Eosinophilic esophagitis (EoE): Approaching from all angles
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- čas přidán 31. 05. 2024
- Kevin Ghassemi, MD, gastroenterologist, and Nancee Jaffe, MS, RDN, GI dietitian, will discuss current treatment options for eosinophilic esophagitis (EoE), best practices when working with treatments or transitioning from one treatment option to another, and diet options
For more information, visit www.uclahealth.org/esophageal...
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More on Nancee Jaffe, MS, RDN www.uclahealth.org/nancee-jaffe - Věda a technologie
This video synthesizes the most recent articles I've read, thanks for making this video accessible.
Just diagnosed. It's been fun but thank God for Doctors. I've had allergies my entire life so this is no surprise. I had a dilation done during my endoscopy and I'm enjoying every day that it lasts because I know its only temporary. I'm grateful I dont have something worse but not being able to enjoy food like everyone else is horrible and unless you've had the experience of food constantly getting stuck you have no idea how bad it is.
What dilation
its only temporary if you dont find the triggers. if you can figure out the trigger like a certain food you can avoid having the esophagus closing again
Great video thanks!
Great video that sums it all up. I got my diagnose 13 years ago and did not treat it any way. It has gotten progressively worse and I recently ended up at the ER with food impaction. Now on PPIs since two weeks and symptoms have almost disappeared. Endoscopy in a few weeks to check eosonophil levels. One thing I have noticed is that if my asthma flares up due to pollen or animals my eoe also gets worse. So clearly it's not just food. Anyway don't get used to living with eoe, get treatment soon since this is in most cases a progressive disease (was not pointed out by doctors back in 2008)
We have similiar experiences. I read a few years ago about a case where an allergy doctor put a patient on Humira and it cleared up the dysphagia. I just had my endoscopy and diagnosed and I'm curious what solutions will be offered next.
do you also notice that taking your asthma medicine calms down or fixes the EoE?
@@user-im6fy4qp6m I am not on regular asthma medication, only salbutamol in rare cases such as when I have been exposed to dogs or other allergens. Therefore my answer is no. Pantopratzol 20 mg taken daily and that has kept the dysphagia at bay. As I said before I notice variation in symptoms from none to slight difficulty swallowing but food does not get stuck the same way as before medication.
I have had EoE for a year and a half. I have had the orodispersible steroid tablets for 8 weeks, and achieved remission. However while this gets rid of the inflammation, if you keep eating the triggered foods it keeps coming back. I avoid cow's milk and all dairy related food. I try to eat slower as well but generally i get a burning in my throat and its uncomfortable. However I am able to swallow tablets, food and water with no issues whatsoever. I would love to try the elimination diet for real, rather than guess the foods that cause an issue. Even things like tomato soup have milk in them and trigger a flare up. Not easy, but be prepared to eat a lot more healthier!
Would labs w SIgA show up problem foods? Recall an elemental diet recipe on a Dr's SIBO site (she may have spoken on YT as well).
Any type of foods can cause problems. Even honey and other bee products in my case. Anything that touched fish so even kelp noodles cause me problems since it seems there is no way for kelp to be absolutely fish free. So seafood and bee products are my biggest culprits. And coconut sugar I never could understand why it would be always so brutal on me until I saw on CZcams how bees fly into the coconut flower sap while it's boiled down in kettles ...
This was good info and presented very clearly.
I am a 44 year old who is 5 weeks into the elemental diet. I agree that it's awful, mostly for quality of life, but I'll continue it for the last 16 days. I know you mentioned there is no "best approach" for a reintroduction phase, but wondered what standard practice is? Do you need 6 weeks of SFED afterwards? Also, where does alcohol fit in - wine specifically?
@Luiz Felipe Fernandes Stipp Is there any studies or tests being created for the mucosa responding to the proteins? I've suffered since childhood by regularly getting foods caught in my throat; I had my first dilation at 18 and have had more than 1/2 a dozen since; and my eosinophil count has never been lower than 50. Even after a 6 week elimination diet, my eosinophils were still high. But, after the elemental diet, my eosinophils went to 0 - I was shocked, amazed and very happy. It means it's 100% food related, and my refusal for medicine is warranted since, in theory, I can just eliminate the problematic foods. I didn't think anything would work, but the elemental diet worked wonderfully. There just isn't an easy way for re-introduction and figuring out the triggers yet.
What are ur eosinophils now? I have Eoe also
@@masonmalaguti3463 After doing the elemental diet, my eosinophils were ZERO!! So, mine is definitely food related. I didn't do the re-introduction with every follow-up endoscopy, and I haven't tested again since then so I don't know my # now.
@@jeeellclikes7010 did u have any relapses is ur life good?
@@masonmalaguti3463 I've had symptoms since I was a kid - I would get food caught in my throat all the time; my esophagus is 7mm now, there is some stenosis, and a couple strictures. I'm fine for the most part and know how to handle it. Food still gets stuck and I can't swallow big pills, but life is good and I can generally eat anything... until I actually find out what is causing it.
After watching your video I can't understand how my GI just gave me PPI 2 years ago saying I have to take it during all my life. There is diet for it. I am so frustrated right now. I still have the condition and it didn't get better. Thanks for that, it's give us some tools.
hah i had the same response from my first GI. find a new one, lots of doctors these day are idiots who drank their way through medschool and cheated on all the exams just so they could end up with the title. they dont care about actual patients or solving problems.
PPIs are tried first but if they do not help next up is cortison and/or diet. Your doctor should know.
This helps my son 😅
18:00 - this is what I'm going for my EoE. Hopefully this will be the key
Brother what are your symptoms? I can help
@@rickcamp7807 Ha... I dunno if anyone can. No matter what I eat, no matter what I try to avoid, I get acid reflux. I've even gone almost two days without food and only drank a little non alcoholic wine and had acid reflux. That's the biggest symptom. Other than that, if I don't take my medication, my stomach starts to swell, I get delayed gastric emptying, and eventually only a bite or two of food makes me feel full for hours. It's awful.
@@TheBeardedSandman Mine started from Antibiotics which destroyed the flora/ good bacteria. Did you take Antibiotics?
@@TheBeardedSandman Any problem swallowing food?
@@TheBeardedSandman I know more than the crappy doctors do. 11/2 of Hell. I found the cure. Not the,cure but you need probiotic to replace the good flora.
can I give my child his 7th grade vaccines while on this potent steroid? or should I wait?
I'll be make some videos about I how i cured myself from this condition using Neurolinguistic Programming. Video will be available hopefully next week. "A cure for Eosinophilic Esophagitis -EoE" Now I eat the foods that once caused EoE without having it come back to me. Scientifically proven to work!
Just got diagnosed with this yesterday after an endoscopy. Was told it’s progressive. Does that mean after a years of having it I won’t be able to eat again or even worse die?
@@mindymiller4521 aww thank you so much for this reassuring comment! I’m currently on gluten free / dairy free / nut free diet. I think it’s helping going into my 5th week now. When they say poor quality of life, what does that mean? Say if I was to get worse with it, what would an example be of poor quality of life? My consultant said I have a mild case of it so I’m trying not to worry. Thanks again for your answer :)
@@mindymiller4521 you’re a star! Thank you so much for your comforting advice on this. It’s helped ease my anxiety over it with the not knowing. I believed I was going to die eventually or have to eat through a tube. Thanks again
Progressive means it does more damage the longer it goes untreated. For example, one might start with a few hiccups after a meal and occasionally struggle to swallow food. Then a week/month/year/decade later it has gotten so bad that food gets impacted daily at mealtime. Over time, the initial swelling of the throat leads to worse and worse damage to the esophagus (progressive) and may even begin to cause scarring from either the food or now stomach acid, as it has popped up more and more over time to get to the food that is stuck. Eventually, without a fix, the sphincter erodes from all the acid or you start to get stomach ulcers or acid pain in the stomach itself. Would you die from it, probably not, but you may have to have your esophagus worked on, which is WAY worse in my opinion then just altering what you eat.
No, it is not! But you hold the golden key. Your choices will dictate your destination with this chronic condition. I should know after over a decade of embarrassing dysphagia episodes and nearly a dozen dilations and counting. You'll eventually be tested and given a list of bad actors- the foods to avoid altogether to eliminate the inflammation. Your fork, knife, spoon, and straw will be your guide. If you cough after eating something- avoid it. I'm allergic to nearly everything- wheat, dairy, soy, tree nuts (bye-bye peanut butter), shellfish, pork, red meat, and alcohol. Yeast is one of the worst actors for inflammation. It can and will limit your social activities. I became a hermit of sorts for a long stint because of my lack of self-discipline and poor willpower. The anxiety or fear of choking in front of others is one of my biggest things. You have a chance of beating this with the early detection assuming you haven't been dealing with it for years? I wish you the best. Your attitude (either or negative or positive) will greatly affect the results of your journey. I have had a poor, poor, pitiful me approach for many years and I can tell you that is useless and has no benefits. Take action and be in charge of your life right now. Ask for tests and be re-tested again. Make your list of bad food groups and stay the heck away from them at all costs! I wish you well!
Can Covid cause this, or something like it?
No
It’s genetic
PPI’s are terrible and this is 1000% a food allergy issue. Oooof
U literally Stoll this lol