was getting better last month and now I am back to feeling like crap. Hopeless:/
Hyperbaric oxygen therapy is helping me greatly
What does a crash look like?
@@MI-qj6xrI think it’s different for everyone because my friend and I have different symptoms from a crash. Mine is severe fatigue, muscle weakness, I feel like I just want to be in bed all day. No amount of rest, food, hydration, takes care of it. It just needs days to resolve. Any type of exertion gets me back into the same crash mode. It’s horrible. Thankfully, I am one year and one month in, no more crashes. Just minor symptoms left. Definitely almost fully recovered.
@@MK-gy1ugjust want to let you know your sharing means a lot to me. I have LC since May this year and the PEM is the most deliberating esp since I was physically active before. Its good to hear that full recovery is possible.
@@arvinclokSorry to hear this! I was very active before too, Then I got this crazy Covid! You will get better. Take one day as it comes. Pace slowly. I’m still not a 100% But definitely getting better. I am now speed walking Almost 2 miles literally every single day. I still have my moments. Last week, I thought I was 100% cured for many days .. this week It’s kind of back but at a new baseline. I can push through the fatigue where as months ago I could not. I’m looking at my recovery monthly instead of day by day. Every month I am improving 1-2%. You will too! Hang in there it will get better!❤
I'm still suffering from weakness, fatigue and brain fog nearly 2 years on. It comes and goes, some days I feel better, then I crash..
That’s me… Don you feel lightheaded and dizzy? It’s not vertigo, but like being tipsy!
14 months long Covid- dyspnea with any activity, fatigue and GI problems- no end in sight
Hyperbaric oxygen therapy is really helping me!!!
How are you now?Lola.
Lola, sorry for what you are going through, hang in there. The hyperbaric oxygen therapy is helping alot. It's repairing the damaged tissues, they use it for burn victims and a host of other issues. It's expensive but I paid for 7 sessions at 125 a pop before I bought one, best purchase I ever made. There's still a war going on inside me but I'm heading in the right direction.
@@ocdave4549 How are you now?
36 years old male, and i am ill over a year. I am living hell. And it isn't about the respiratory system. Before covid i had gi issues like ibs flatulence etc.. but i could live with them. After covid it is like my GI problems started to have their own neurological problems. Involuntarily swallowing (!) started. My tongue and jaw started to loosen. It is unseen. I felt like there was a tremor and tension through my throat-esophagus track. After losing 15 pounds, 3-4 weeks later i got little better and gained my appetite, but then i spit light red blood with stomachache and throatache. I did endoscopy immediately but they didn't find anything. Then everything got worse. I lost my appetite for good over a year. I am experiencing a worsening throatache that no ENT professors can detect with camera. I have examined by over 60 professors. Gastroenterologists, ENT Professors, Neurologists etc.. i did blood tests, endoscopies, colonoscopy, CTs, MRs even EMGs. Throat pain is killing me. Loss of appetite, fatigue.. these are also challenging. I have other symptoms but i dont know how can i bare this throat pain. Gabapentine isn't working. Diclofenac isn't working. They can not tell any reason other than long covid.
Have you taken or took Probiotics?
You you have issues riding in a moving vehicle?
Have you taken Anxiety or Antidepressants? ( I am not saying you should)
Did you get your Cortisol levels check?
Do you have Brain Fog?
Do antihistamines help with your symptoms?
@@denowilliams4381 i took probiotics. But they didn't help. I don't have any problem with driving or using any vehicle. My psychiatrist prescribed 4 different antidepressant in 3-4 months. None of them helped me with the constant pain in throat. Only then my psychiatrist accepted that the cause of pain and other symptoms like the tension-tremor in throat-esophageal track "may not be" psychological. In my blood stool my cortisol level and my histamin level are ok. I don't experience so much cognitive disorders or brain fog. But one week after i got infected i had trouble to watch tv. I don't know how to describe that feeling. It can be hard to follow up the image on tv. It is like a minor visual paralysis. But i experience this so rarely. Unexplained throat pain is very tiring. I wish they could measure the pain. But they don't even know that it exists.
@Dermot Fitzpatrick thank you but it is not that easy. At least for some of us it is not even close to solution. First of all the study you mentioned is: Plasma cytokine levels reveal deficiencies in IL-8 and gamma interferon in Long-COVID right? This study includes only 12 long covid patients! When you say "%100 of long covid patients" you are just talking about 12 people! Some of the long covid patients have normal IL-8 and gammainterferon level. For example my IL-8 is 4.03 pg/mL and it should be under 13.87 pg/mL. And my INF-gamma is 2.95 pg/mL and it should be under 8.41 pg/mL. According to incelldx i am in range. And about cortisol, when i take corticosteroid like methylprednisolone it helps me with my diarrhea and gagging. It only helps me with these two symptoms. It doesn't help me with my main symptoms like unidentified throat pain, tremor and fatigue etc. So you don't even have clue for some of us.
@Dermot Fitzpatrick as i typed it is not the solution for my symptoms. It can be helpful for some patients but not for me. They can not even explain my chronic pain.
@Dermot Fitzpatrick i used antibiotics for that. It is not main problem. I appreciate your help if you aren't a troll. But i want to know what you were assuming when i typed "i have been examined by 60 professors." This is not an easy phenomenon. You can not solve this by over the counter med advice. Some people are ending their life for crying out loud. How many people want to end their life becuse of hpylori?! Dr. Akiko iwasaki says: "There is urgency to understanding this disease because there are people suffering so much so that they are contemplating of taking their own lives to end the misery. If we can stop one more person from such an act of desperation, I think we would have done our job. So, every day, every minute counts. And I understand that, and that’s part of the reason I don’t get much sleep." This is the professor who knows the complexity of this problem. So please just try to understand and don't insult sufferer's mind.
What are they injecting in the neck and shoulder?
I would like to know what is it that are injecting her with.
Stellate ganglion block
@@Rebelconformist82 That doesn't look like the procedure
@@denowilliams4381 in that case no idea
@@denowilliams4381 Could be botox or something similar. Sometimes that's used for migraines
Did anyone hear how long she had LC for before she recovered??
i also have long covid but i didnt know it could be so bad
it's the headache for me 😢
Do u still have headaches
🙏🏽
@@joseluistorres5785 a little not too bad the dizziness yes I am on Allegra for the headache nothing for the dizziness I need to make a appointment the dizziness comes when I am sitting then I get up I stop driving
I just got long Covid. And have dizziness. Will I ever be a lifeguard and swim teacher again😢.
Woah that's so awesome she is healing!
It's Back...
Bruh, i got this crap and its no joke
How are you now??
@@benmahoney777 crap. Some things have passed but overall not good
@@puremaledark8305 How long did it take? I'm almost 8 weeks in and still have symptoms. Still extremely fatigued I lie mostly in bed. Can't do anything but eat and go to the toilet. Generally the fatigue got better and the general flu like feeling disappeared. But I'm quite desperate. No treatments available. How long did it take until you could at least do some daily tasks again?
@@EbonyPope How are you feeling now? Any better from the fatigue?
@@HCK_Cat_ Yes I was much better a few days ago. But I'm in a psychiatric hospital at the moment and they wanted to try to improve my mood with antidepressants. I was feeling good but since I wouldn't be able to stay here if I declined treatment I took it. I immediately was bedridden again hardly could get up. Had the worst side-effects ever. The drug is called Sertralin here in Germany is an SSRI. I stopped taking it immediately but still don't feel as well I felt before. They say this couldn't possibly be from the medication side it was the lowest dose possible (25 mg) and the drug leaves the body after 48 hours. But 4 days later I still feel very stange. I really hope it's not from the drug. But who knows. Long COVID is a new illness. I at least had no fatigue just was out of breath very quickly before I took the antidepressants. I really regret it. I hope I didn't delay my recovery by weeks or months again. I'm crying. I felt so good for a few days.
COVID is a wave 🌊🌊🌊
Same on 2nd long covid
wtf did they do ?
Looks like Ganglion block?!?!
I had COVID for a year short of breath had to self medicated ginger lemon honey n garlic boil all then drink most days also good methamphetamine works for shortness of breath believe it does so far have not had shortness of breath or fatigue
She looks fine to me now
Thanks Doc
She is not fine, no one with long Covid is fine you ignorant child