Bella's Reality (Pfeiffer Syndrome)

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  • čas přidán 23. 09. 2017
  • Bella is diagnosed with Pfeiffer syndrome, a condition that affects the shape of her skull. She wishes that other children would just say “hi” and accept that she’s a normal kid.
    Bella is so typical she even quits “Candyland” when her Dad is winning.
    SBSK Patreon: / sbsk
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Komentáře • 604

  • @glowworm2
    @glowworm2 Před 2 lety +1054

    Bella is extremely smart. She told a very sophisticated joke for her age. She's a lovely little girl.

    • @MsLarry111
      @MsLarry111 Před 2 lety +9

      how old is she?

    • @glowworm2
      @glowworm2 Před 2 lety +38

      @@MsLarry111 I think she was 5 when this video was made. She'd be about 9 today, if I'm not mistaken.

    • @elijah-jajah
      @elijah-jajah Před 2 lety +47

      @@glowworm2 yo she is 5? dang she smart

    • @chiaravischi
      @chiaravischi Před 2 lety +9

      @@tyler-bb6el you're not welcome here.leave this comment section.

    • @glowworm2
      @glowworm2 Před 2 lety +9

      @@virg0_lem0nade Maybe so, but the fact that she knows it's a joke and that it's funny at that age is still very impressive to me.

  • @racheltheehermit7314
    @racheltheehermit7314 Před 2 lety +262

    She is such a cutie. I’m so glad she can use assistive communication. She has a lot to say! What a bright little girl. Wishing her and her family all the best.

  • @courtneypetit9128
    @courtneypetit9128 Před 2 lety +126

    Omg I love her tiny voice when she says thank you! So precious!

  • @zenoxiiii
    @zenoxiiii Před 2 lety +607

    words cannot express how much i love this child. she's so funny and just all around adorable. I hope she makes lots of new friends and stays happy forever! :)

  • @aurxlia3126
    @aurxlia3126 Před 2 lety +127

    i love how bella tries to talk by herself even if there’s a speaker in right front of her to use. she’s so cute.

  • @hayleyyeager8008
    @hayleyyeager8008 Před rokem +59

    I am glad that he let Bella take her time communicating because she has to think about what she wants to say before she types but I am happy that she learned sign language and is able to speak too! Bella is a smart girl who deserves to be loved and accepted!!!

    • @sophiaesmarcharo9775
      @sophiaesmarcharo9775 Před rokem +2

      😍🙏🙏❤

    • @willow_jayde
      @willow_jayde Před rokem +4

      Chris always gives his advocates time :) he interviewed a 20some year old almost 30 mins, a couple 15s a 20 and a few 5-6 minutes to respond and recorded it. He sat patiently and watched her work her machine, quietly, and kept on asking questions even with all that time between, then he captioned the time she gave her anster at the bottom so we could skip to it if wanted, but alot of folks waited too

    • @hayleyyeager8008
      @hayleyyeager8008 Před rokem +1

      @@willow_jayde Everyone is different and that’s ok

    • @angelinaquilimaco8105
      @angelinaquilimaco8105 Před 9 měsíci +4

      So I am blind! How is she communicating? What is the machine she was using? I use an iPhone! She is the sweetest little girl ever! I will be your friend Bella! I would love to get to know you better!

  • @dunkinbutterbeans710
    @dunkinbutterbeans710 Před rokem +57

    i’m glad this man is so patient and loves kids and people even if they’re different mentally or physically. i like the fact that he interacts them with their own level

    • @user-kp8ti7ix4p
      @user-kp8ti7ix4p Před měsícem

      Bella may be mentally and intellectually the same as other kinds, though. This syndrome often only affects the bones while the brain stays absolutely healthy.

  • @clouds1761
    @clouds1761 Před 2 lety +123

    It warms my heart that this girl is so cute and amazing! It’s hard to believe that ppl think she’s a punishment from god she is the literal opposite she’s an angel!

  • @dwilson6769
    @dwilson6769 Před rokem +40

    She is like everyone else but a slightly different vessel. Dad is wise. Only the best parents get the special angels.

  • @rosanne0569
    @rosanne0569 Před 2 lety +195

    Fun fact: the name Bella in Italian means “beautiful”. Just to show that she is really a beautiful human being. Peace and love to her and her family. ❤️✨🌈

  • @jnieswartz4878
    @jnieswartz4878 Před 2 lety +46

    I love this family! Bella is adorable! Her dad is hilarious and her mom is so sweet n loving. Bella was never a punishment from god. She’s a blessing.

    • @KrystalHarwood-ty7rk
      @KrystalHarwood-ty7rk Před rokem

      sometimes others beliefs are confusing

    • @peppergirlrocks
      @peppergirlrocks Před 4 měsíci +1

      @@KrystalHarwood-ty7rk Sometimes some people just like to think in the negatives.

  • @companyowner111
    @companyowner111 Před 2 lety +309

    Bella you should let your dad win at Candyland. It isn’t your fault you are too good!!

  • @manestage5403
    @manestage5403 Před 2 lety +274

    I can tell Bella is sassy. 😂
    I love her personality and am so grateful she has a device that allows her an opportunity to communicate her thoughts and feelings to us.
    She's sharp.
    Shame on the morons who say that people with medical conditions are cursed by God.

    • @kidwiththekoolaid
      @kidwiththekoolaid Před 2 lety +9

      I personally don’t have a disability but I like to think disabilities are a sign that God loved you enough that he decided to challenge you. And that’s a good thing. (Sorry if I didn’t make any sense. Im not very good at explaining my meaning lol 😂)

    • @Xamy-
      @Xamy- Před 2 lety

      @@kidwiththekoolaid oh bugger off, that’s such an atrocious way of thinking. If that’s the case then god is an arsehole. In reality it’s just DNA replication issues

    • @tamaragabr244
      @tamaragabr244 Před rokem +4

      @@kidwiththekoolaid Exactly! So many people dont get this!

    • @msca2480
      @msca2480 Před 11 měsíci

      Loro sono i salvi

    • @NostalgiaEdits111
      @NostalgiaEdits111 Před 4 měsíci

      ​@@kidwiththekoolaidThen God is wicked and likes to play with mortals...🥲

  • @JackieHagge
    @JackieHagge Před 2 lety +55

    I’m back again watching this ...Bella is sooo sweet...I can’t get enough!! I love her happiness...I just get happy watching her be happy!! Personally I think she is so beautiful inside and out! Chris - update please!

    • @turkishpunisher6386
      @turkishpunisher6386 Před 2 lety +2

      Same here

    • @saidkada1920
      @saidkada1920 Před 2 lety +1

      Ok💟💙💚💜👌👌👌👍💋👠👡👜👗👙💝💞👒

    • @MrKyleis18
      @MrKyleis18 Před 2 lety +14

      @@tyler-bb6el seriously what is wrong with you, did your parents not love you?

    • @alanmoulet1362
      @alanmoulet1362 Před 5 měsíci +1

      @@tyler-bb6el the look in her eye make her so much more human then yours

  • @ako_ito
    @ako_ito Před 2 lety +11

    Hahaha "silly Chris"
    I wonder how is this child...
    I am smiling while watching.
    Bless all of you.

  • @lorelieplum81
    @lorelieplum81 Před 2 lety +84

    I'm so glad the comments are back. I adore Bella. Will you be doing a follow up when safe to do so Chris? I feel so sad at the when she gets upset.

  • @erinriley3912
    @erinriley3912 Před 2 lety +27

    Going around spreading love in the SBSK comments to celebrate them coming back!!

  • @wolfehtreez
    @wolfehtreez Před 2 lety +31

    She’s adorable and I can’t stop smiling at this video 😊😊😊

  • @pipper70
    @pipper70 Před 2 lety +52

    It's so wonderful to give this young lady a voice and see why her family loves her so much.

  • @maryfyfejost8243
    @maryfyfejost8243 Před 2 lety +9

    She is awesome! So funny too. Her mum and Dad seem incredibly patient and loving towards her as well.

  • @reggieandenzoschaos7726
    @reggieandenzoschaos7726 Před 2 lety +39

    Such a big personality in such a small package. I wish her lots of love and joy

  • @supafr3ak4l1fe
    @supafr3ak4l1fe Před 2 lety +11

    What a little sweetie! She is a blessing and so adorable! I love her!❤❤❤

  • @helenfranklin4936
    @helenfranklin4936 Před 2 lety +9

    What a adorable smart Child. May God bless this family

  • @UceyJuceyJey
    @UceyJuceyJey Před 2 lety +23

    I can’t ever wrap my head around any sort of negativity her and her family receive. Her parents are extremely lucky to have such a beautiful soul for a daughter and she’s lucky to have such incredible parents who love her for who she is.

  • @Jenna_Phillips1122
    @Jenna_Phillips1122 Před 11 měsíci +5

    She has so much patience and grace. I imagine it must be difficult to understand everything that’s going on but not being able to verbally express yourself. Being aware that your body cannot keep up with your brain must be very frustrating at times. I’m glad she has a system in place that works for her, allowing her to communicate. And I’m happy to see she has such a loving family that is patient with her.

  • @JackieHagge
    @JackieHagge Před 2 lety +8

    Please!!! a new beautiful Bella video!!! I wish I could meet her and her parents...such AWESOME people!!

  • @sherryb7018
    @sherryb7018 Před 2 lety +35

    She is a BLESSING!! NOT a punishment. Live well Bella!!

  • @betsynicholas
    @betsynicholas Před 2 lety +26

    Bella has many friends here! Such a sweet and smart girl.

  • @nurafaery9455
    @nurafaery9455 Před 2 lety +26

    She is extremely adorable 💗💗

  • @Heyymynameisjbells
    @Heyymynameisjbells Před 2 lety +6

    Awe i love her. She is incredibly cognitive which is amazing to see! Awe she is just the cutest, god bless this loving family.

  • @carolfitzhugh8097
    @carolfitzhugh8097 Před 2 lety +9

    Bella is a perfect name for you! Beautiful inside and out. God bless you and your family.

  • @Gyatt_alert
    @Gyatt_alert Před 2 lety +10

    Her voice is adorable 🥰

  • @mariadigiorgio7440
    @mariadigiorgio7440 Před 2 lety +4

    What a beautiful and darling girl!!! Love her spirit and spunk; she is so precious!!! Lovely and caring parents- such a beautiful family!!!

  • @dontcallmethat6515
    @dontcallmethat6515 Před 2 lety +7

    bella brings so many people joy with her gorgeous smile!!

  • @taniavp4464
    @taniavp4464 Před 2 lety +6

    Omg this sweet little girl melted my heart to tears, she's so adorable, smart and funny!!
    God bless her and everybody 💜🙏✨

  • @tanyahorula1060
    @tanyahorula1060 Před 2 lety +21

    Bella must be so much fun to spend time with!

  • @nindikaur2095
    @nindikaur2095 Před rokem +4

    Beautiful Bella, lovely to meet you. You are intelligent and funny. Your parents are loving and kind people. Much love is in your family. Thank you for sharing. ❤

  • @Gyatt_alert
    @Gyatt_alert Před 2 lety +6

    She’s so cute! Her family is so sweet aswell.

  • @cjstone3140
    @cjstone3140 Před rokem +2

    Chris has the biggest and most genuine smile - and a heart as big as Texas!
    Bella is so sweet, smart, and funny and really enjoyed this visit.

  • @sichen7093
    @sichen7093 Před 2 lety +2

    Such a loving family! Thank you for raising the awareness 🙏🏻

  • @selenagoldberg3318
    @selenagoldberg3318 Před 2 lety +26

    Please do a follow up I’d love to hear about Bella again❤️

  • @dorothyhilsinger8282
    @dorothyhilsinger8282 Před měsícem +1

    She's so precious ❤❤❤. God Bless her and family ❤❤❤

  • @beasty_b6967
    @beasty_b6967 Před 2 lety +6

    Aw Bella is a sweetheart. She made me smile at my darkest times

  • @patricksomerville738
    @patricksomerville738 Před 2 lety +19

    omg the way she says thank you at 5:05 :) so cute!

  • @mittensledermann9562
    @mittensledermann9562 Před 2 lety +15

    What a wonderful video. It’s nice to meet you Bella, thanks for telling us a bit about yourself

  • @allennewborn936
    @allennewborn936 Před 2 lety +3

    She is utterly awesome and amazing. The little sounds are totally decipherable. Context being important of course.

  • @luismorenomunoz7756
    @luismorenomunoz7756 Před 2 lety +11

    The work you do is admirable, I love your channel

  • @ash-gf1he
    @ash-gf1he Před 2 lety +4

    Omg this made me cry, she's so damn beautiful she has a perfect personality she's silly she's just beautiful

  • @theirbrotherhoodandfriends6101

    Way to go Bella! You're really intelligent! It was really amazing watching this interview. And you have a loving family. May you all have happy life ahead! Sending much love!❤

  • @morallybankrupt1461
    @morallybankrupt1461 Před rokem +1

    What an angel. God bless her and her wonderful family.

  • @thesilvershining
    @thesilvershining Před 3 měsíci +2

    I love this little girl, please do a follow-up episode!

  • @kathrynoneill5862
    @kathrynoneill5862 Před 2 lety +10

    She is so cute. I just love her.

  • @NostalgiaEdits111
    @NostalgiaEdits111 Před 4 měsíci +1

    This man is an angel, not everyone manages to have that natural ability to communicate with people with functional diversity without having prejudice.
    You make me feel comfortable because sometimes I feel different with my epilepsy and how slow I talk when my medication is out of adjustment...
    Thank you, we need more people like you. ❤

  • @jasmaya
    @jasmaya Před 2 lety +4

    Her parents are so wonderful

  • @davet9900
    @davet9900 Před 2 lety +2

    i find her so sweet, would love to give her a hug

  • @tyrahsteele2891
    @tyrahsteele2891 Před 2 lety +1

    She's so cute and all your videos make me smile and feel good about my self 🙂

  • @dianee8010
    @dianee8010 Před 2 lety +4

    What an adorable child! She is very bright too!

    • @krystalharwood7842
      @krystalharwood7842 Před 2 lety

      i knew a girl almost like her but she had a tracheotomy. she couldnt talk and communicated just by going *pblllbbbth* with her tongue. she was also very sassy! lol

  • @ETRNLIZE
    @ETRNLIZE Před 2 lety

    Man I respect you so much, your doing gods work. Thank you.

  • @freenchrist2935
    @freenchrist2935 Před 2 lety +1

    I pray, from this moment on, ALL who see Bella, gives her GREAT acceptance. 5 years from now, that she will LOVE to meet new people! We LOVE you Bella, and accept you as you are!

  • @gemmalouiserowledge545
    @gemmalouiserowledge545 Před 2 lety +5

    She's a gift she's amazing and Jesus she as amazing lovely family ❤️

  • @aliciasimsxox3854
    @aliciasimsxox3854 Před 2 lety +3

    Aww bless her she's just such an amazing human♥️

  • @BrendaMariana218
    @BrendaMariana218 Před 2 lety +7

    This just warmed my heart ❤️

  • @randomvideos1699
    @randomvideos1699 Před 5 měsíci +1

    She is such a cutie. it’s really impressive how she’s able to use the device she seems like it’s delightful gifted child

  • @janetandamocha7874
    @janetandamocha7874 Před 2 lety +9

    That giraffe joke made me laugh a lot more than it should have :D

  • @olafelsberry420
    @olafelsberry420 Před 2 lety +3

    She’s got a darkish sense of humor she’s cool. I’m also going to steal her giraffe joke.

  • @user4732_
    @user4732_ Před 2 lety +2

    You guys do great work. Keep it up!

  • @elizabethyoungshoeboot9880
    @elizabethyoungshoeboot9880 Před 2 lety +13

    She is so smart and funny i love her.

  • @DoctorF1984
    @DoctorF1984 Před rokem

    She is really smart and her personality ist awesome. She has the right words for every answer. I Wish her all the best from my Heart. She bring tears to my eyes.

  • @agirl531
    @agirl531 Před 2 lety +2

    Dear Bella, No matter what anyone says u are a great person and I hope u live a happy life. 💖✌🏼

  • @georginashanti4605
    @georginashanti4605 Před 5 měsíci

    She's absolutely gorgeous, sassy & smart. I hope she has made lots of friends & that her friends appreciate her for all her amazing qualities, I really do. 🌼🌼🌼

  • @electrarain5602
    @electrarain5602 Před 2 lety +1

    She is so adorable and I'm glad they have those communication devices so she can talk through that and I also watch another CZcams channel with amazing parents that have a little one who has Pfeiffer syndrome as well all children are amazing no matter if they have a certain condition or not I just wish a lot of people in the world wasn't so judgmental love and cherish your kids no matter wishing her many blessings and her parents as well and I'm sure she will make friends in time she already has a great sense of humor and a nice personality

  • @Kakwasi
    @Kakwasi Před 2 lety +5

    Beautiful family.i love Bella and Chris

  • @jitulborah_10
    @jitulborah_10 Před 2 lety +1

    Sbsk is the best channel i ever discovered

  • @valeriepereira1581
    @valeriepereira1581 Před 2 lety

    Such a lovely video and Bella, I love your great sense of humour!

  • @annespan65
    @annespan65 Před 2 lety

    Bless you and your family, Bella. You are a miracle.

  • @ladyc1226
    @ladyc1226 Před 2 lety +3

    She too, is such a Happy and Smart Child...Chris is her friend now..I would like to be your friend as I watch your videos❤ Amazing💯

  • @hellohi4653
    @hellohi4653 Před rokem

    I love bella and her parents, theyre such nice people

  • @courtneypetit9128
    @courtneypetit9128 Před 2 lety

    She is super smart they must be so proud of her!

  • @rachealmbabazi7453
    @rachealmbabazi7453 Před 2 lety +2

    Thanks guys for the good job

  • @nonniewatson4561
    @nonniewatson4561 Před 2 lety

    O cannot wait to see bella again... She is spunky and above her time... I had never seen her dad... Bella has a beautiful family and their blessing show

  • @MRYEMAN
    @MRYEMAN Před rokem

    Such a sweet girl and Chris is so awesome

  • @carrielee711
    @carrielee711 Před 2 lety +1

    She is so AMAZING! She's smart and seems to have a great personality!!!❤❤❤🤗🤗🤗 these precious little Angels are blessings and I'm so thankful she was blessed with such a loving family. I know it may be so hard at times, but thankfully, as I said, she was blessed with a great family. ❤❤👍

  • @seektruth24-7
    @seektruth24-7 Před rokem

    What a doll! Love to her family as well!

  • @cosmicindigo2222
    @cosmicindigo2222 Před 2 lety +3

    Absolutely precious - the both of you ♥️🤗

  • @SsVoyage1892
    @SsVoyage1892 Před 2 lety +2

    Bella and her family are so adorable 😭 I can’t imagine someone not liking her

  • @hannahokner5965
    @hannahokner5965 Před 2 lety +1

    she is just the absolute cutest I love her

  • @melikeczarnowski8340
    @melikeczarnowski8340 Před 2 lety +3

    God bless you and this beautiful family

  • @lilo8853
    @lilo8853 Před rokem +1

    Bella is so cute and smart but the best thing is that you be you ! you can see the world of love and being able to get a friendship with people💗❤️💗🌹 I LOVE UR VIDEOS!

  • @gracemusasa6026
    @gracemusasa6026 Před 2 lety +1

    Wow. She's truly impressive and amazing. Cheers and love ❤

  • @johnjobin7694
    @johnjobin7694 Před rokem +1

    Hi Bella! You are amazing❤️
    I hope you are doing well❤️
    Sending love to you and your loved ones❤️

  • @maxanderson6216
    @maxanderson6216 Před 2 lety +10

    It’s crazy how diverse our society can be

    • @TTancevat
      @TTancevat Před 2 lety +1

      @@spaceranger8856 What? How is that messed up. They were just interested in how diverse and different people can be from one another.

    • @samanthacole4395
      @samanthacole4395 Před 2 lety +1

      @@spaceranger8856 you’re the messed up one.

  • @bwahbruh
    @bwahbruh Před 2 lety +8

    She is so sweet omg. What a sweet and strong girl! ❤️❤️❤️

  • @GracieLou626
    @GracieLou626 Před 2 lety +2

    What an adorable Angel.

  • @theslayer9441
    @theslayer9441 Před 9 měsíci

    Chris is such a sweetheart oh my god

  • @c.2803
    @c.2803 Před 2 lety +6

    Achamos que fazemos essas crianças felizes, quando na verdade são elas que tornam nossos dias mais que especiais, impressionante.

  • @jaidamcintosh9234
    @jaidamcintosh9234 Před 2 lety +17

    Hey Chris! Can we get an update or a link to Bella’s social media and fundraisers? We love her lol

  • @nusratbintabdullah5713
    @nusratbintabdullah5713 Před 2 lety +4

    Wow am in love with Bella little angle. God bless you

  • @contemplatinggod2791
    @contemplatinggod2791 Před 2 lety +4

    Wow, Bella is so smart, am sorry to have thought she probably wasnt🙈

    • @chloeshann8142
      @chloeshann8142 Před rokem +1

      I have so much respect for someone who is open to learning

    • @grasshoper
      @grasshoper Před rokem

      It’s okay. It’s good that you are open minded for learning about people with disabilities.

  • @maryhaase3841
    @maryhaase3841 Před 2 lety +2

    What a wonderful human being Chris is!!! Wow!!! (Not too bad on the eyes either lol) God Bless you young lady .... 🙏❤