Pectus Excavatum/Nuss Procedure
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- čas přidán 26. 08. 2024
- Hello! I wanted to make this video to help others out who have had pectus excavatum. When I was researching years ago, I found there weren't many resources or people my age sharing their experience with the Nuss Bar procedure. If you have any questions just comment down below! :)
I have this condition and I first noticed as a teenager that my dad had this too. I get short of breath often but never linked it to this deformity til I was an adult. I never had a doctor mention I had it but I researched it myself and was like viola that’s what it is! I’m 66 yrs old now so I don’t know if it’s too late to do anything about it now. I also get pneumonia a lot but don’t know if it’s from the compressed lungs from this or from a genetic condition I found out I had last year called alpha one. I have a visit with my pulmonologist in a few days so hopefully I’ll get some answers then.
Thanks for sharing. As a mother of a girl who has it, it is very important to hear about your experience.
Facebook groups can also be very helpful
Absolutely! That is one major reason I wanted to share my experience.. I hope your daughter is dong well 🩷
Hi dear. Im niloufar and i live in iran .and sorry for my language. Because you know that English is not my mother language. Im 30 years old and i have pectus excavatom and i couldn't find any way to fix it . And nuss surgery doesn't do in iran . Can you help me to fix it? In your opinion vacum bell it it good for fix it wit exercise? . If i want to have surgery in other country it is so expensive for me . I dont know what do i do .😢 .
Hey! Just curious, did you have cryoblation done?? Also I was so shocked when you said they told you you’d be dead by 30!
I don't believe I had that done! and I know 😅
Hey! I’m 28 years old, and I’m having the surgery in about 2 months. I really don’t know what to expect when it comes to how much will I be able to do myself in the recovery period. It’s different when you’re a child living at home, but I’m a grown up 😅 do you have any tips or inputs?
كيفك؟
How are you doing now? I'm 27 and waiting for my surgery date...
I’m scared to get it done
It is scary, but SO worth it in the long run to be able to breathe!
@@melissasolbsis it to late at 66 to have it done?? I haven’t been able to breath normally in so many years that I think I’ve forgotten what it felt like! I can’t do any strenuous activities without feeling like I’ll pass out and actually will get physically sick.