Love this. Made me cry. I suffer from Fibromyalgia, CFS,Chronic Migraines, mental illnesses & much more. So this really hit home for me! Thanks for sharing!
This is an amazing poem and It really touches me bc I’m chronically ill as well. I have EDS, POTS, and a spinal disease so I completely understand everything you said in this and it can be so hard sometimes but keep fighting!
I have never felt like anybody could ever explain or understand how I feel until I watched this video. I have a rare chronic heart disease and nobody ever understands how I feel no matter if I try to explain they still don’t get it but this was something beautifully said
God bless you!!! First I want to start by saying you are not invisible!! I want to encourage to keep fighting through the pains. I myself live in chronic pain with no answers so I know it's easier said then done. I have faith that you can do it. I will keep you in prayer!!
Thank you so much for your support, those of us going through this really must stick together. We are stronger than we think and feel, and we can be there for each other and empathize.
I have a rare muscle disease. It causes me a lot of fatigue and while I look basically healthy I feel fatigued most of the time. While I don't have pain I still feel like I can relate to you. It's really hard to have a disease and it's compounded by people's lack of empathy and offensive statements. It's like getting hit by a bus and then the bus backing up and running you over again sometimes.
this is a great peom you relly described what's it like having chronic pain relly well which is pretty hard to do even when your living with it well done I hope you feel as better as you can
I was just recently diagnosed with EDS as well and a couple years back I was diagnosed with POTS too. Small world, I'm glad I was able to explain it well (: thanks for the support
I needed this this morning. Thank you for sharing your story.. sadly every fucking beautiful word is relatable to my life. You speak eloquently in your pain girl, thank you for sharing 💜
This made me cry every point in this was accurate for me. I have CVID which makes me sick 24/7 since I have half an immune system, I also have POTS, and Cromo which makes my bones hurt everywhere like needles. I also have EXTREME fatigue from all the pain. And all the ppl out there with POTS, whats up fam lol.
PAIN This pain is the worse, Life with it is a horrible curse. It won't stop and It will not pause, The bone grinding pain is the worse of all. When you can't trust your mind and you curse your soul. You want the nightmares to stop, the heart ache to slow. The visions to quit playing over and over in your brain. You feel so small, you feel insane. You still see your brothers when the VBID blows The sky goes black, the sun won't glow. Everythings so dark, and consuming from the pain. It's a steel monster with razor like claws, It's ripped open my skull and is eating my brain. No more strength for the struggle, No desire to flee, I'm starting right now at the monster that's slowly devouring me. Your, Sgt Brandon Tull
Loved it. Ive had leg and balance problems since birth but since I was about 8 or 9 ive been in pain every single day. It started with my ankles and now its every muscle and joint. No diagnosis as of yet. Anyone got any ideas? Its like a kind of pulsating pain thats dull but sharp at the same time. Not tender. Easily made worse by exercise. It only started in one joint and has spread to all joints and muscles and causes fatigue in the past 7 years.
I have several, I always joke around that I'm falling apart. As of now the official diagnosis are POTS, EDS, Fibromyalgia, and Myofascial pain syndrome.
Love this. Made me cry. I suffer from Fibromyalgia, CFS,Chronic Migraines, mental illnesses & much more. So this really hit home for me! Thanks for sharing!
This is an amazing poem and It really touches me bc I’m chronically ill as well. I have EDS, POTS, and a spinal disease so I completely understand everything you said in this and it can be so hard sometimes but keep fighting!
Moved me to lots and lots of tears. You captured the pain and emotions incredibly well. Thank you for sharing this with the chronic illness community.
This hit home! I've got severe Endometriosis and more... this.. is... amazingly beautiful ❤ thank you!
Beautiful, I can really feel that, Thank You. Chiari, EDS, and some others. thank you
I know most with any form of chronic illness can relate, thanks for the support. I wish you the best!
me too...
I've got SM
I have never felt like anybody could ever explain or understand how I feel until I watched this video. I have a rare chronic heart disease and nobody ever understands how I feel no matter if I try to explain they still don’t get it but this was something beautifully said
Nevaeh marquez thank you so much. I’m here for you if you ever want to rant 😊❤️
God bless you!!! First I want to start by saying you are not invisible!! I want to encourage to keep fighting through the pains. I myself live in chronic pain with no answers so I know it's easier said then done. I have faith that you can do it. I will keep you in prayer!!
Thank you so much for your support, those of us going through this really must stick together. We are stronger than we think and feel, and we can be there for each other and empathize.
I have a rare muscle disease. It causes me a lot of fatigue and while I look basically healthy I feel fatigued most of the time. While I don't have pain I still feel like I can relate to you. It's really hard to have a disease and it's compounded by people's lack of empathy and offensive statements. It's like getting hit by a bus and then the bus backing up and running you over again sometimes.
Felix Cat Fibromyalgia?
No, it’s called Pompe disease. It is very rare.
This hit deep. Diagnosed Fibromyalgia/hypothyroid symptoms since elementry school.
this is a great peom you relly described what's it like having chronic pain relly well which is pretty hard to do even when your living with it well done I hope you feel as better as you can
Thank you.❤🙌🎆🎆🌠❤💌
Someone finally put this into words. Perfectly. Thank you.
I have POTS & EDS and this is perfect. it explains it perfectly. ❤❤
I was just recently diagnosed with EDS as well and a couple years back I was diagnosed with POTS too. Small world, I'm glad I was able to explain it well (: thanks for the support
Cristina Michelle this made my day ! 💚 keep on.
same and etc
Lyrics pls? I love and relate to this sm. Thank you for speaking out.
😰😰😰 you just took everything I feel and gave it a voice. I love this, you are amazing
Thank you for these beautiful powerful words
Wow! Very moving with strong imagery
i,m crying after hearing ur poem u explain my life ...I have reuhamatoid arthritis..I'm only 20...it hurts really bad
I needed this this morning. Thank you for sharing your story.. sadly every fucking beautiful word is relatable to my life. You speak eloquently in your pain girl, thank you for sharing 💜
Massive hugs, Cristina!! :)
This made me cry every point in this was accurate for me. I have CVID which makes me sick 24/7 since I have half an immune system, I also have POTS, and Cromo which makes my bones hurt everywhere like needles. I also have EXTREME fatigue from all the pain. And all the ppl out there with POTS, whats up fam lol.
I love this so much. I'm going through just the same situation wow
I hope that you have a good support system, we have to stick together!
PAIN
This pain is the worse,
Life with it is a horrible curse.
It won't stop and It will not pause,
The bone grinding pain is the worse of all.
When you can't trust your mind and you curse your soul.
You want the nightmares to stop, the heart ache to slow.
The visions to quit playing over and over in your brain.
You feel so small, you feel insane.
You still see your brothers when the VBID blows
The sky goes black, the sun won't glow.
Everythings so dark, and consuming from the pain.
It's a steel monster with razor like claws,
It's ripped open my skull and is eating my brain.
No more strength for the struggle,
No desire to flee,
I'm starting right now at the monster that's slowly devouring me.
Your,
Sgt Brandon Tull
FINE the four letter f word
EDS, POTS
POTS? Same.
Are you on Spotify?
Loved it. Ive had leg and balance problems since birth but since I was about 8 or 9 ive been in pain every single day. It started with my ankles and now its every muscle and joint. No diagnosis as of yet. Anyone got any ideas? Its like a kind of pulsating pain thats dull but sharp at the same time. Not tender. Easily made worse by exercise. It only started in one joint and has spread to all joints and muscles and causes fatigue in the past 7 years.
Thank you for this! Very powerful & relatable! If you don't mind me asking, what is the illness you have?
I have Postural Orthostatic Tachycardia Syndrome, Fibromyalgia, and myofascial pain syndrome
Could I use this for my solo?
Most definitely! I hope you did - I’d love to see the outcome.
Which disease do you have?
I have Postural Orthostatic Tachycardia Syndrome, Fibromyalgia, and Celiac's Disease.
I have several, I always joke around that I'm falling apart. As of now the official diagnosis are POTS, EDS, Fibromyalgia, and Myofascial pain syndrome.
have you been checked for high csf levels, chiari, or spinal instability?