Shannon Boxx uses her voice for Sjögren's - World Sjögren's Day 2023

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  • čas přidán 5. 09. 2024

Komentáře • 13

  • @Catherinefalk1970
    @Catherinefalk1970 Před měsícem

    I was recently diagnosed with Sjogren’s and appreciate videos like this. Serious athlete my whole life until recently felt horrible fatigue and my legs felt like numb bricks that couldn’t move anymore. I too got the eye swab test as the first indication I had this. Please be your own best advocate with your team of doctors!!!!

  • @caz7363
    @caz7363 Před rokem +4

    Thank you from Australia for your detailed explanation for Sjogren’s. I’ve been diagnosed for about 10 years now and as for lack of saliva my teeth are breaking and falling out like I bad nightmare.

    • @noemiepajares942
      @noemiepajares942 Před měsícem

      Keep going to a Dentist there good ones stay happy

  • @jilljones4566
    @jilljones4566 Před rokem +1

    Thank you. Please keep speaking about Sjogren's. ❤

  • @mysjogrensjourney
    @mysjogrensjourney Před rokem +3

    Thank you for this video. So very well explained. I hope you are doing ok. 🙏🏻❤️

  • @seandkat2487
    @seandkat2487 Před rokem +3

    She keeps stressing moisturize but loss of moisture is the least of my symptoms. I have primary Sjogren's Disease, my SS-A was the highest my MGH Boston head of Rheum had ever seen. It's not just SICCA. I'm Neuro all the way. I have only 25% of my automatic and sensory nerves left.

    • @noemiepajares942
      @noemiepajares942 Před měsícem

      Yes very hard but don’t dismayed keep helping your body talk to your Dr blessings

  • @janefigueroa1731
    @janefigueroa1731 Před 11 měsíci

    Laying on back in bed ,sorry my phone tupes what it feeld like sometimes

  • @janefigueroa1731
    @janefigueroa1731 Před 11 měsíci +1

    I was lauing in bed on back watching t.v. eaiting to drift off to sleep and the whole room started spinning it lasted about 2 minutes

    • @noemiepajares942
      @noemiepajares942 Před měsícem

      Liquids water is so important have it at hand sip and sip remember our body needs fluids to keep on going blessings

  • @janefigueroa1731
    @janefigueroa1731 Před 11 měsíci +2

    Has anyone experienced dizzy spells from Sjrogrens.

    • @noemiepajares942
      @noemiepajares942 Před měsícem

      Yes and is good to keep checking your ears tell your Dr and be careful blessings