@Fionn MacCuill I am! My root cause was Very Severe sleep apnoea. Once on CPAP, my issues were resolved. That was late December 2018, and the symptoms reduced over the next year to the point they are essentially gone.
Thank you! My vestibular hypofunction, vestibular migraine, bppv, and eustachian tube dysfunction have completely controlled my life for the last six months people act like I'm just a nutty person and that I just need to get over it.🙄
I know how you feel. My life has been upside down for the last 6 month too, and they just diagnosed the Vestibular migraine, I am loosing my career, lifestyle like exercise and exactly people think I am over-reacting it and am a spoiled person...
M I’ve had it for 6 months now too!!! Been off or work for about 3 1/2 months and running out of time. I haven’t been diagnosed yet! Had many specialists and test. What medication have they given you to help?
I think it's horrible to call this condition a "migraine". Migraine has been mocked and used as a joke in society such as in movies. I have this condition and it's not "bad headache" that everyone thinks first when they hear Migraine. I believe it's a neural malfunction (feedback-loop nature) caused by brain damage, nerve damage or chemical imbalance in the brain. I would classify this condition relating more to epilepsy/seizures. This condition causes all sorts of varying symptoms that come/go by the minute or can last for days/weeks/months/years, they mimic other conditions almost to the "T" and cause havoc on someone. It's not just a headache, I can't stress this enough for people who have never suffered from this. The symptoms range from mild such as slight dizziness/off balance with a dull sensation or pressure in the head to an out-of-body experience that includes depersonalization/derealization. feeling like you have downed a bottle of whisky 24/7 non-stop. Bumping into things because you lose your bearing, sensations of moving in space, confusion, lack of concentration, visual disturbances like flashes of light, blind spots, the noise of a subway train brake screeching in your head 24/7, feeling of impending doom, uncontrollable emotional changes from minute to minute (going from depressed to euphoric in a matter of minutes), blurred vision, double vision. sensitivity to sound and light, experiencing Alice in wonderland through your eyes. rocking feeling like you are on a boat, difficulty sleeping and waking up, feeling like your are beside your body, movement at the edge of your field of view causes dizziness, etc. Calling it a "Migraine" is really downplaying the seriousness and life-changing nature of this illness in my opinion.
@seephor , exactly my thoughts. It’s literally hell. Im going through hell. Everyday 24/7. if it’s not going to go away or improve Im literally ready to take my own life. And i LOVE life. I just simply can not live like this. Feeling like im floating , especially when laying down. Have sensations like im suddenly dropping . Can not live like this. I would do anything even cut my arm if it means it will go away.
@@8QQ8 I feel your pain. I have some new information... I had a blood test a couple weeks ago and my vitamin D was extremely low. I have been taking supplements to boost it and I have noticed an improvement in overall symptoms. I'm still on the Metoprolol (beta blocker) twice daily but my doctor prescribed a new medication for me to try since he tells me that beta blockers long term will cause weight gain and fatigue. He also prescribed me medication that's supposed to stop a migraine when it first starts and he told me to take it as needed. I have to pick up these new meds tomorrow so I'll be experimenting to see how my symptoms react. Just a side note. regular sleep is extremely important for people like us. If I miss a few hours a sleep for a day, my symptoms are 10x worse. I suggest you get a blood test to make sure you are not lacking any vitamins like I was. Believe it or not, the vitamin D I've been taking for the past two weeks has improved my headaches and ringing in the head. Let me know what happens. I'll update you on the new meds I've been asked to try.
Misha Eli it can get better! Look for the group called Migraine Strong on Facebook. It helped me a lot and I got my life back. Currently experiencing a slight relapse after a bad reaction to an antibiotic but I know it will get better again!
@Brittany Sanchez , did you take any meds to get better? I hope you are right and I will be better soon too! I don’t have facebook (only messenger) so I can’t look up that page unfortunately😕
@Dark Dream , so you are not feeling these shitty symptoms 24/7 anymore? Or it was never 24/7? Coz I feel this “dizziness” all non stop. Im on a pill too. Its a migraine preventative . I hope it will help me too. I have more or less the same sensations/symptoms you wrote. Its crazy. And driving me nuts. 😣
Finally I think I have an answer to my dizziness. My ENT was the first person to suggest that I may have VM. Now I am educating myself on this disease. Thank you for this information.
11:58 this makes so much sense!!! I visited a friend that was a sailor on an aircraft carrier. All the sailors were laughing because I kept saying I could feel the ship rocking. They were like no you can’t. We’re docked. I kept saying, “yes, but it’s still in water, and I can feel this dang boat rocking and swaying. It’s very subtle, but I can feel it.” I kept holding on when it would shift the other way. They thought I was crazy but I knew what I felt 🤷🏽♀️ now I know why 😂😂 I was so happy when we got off the ship.
Very enlightening presentation. I’ve been going through all the symptoms mentioned since May and have been to different specialist, to include a neurologist and Otolaryngologist. No one had mentioned anything about vestibular migraine. Been diagnosed with Vestibular neuritis, chronic migraine, and lately trigeminal neuralgia, but not this. Still have some balance issue/dizziness, head vibration, ear pain/pressure, and all of the diagnostic test were normal. Felt very frustrated. Hearing this made a lot of sense. Thank you very much!!
Do u feel better? And the dizziness was 24/7? Spinning or more like “im on a boat rocking” kind of sensation? Im trying to find out if I’ve got vestibular migraine or something else.😕
This is such good information exactly what I've been saying for years I can handle the pain it's the falling on my face and continually being dizzy and off balance that I can't handle! Thank you Dr Teixido and you tube for your discussions and speeches!!
This is spot on . I’ve had vestibular migraines for two years now. It seems it started when I entered menopause . I was extremely dizzy for about 4-6 months but started getting better after being put on a drug called Propranolol. I still get very dizzy just before a bowel movement. None of the doctors I’ve spoken to can explain it. I’m still chronically dizzy but not as bed as it was in the beginning. I suffered from regular migraines with headaches since my teenage years. It later changed to ocular auras with very little or next to no headaches. Two years after I had my hysterectomy I got these vestibular migraines and I haven’t been myself ever since. It’s debilitating and I’m always in fear I will get dizzy especially if needing to go to the bathroom. Going down the isles in the grocery stores is pure hell. I have to stop numerous times and go slowly. Sometimes I just cover my eyes for a few seconds to give my brain a chance to clear itself. I wish there was some sort of medication that could cure this condition. I feel this is staying with me for life.
@@mohammedalbraik9941 moi don’t get head pressure, but when this hole thing started I felt like something was pulling my head to the side almost like a magnet pulling me to one side. I had many symptoms and over time they stabilized and died down. My dizziness is worst when I need to go to the bathroom #2. At times my legs feel very heavy like someone is hanging off of me pulling me down. It’s almost a dropping feeling or like walking thru water. I feel like I’m imbalanced or constantly on a boat or moving dock. I’ve noticed it’s definitely tied to what my intestinal movements are up to.
I actually feel pressure both in my sinuses and ear I have vestibular migraine. After many years of dealing with sinus issues I finally got an answer as to what the problem really was.
Me too! After seeing countless doctors that look at me like I’m a hypochondriac or depressed this is the first time I’ve heard anything that hits the nail on the head! I’ve had sinus and ear issues all of my life and never associated them with migraine. I’ve told doctors about the pressure in my sinus and ear and they look at me like I’m crazy. I wish more physicians were aware of this!
I awoke with vertigo after 4 days with a cervical migraine for which I was treating with Imitrex. Diagnosed w/ BPPV, Vestibular physical therapy corrected the vertigo but I continued to have vestibular hypofunction for 4 months. Now I have dizziness with head movement and occasional neck pain. Thank you for the explanation of why I had both BPPV and VM. I'm 56, female with history of whiplash injury.
Wow! This is me! I'm still going through some more testing, but my dr thinks this is what I have. I don't have an awful lot of pain anymore, just so much pressure. I'm so happy to learn that there is treatment.
@@AarronnBlade , I still have it, but not as bad as I used to. I found out that I have a lot of other issues, sleep apnea for one and very low dopamine, serotonin, and GABA. Dr think I will feel much better once I'm on the cpap, but of course, everything takes forever.
Thank you, this is excellent. Wow! It's a good thing I have good support because lately I understand why someone wouldn't want to go on. I've been here lately.
Wonderful info, going for an appt. tomorrow. Long time vertigo patient, recently possible diagnosis of vestibular migraine. Working on the food list and other things!
Good one, I've had my brain and auditory meatus scan today because of all the symptoms you had explained. I pray I should get a couple of good doctors.
Ok, he just explained something I’ve felt MANY times and never knew how to explain it. I thought it was “all in my head” and didn’t want people to think I was crazy, so I never told anyone. Alice in wonderland syndrome. Wow! It’s nice to know I’m not crazy!! Thank you!! 😭😭
And where can we go to get real care from a doctor for this? And not doctors that say this is all anxiety. I cannot find a doctor to take my condition seriously. Its exhausting.
What about persistent postural perceptual dizziness (pppd)? VM and PPPD also have almost identical symptoms. How are they differentiated diagnostically?
Medical professionals in the UK namely the NHS "what you're dizzy, off balance, lightheaded, bobbing, being pulled to one side, walking on a mattress etc etc etc" yes "we don't have a clue........ Its far to complicated for us because it isn't something that can be detected via a blood test or blood pressure machine so....... Goodbye" This is all after waiting a minimum of six months to see an ENT consultant, a year in most areas for Neurology who when you do see you get what?........ Maybe ten minutes and as for seeing a Neuro-otologists not a chance!
Matt Round have you tried the cawthorne cooksley exercises , religiously each morning and evening for 2 weeks? Maybe it will help. Pray to Jesus too. He won’t let you down.
I was diagnosed with FND and chiari malformation in 2019 the latter they denied being an issue. My symptoms are and were classic vestibular migraines and dysfunction. My historical evidence of TBI's were ignored. ENT ignored a heavy concussion affecting ear and sensory functions they I explained changed the equilibrium in my body to which falls later caused the now present and relentless vestibular debilitating symptoms. im controlled by the weather. NHS gaslighted me very blatantly which is very sad as this form of dismissing patients causes research to stagnate. I think CSF gets very overlooked but hopefully great talks such as this will aid progression in a positive and swift direction.
Had fatigue for over 2 years which causes the dissequilibrium and gait issues.... list goes on. Thank you for this incredible talk. I will ask my GP for a referral to the ENT hospital here in London. Coronavirus is obstructing referrals at the moment.
Can vestibular migraines cause a person to feel like the ground is vibrating? I've experienced this for 7+months...My husband can't feel any vibrations. It's worse at our house than other locations. I didn't feel the vibrations everywhere Initially;;; I thought they were coming from an external source. But more recently I've also been experiencing a rocking feeling and as well as a rocking sensation, stuffy ears, roaring tinnitus and believe that I have some kind of an ear problem. I saw an ENT last week and he is diagnosing me through the process of elimination. I had migraines for 10 years, debilitating ones, but they went away. Then I got vertigo, diagnosed as BPPV. That lasted 3 decades and went away. Now I have the symptoms I mentioned above which are far more debilitating than anything to date. The roaring noise in my ear and the vibrations which are constant are driving me crazy.
Being near the opposite coast, closer to Reno, NV I will see if I could find an ENT there. I am 77 with a history of migraines and vertigo. They went away completely for about 6 months. But now are back. My mom had migraines too for years before she died of a stroke at 49 yrs old,. Which is something I worry will happen to me.. Now I do have sensitivity in my right ear at times. . I have extreme dizziness, feeling like I will pass out. I do not have vertigo Not like it used to be. I did have balance problems. I also get them with thunderstorms. I will be having a treadmill test in a few weeks. My blood pressure now is 138/78 but it used to be 90's/60's.
Dr. I have fullness and pressure in my head everyday and also ear symptoms ETD and tinnitus and flickering light on my side on the side of my vision when going into a darker space. but I dont get more dizzy with head turns. My dizziness is more floaty and visual and brain fog and neck stiffness at the base of my neck. Is it possible for me to have VM even though the dizziness does not get worse with head movement? This all started with a headache 3 months ago.. and now head pressure and dizziness every day. No history of headaches but my mom had motion sickness. My x ray say c1 c2 is fine. Brain Mri was fine , bood also fine. Looking forward to your reply.
Has any of these doctors connected vestibular migraines to a histamine intolerance through a leaky gut because we lack sufficient amounts of l-glutamine yet?
Yes but also understand cranial nerves (vagus especially) and concussions and neck trauma. Thoughts are powerful but we also are human beings experiencing being in a body that is experiencing more than just thoughts.
What about having the “spinning” sensation as if you’re on a centrifuge during sleep paralysis along with visual disturbances of inverted, tilted vision or complete blindness
It lasts a good few seconds and it slowly subsides I lay down to sleep and may or may not have s brief dream then I’m suddenly aware of being in my bed and I’m paralyzed then the spinning slowly starts up gets SUPER fast for 5-10 seconds then it slowly stops the paralysis continues I’ve had audio hallucinations that sound electrical in nature and if I DARE open my eyes my vision will either be distorted or inverted occasionally I’m blind even when I feel my eyes open (I sleep with a tv on and light comes through my window it’s not me sleeping in darkness) and after awhile if I don’t get repeated paralysis attacks one after another it only lasts a few minutes when it happens repeatedly it can last for half an hour I’m fine on rides my brain is normal my sleep study came back normal even though it didn’t happen during it 😒 and I’ve NEVER had a seizure as far as I know even though I’ve also had uncontrolled head jerking and facial twitching during some of these episodes and my neurologist doesn’t even really believe me and said it’s “parasomnias” Sleep depravation is a main trigger for this
Elizabeth I have experienced this and I hugely sympathise as it's terrifying. It wasn't until years later I realised that it must be related to my chronic migraines.
i want to cry, i feel like this very similar to my experience. How do i find a doctor who knows about this? I’ve been so specialists in Boston since i was 16 and now i am 32 and no one seems to be able to help me.
Try to get referred to Dr. Teixido who is located in northern Delaware. Some patients fly from other continents to see him. I travel 4 hours and have treated with him 3 times since May. Progress is being made when after 2 years I felt there was no hope. Best to you!
SeeSawAway I feel the same way. 13 doctors later no one can still put a finger on it and find a cure . I get very dizzy with bowel movements to the point I feel like I’m just gonna pass out but I never do. I wish I could find a specialist doctor in vestibular migraines but don’t know where to look for one. I live just north of Boston so if anyone can recommend a vestibular specialist plz let me know.
@@lanagacinovic7622 Lana, there is hope if you find the right specialist. For 26 years I have suffered with vertigo when triggered in 5 or 6 different scenarios. I call it vertigo but it was more severe than that, to the point of saying it was like my brain was shimmering. My most recent symptoms of the past 2 years had added 24/7 non-stop tinnitus. Since seeing Dr. Teixido since May, not one time have I had vertigo even in some of the triggered scenarios which caused it 100% of the time. My tinnitus while still with me is beginning to diminish. Research your area or try seeking an appointment with Dr. Teixido. It will be worth your trip. I am 250 miles from him and others fly from as far as 14 hours away. God bless you Lana and inspire you with hope.
What VM are ... they are NOT just a Vestibular migraine they are more like a STROKE ! That you must live through on a daily basis! And try to live some sort of quality of life somehow.... it’s super fucked.
The doctor is putting into words how I exactly feel. Finally, someone understands how it feels.
WOW. Probably the first time I've heard someone talk about the disorder I have with clarity and thoroughness.
@Fionn MacCuill I am! My root cause was Very Severe sleep apnoea. Once on CPAP, my issues were resolved. That was late December 2018, and the symptoms reduced over the next year to the point they are essentially gone.
Very Informative Video, Sometimes I struggle with telling people how I feel and how strange these feelings can be sometimes.
Thank you for allowing this to be posted on CZcams!
I agree. I really needed my family to hear this too.
Thank you! My vestibular hypofunction, vestibular migraine, bppv, and eustachian tube dysfunction have completely controlled my life for the last six months people act like I'm just a nutty person and that I just need to get over it.🙄
Wouldn’t you love to just get over it. It’s more debilitating than pain and so hard to control.
Lindsay Loo it’s been 1 year still on bed don’t know migraine or meniers ENt specialist confused
I know how you feel. My life has been upside down for the last 6 month too, and they just diagnosed the Vestibular migraine, I am loosing my career, lifestyle like exercise and exactly people think I am over-reacting it and am a spoiled person...
M I’ve had it for 6 months now too!!! Been off or work for about 3 1/2 months and running out of time. I haven’t been diagnosed yet! Had many specialists and test. What medication have they given you to help?
I also have Eustachian tube disfunción and have vestibular migraine. I pray that it doesn’t destroy my life. I wish I could speak to you for support.
I think it's horrible to call this condition a "migraine". Migraine has been mocked and used as a joke in society such as in movies. I have this condition and it's not "bad headache" that everyone thinks first when they hear Migraine. I believe it's a neural malfunction (feedback-loop nature) caused by brain damage, nerve damage or chemical imbalance in the brain. I would classify this condition relating more to epilepsy/seizures. This condition causes all sorts of varying symptoms that come/go by the minute or can last for days/weeks/months/years, they mimic other conditions almost to the "T" and cause havoc on someone. It's not just a headache, I can't stress this enough for people who have never suffered from this. The symptoms range from mild such as slight dizziness/off balance with a dull sensation or pressure in the head to an out-of-body experience that includes depersonalization/derealization. feeling like you have downed a bottle of whisky 24/7 non-stop. Bumping into things because you lose your bearing, sensations of moving in space, confusion, lack of concentration, visual disturbances like flashes of light, blind spots, the noise of a subway train brake screeching in your head 24/7, feeling of impending doom, uncontrollable emotional changes from minute to minute (going from depressed to euphoric in a matter of minutes), blurred vision, double vision. sensitivity to sound and light, experiencing Alice in wonderland through your eyes. rocking feeling like you are on a boat, difficulty sleeping and waking up, feeling like your are beside your body, movement at the edge of your field of view causes dizziness, etc. Calling it a "Migraine" is really downplaying the seriousness and life-changing nature of this illness in my opinion.
@seephor , exactly my thoughts. It’s literally hell. Im going through hell. Everyday 24/7. if it’s not going to go away or improve Im literally ready to take my own life. And i LOVE life. I just simply can not live like this. Feeling like im floating , especially when laying down. Have sensations like im suddenly dropping . Can not live like this. I would do anything even cut my arm if it means it will go away.
@@8QQ8 I feel your pain. I have some new information... I had a blood test a couple weeks ago and my vitamin D was extremely low. I have been taking supplements to boost it and I have noticed an improvement in overall symptoms. I'm still on the Metoprolol (beta blocker) twice daily but my doctor prescribed a new medication for me to try since he tells me that beta blockers long term will cause weight gain and fatigue. He also prescribed me medication that's supposed to stop a migraine when it first starts and he told me to take it as needed. I have to pick up these new meds tomorrow so I'll be experimenting to see how my symptoms react. Just a side note. regular sleep is extremely important for people like us. If I miss a few hours a sleep for a day, my symptoms are 10x worse. I suggest you get a blood test to make sure you are not lacking any vitamins like I was. Believe it or not, the vitamin D I've been taking for the past two weeks has improved my headaches and ringing in the head. Let me know what happens. I'll update you on the new meds I've been asked to try.
Misha Eli it can get better! Look for the group called Migraine Strong on Facebook. It helped me a lot and I got my life back. Currently experiencing a slight relapse after a bad reaction to an antibiotic but I know it will get better again!
@Brittany Sanchez , did you take any meds to get better? I hope you are right and I will be better soon too! I don’t have facebook (only messenger) so I can’t look up that page unfortunately😕
@Dark Dream , so you are not feeling these shitty symptoms 24/7 anymore? Or it was never 24/7? Coz I feel this “dizziness” all non stop.
Im on a pill too. Its a migraine preventative . I hope it will help me too. I have more or less the same sensations/symptoms you wrote. Its crazy. And driving me nuts. 😣
This was the best presentation at the migraine summit, thank you!!
Finally I think I have an answer to my dizziness. My ENT was the first person to suggest that I may have VM. Now I am educating myself on this disease. Thank you for this information.
Showed this to my wife and it greatly helped me to explain my experience with having vestibular migraine
Excellent Presentation. It have change my approach to migraines.
This is a wealth of information. Just diagnosed after having intermittent classic migraines since age 12. Starting on nortriptyline first.
I have a son 12 . Do you have any recommendations for what medications helped you at a young age.
Great explanation Dr. Teixido! This information makes me understand more almost every symptom that my wife refers daily
11:58 this makes so much sense!!! I visited a friend that was a sailor on an aircraft carrier. All the sailors were laughing because I kept saying I could feel the ship rocking. They were like no you can’t. We’re docked. I kept saying, “yes, but it’s still in water, and I can feel this dang boat rocking and swaying. It’s very subtle, but I can feel it.” I kept holding on when it would shift the other way. They thought I was crazy but I knew what I felt 🤷🏽♀️ now I know why 😂😂 I was so happy when we got off the ship.
Very enlightening presentation. I’ve been going through all the symptoms mentioned since May and have been to different specialist, to include a neurologist and Otolaryngologist. No one had mentioned anything about vestibular migraine. Been diagnosed with Vestibular neuritis, chronic migraine, and lately trigeminal neuralgia, but not this. Still have some balance issue/dizziness, head vibration, ear pain/pressure, and all of the diagnostic test were normal. Felt very frustrated. Hearing this made a lot of sense. Thank you very much!!
Do u feel better? And the dizziness was 24/7? Spinning or more like “im on a boat rocking” kind of sensation? Im trying to find out if I’ve got vestibular migraine or something else.😕
Misha Eli it can be many types of dizziness. Look for the group Migraine Strong on Facebook! 😊
I can’t tell you how please I am for this post. Thank you so much for reassuring me!!!
This is such good information exactly what I've been saying for years I can handle the pain it's the falling on my face and continually being dizzy and off balance that I can't handle! Thank you Dr Teixido and you tube for your discussions and speeches!!
Wonderful discussion. Thank you so much!
This is spot on . I’ve had vestibular migraines for two years now. It seems it started when I entered menopause . I was extremely dizzy for about 4-6 months but started getting better after being put on a drug called Propranolol. I still get very dizzy just before a bowel movement. None of the doctors I’ve spoken to can explain it. I’m still chronically dizzy but not as bed as it was in the beginning. I suffered from regular migraines with headaches since my teenage years. It later changed to ocular auras with very little or next to no headaches. Two years after I had my hysterectomy I got these vestibular migraines and I haven’t been myself ever since. It’s debilitating and I’m always in fear I will get dizzy especially if needing to go to the bathroom. Going down the isles in the grocery stores is pure hell. I have to stop numerous times and go slowly. Sometimes I just cover my eyes for a few seconds to give my brain a chance to clear itself. I wish there was some sort of medication that could cure this condition. I feel this is staying with me for life.
Hi, hope u r doing well ! Just wanted to ask u, do u get head side pressure and dizziness? And on what dose of med did it work for u ? Thanks a lot
@@mohammedalbraik9941 moi don’t get head pressure, but when this hole thing started I felt like something was pulling my head to the side almost like a magnet pulling me to one side. I had many symptoms and over time they stabilized and died down. My dizziness is worst when I need to go to the bathroom #2. At times my legs feel very heavy like someone is hanging off of me pulling me down. It’s almost a dropping feeling or like walking thru water. I feel like I’m imbalanced or constantly on a boat or moving dock. I’ve noticed it’s definitely tied to what my intestinal movements are up to.
Same bro
Can I contact u??
I began with “regular” migraines, then started having aura with headache, then just aura no headache, now VM
Yep that’s me 8 years , constantly unbalanced , chronic . Thanks for this 🤍
Wow how accurate I have Ménière’s disease
And migraines for the last 10 yrs this also affects my stomach too. Great Dr obviously knows his research!
I saw ENT today and he believes it is VM. I’ve had IBS a few months now off and on, wondering if there’s a connection
I actually feel pressure both in my sinuses and ear I have vestibular migraine. After many years of dealing with sinus issues I finally got an answer as to what the problem really was.
Me too! After seeing countless doctors that look at me like I’m a hypochondriac or depressed this is the first time I’ve heard anything that hits the nail on the head! I’ve had sinus and ear issues all of my life and never associated them with migraine. I’ve told doctors about the pressure in my sinus and ear and they look at me like I’m crazy. I wish more physicians were aware of this!
I awoke with vertigo after 4 days with a cervical migraine for which I was treating with Imitrex. Diagnosed w/ BPPV, Vestibular physical therapy corrected the vertigo but I continued to have vestibular hypofunction for 4 months. Now I have dizziness with head movement and occasional neck pain. Thank you for the explanation of why I had both BPPV and VM. I'm 56, female with history of whiplash injury.
Wow! This is me! I'm still going through some more testing, but my dr thinks this is what I have. I don't have an awful lot of pain anymore, just so much pressure. I'm so happy to learn that there is treatment.
Hi, when you say ‘pressure’ is that head pressure? I have vestibular migraine and have recently experienced a lot of head pressure (no pain), too.
@@hmmob3956 Head and ear pressure.
@@janmartell9792 Thank you.
@@janmartell9792 how do you get rid of the head pressure
@@AarronnBlade , I still have it, but not as bad as I used to. I found out that I have a lot of other issues, sleep apnea for one and very low dopamine, serotonin, and GABA. Dr think I will feel much better once I'm on the cpap, but of course, everything takes forever.
Thank you, this is excellent. Wow! It's a good thing I have good support because lately I understand why someone wouldn't want to go on. I've been here lately.
This has helped me so much. Dr Michael is a true expert.
This is really great information. Thank you for posting this!
Probably the best talk on vestibular migraine.
Thank you Dr. Teixido for this info. You described exactly what I experience.
Wonderful info, going for an appt. tomorrow. Long time vertigo patient, recently possible diagnosis of vestibular migraine. Working on the food list and other things!
Good one, I've had my brain and auditory meatus scan today because of all the symptoms you had explained. I pray I should get a couple of good doctors.
Ok, he just explained something I’ve felt MANY times and never knew how to explain it. I thought it was “all in my head” and didn’t want people to think I was crazy, so I never told anyone. Alice in wonderland syndrome. Wow! It’s nice to know I’m not crazy!! Thank you!! 😭😭
OMG! This is ME!!!!!
As I listen, you are describing me. Migraines are now back and I’m panicking a bit
Same here I thought I was going crazy
And where can we go to get real care from a doctor for this? And not doctors that say this is all anxiety. I cannot find a doctor to take my condition seriously. Its exhausting.
What about persistent postural perceptual dizziness (pppd)? VM and PPPD also have almost identical symptoms. How are they differentiated diagnostically?
Medical professionals in the UK namely the NHS "what you're dizzy, off balance, lightheaded, bobbing, being pulled to one side, walking on a mattress etc etc etc" yes "we don't have a clue........ Its far to complicated for us because it isn't something that can be detected via a blood test or blood pressure machine so....... Goodbye" This is all after waiting a minimum of six months to see an ENT consultant, a year in most areas for Neurology who when you do see you get what?........ Maybe ten minutes and as for seeing a Neuro-otologists not a chance!
Matt Round have you tried the cawthorne cooksley exercises , religiously each morning and evening for 2 weeks? Maybe it will help.
Pray to Jesus too. He won’t let you down.
Are u feeling any better?
I can't even begin...
I was diagnosed with FND and chiari malformation in 2019 the latter they denied being an issue. My symptoms are and were classic vestibular migraines and dysfunction. My historical evidence of TBI's were ignored. ENT ignored a heavy concussion affecting ear and sensory functions they I explained changed the equilibrium in my body to which falls later caused the now present and relentless vestibular debilitating symptoms. im controlled by the weather. NHS gaslighted me very blatantly which is very sad as this form of dismissing patients causes research to stagnate. I think CSF gets very overlooked but hopefully great talks such as this will aid progression in a positive and swift direction.
Had fatigue for over 2 years which causes the dissequilibrium and gait issues.... list goes on. Thank you for this incredible talk. I will ask my GP for a referral to the ENT hospital here in London. Coronavirus is obstructing referrals at the moment.
So helpful, thank you for this post.
Thank you so much for your informative video.
Excellent presentation
Can vestibular migraines cause a person to feel like the ground is vibrating? I've experienced this for 7+months...My husband can't feel any vibrations. It's worse at our house than other locations. I didn't feel the vibrations everywhere Initially;;; I thought they were coming from an external source. But more recently I've also been experiencing a rocking feeling and as well as a rocking sensation, stuffy ears, roaring tinnitus and believe that I have some kind of an ear problem. I saw an ENT last week and he is diagnosing me through the process of elimination. I had migraines for 10 years, debilitating ones, but they went away. Then I got vertigo, diagnosed as BPPV. That lasted 3 decades and went away. Now I have the symptoms I mentioned above which are far more debilitating than anything to date. The roaring noise in my ear and the vibrations which are constant are driving me crazy.
Being near the opposite coast, closer to Reno, NV I will see if I could find an ENT there. I am 77 with a history of migraines and vertigo. They went away completely for about 6 months. But now are back. My mom had migraines too for years before she died of a stroke at 49 yrs old,. Which is something I worry will happen to me.. Now I do have sensitivity in my right ear at times. . I have extreme dizziness, feeling like I will pass out. I do not have vertigo Not like it used to be. I did have balance problems. I also get them with thunderstorms. I will be having a treadmill test in a few weeks. My blood pressure now is 138/78 but it used to be 90's/60's.
Dr. I have fullness and pressure in my head everyday and also ear symptoms ETD and tinnitus and flickering light on my side on the side of my vision when going into a darker space. but I dont get more dizzy with head turns. My dizziness is more floaty and visual and brain fog and neck stiffness at the base of my neck. Is it possible for me to have VM even though the dizziness does not get worse with head movement? This all started with a headache 3 months ago.. and now head pressure and dizziness every day. No history of headaches but my mom had motion sickness. My x ray say c1 c2 is fine. Brain Mri was fine , bood also fine. Looking forward to your reply.
What are the test to find c1 and c2
@@jaypanchal5567 mri
Omg i have exactly the same symptoms as you.
tmd may be the reason ...its an imposter
Has any of these doctors connected vestibular migraines to a histamine intolerance through a leaky gut because we lack sufficient amounts of l-glutamine yet?
How do I get a doctor that is so informed?
Can verstibular migrain also cause foot tingling and hand tingling to?
Yes!!
Omg, I sometimes get the feeling that I am next to my body and not in it..I thought it was just tiredness....
Que bueno sería que los hispaniablabtes pudiéramos acceder a esta información...
This is exactly what's going on with me.
Are these antibodies available for tinnitus treatment?
Is Vestibular Neuritis and Vestibular migraine similar. I’m confused.
Can vestibular migraines be trigged more in the winter!?
Mine is !
Low barometric pressure, damp and indoors in winter worsen mine
I believe its infections that causes this your thoughts?
Head injury can also cause this. Such as Whiplash
Yes but also understand cranial nerves (vagus especially) and concussions and neck trauma. Thoughts are powerful but we also are human beings experiencing being in a body that is experiencing more than just thoughts.
What about having the “spinning” sensation as if you’re on a centrifuge during sleep paralysis along with visual disturbances of inverted, tilted vision or complete blindness
My brains been checked no tumors
It lasts a good few seconds and it slowly subsides
I lay down to sleep and may or may not have s brief dream then I’m suddenly aware of being in my bed and I’m paralyzed then the spinning slowly starts up gets SUPER fast for 5-10 seconds then it slowly stops the paralysis continues I’ve had audio hallucinations that sound electrical in nature and if I DARE open my eyes my vision will either be distorted or inverted occasionally I’m blind even when I feel my eyes open (I sleep with a tv on and light comes through my window it’s not me sleeping in darkness) and after awhile if I don’t get repeated paralysis attacks one after another it only lasts a few minutes when it happens repeatedly it can last for half an hour
I’m fine on rides my brain is normal my sleep study came back normal even though it didn’t happen during it 😒 and I’ve NEVER had a seizure as far as I know even though I’ve also had uncontrolled head jerking and facial twitching during some of these episodes and my neurologist doesn’t even really believe me and said it’s “parasomnias”
Sleep depravation is a main trigger for this
I also have a migraine disorder I’ve had my whole life
Elizabeth I have experienced this and I hugely sympathise as it's terrifying. It wasn't until years later I realised that it must be related to my chronic migraines.
i want to cry, i feel like this very similar to my experience. How do i find a doctor who knows about this? I’ve been so specialists in Boston since i was 16 and now i am 32 and no one seems to be able to help me.
Try to get referred to Dr. Teixido who is located in northern Delaware. Some patients fly from other continents to see him. I travel 4 hours and have treated with him 3 times since May. Progress is being made when after 2 years I felt there was no hope. Best to you!
SeeSawAway I feel the same way. 13 doctors later no one can still put a finger on it and find a cure . I get very dizzy with bowel movements to the point I feel like I’m just gonna pass out but I never do. I wish I could find a specialist doctor in vestibular migraines but don’t know where to look for one. I live just north of Boston so if anyone can recommend a vestibular specialist plz let me know.
@@lanagacinovic7622 Lana, there is hope if you find the right specialist. For 26 years I have suffered with vertigo when triggered in 5 or 6 different scenarios. I call it vertigo but it was more severe than that, to the point of saying it was like my brain was shimmering.
My most recent symptoms of the past 2 years had added 24/7 non-stop tinnitus.
Since seeing Dr. Teixido since May, not one time have I had vertigo even in some of the triggered scenarios which caused it 100% of the time. My tinnitus while still with me is beginning to diminish.
Research your area or try seeking an appointment with Dr. Teixido. It will be worth your trip. I am 250 miles from him and others fly from as far as 14 hours away.
God bless you Lana and inspire you with hope.
Try dr shin beh . He’s on CZcams as well.
What VM are ... they are NOT just a Vestibular migraine they are more like a STROKE ! That you must live through on a daily basis! And try to live some sort of quality of life somehow.... it’s super fucked.
"Eat mostly plants" he said. Interesting.
Can vestibular migraine cause weakness in arms?
I get VMs and i feel like a ton of bricks is on my whole body, i get woozy, dizzy spells, feeling of weakness yet not actually weak.
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