What are the symptoms of FBROMYALGIA- what does it feel like?
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- Äas pĆidĂĄn 27. 07. 2024
- Are you in pain all the time? Do you have Fibromyalgia? What are the symptoms of Fibromyalgia? In today's video, I share the most common symptoms of Fibromyalgia.
#fibromyalgia #chronicillness #pain
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đđ» MY FIBROMYALGIA STORY
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đđ» IF YOU COULD SEE. MY ILLNESS
âą IF YOU COULD SEE MY PA...
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chapters
00:00 - Introduction
01:04 - Definition of Fibromyalgia
01:44 - Generalized Pain
02:23 - Localized Muscle Pain
02:38 - Nerve Pain
03:11 - Burning Pain
03:56 - Sensitivity to Touch
04:32 - Joint Pain
05:57 - Neck Pain & Stiffness
06:30 - Restless Leg Syndrome
07:59 - Sensitivity to Sound, Smells and Temperature
08:38 - Bruise like Pain
09:44 - Brain Fog
11:02 - Fatigue
12:39 - Exercise Intolerance
14:43 - Insomnia & Non-Restorative Sleep
15:17 - Chronic Headaches & Migraines
16:21 - Temperature Instability
16:37 - Dysmenorrhea
17:20 - Temporomandibular Joint Pain
17:31 - Costochondritis
17:46 - Anxiety & Depression
19:09 - Message to Friends and Family
Iâve had some very severe fibro flares over the past 25 years...Iâm in a terrible flare right now for the past 5 months...these flares are mostly brought on by prolonged emotional and/or physical stress. In addition to the symptoms you described, Fibro for me creates digestive issues (bloating, gas, nausea, etc), along with overactive bladder, which can be products of anxiety also. Thanks for doing your vids on the subject....many days I canât even text a msg on my phone without feeling pain in my fingers, shoulder, or back. I know most of your audience seems like women, but men definitely can get fibro also (which Iâm sure youâre aware of).
Thatâs is a long time to be in a flare. Iâm so sorry. Thatâs awful. I do agree that stress definitely triggers flares. Unfortunately itâs impossible to live a life without any kind of stress. As far as the demographics of my audience it really reflects the demographics of the illness. 80% women, 20% man. Thanks for supporting my channel.
đą you have covered itt quite well! Hoping they find a cure soon. Hugs and rrock on! â€
Thank you so much for your comment! I'm really glad to hear that you found the video comprehensive and informative. It's definitely a challenging topic, and knowing more about fibromyalgia can help both those who are dealing with it and their loved ones understand what it feels like.
Hugs back to you â€ïž Stay strong!
Glad I found you! I am 61yrs. old. I was diagnosed 2yrs ago. I have had this since I was a child. Growing pains is what I was told. My periods were terrible. Cramps and clots. I had endometriosis and hysterectomy at age 40. All the symptoms you have I have also. My worst pain is my bones in my legs and wrist feel like they are on fire. Also the feeling of a knife jabbing the muscles in my leg. It dont last long maybe 10 jabs and then goes away. Makes you think you are crazy. I can go on and on about my pain but you describe it very well. Thank you! I'm not alone.
Thank you for watching my video. Yes, you are not alone. Yes, Fibromyalgia makes you feel like you are crazy! So many inexplainable symptoms. I believe itâs supper important to spread awareness and to foster a supportive community.
My fibro flares are so painful. I feel like my arms and legs are on fire, a red hot raging fire that I canât put out. All I can do is lay there in pain.
I know very well what you mean. Iâm sorry you too go through this awful illness. Tomorrow I have a video coming up of my 5 top items to help me deal with pain. The last one I share is what I use when Iâm at that point when everything is one fire and there is nothing else I can do. Donât miss it, I think I will be helpful for you.
Omg!! I can so identify! Thank you!
I'm glad to hear that you can relate! It's amazing to know that we are not alone in this. Your support means a lot. Let's keep sharing our stories and lifting each other up! đ
Great video. My worst symptom is neck pain.
Thank you. My neck used to be the worse for me too but now itâs my back and migraines.
I feel very happy to see your channel ,thanks for the support â€â€â€
Always welcome
The more I learn about this chronic illness,the more Iâm grateful for very good health
Hoping that as awareness is brought people will be more compassionate and understanding towards sufferers
Do you ever feel that a lot of anxiety and stress may exacerbate symptoms at times
Is very hot weather also a trigger
Take care
Warm Hugs đ€
Absolutely! My biggest triggers are stress, (either emotional or physical), weather changes (any pressure change, could be cold or heat), sickness (especially viruses) and lack of sleep. I believe that Fibromylagia is a malfunctioning of the central nervous system caused by being stressed out to its extreme for too long. It makes all the nerves that carry information be in overdrive and it takes much less stimulus for the brain to interpret it as big sensations. That is my understanding, at least. Have you ever heard of phantom pain in amputees? They feel pain in a part of the body that does not exist any longer. But the pain they feel is real even though the body part is not there anymore. The remaining nerves fire for no reason other than the trauma they experienced. Even though the limb is not there anymore, the nerves cannot stop firing.
I have everything you talked about, itâs the all over the body pain thatâs worse. đą every day thereâs something to deal with also.
Hey Miriam, I totally get you. The all-over body pain is so overwhelming, and it's something that really gets to me too. đą It's like every day brings a new challenge, and it can be hard to find a moment of relief. Just know that you're not alone, and we're all here supporting each other. Keep hanging in there, and take things one day at a time. đž
The classic tale of "where am I going to hurt today!?" đđźâđš
@@FIZZGIG-RARF or⊠where am I going to not hurt, right? đ€Ł
â€â€ Tnq
V. Beautifully explained. đ im suffering.from last.26byears. Though Drsmdiag nosed they were givings only pain killers..didn't know the.seriousness of. The aches n pains
Only now I'm seeing in tube
I.always suffered. But had to manage
Suddenly during last 8 months ot
badly flared up. Im.on treatment with with good Artho n Neuro dr.
Tnx for yourv Doingblotbofvhardcwork..but suffer a lot..unable to get up. From.bed. i sleep only at3am.đźđź..still no one understand my situations .. After seeing videos people will open their eyes.pnce again tnx a lot. My warm wishes
GBU you too.â€
.
Thank you so much, Teresa! â€ïžâ€ïž Iâm really glad you found the explanation helpful. Itâs so frustrating when doctors donât take the seriousness of our pain into account and just hand out painkillers without a proper diagnosis. Suffering for 26 years is such a long time, and Iâm sorry you had to go through that without proper understanding or support. Itâs good that youâre finding more information now, and I hope it helps you find better ways to manage and cope. Take care, and thank you for sharing your experience. đŒ
My pain is 24/7. Chronic since August 15,2012. Never goes away!!!
Iâm so sorry to hear you too suffer from this awful disease. Hang in there. We will survive!!
Hi. I've had fibro for a long time, many years. Sleep issues, burning pain, pins and needles, brain fog, all over pain and achiness, fatigue. I have other health issues as well. The things that help reduce the fibro pain for me have been heating pads, therapy cane, gentle yoga, short rest periods throughout the day, especially on my really bad days. I also drink a green smoothie every day. Spinach, arugula, bananas and berries with water. I find that it really helps with the fatigue. 32 oz. Nothing makes the pain go away but those things help. You pretty much have to be your own advocate. A lot of doctors just don't know what to do with fibromyalgia patients. Meds have never helped me much, but I'm all for using them if they work. Be patient with yourself. Do something you enjoy, even a small thing, every day.
Hi there! I understand how challenging it is to manage the various symptoms of Fibromyalgia and find relief. It's great to hear that you've discovered some strategies that help reduce your fibro pain.
Being your own advocate is crucial when dealing with fibromyalgia because it's true that many doctors may struggle to understand or effectively treat this condition. Each person's experience with fibromyalgia is unique, and finding the right combination of treatments and strategies often requires trial and error.Taking care of your mental and emotional well-being is equally important. Like you said, being patient with yourself, finding small moments of joy each day, and engaging in activities you enjoy can make a significant difference in managing the overall impact of fibromyalgia on your life. Keep advocating for yourself, exploring different approaches, and taking care of your physical and emotional well-being. You seem to be doing an amazing job navigating the challenges of fibromyalgia, and I hope you continue to find ways to improve your life.
For me, the pain and fatigue is bad, but the fibrofog bothers me most. Im a writer, who often cant write, bevause the words disappear. And the social aspect with fibrofog is very difficult.
Thank you, for a very informative video. đđ»
I know how challenging fibrofog is, especially for a writer where words are essential. I experience this when trying to create my youtube videos both in the creation of scripts and again in remembering it and speaking got the camera. It's frustrating when something you're passionate about becomes difficult due to the symptoms of fibromyalgia. You're not alone in this struggle, and many others with fibromyalgia face similar difficulties with cognitive symptoms like fibrofog.
I'm glad you found the video informative, and I hope it provided you with some valuable insights into the symptoms of fibromyalgia. Remember that you have a supportive community, and sharing your experiences can help raise awareness and understanding of this condition. đđ»
i have quite a few of the symptoms you described but my worst is feeling vicious electric shocks in my body...anywhere...shooting repetative electric shocks. and the feeling so tired.
This sounds like a nerve issue. I have had those feelings before. It's horrible. I tell my husband it feels like someone has a voodoo doll of me and is sticking needles in me. I only get it sometimes and it is awful. I can't imagine having this all the time. Poor you. It must drive you crazy.
@@tt_looking_glassI have those symptoms as well feels like someone is sticking you with needles
The unrelenting fatigue is worse than the pain for me.
Fatigue can indeed be a silent yet overwhelming opponent, sometimes even more so than pain. It's like carrying an invisible weight that just doesn't let up. Sending you strength and hope for more energizing days ahead.
Fibromyalgia is very difficult and painful disease. Diagnosis is difficult. There is no lab or imaging test to diagnose it. Lot of psycho- somatic issues. Difficult to diferentiate from psychiatric ailments. For a long time, fibromyalgia was not recognized as physical disease----- still some may consider it psychic disease only! Treatment is difficult as well. Disease is life-long, management is life-long.
Absolutely. People often fail to recognize how everything is inteconected. Body-mind-spirit. They all influence one another.
Sry. I have severe pain from head to the toes..Every part is paining ..
Im.stressed out mentally N physically. Rgds.im.Teresa from.Chennai
India.
.
..
.
Hi Teresa, I'm so sorry to hear that you're in such severe pain. I wish there were more words to help ease what you're going through. Please know youâre not alone in this, and thereâs a whole community here supporting you. Sending you lots of love and strength from across the miles. Take care of yourself as best you can. đŒđ
I was diagnosed with fb about a month ago I do have a lot of symptoms but I feel like I do have something more.
Rheumatologist and neurologist look at me like have 2 heads when I explain symptoms. They donât know how to answer my questions or pretend not to know.
What medication helps you with fb?
Welcome to the club! One of the hardest things about chronic illness is navigating the healthcare system and doctors. On my own research I found that Low Dose Naltrexone 4.5mg (also known as LDN) is what has made the most difference pain wise without any side effects that Iâm aware. When discovered in its very early years of research and was following its progress until I found comfortable trying it. When I forget to fill my prescription and I go without for 5 days, that is when I know it works, because, oh man! What a difference. I still have flares, and exercise intolerance, allergies, over sensitivity but pain wise it is a lot more manageable. I wish you the best of look on your health journey. Subscribe for more chronic illness content.
Do you have random bruises! đ
I do actualy! Forgot to mention that one.
I related to everything in this video I have anxiety depression ibs and endometriosis đ„č trying to get a diagnosis
Iâm so glad you could relate to the video. That struggle is all too familiar for many of us. Just know that youâre not alone in this, and sharing your journey helps others feel less isolated too. Keep pushing for answers - you deserve to have your experiences acknowledged and understood. Sending you lots of love and strength! đđ„č