Me & My Wheelchair: "But Dude; you can WALK!?"
Vložit
- čas přidán 20. 10. 2019
- I wanted to talk about some of the awkwardness around using a wheelchair. I can walk (a bit) but I still need a chair - here's why!
Lots of conversation around this both online and IRL, which is great to hear. I spoke to a parent who’s daughter uses a wheelchair in school. On better days, she wants to get out of chair (they’re not as comfy as you might think). If she does, she gets bullied and told she’s faking it. That’s pretty messed up.
If I had problems with my impairment at school or college teachers/tutors always said I was “playing on it” - the concept of better/worse days was completely lost on them. One head of department told me I was “only disabled when it suited me.”
As parents and educators we have to do better. Impairments/conditions aren’t fixed states, they shift and change, as do our needs. And if your body is so perfectly reliable that you can’t grasp that, then you are very lucky indeed...
Of course, a lot of people totally get it, and I’m really grateful. There’s people out there who don’t know that they don’t know, and those are the minds we have to change. Thanks for all the kindness on this one; seems sharing really is caring 🙂
Head to dyskinetic.net for may music, blog and other adventures!
They need to start teaching children that disability is a spectrum.
More people need to hear this. I'm an ambulatory wheelchair user. Typically I use a cane, but if I want to got somewhere there is a lot of walking I use my wheelchair that way I can enjoy what I'm doing and not be miserable because I'm in pain and worn out.
I have fibromyalgia syndrome, osteoarthritis, sciatica, and cervical spondylosis. I say I'm a wheelchair user not a full time wheelchair user. I have to use my chair outside all the time, but not all the time in my house. People should focus on their own lives and stop wondering about everyone else's lives. You don't know the person, anything about their lives or their circumstances. Xxxx
I am a new powerchair user and am fully ambulatory. I have been put in a powerchair because it has gotten very unsafe for me to continue walking. You see I have a type of seizure that causes me to get extremely dizzy, have an extremely bad headache, loose my vision completely and then with in a second of the beginning of the seizure I literally am on the ground. I have these seizures every 2 to 5 minutes. The amount of injuries I have had in the last 6 months alone is absolutely outrageous.
My son is autistic and I use a chair for him because he has no understanding about danger cars, roads, crowds etc. The looks I get when he gets out of his chair to play in the park is ridiculous.
People see you stand & act like you've scammed them. I can walk a little but not long & not without pain. It can take days to recover from walking. Remember too you have civil rights. Exercise them if necessary.
Great video. We need more people with disabilities raising awareness. I am a part time wheelchair user.... people do not understand mobility generally.
I've got cerebral palsy too and I'm legally blind and I've gotta use different types of tools to help me get around too.
I have CP too and am also in a wheelchair but was able to walk for a while and still can short distances my life since having a wheelchair is so much better I’m so much more independent and I have less anxiety about being in public my family viewed at as giving up I view it as living the best life possible for me. Thank you so much for the video!
I can walk short distance, struggling at work so am getting a chair in a week, really nervous about it but enough is enough, thank you for this I was pretty depressed about regressing.
I have FND and am a wheelchair user, i've been told "you can move your legs, so you don't need a wheelie". dude this is for my safety as i can't walk.
Exceptional video. I’m 53 and joined the disabled world a few years ago. I’m C5 - T1 incomplete and after two years of intensive PT I have gone from no ability to walk to being able to cover short distances using forearm crutches. Like yourself, it isn’t without pain, it does require total focus on walking, and it’s exhausting, awkward, slow and dangerous. The chair affords independence, freedom, safety, endurance and the ability to be part of the conversation.
Sir I do totally understand what you are dealing with, I was born prematurely and I have a mild case of cerebral Palsy and rheumatoid arthritis and lupus (SLE)
Thanks so much for this awesome video! I am also an 'ambulant wheelchair user' and it's great to see someone explaining how awesome it is to get a wheelchair and actually be able to go out and do things again! I hope this will spread awareness that using a wheelchair is not the absolute worst, as well as that not everyone using one is paralysed.
Stares, not stairs, stairs would be a bad idea 😂 love it! And yeah, you're so right, im so glad you're talking about this
Thank you for discussing this topic.👍🏾👍🏾
I heard you. I am wheelchair user also. I hear "I wish I had ones those power wheelchair." I say to them I wish I had body that worked.
I want to get a wheelchair for rheumatoid arthritis, but I feel that if the local people see me going around on my crutch some days, they might be like “Oy!” 😮
Great video!!!! I also have mild CP and started using a wheelchair just over a year ago. OMG, the freedom it's given me!! No more struggling and suffering just to do the most basic things. And yeah, the only negative is having to deal with other people's energy... But as you say, 99 percent of people are super cool and normal. Anyway, thanks for the vid!
Thank you so much for this Kris!!! This is such an important topic and I love the way you talk about it so calmly. My memory tells me this didn't used to be such a big problem before social media kicked off and people were carrying around "smart" phones with cameras and could "document" all the things they felt were abuses of handicapped parking etc, etc... But it still amazes me how people can be so ignorant and willfully uninformed. Please make the short film!!!