I just got my first IvIg therapy for low IgG due to post covid. I’m hoping after 18 months of suffering that this will help. So excited for this research Thank you!
I am so glad you are doing this! I told my Rheumatologist that I have all the symptoms for POTS and he looked at me like I was crazy! (I have Sjogrens and dysautonomia) Wish I was closer to Dallas or I would definitely join up. (I'm in Tampa) Best of luck! :)
My rheumatologist at usc said its not likely my dysautonomia is caused by sjogrens (new diagnosis of both)...I was floored she didn't recognize the two are connected!
Thank you so much for this! I go to the Doctor in 2 weeks and think I have POTS. I keep dropping my pressure and have passed out in the past. They are also having trouble getting my Sjogren's under control.
I am living in the Netherlands having Sjogren's disease a very long time. I also have Pots symptomps and dysautonomia but what can you do to it? Our Sjogren's foundation are not so informeren as well as in the USA. Thanx a lot of this informations
Try prp for dryness of skin, joints. That's terrible what they did to you. But with stem cells probably there will be very soon some treatments: take care.
I just got my first IvIg therapy for low IgG due to post covid. I’m hoping after 18 months of suffering that this will help. So excited for this research Thank you!
So far I’m 7 minutes in and am pleased and thankful that I can follow the doctor’s clear descriptions. Thank you!
Hola!
Soy de Puerto Rico y soy paciente de Sjogrens!!
I am so glad you are doing this! I told my Rheumatologist that I have all the symptoms for POTS and he looked at me like I was crazy! (I have Sjogrens and dysautonomia) Wish I was closer to Dallas or I would definitely join up. (I'm in Tampa) Best of luck! :)
My rheumatologist at usc said its not likely my dysautonomia is caused by sjogrens (new diagnosis of both)...I was floored she didn't recognize the two are connected!
Thank you so much for this! I go to the Doctor in 2 weeks and think I have POTS. I keep dropping my pressure and have passed out in the past. They are also having trouble getting my Sjogren's under control.
I am living in the Netherlands having Sjogren's disease a very long time. I also have Pots symptomps and dysautonomia but what can you do to it? Our Sjogren's foundation are not so informeren as well as in the USA. Thanx a lot of this informations
I have both. I go to Hopkins
I have Fibromyalga neuropathy. I have dizziness dry eye dry mouth. I ALSO HAVE THE R ARTHRITIS SKIN PROBLEMS.
Accutane ruined me
It’s been 15 years and no answer
Dryness everywhere
Joint issues
Skin issues
Sleep problems and mental
Nothing helps
Try prp for dryness of skin, joints. That's terrible what they did to you. But with stem cells probably there will be very soon some treatments: take care.