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The mom looks like pokimane

That nurse has some nerve accusing these parents of handling Rowan too roughly WTF!

I want nothing more than for there to be a cure for this devastating condition. I feel so badly for the sufferers of this cruel condition. Thank you Eddie Vedder.

This was 5 years ago. I hope they still read this and the parents probably know this but there is a cream I just read about that contains collagen 7 which is helping heal the wounds.

Dear precious boy, Brady. I pray for him and John Hudson Dilgen who also suffers from this horrible condition. I donated to the EB Research Partnership yesterday.

I really hope they can achieve their goal, it's not fair that people have to go through this...

God Bless him & thank u to the Vedders

He's the cutest little boy ever! 🥹😍😘

Chudák dítě 🖤🖤🖤🖤🖤🖤🖤

Hoping she's ok just clicked on to the channel she's beautiful god bless ❤

Hopefully she can start Vyjuvek

Letting over 12M cross our borders and paying to house, feed, clothe, medical, cars, phones, and also sending billions for other countries wars, but we can't make it easy to pay for this or any child's care and supplies. Makes me sick knowing our insurance companies would make it so hard for a family to get the help they need financially. We work hard enough, pay our taxes, and our medical insurance premiums. We can and should do much better!!!

This video is 9 years!I love Pearl Jam. However, the 5 million dollar mark has yet to be met?! They don't need 5 million to "find" a cure. The money is needed for bribing the medical profession, to hand over information, regarding a cure. Not a conspiracy theorist. However, as a Special Ed. Teacher, who has worked with human beings ages 18 month-olds, to 42 year-olds; mainly on the spectrum, im so sick of hearing: we are getting close to finding a cure! If you just donate....... "Evidence of Harm" great book. Oh, until the author was "forced" to profess, his findings were a scam. I suppose when your family's lives are being threatened, you do not have much choice.

😢❤❤❤

It took me more than 25 Years to discover this thing. I am a very severe patient of pneumonia and inflammation. I have a very sensitive body and if I eat anything inflammatory, my body becomes sensitive and I face either inflammation or pneumonia at a time. I checked it out by eating particular fruit, vegetable or grain for a particular time period . So it took me more than 25 Years to sort out these foods. During covid 19 infection, in some cases a patient's immune system becomes too sensitive and it produces excessive mucus. And if it is not controlled on time ,it takes a form of septic and the patient dies. What i am going to tell you, it is a natural way to control the over inflammation. Please read it thoroughly. Non inflammatory diet plan. 1. All the products that are made from/of wheat and barley but not bread, biscuits or cookies because they contain vegetables oils. 2. All the products that are made from pure animal milk like curd, cheese, ghee, butter clarified etc. 3. Paprika powder,red chilli powder, coriander powder,turmeric, sea salt,tea, white sugar. Mustard oil. 4. All, non - vegetable foods like mutton, chicken, fish, eggs, pork, beef etc. 5. Apricot, lemon (not limes). 6. Masoor daal, cinnamon. (mostly these grains and fruits are grown only in cold areas. ) I tell you, I used to face pneumonia or inflammation severely after every two or three months time period. A small scratch or cut on body used to take a form of a wound that did take months to get treated. I faced septic six times so far. when I got fed up by taking the antibiotics and they stopped working. I have no option but that. There are many things that are inflammatory and make a human body inflamed. if you have a sensitive body and you eat these things. Your body acts overwhelmingly, it produces more mucus or more white platelets to counter the problem. Sometimes the immune system becomes autoimmune and it acts overwhelmingly without a reason. Generally a human body does take 12 to 15 days to produce antibodies against any virus. In covid 19 infection, in some cases the human body acts overwhelmingly and produces more mucus. And before having the immunity the patient faces saptic and this is the reason the affected person dies. tell me the reason, why on a ventilator, a patient condition gets better after 6 or 8 days. It is just because he does not eat anything but he takes glucose for surviving and as I told you glucose is a non - inflammatory food. Second thing, during covid 19 infection many animals like dogs, cats and lions got affected with this virus but none of them was dead, I tell you why, covid 19 is not fatal for animals, it is just because of their feeds. Why won't the animals face gangrene, mums and excessive inflammation problems. It is not a natural deed. I tell you if you strictly eat only none-vegetarians grilled or boiled foods for 15 to 18 days without any sort of spices except lemon (not lime because lime is very inflammatory thing ). As we know that vitamin 'c' is a must to boost out immunity and none of the meaty foods provides vitamin c there. You can take sea salt, it is none inflammatory too. If you follow this diet plan very very strictly, you start to observe the results after four or five days and you can achieve zero inflammation withing 15 to 18 days. So please have a trust on it, and apply this diet plan strictly for 15 to 18 days and see the results by yourself. If you follow this thing during covid 19 infection you never face the worst and you never need a vantilater support to breathe. Note - you have to follow this diet plan very very strictly for 15 to 18 days. A little thing except the described diet plan can affect the whole result so apply this diet plan very very strictly. By Following this diet plan strictly you can treat mums, gangrene,herpes, pneumonia inflammation and any sort of fatal wound that hasn't been getting cured for a long time. Dear readers, I was a very severe patient of pneumonia and I had been facing it since my childhood. But now it's been three years. I won't face it and I have been living a strict but healthy life without any medication. I tell you the doctors will never recommend you this thing because they do not know it. And with this thing you can cure many incurable diseases without spending a single penny. This thing has no side effect. I mailed this thing to many doctors and one of them took this thing seriously. She practiced this thing on her patients. She offered only grilled or boiled none-vegetarians foods to covid 19 affected petients and she was very surprised to see the results. She admitted that corona virus could not have survived for more than four days and sooner they got rid of this dreadful virus veryeasily. She uploaded a video on youtube on this success, but youtube had removed that video two or three hours later. I don't know why this thing is being suppressed. But I know one thing, it is the only cure for this dreadful problem. In coming future if this thing is proved right, you will be responsible for all the lost of innocent lives that could have been saved. If you have any query please let me know at: harshhamde@gmail.com. Thank you. If you have any questions or querie, please call me at 9867067377, Please share this thing with the person who needs it most. Thanks..................

Awesome Stuff. Im 32 years old with EBS. This had me in tears, reminded me of my youth and the struggles i had.

Só gratidão a Deus e as pessoas que tem um coração enorme no peito,como vc e seu marido . Gratidão sempre.

That disease has to be the worst disease ever epidermis bullosa whatever the name is and to happen to children

❤

Anthroposophic Medicine

12:38 Emma's this look makes me want to call her as marshmallow lol She looks so cute

Praying for a healing for her amen try cannabis oil and THC and worm medicine for animals to kill cancer amen

God bless this initiative and Mark s family😊

She liked my comment on Twitter I talked with her at first I thought it was not having anything to do with him so I emailed it to his employee quess they thought I was crazy then I had a really bad rash at that time no feeling good it was so painful I told my son gf I wish they had a support group just to talk to others who had it I could not fight it every month .

4:56/5:14

1/10

My year is 17 and one my brother EB patient my brother 10year

I am EB patient from pakistan

I'm so upset with you people, Thinking you are a false charity. Because you should not be seeking treatment or cures when treatment and cures are available. The Raw(unprocessed/unpackaged) bark from the Tepescohuite tree almost immediately cures even the worst medical skin conditions. Combine Tepescohuite with Neosporin and use as poultice. For the Children. Spread the information.

This is such a great way to inform and inspire! Idk why there aren’t millions of views?

how is he doing?

This certainly touched my heart! What a precious child. ❤️ He is wise beyond his years. I am so glad they're bringing awareness to this. I pray that they may find a cure soon!

Whar chemicals or drugs are doctors giving people thats causing this honestly

To anyone who finds my comment that suffers from EB: please try Aloe Vera and marigold Herb, Blessed Be.

My Favorite PSA with a singer who slayed everything.

Very promising model that should applicate to other numerous rare conditions...

ATTENTION, ATTENTION, ATTENTION: Syrian scientists have managed to find a solution to this problem, they tested a German child suffering from this disease and the results are wonderful.

I have eb simplex and I m living my life normal.

So adorable child,

There is no end to the Buffay skin disease, but I am sorry for the families. Son 5:00

Povero piccolo, poveri genitori. Dio aiutali trova una soluzione. Tu puoi farlo Dio fallo

Јој кад јој видим рукице миле ,душица лепа ❤😢

Breaks my heart to see this

Hi Jill, I hope you get this message. I'm feeling a Ted Talk would help bring some much-needed awareness to this disease.. I live in Canada. It concerns me that, that though I am familiar with this diseases, many are not. There is so much damage being done to kids in school that leads to cruelty, we need to aspire our children and adults to starting opening their eyes and change how we see people, open our heart. I am happy to go into schools in Ontario and discuss this disease. We are people of privilege, some reality would help. Deep Respect Kelli EB Reach Partnership. If anyone at all reads your messages, please send this message to Jill. You can only try

The cure is not to have sex if both people carry the disease. Very simple. Should be illegal to knowingly have a child like this.

My baby is six months old, eight days old and has been suffering from epi dermotysis simplex since birth. I have tried a lot of treatments but there is no benefit. So I am in trouble. I don't know what to do now. Please can you please give me a suggestion what can I do now.

What a beautiful child! Praying for all of you! God bless you! 🙏🙏🙏

Golly, she's pretty! So is her Mom! You, too, Daddy! Your goodness isn't just in your looks though. It's in your caring manners with Rowan! By the way, I was a teenager in the 1960s and one of my very favorite songs was Sea of Love!! Is it possible to have her fingers exposed?

How do I donate