CEO of EB Research Partnership Michael Hund on Venture Philanthropy | Venture into Cures
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- čas přidán 21. 11. 2022
- We thrive on opportunities to achieve the seemingly impossible. For those living with Epidermolysis Bullosa, or EB, living a pain free life, being able to eat, sleep, and even walk without suffering, is their elusive dream.
But it's not impossible. EB is an often fatal genetic skin disorder that affects children from birth. But curing EB is not an if - only a when. And at EB Research Partnership, our goal is to cure EB. EB Research Partnership is dedicated to finding a cure, and finding it quickly.
Learn more about the work and impact of EB Research Partnership at ebresearch.org
Help us reach that goal by making a donation to life-saving research at give.ebresearch.org/donate.
Watch the full Venture Into Cures event at • 2022 Venture into Cure...
My baby is six months old, eight days old and has been suffering from epi dermotysis simplex since birth. I have tried a lot of treatments but there is no benefit. So I am in trouble. I don't know what to do now. Please can you please give me a suggestion what can I do now.
Good day, I am 32 years old and have EBS. I want to motivate you to not lose hope. With simplex I am able to live a full life as i became older. My chidlhood was not easy, but currently things are looking good. I hope this for your child as well. He or she will grow up strong.