Webinar: Supporting learning and development in children with NF1

About the webinar:
Presented by Natalie Pride, one of Australia’s leading NF neuropsychologists and Head of NF1 Learning Clinic at Children’s Hospital Westmead.
This webinar focusses on the developmental, cognitive and social-emotional challenges that some children with NF1 face, aiming to provide a comprehensive understanding of how to support children with NF1 in their learning and development.
It explores neuro-developmental disorders (NDD) that can be associated with NF1, such as ADHD, autism and learning disorders, providing resources and guidelines on ways to support these children. It aims to provide information to parents and carers on navigating the educational system including accessing support at school.
Lastly, it will touch upon ongoing research in NF1, including studies on sleep and clinical trials of interventions.
About the Presenter:
Dr Natalie Pride is a clinical neuropsychologist and researcher with a PhD and Masters in Clinical Neuropsychology. She has over 15 years of clinical and research experience in Neurofibromatosis Type 1.
Dr Prides leads the NF1 Learning Clinic at The Children's Hospital at Westmead and the NF1 neuro-cognitive research team within Kids Neuroscience Centre.
She has published on a range of topics in NF1 characterising the cognitive and social phenotype of NF1 and associated neurobiological differences.
Dr Pride was recently awarded the 2024 Francis S. Collins Scholar Program in Neurofibromatosis Clinical and Translational Research and sits on the international Response Evaluation in Neurofibromatosis and Schwannomatosis (REINS) Neurocognitive Committee which aims to standardise and improve clinical trial outcome measures in NF1.
About the Children's Tumour Foundation of Australia
The Children’s Tumour Foundation is the only patient advocacy and support service for people impacted by neurofibromatosis (NF) in Australia.
Our vision is a life without limitations for everyone living with NF in Australia.
The NF journey from diagnosis to treatment is challenging and most of what
people will experience is unknown. We provide personalised, accessible
support and resources free of charge to every person impacted by NF, while also advocating for change and raising funds to advance promising research.