When Should You Identify as Disabled? | Q & A
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- čas přidán 1. 08. 2024
- Today I answer a few of your questions, including ones such as 'am I disabled enough' and when to class yourself as disabled.
0:55 What motivates you to get through bad days?
1:40 What brings you joy on a day-to-day basis?
3:01 How do you know if/when you classify as disabled?
5:25 How did you get the courage to start making videos?
7:20 What are some ideas of things to do when you feel really awful?
Intro: By Sandycrabfeet linktr.ee/sandycrabfeet
I filmed this on my old iPhone 5 as the audio is better than my 7 plus, but please let me know if you know of an iPhone that has clear audio in videos, as I may look into getting a new phone to film with!
Hi Georgina, we’ve recently invested in the iPhone 12’s expensive but we’ll be keeping them for a number of years. The audio is incredible on them, in fact I filmed some of my latest videos just using the iPhone. I do however increase my audio volume using the video editor on my pc (Davinci Resolve) which also helps a lot. Before the iPhone 12’s we had the 8+’s which again I also found really good. Hope that helps. Take care.
@@NeilBradleyMS thank you so much, Neil!
@@GeorginasJourney I also recommend the IPhone 12, or 11. I went from a 7 to the 11 last year then to 12 this year, it was such an amazing difference. It’s expensive, but worth it. I won’t upgrade for probably another 4-5 years. I’m not sure about the UK, but most providers here you can get the phone for a little extra on the bill every month.
Film in whatever is the easiest way for you. It is just lovely to see you. Gentle hugs.
Thank you 💕
Your channel was one of the first chronic illness-related channels I found after I started getting ill. Like you, I gave up on the idea of a cure quite a while ago and have been focusing on management. I’ve found your channel super helpful over the years both in your management tips and in sharing your experiences in general. So thank you for the content you make, even when you’re not feeling well.
I’m so glad you’ve found it helpful, thanks for your lovely comment 😊
Thank you for filming this, especially on a day that you were feeling so ill. I'm sure it takes a lot of emotional energy to film, edit, and post, and we appreciate it! Hopefully you and your friends will be able to have that picnic soon.
Thanks so much! I was feeling a bit better by the time I decided to film it, and it made getting (half) ready worth while, even if I didn’t end up going out :) Thank you, I hope so!
I think that's really great advice on when to say you're disabled me personally I have no choice in the matter on whether or not to classify myself as disabled since I have cerebral palsy but I completely agree with you on it
Hi Eric, thanks for sharing your input on this, as I was talking, I wasn’t sure if I should talk about people who have less of a choice around it, or how those people may feel about it, so thanks again for sharing your thoughts
@@GeorginasJourney yeah no problem I see a lot of people on CZcams that have an invisible disability and they're afraid to classify themselves as disabled because they're afraid of getting judged or people saying you're not disabled you're just lazy and if I can I want to make sure and change that so they don't have to be afraid even I've gotten that even with my disability
I’ve been asking myself that question a lot if I’m disabled. But I have a learning disability that’s been diagnosed twice. The word is in my diagnosis and it’s not all of me but a part. A part that makes starting tasks hard, a part that means mental/quick math isn’t quick. But I also have to consider that I have anxiety, depression along with other health issues like allergies and eczema. Those things are labelled as disabilities but they limit what I can do, when and how long. Thank you for this video. I’m so appreciative to know someone else gets it.
Hi Emily, that’s true, disabilities & conditions are just one part of a person, they aren’t a persons whole identity, but sometimes it’s helpful to label that part & sometimes it isn’t, it’s all up to how the person feels about it :) Thanks for watching :)
@@GeorginasJourney definitely important to label it and to know it it’s your fault.
I am always encouraged by your videos, and you have helped me deal with my struggles... both practically and philosophically. Whatever format you feel most comfortable with, I would say just go for it. Whatever style video you make, it is your sincerity that shines through them all. Thankyou for sharing so much of yourself.
Thank you so much Matthew, that’s so nice to hear 😊
Georgina, i admire you hugely for your positivity in spite of what you go through on a daily basis! I’m sorry you missed your picnic i know that really sucks when you’re looking forward to it. Hope you get to make up for it! I really enjoy your videos and they always make me feel brighter 💜💜💜
Thank you so much!
You’re back! Wondered about you a while back, glad to see you’re making a video. Good info/tips. I’m doing much better since I started watching your videos a couple years ago, thank you for all the awesome advice or info you’ve given all of us. You look lovely, sorry about missing your friends. Hope you are feeling better by now. Cheers.
I posted a video two weeks ago as well :) Glad to hear you’re doing better, thanks for watching :)
Thanks so much for making this video! I could especially relate to your answer to the last question right now, because of my hEDS and related EDS issues. I don't have energy at all, and I'm too tired to put together food to eat. I also often experience the thing that once I've got everything ready to do something, I no longer have the energy to do what I was planning to do. If making videos in the manner you did with this one work better for you on tough days, that's perfectly good. Do whatever accommodates your tough days. Thanks again!
Thanks for watching!
I like your videos like this! It's always nice just to hear from you ♥️
Thank you! ☺️
This style of video was great! Audio was very clear!
Thank you! My old phone seems to have better audio than my current phone that I usually film on (even though the video quality is slightly worse), so I might just film on this from now on haha
Thanks for answering my questions! I hope you’re doing a bit better today!
Thanks for your questions! Sorry I didn’t really have any suggestions for what to do when you’re feeling really unwell
Always love the real videos showing exactly as it is. You did amazing 🤩 so glad I found you . I’m a much older lady (51) and I benefit from your content. My youngest Daughter 19 has chronic pain and poor mental health 😢 so you are helping many ages with you experiences. Thankyou for using your precious energy to give to others. I’m going to look up Whispers Red now 👏🏼💞
Thanks so much for your lovely comment, Lisa 😊 I hope you and your daughter will have a low(er) pain day soon 💕
I have autism along with some mental illnesses and it does impact what I can do. Plus I might have a chronic illness developing too, that's made things harder. Some say I'm high functioning autistic, but I don't like functioning labels. Some days you can't tell I have autism, and some days I'm a mess and struggle with easy things. ❤️
I agree, I don’t like the high & low functioning labels for autism, as they somehow seem to invalidate both groups, although I see why some sort of categorisation is necessary in some contexts. They really need to come up with better terminology for it!
Thank you so much for answering my question, I’m going to try to make my videos, if I can help any one person, it will be worth it.
Let me know when you’ve made a channel & uploaded something, as I will subscribe 😊
@Georgina’s Journey great advice. I’m newly disabled (hopefully temporarily, but we’ll see on that…). you are so inspiring to me!!
Thanks! I hadn’t really thought about whether a disability could be temporary before- people don’t tend to refer to injuries or illnesses that can heal as a disability, so that may be why! Anyway, I wish you a speedy recovery and hope that whatever you’re going through is only temporary :)
I have been thinking of you, hoping you were ok (if one ever is ok with eds). Thank you for answering these questions. I have been wondering about them my self.
Also, I wonder, when do I know it's time for a wheelchair? I can walk a few 100 meters but I can never follow my kids to the zoo or other adventures because I can't walk that much. It makes me sad not being able to be a part of those adventures. I never shop for groceries any more, my husband does that. Last time I went I threw up from exhaustion in the driveway and had to leave the shopping in the car until hubby could bring it all in (lucky it was winter).
I feel like I am in-between. Since lockdown I don't have any problems since we don't go anywhere but after...
It sounds like it could be a good time to look into getting a wheelchair or perhaps using one when you’re out as places like zoos & supermarkets often have wheelchairs or mobility scooters you can use when you’re there :)
@@GeorginasJourney thank you for your answer. ❤️ I will have a look around. I find it so hard to accept I am disabled. I guess like you said, getting a wheelchair would make it more concrete.
@@GeorginasJourney also, I find this CZcams channel very relaxing czcams.com/video/ep_XchKzsAM/video.html
Fairyland cottage.
@@Luma994 thanks for the recommendation! ☺️
We missed you!
Hi! I’m enjoying making videos again 😊
Hi Georgina, great to see you making videos again! :) You should make videos in whatever way is easiest for you. I have debated with myself many times about whether I am disabled or not since all of my symptoms are not visible to others. Thankfully I can manage these symptoms with planning and this does not affect my ability to live too much so maybe disabled isn't the best term to use in my case - Scott
Hi! Thanks :) And there are many ways of classifying disability, so if you feel like you have a disability, you probably do!
This style is great!
I’m happy to hear that, thank you!
You should make your videos in the way that is easiest and most comfortable for you. That’s what is most important. 🙂
Thank you!
4:54 No need.
I always love your videos and I hope you'll feel better soon, if not already.
Thanks!
Of course I would be fine with this style of video.
:)
ASMR is great. You might like binaural beats as well. Or isochronic tones. Both are on CZcams
Thanks for the recommendations! :)
Great vid and fascinating thoughts! I'm not saying I disagree with you, but by that definition, I'm disabled when it comes to sports 😂😂
Haha, I’m hoping that people will also use their own judgement wisely to know if it’s reasonable to say they have a disability or not. Of course there are some things that it’s normal to not be able to do or not be very good at
@@GeorginasJourney Of course :)
🙏
It great if feel well out bed it fine.
Thanks
Your a beautiful soul, how do you feel about people with no physical or mental issues that decide to identify as disabled? Like that guy in norway
Thank you! I know there is a condition that can make people want to be disabled (& they often physically harm themselves to achieve this), but I don’t know about the guy from Norway you’re referring to, sorry!
With me it's one problem after another.
A few weeks ago I moved my finger wrong whilst writing and torn a ligament in my hand. Now that's healed, I've had so many exams and my legs (specifically my right knee cap) and my bones, hurt so much.
R u the same as me like this?!
I have frequent or constant dislocations, vomiting & fainting, those are my main problems
@@GeorginasJourney yeah with me it's one thing happens the some time later another
I consider myself disabled and I’m ok with it. I wanted to ask you about how you might handle a situation. Yesterday I passed out in the grocery store hit my head on the way down.(I was in a motorized cart, can’t walk the store) The people at the store called 911 and they came. Once I had recovered I explained to them about my condition. They didn’t make me go to hospital. What do or would you do in this situation? Is there a better way I can handle it? Also do you feel embarrassed when you faint in public? I sometimes do.🌸
I’m sorry that happened, but that’s all you really can do if you faint. I personally get groceries delivered to my house or use a wheelchair in store so that I don’t faint in the first place, which is better for everyone involved (but most importantly, better for you) 💗
@@GeorginasJourney yeah thanks, now I go with a parent and I either go in my wheelchair which by the way is a lifesaver or they push me in a handicap cart. I can’t really stand in the morning so I let my dog out in the wheelchair. He’s in training to be a service dog! He’s already learning to pick things up for me. Your really supportive, thanks.
Hi, I have autonomic dysfunction, like POTS. Do you have the problem of eating and then throwing it up? If you do, what do you do when you are going to eat in public or at a friends house if you throw up? I know for me I have zofran although I cannot always take it in time. Thanks!
Hi! Have you looked into gastroparesis? Gastroparesis is very common in people who have POTS and it can cause vomiting after eating. A gastric emptying study would be really helpful for you to determine whether it is actually autonomic dysfunction causing this for you, or if you also have gastroparesis. (& to be clear, I’m not saying you don’t have autonomic dysfunction, I’m saying it sounds like you may have gastroparesis in addition to it)
In terms of managing these sorts of symptoms, I eat smaller portions, but more regularly throughout the day & I never eat until I am full when I’m out- as the fullness feeling is what often leads to the nausea & vomiting for me. & I also take zofran about 45 minutes before I eat. Hope this helps!
Thanks 🌸🌻
I talked to my dad about the test we think we should ask my doctor. Thanks!
@@emmag.2260 sounds like a good plan, hope you can find something that helps!
You’re a beautiful young woman
Hi! i need help! Im more flexible than normal people, witch is why i found EDS on the internet, im 19, my joints are more flexible than normal people and a bit loose sometimes, but they do not bend as much as i ve seen in some EDS videos, i ve never had a dislocated joint that needs fixing at the doctor, but all of my joints crack! all the time, they dont pop, they just crack, all my finger joints, my arm, my leggs, my neck, and you can pull my skin somewhat more than a normal person but not even close to some EDS s people i ve seen. Id love to go to a doctor to tell me if i have it or not but its very hard in my country due to it beeing underdeveloped. Maybe could you help me in some way to diagnose me?
No one can diagnose you except a doctor, unfortunately. & you don’t need to see a doctor unless you also have chronic pain or symptoms which make you feel unwell. If you do not feel ill & do not have chronic pain, then you don’t need to see a doctor
@@GeorginasJourney Got it.. are there milder forms of EDS? that only show minor signs like i described, also, i ve heard of some people felling perfectly fine one year then another it becomes way more chronic, is this true?
@@howdy6779 EDS isn’t usually mild, and chronic just means long term, there’s no such thing as something becoming ‘way more chronic.’ If you’re not in pain and not ill, you really don’t need to worry or see a doctor
@@GeorginasJourney Ok, thanks!! wish you the best!
@@howdy6779I hope you're doing well two years after posting that. I would have rather been diagnosed with hEDS before it got bad, but it wasn't caught until over a year after I'd asked to be referred to a geneticist for testing after months of daily, horrible, burning rashes from related complications (MCAS + thiuram allergy).
I thought the herniated disks in my neck might just be a mental issue, since that's what others seemed to think, until someone finally ordered an MRI.
I would say that EDS can start out seeming "mild", especially if you also have depression and blame the chronic pain on that for years. If you have a feeling that something could be wrong, I'd suggest seeing a doctor if/when you can afford to; better to be informed than not, IMO, even if you're not severely affected at the moment, since EDS does get worse with age.
You look beautiful
Thank you!