Don't wait to be healed to start serving humanity | Claire Wineland | TEDxCardiffbytheSea
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- čas přidán 18. 07. 2017
- “Give Me Liberty or Give Me Death" were the words delivered by Patrick Henry during his impassioned speech at the 1775 Virginia Convention in seeking independence for his home state. Now, nearly 250 years later, Claire Wineland, an impassioned cystic fibrosis patient and inspirational CZcams personality and founder of a (501)c3 charitable foundation, Claire's Place Foundation (that assists families living with CF), whose desire to see terminally ill patients live life to their fullest, puts her own spin on that famous phrase with “Give Me Dignity of Give Me Death”. Claire shares her message of hope and her daily struggle of prioritizing happiness over health.
Claire Wineland has been living with cystic fibrosis her entire life. At the age of 13 she founded Claire’s Place Foundation, Inc., a 501c3 non-profit organization providing support to children and families affected by cystic fibrosis (CF). Now 20 years old Claire’s unique inspirational model for people living with this disease has led her to be a TEDx Speaker and receive multiple awards including being named one of Seventeen Magazine’s “17 Power Teens” of 2016, Fox Teen Choice Awards 2015, the Gloria Barron Prize for Young Heroes, and winner of Los Angeles Business Journal’s “Small Nonprofit of the Year” among others. She has been featured on CNN, Inside Edition, The Dr. Oz Show, Huffington Post, ABC News, Cosmopolitan, People, Ladies’ Home Journal and more. Claire’s Place Foundation is a way for Claire to give back with hope, strength, and joy and make meaning of what she has had to go through. For more information and make a donation, please visit www.clairesplacefoundation.org.
This talk was given at a TEDx event using the TED conference format but independently organized by a local community. Learn more at www.ted.com/tedx
So sad she passed...but so glad she lived.
Kimberly Gratz I agree.
I agree.
How old was she in this TED talk?
@@anar8343 She said she was 20
I bet you thought that was clever which is what makes it so hilarious. Good one 👍
RIP sweet Claire. The world lost an angle today
angel
Was is 90 degrees or 45 degrees?
FAA LCC acute angle :(
A great human
A huge loss, wonderful soul..
In 21 years she did more for the universe than most of us will. Thank you for waking us up to our lives, Claire. RIP.
@Max Lave if you can't see what see did for all of us then you are
I will not badmouth you as i watched claire
You can do stuff too!
@Max Lave Did you even listen to her?
“MOST of us” Oh, please. How can YOU speak for most of the world?
It seems to me that ‘most’ people, with more time than her, will inherently achieve more than two things.
She did a few inspirational talks, and created a foundation with the help of others. That’s it. She had little time in the world, as well.
I feel like you’re exaggerating her abilities a bit. Your whole comment is just a damn hyperbole.
@@user-ri3oz1hi4k why do y'all have to be assholes?🤷🏾♂️
When she said she had become the person that little her needed 😭😭
"You can suffer and be ok" I'm getting that tattooed
Did you get it? :)
yeah, did you?
Zachary Wilkerson update?
Zachary Wilkerson did you?
Just don't let inmates in a prison see it on you 🤔😅🤣😂
She is so lovely !
Kovu is a unicorn hey, I'm subscribed to you!
Ayye Kovu! I guess we have the same recommended list lol
Kovu is a unicorn KOVU
Subbed since 2k my bro
kovu!!!
I can't believe this girl is just 20 here. What an amazing emotional and intellectual depth she has.
Pain does that to you
Gut wrenching, honest, uplifting and inspirational. This young woman has more strength than I could ever dream of having.
Yep
“You never know how strong you are until being strong is your only choice.”
But, if you listen to her, you don't have to dream of having her kind of strength. You just do. Be open to the pain, be open to the heartache. Get comfy with it. Learn from it and do something with it, and I promise that people will think you're strong, too.
Amen....RIP sweet lady...
I needed this. I've got an autoimmune disorder that causes an overreactive nervous system. After seizures and extreme pain all day, I'm sitting in the bathtub crying and decide to go on CZcams. This was recommended. I'm grateful for that.
Hannah yes we're the same autoimunne..keep spirit
What sucks is how preventable they are. I have one of the most horrific ones.
Hannah you are strong! I have painfull life, PA, CAD, depression and addiction but I try to live everyday!
Gahh whenever I see these comments and replies to them I tear up.. If only these horrible things didn't exist so you all could live painless lives... You are all wonderful people!! Keep strong!!
Hannah hey how’s you doing
Every few months I come back to this talk. It honestly changed my life and my mindset around what I can do with my life. I don't have a genetic or autoimmune disease, but I've been living with depression for quite some years and I used to think my life would amount to nothing because I was just stuck with ruining everything. Then I found this talk and I haven't been the same since. Claire was truly an amazing human being and I mourned her death so much; not because I knew her or anything like that, but because I truly believe she wanted to give so much more to the world and it breaks my heart to know she died while trying to do just that.
I'll forever love this talk and cherish everything Claire has left behind as her legacy.
rest in power sweet angel. you did more good here in your short life than most people who live to be 100.
Absolutely right
Right
Everyone has a positive impact on this life, I'm sure you are doing this, however small the impact it's still important and meaningful
"My pain was the horse that I must learn to ride." James Baldwin
The rest of that quote is "I flicked my cigarette out of the window and watched it drop and die. I thought of throwing myself after it. I was no rider and pain was no horse."
That makes more sense and is much more real.
What is this pain share it with me?
I love her voice♥️♥️
Ella her voice kinda reminds me of miley cyrus's voice
Omg same ^
Virginia Corbella that's what I was thinking.
Same 😭😭😭
I do tooooo,I always thought it was because she smoked but that was when I was younger now I know that it because of the limited lung capacity she has and the breathing treatments that she has had
Every now and then I search Claire up just to see her beautiful face. She is such a beautiful human inside and out. I wish all humans were as amazing as she was. RIP Claire Wineland
My heart hurts. Rest In Peace my love. 💜
McKenna Tivy when did she di?
@@mom2tdks2012 On September 2nd of 2018
Wait she's dead? She still posts videos on her CZcams account...
you might wanna get that checked out.
Boris Sheen it’s not her posting.
I was diagnosed with a life threatening auto-immune disease a few months back and was hospitalized in the icu. I seriously thought my life is now over as I'm just a high schooler and I had so many plans. Regardless of what happens I hope to keep living and helping for the better and slowly but surely piece the parts of my life that I want together. :)
Much love to you ❤
Hey, I hope you're doing okay ❤️
I adore this woman. She’s so well-spoken and mesmerizing. A true gem to this world.
She's not only well articulated with words but her ideas themselves are well reasoned out and logically sound, which is rare to see. Not to mention her deep emotional intelligence. She's as impressive as she is inspiring to me.
She passed away on September 2nd
R.I.P Claire
Rest in peace, Claire. The world has lost such a wise, funny soul today. Thank you for touching all of our lives.
I have the BIGGEST girl crush on her. Oh my god.
Shanti Motionless she has a CZcams channel as her name :)
i have the biggest girl crush on you
Claire is an awesome young lady. But I have a question for you, do you wish she was 'eternally yours'?
Shanti Motionless me too she is so cute
Shanti Motionless oh same! I've binge watched all her videos!
wow
there are no words..
thank you
Been on an emotional rollercoaster for about 3 hours now of first finding out about Claire Wineland, then watching videos like this one, then learning of her passing. What a beautiful human being, and what a beautiful soul. My heart is sad that she has passed away,, and at the same time very blessed to know the world had her in it for the time it did.
RIP Claire. You were a phenomenal human being and an inspiration.
I've never seen someone so obviously put on this planet for a reason.
Her parents must be so proud! What an amazing human!
she's changing people's trajectories. That's a gift to the world
Rest In Peace you beautiful soul❤️
"Idk, have you showered today?" 😂 she's so funny and wise .
my uncle jimmy had CF and died at 42, he was an inspiration to many & claire reminds me a lot of him. my uncle spoke to and mentored many young CF patients, i only wish my uncle had the chance to speak out on a larger stage like you have. Keep fighting, you're an amazing person who is truly making a difference.
CF? I’ve had KFC last night
Natalie Bommarito I'm really sorry for your loss 😖
The fact your uncle helped just one person is way more than most people ever give.
@@stewartarmstrong7430 that's too cynical
"It's not how you feel from second to second. It's about what you are making of your life. And what you're giving..." So much wisdom and philosophy for our overly materialistic, consumer-driven society. It's also personal and enlightening.
I don't have a physical illness but I've struggled with my mental health A LOT. This made me feel hopeful that maybe I can live a happy life. I've been scared of living for years, so thank you Claire. xx
you and the rest of the female population.
her voice is so lovely wtf
Mustang Barrel Racer the air lines are there for a very good reason. I think her voice was fading towards the end of the talk, maybe due to the congestion in her lungs
When she said the bit about people saying sorry, I could relate to that. My whole life I have had a brain tumour and in 2015 my epilepsy came back and that’s all people say “I’m so sorry” and what Claire said is so true
truly a gift from god
She's awesome a true intellect.. R.I.P Claire Wineland. An honor watching you're beautiful personality.. Thank you.
if anyone is seeing this comment, i would like to further this topic of emotions and adding meaning to your life by showing you a beautiful quote from T.K Coleman who is the new co-host of the minimalists podcast. He shares:
"Our feelings are kind of like the seasons, they move in cycles. And it's very easy to view feelings of irritation, feelings of unhappiness, feelings of low motivation, as some sort of evidence against yourself. As some sort of sign that you're doing something wrong"
T.K. encourages you to look at those days as like "Rainy days, or snowy days. It's not a sign that you're doing something wrong, it's a sign that your a multi-dimensional human being, who requires the full range of your emotional spectrum, in order to be alive".
And this leads me to his last profound quote that has impacted my life in a meaningful way. T.K questions that "I don't think the goal in life is to be happy and motivated. I think the goal is it be 'Emotionally Versatile'. To live in a state of harmony with all of your different feelings [and emotions], regardless of what they are".
You're beautiful Claire. Thank you for touching my heart
why do I relate so much to this. I have Cfs/m.e, Fibro and Endo. I was only little when I got diagnosed, and i continue to get diagnosed with other illnesses. This gave me hope that one day, maybe I'll be my own idol. Maybe my voice will be heard and I'll be happy. that'll have a wonderful career. I wish there was a cure, but I'll embrace it till the day I die
sing outloud im sorry dear
may you live healthy and wise
how old are you?
sing outloud Have you ever been tested for Lyme Disease? I was diagnosed with Fibro and ME and it turned out I had Lyme Disease and was totally unaware! It may not be the case with you, but it might be worth looking into?
Bless you 💗
Those illnesses aren't really comparable to Claire's CF though, she is terminally ill. You are fatigued and have bad period pain. I am glad that her speech resonated with you, but your response is kinda silly. I bet people thought you meant you had cystic fibrosis, not chronic fatigue.
Awesome Medicos thank you :) I'm 18, I was diagnosed at 11 but I started falling ill after my lungs failed at the age of 6 :)
Claire, thank you. In a talk lasting 17 and a half minutes, you have changed my mindset regarding my disability/illness/suffering. I will work on seeing it as a gift, rather than as an excuse not to engage with life. Bless you.
Singing Sam it seems that if you're terminally I'll, only then you can earn respect in society
yeah, you that feeling may fade, but it can be revived. This chronic illness stuff - we can be all over the map emotionally. So glad to see this young woman has a way to contribute and knows her innate worth. Singing Sam, may you know your's too.
I just found out you died. Unfortunately I found out to late. You are an inspiration to me. I cannot understand why this happened to you. May be there is a reason for it. Despite the reason may God bless you, and may you rest in peace.
What a wonderful human, she has the wisdom of a person who has been on this earth a lot longer than she was given. RIP Claire may your words turn the world around.
Rest in peace, you brilliant and sweet soul.
I lost my sister (aged 17) to cystic fibrosis in the mid '70s, a nephew from the same disease a few years ago, and a brother (aged 2 weeks) who I never met. I was very saddened to hear of the death of this amazing and inspirational voice for those suffering from this disease. This talk is wonderful, and my sister would have loved it - and would have loved giving her own had the platform been available at the time. God bless the friends and family of this incredible young lady. I hope they can find some solace in the joy of having experienced her life.
She is such a rolemodel. When I listen to her I wonder why I let my panic disorder and anxiety cripple me so much
Ruby-Lou I have trust and anger issues yet I’m incredibly lucky physically, we all have our struggles you can’t help your disorder and it doesn’t make it any less challenging for you that others have it better or worse
Ruby-Lou u can use lavender oil from Young Living
same same
Mental health can also cripple.
She is so lovely and so sincere. And she has touched on a deep truth ... it's what you do with your life. As Emily Dickinson wrote ... "Or soothe one pain, or help a fainting robin into its nest again. I shall not live in vain ..".
I cant believe what an inspiration she is, even though she self-deprecatingly says she isnt. She is the same age as me and Ive never met someone with so much life and soul that shines so bright and someone who is so wise. I dont suffer from any phsyical illness but I do suffer from bouts of anxiousness, panic attacks and sometimes deep depression and to me she is my inspiration to keep going and to keep positive so I cant thank her enough for doing that.
man this girl is so epic
Aaron Leupp IKR
She's dead
Just discovered this young inspirational woman today. So saddened to find out that she's gone after having what was supposed to be a life saving surgery.
Your legacy will live on, love you Claire.
We will all miss you so much, Claire. You were an inspiration to so many. ❤️
Tremendous courage like hers is a revelation
Claire Wineland is great, she's always been an inspiration and a great person.
"You can suffer and be okay." Love you Claire. I am also suffering from a prolonged illness. I lose all hope. Everyday I thought of giving up. Like why am I keeping myself alive. As you've said, we get judgmental with ourselves. But then, I was fortunate enough to find your videos. And finally look at my life in a different way. Rest In Peace Girl.... ❤️
So grateful to CZcams for keeping such people alive. We all are, as long as we are remembered.
You grew up to be someone the entire world can look up To. Not just sick kids claire. Thank you so much. Rest easy sweetheart
she would have made a phenomenal teacher. I guess she was in a way.
She is such an inspiration, and she definitely outlived her illness just like she wanted when she was a kid. Thankyou Claire for everything you gave the world.
All of the people that speak on this platform should be the same people that make all of the major decisions in society.
In the movie " Five Feet Apart" I saw the "For Claire" scene. Then I Googled and found your channel. Thank you for changing my life for the better and I will always remember and miss you!
May your soul rest in peace 💖💌
She will be so god damn missed
I suffer with several mental illnesses. You inspire me.
Rest in peace Claire...you are and always will be the face of inspiration. We won't forget you
Suddenly I'm watching this and I'm crying and rethinking about my life
A woman I know through my family had her first child with her husband around 6 months ago and her daughter was diagnosed with CF. It breaks my heart that life will be difficult for her but knowing the mother, this girl will be a fighter and I hope she finds people who can inspire her. Possibly Claire.
i remembered when i watched this video, i was like: there's no way she's gonna pass, people like her NEED to live.
but i guess this is life. we lose the most beautiful people.
"My suffering has given me so much", such powerful words
She passesd away , but made a significant mark !! Rest in peace Claire 💔🙏
There's a Latin, elegiac couplet poem, written by Ovid of Rome during the Augustan-era of the Roman Empire, from which you can example testament to the virtues of this young woman and the source of her goodness, in which he writes "dolor hic tibi proderit olim," translating to "someday this pain will be useful to you;" Amores, Book III, Elegy XI.
Death, itself, only made her stronger.
She is the coolest girl ever
Deceased (1997-2018)
Claire Wineland (21)
RIP
Beautiful
Bless Her
Thank You for the Education Claire
Claire is currently in ICU fighting for her life. I am praying that she pulls through. She is a hugely inspirational young woman and even at 25 years her age I have learned soooo much from her. Stray strong, Claire. We’re here for you, xx
Claire....she could change the world.
Meg Shafer she couldn’t. She is changing the world
Meg Shafer She already has!
Ariella Sinistaj I stand corrected.
The Zo I do believe she has....you are correct.
Meg Shafer she did
RIP beautiful, amazing Claire. Your talks and infectious joy will be so very missed. 😢💔
I have just met you. You have inspired me more than any other human being in this world. I will come and hug you on the other side. You have put warmth back to my soul. God blesses you sweet Claire.
This girl changed my life and I'm not exaggerated
Beautiful and inspiring speech! My cousin has CF and doctors told her she wouldn't make it to 30, but she's still alive today in her mid 30's and is an advocate for CF awareness.
I'm glad she's still alive 👏🏻👏🏻👏🏻🤘🏻🤘🏻
Stinkwrinklesss Bleh ❤❤❤
She had to change her channel. I believe it's just Claire wineleand now.
She hasn't posted a video in 2 months I wonder if she's ok..
Emmi Anderson
If she is fine, tell her she is missed a lot.
She passed away, sadly. One week after her lung transplant she suffered a massive stroke. Rest In Peace dear soul. You were beyond amazing. 💜💜💜
It hurts so much to know you're gone. I hope you're in peace❤
Thank you for being my inspiration to be strong when my illness was bad. I was able to fight... You will be missed.
Being a doctor I will love to see such mental stability in people with chronic illness.its beautiful to see beauty in darkness where the life is at its worst.
im snotting in my own tears but this helped me so much. jeez.
Hi can I get this entire talk tattooed on my body
Trashcan Man At 60 FPS and the video being 17:32 and there being 1052 seconds in the video (60 seconds in one minute * 17 minutes + 32 seconds = 1052 seconds in 17:32) so you’ll be tattooing 63,120 images onto your body (60 FPS * 1052 seconds = 63120 images) but if your watching at 30 FPS then it’ll only be 31,560 images 🤔 still a lot though 🤷♂️😆
Good luck 😬
Rey Arias lol he means writing the speach
FAA LCC Pfffttttt I knew that 🤥.... Hopefully he did too before getting the tattoo 😆 🤔which he probably 😟😞😓
Rey Arias lol that would be funny
Rey Arias My dad told me a picture can be worth a thousand words but he also said that I should read books instead of watching CZcams. I said a CZcams video Is alot of pictures and you said a picture can be worth a thousand words.
This speech has changed the way I look at my life. Thank you Claire.
Why has no one put her in voice acting yet?!?!! She has a great voice. It's unique!
She reminds me a good deal of a voice actor named Laura Bailey
Madeleine Really? How?
That's thanks to 20 years of coughing lol. Most of us with CF have this voice.
Just because her voice is nice, doesn't mean she now has to become famous for it. She's way better than doing useless things like that lol.
Ink what's useless about voice acting???
I don't know how she has all that energy. I had asthma when I was a kid and I could barely walk across the living room. I had no energy.
I've watched a lot of her videos. She's was/is obviously AMAZING person. But. . .Can I also point out the fact that she was/is . . .GORGEOUS! She is STUNNING to look at.
Seems you're kind of missing the point about how health, wealth, looks don't define you. This girl is so much more than her looks in the same way she's so much more than her sickness. She contributed so much to the world and that's what's important. Looks are such a shallow thing to focus on after someone has passed away. She would have hated to see people remembering her because she was pretty or because she was sick. Claire's legacy lies in her life accomplishments.
@@jamesnialGNo point to be missed. Just commenting on how pretty she was. So calling somebody beautiful inside and out just triggered you.? You have a good day.
The wine thing she said at the end was gold❤️
Now that I have been sitting here with tears on my damn face for a good while: I cannot deny this woman’s positive glowing energy. The way she holds herself is definitely life goals
This girl is a true angel. To have this way with words and this outlook on life, all while battling a terminal illness. Beyond inspirational
I watched her first few talks on SoulPancake and now I’m watching this - she has grown so much. But she has been such a constant inspiration to many. Your work and impact will not be forgotten and will continue to serve many others, CF patients or not. Even normal, healthy people like me feel the impact of your work, Claire.
OMFG. i was just thinking about this girl the other day, wondering what she was up to. and her she is 😲 the universe works in weird ways
Azariazariah Ringingiao she's making videos again! She has a new channel: Claire Wineland
hhh same here, she hasn't been on youtube for a while and that worried me
Lilan ooju she has a new channel, because the old one was stolen.
thanks! I've just known that, recently
Me too
You’ve inspired so many. And changed their outlooks on life and death. Thank you Claire for being a warrior, a hero, an inspiration and an amazing human being. You didn’t let your sickness define you and you did more in your 21 years of life than most do in a lifetime...
This world was a better place with you in it but God has called you home.
R.I.P. Claire Wineland🙏🏻❤️
Claire you have the most beautiful soul
omg when she was saying there was nobody with an illness who did great things I was thinking "Nooo Claire what about Stephen Hawkings?!" Glad she mentioned him. :)
Marie B. His name is Stephen Hawking though 🙈
Marie B. Hawking*
I was thinking about Nick Vujicic, he’s amazing!!
precisely what i did-and rip stephen hawking
Ali X and rip clarie
Her worldview is other worldly...Everything we are taught when we are young, that you can't accomplish anything meaningful if you're not rich or famous was crushed by Claire. She seemed more human than human. An angel walking this earth, even if it was brief, it was incredibly profound and touched so many lives.
Rest In Peace, angel. I know I’m late but I’m so glad I found you today ❤️✨
God bless you
She's been through so many near death experiences, it's insane. I only possess a fraction of the wisdom she does. She was given a gift that she shares with us now, and I am grateful for her. I want to meet her someday, if not in this life, maybe the next.
I cried so hard because she made each year count with giving. Which is what everyone should do. Is to give. Fly high 🖤
I'm trying to shake the weird "no pressure!" feeling I get. Like, what counts as an accomplishment to be proud of? I'd like to think that the betterment of oneself and being kind and helpful to others is accomplishment enough. I wouldn't be as dismissive of happiness. Doesn't making a difference reward in the same way? It feels really good and makes one really happy. That small criticism aside, this was a rare treat. Great talk! Claire has a lot to be proud of.
I think she was just being dismissive of making happiness your ultimate goal and of forced happiness.
Death makes life meaningful and in her case the 21 years of life was her greatest posession ever. She inspired me to appreciate every single day of my life. You are an ispiration Claire, thank you 😭😭
I aspire to live like you Claire. You may not have lived a long life, but you lived a complete life, more complete than a 90 year old’s life
I love her so much. Her flame shines so bright despite her struggle. If there ever is something to learn about this earthly, human existence, she clearly got it.
I was blessed by this video today. Now I need to maximize that blessing.
Claire shall be remembered as a role model for humanity.
She is so awesome. Enlightened old soul that beams light. I wish a cure for her, it's way past time. And, she is a valuable asset to our earth.