Appealing a PIP Decision - My tribunal Hearing & Outcome
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- čas přidán 17. 06. 2023
- After a 7 month' wait, I finally got a date for my PIP tribunal appeal hearing. I was incredibly nervous and dared not be hopeful after such a traumatic year and being let down time and time again, so to have such an incredible result took me completely by surprise! In this video, I explain how the PIP tribunal hearing went, what happened, and how the tribunal panel made their decision about my Personal Independence Payment entitlement.
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It’s been a year on the 16 th of October since I first applied… now in tribunal stage !! I was pre diabetic now I’m type 2 and even though I was under cardiology and now have a diagnosis for my heart condition they said if I want to add that I have to start a new claim :( I have various health conditions which since first applying have now got furiously worse 😢 I’m extremely stressed
You may find the forum on the Scope site useful in future for making applications they're pretty good, had one saying they've had a friend of theirs who wrote reports saying that if they don't fit a particular as they put it "matrix" then they were sent back to them undone as such. They ended up leaving their position within two years because they just got disillusioned with it, after they said they became a district nurse where they were much happier and felt like they could really make a difference.
Now it puts me off doing pip change of circumstances
Finlay, did your local council give you a mobility pass for the local buses? And if so, was this before you applied for pip change of circumstances?
You should never have had to go through that, Finn. This system is a disgrace. It is a persecution of the sick and disabled.
I absolutely agree, and thank you!
❤❤
Thanks for your info, they also lied about my assessment, the lady asked me about my neighbours and i told her that i dont talk to them and had threatened them if they kept playing loud music, she put down that i have a good relationship with them pmsl..Also beware of them making up fictitious scenarios that may occur and what would you do! Again she lied and changed my answer. I threatened legal action against the assessor because I am not having it, i told them I will go to local MP and national media because it was a complete lie, they picked on the wrong person, i said i will keep goin whatever because its wrong the way we are being treated,..Mandatory recon is bollocks, expect a tribunal..And a week before I got a lovely phone call from DWP, and was successful...TBH by that point i was in the process of hunting down the original assessor and taking her to court and I had backing from a Solicitor.. anyway, all im saying Guys and Gals, do not give up and fight to the death, I empathise with anyone that is goin through this at the moment.. Remember. they will always go after the lowest hanging fruit.. BE STRONG PEOPLE, BECAUSE WE ARE GONNA HAVE TO KEEP FIGHTING..XXX
Thank you so much for sharing your story. After two years, i have my PIP tribunal on Tuesday. The whole experience has been horrific. One of the points against me was that I was "able to explain my complex medical history" You literally can't make it up. I'm sorry you went through this and I'm glad you got the award you deserve!! 💜
Thank you so much for watching and for your kind words. I'm sorry you are going through this too. It's madness what they use against is. Of course we can explain our complex history, we live it and we have to spend hours writing the bloody things down! I can assure you that the appeal.panel are not like this at all, they are just and fair and will ask sensible questions. I'm wishing you all the very best of luck!
Thanks for sharing. I have my first ever tribunal in a couple of weeks. I have Long Covid but it’s identical to M.E. They wrote on my award the same thing about me being able to explain my medical history as being a sign I don’t have any cognitive problems. Even though I struggled so much during the assessment.
It must be a go to statement they make to dismiss claimants
I’m so so sorry you’ve had to go through all this mental stress and anxiety, how dare they, makes me so sad knowing what you’ve been through, I’ve also been through a tough year with it, I suffer with bilateral severe osteoarthritis, fibromyalgia, chronic fatigue syndrome, mental health, anxiety and was hit with Cauda Equina Syndrome and emergency surgery, I was receiving lower rate for both and was so scared to challenge PIP in a mandatory reconsideration, I was lucky to speak to a very nice, empathetic, understanding lady from DWP, who awarded me higher rate for both, it’s all took over a year too 🙏
I have complex-PTSD and other things, i just got awarded PIP after appealing (i don't know what rate yet). They have taken my pride away, humiliated me, gave me 0 the first time. I burst into tears too. This time last year i was in hospital and had given up.
I relate to feeling so anxious you just want to be alone. People hurt me - this entire process hurt me. There is a blood on the hands on the government. I am complaining.
I'm an abuse survivor too. I don't understand how they expect us to navigate this system. They don't care that 10 years of sexual abuse and 18 years of chronic neglect has shaped who I am.
same bro i got mine tomorrow i cant sleep at the best of times i been fuck about since 2016 like
Well done! 🎉My daughter won PIP at tribunal three years ago. DWP reassessed her by phone after two years and turned her down again. They did this despite offering no evidence for why they have taken points away. So here we go again. I have written MR letter. It took me ages because I have had surgery and suffered with depression. My daughter has now been diagnosed with autism in addition to digeorge syndrome (heart defect, rheumatoid arthritis, generalised anxiety, hypothyroidism, chronic fatigue……). It is so upsetting when they accuse you of lying with no proof. They said my daughter appeared clean and tidy and used that to suggest that she does not need any support! She lives at home with me and her dad for gods sake!
You’ve just made me cry! Having worked my butt off since I was 14, and ignoring/pushing through all the symptoms, getting worse and worse, I finally dropped last year. I had to stop working and my doctor advised that I applied for PIP following a diagnosis of ME/CFS. The assessor had little to no knowledge of what ME/CFS was and explained it as “just being tired”. I got no points. On MR I got 4 for daily living and 4 for mobility but still they explained that I was “just tired”! Long story short, my tribunal is on the 25th and I’m in full blown panic mode. I struggle so much to make people understand me and I just want to be heard 😢
In contrast, I had a work capability assessment in April and the assessor knew what ME/CFS was. She was so very kind and understanding. Gave me time to try and explain. I was awarded LCWRA! I don’t get how two departments of the same company can come to different conclusions!
You have just explained everything I feel! I am classed as sever and have approximately 5 good days a month. I am so sorry you went through this
Hi my friend, every single time I hear these stories I just want to scream! And then jump through the screen and hug you. Im so sorry they are putting you through this. Please dont panic, the tribunal is such a different experience, the panel will treat you wih full respect, they will not try to trick you, they will just ask you honest questions about how it is for you on a day to day basis. Youll have a doctor, and a disability specialist, and they will give a much more accurate assessment.
If I havent missed it, and its this month on the 24th, and you have the spoons, id suggest writing a brief summary for the tribunal. Look at the descriptors, and briefly write down which ones you should have met and why. If you have he notes from the assesssment, clearly state why the arguments were wrong, eg - ME/CFS isnt "just being tired" it is, as classified by the NICE guidelines, a Neorological condition causing debilitating fatigue that never goes away with any amount of sleep or rest and gets worse with almost any activity...
Having a summary like this, of how you were wrongly assessed and what descriptors you believe you meet, helps the tribunal to have an overview and also helps you to be clear on the day. You can post it ahead of time and they should allow that to be read.
Wishing you the best of luck!
Oh, thank god you were successful at the PIP tribunal! I have literally just sent my own online PIP application off (my second attempt at going through it all again). I was diagnosed with ME/CFS in February 2020 and Fibromyalgia in 2021 but was turned down for PIP last year. I am having another try because my health has deteriorated. I really don't want to go to a tribunal as it would be so damaging to my health. The phone assessment was horrendously long and I could barely get through it. Why is this all so ruddy difficult for people who need extra support!? Anyway, fabulous news, well done hanging in there and winning! What a relief.
It's bloody inhumane is what it is! It's damaging to our health to go through this, but then it's also damaging to our health to not have the support we need, so we are really stuck between a rock and a hard place aren't we? It makes me so incredibly cross!
I am so glad you are fighting yours, please do not give up because you are deserving of this help, it's there for example this reason, and the system is at fault, not us! I'm beside you every step of the way and if l can help, pop me a message!
I sent in my first PiP application for my Autism, PTSD and depression. I was hospitalised for my depression 7 years ago, and I have had at least two episodes a year since, but it's taken me this long to find the courage to apply. I could only get a handful of letters detailing my contact with the crisis team, and couldn't get hold of my police reports, prescription proof or my old therapists, but I am waiting to restart therapy. I told them I would send the evidence across when I get hold of it, as my GP surgery is very slow with this kind of thing. However, not long after I sent in my application I got a text saying they had received my written report! Apparently, this means they have done a paper assessment. I'm actually terrified because I don't believe I have the strength to take it to MR or the tribunal. I'm worried they've decided I'm not disabled or need help without even speaking to me or giving me chance to add in extra evidence. I know I would not be able to take it to the tribunal, I even have full-blown panic attacks in job interviews. My friend who has ME and fibro was just denied after her assessment, and this is the second time she has been rejected now. The whole process feels so dehumanising.
One of the things I failed on was I don't take pain meds & sleeping meds every day..... but I'm not allowed to! I am.not prescribed enough to take them everyday, because they say they are addictive, so I have to live with days in pain & insomnia, but apparently I am "fine" because I don't take these meds daily that my condition isn't daily..... lies.
Hey Finn, I just came across your video as I'm currently going through the same thing at the moment! I won't go into detail much but I also got rejected from dwp even though I have all my diagnosis' and had to quit my job due to mental health issues and still got turned down. It's been at least 6 months I've been waiting for my tribunal and about a year and a halfish fighting the DWP! I agree coming from a perspective of someone like yourself or myself who is mentally unwell going through something this traumatic is so so exhausting! Im so happy you got what you deserve and I hope you're able to live your life to the fullest 💕
My friend had a pip interview over the phone😡didn’t go well as you can imagine, she lost everything so we appealed,she lost again😡we were put in touch with a part of government called WE ARE DIGITAL,they sent her some forms to fill in and asked for drs records back dated for 2 years plus a photo copy of her blue badge, needless to say we didn’t have to go to court we won, I was determined that my friend wasn’t going down without a fight but it shouldn’t be this way
Such good news! Thank you so much, Finn, for talking openly about these things. So many people need to know we're not alone.
Thank you so much
That's exactly why I'm sharing this, so many people are being mistreated and let down by this system!
thank you so much for this video🩷 in just over 12h i have my tribunal after fighting for 15 months to be denied every time, just like you were!! i have severe scoliosis & im due two surgeries and pip have had the nerve to tell me im completely fine. this vid was so helpful and has calmed my nerves, and seeing so many people on yt have positive outcomes with the tribunal process really gives me hope😭
I'm so glad this has helped calm your nerves. I'm so sorry they did this to you as well. I cannot tell you how angry it makes me. The anger I've felt this last year is anger for my own case and for all the other stories I've heard. I had no idea it was as bad as it is and how awful people are treated, the underhand way people are assessed, the lies, the twisting, it should be investigated!!!! Honestly, I'm sure at the tribunal you will get the award you deserve. I'm rooting formyou and wishing you all the best! I'd love to hear how you get on if you feel.like checking in later! 💜
I fought for 6 years to get my disability award. It might be different in the US on how it works. I'm happy for your win. It's hard to live with mental health problems, and then have a judge invalidate your mental health problems. Congratulations Finn
Thanks my friend. Yes this is exactly the issue ,the invaldation of it all, the...." doesnt look anxious" "doesmt look tired" jus because it isnt visible doesnt mean it isnt true! I cannot believ you had to fight for 6 years, well done for keeping on going!
What a relief to have this behind you! Glad you finally got what should have been all along. I totally felt you describing the tears afterwards!! I fought for years to get a proper diagnosis for my son. When we were told he absolutely was high functioning autistic, I burst into tears. To be able to say "see, we aren't crazy! This has a name" was such a weight lifted. I hope you find a great new chair and anything else that makes life easier. Much love to you!
So happy for you! And we’ll done for not giving up! ❤
Thank you so much!
Yesss!!! So happy and relieved for you Finn, what a great outcome. Just a shame you had to go through all that to get what you deserved all along.
Thank you so much!
Hi Finn, I have just come across your video whilst preparing for my own PIP hearing this morning, which is #2 for me. I also have severe ME which is my main issue, it’s so hard getting people to understand because I look okay on the outside, they just think I’ll be okay after I’ve had a sleep! I love that your scooter has a name, my scooter is called Mabel! Wish me luck, I’m so nervous 😩
Hello! And hello Mabel! Fab name for a scooter 😁. I'm sorry you are going through this daft nightmare too, these are people who SHOULD understand ME, it's ridiculous that they can assess us for a medical benefit and not have a good, up to date working knowledge of it. Rest assured the panel at tribunal will be different, they will be medical experts. Take lots of deep breaths , but also don't be afraid to show just how much all this has and is affecting you and your health.im.sendimg a ton of love and luck. I havey fingers crossed for a great result, please let me know!
I’m so very sorry to hear you had such an awful experience too. I too did change of circumstances due to a decline in health. DWP decided I was cured and they took everything away. 2 year fight later and am enhanced now too. It was exhausting (understatement). I know this video was a while ago but massive hugs. I’ve been in a massive flare since winning, so I really hope you’ve been able to be kind to yourself since winning. Absolutely disgraceful how they treat people and some of the absolute **** they come out with! Really proud of you for keeping on and fighting for what you deserve.
I'm so happy for your positive outcome. I waited until I had a live in partner to support me through the process as I would of given up if declined.. which I was. I had zero points. I'm one of the lucky ones who got overtuned at mandatory reconsideration, I did covertly record (allowed now with audio) and transcribed the awful call where my assessor actually skipped over whole sections and lied about my anxiety, and received enhanced on both. From going to zero points to over 24 shows how horrifically broken the system is. Fellow person with ME and anxiety here x
My friend who has fibro taught me about the spoons analogy. It makes it so much easier to understand from the perspective of someone who doesn’t have this condition.
Congrats on the wonderful news! It is awful to have to worry about money on top of everything else that’s going on. Wishing you all the best ❤
Thank you so much! And yes, the spoon analogy is great, it does really help, both to explain to others, and to plan for a day. Especially when you wake up after a bad night and youve had ypur spoons stolen! Knowing how many you have left helps to spend them wisely!
@@FinnTheInfinncibleCan you explain the spoon analogy because I've never heard of it before.
I recently had health assessments for both PIP and UC Limited Capability. Haven’t heard back from Pip yet but can’t believe UC have replied saying I have ‘No limiting capabilities’ 🤯😡 I am 48 and have recently been diagnosed with heart failure. This is on top of my epilepsy and depression! In total I now have to take 16 tablets a day but apparently I have zero limiting capabilities even tho they know I have had two hospital stays in the last two months due to my heart failure?!? 🤷🏻♂️ I now have to wait for their explanation and reconsideration…..and then appeal if I still need to. Now that UC have been so crap with their assessment I’m not hoping for much from Pip either. 🙈
Im so sorry this s happening to you. This system makes absolutely no sense and nit incredibly ifair and misrepresentative. Its actually making people more unwell! All I can say is appeal and complain whenever and wherever you can. sending much love, strength and solidarity your way
I'm waiting for my tribunal date now. They have denied me any help and made up some very weird stories about why I'm fine. My absolute favourite thing they said was that I clearly have a good level of motivation because.... wait for it..... I watch my online friends play games on Twitch. I shit you not. And the blanket favourite thing I'm sure they will use for lots of people, I don't have issues with travel, navigation, planning or meeting people because I turned up at the assessment interview. They are insane.
I had a motorcycle crass 7;years ago, and I have a brain injury from resuscitation twice and frontal lobe damage and they’ve stopped PIP MAKES me feel suicidal
Oh mate! There are pip charities on fb that can help you. Please don't give up❤
@@Humbledone. thank you for your message, a lovely lady called me. I can’t remember when but she gave me five years of pip it changed my life. keep up the good work. All the best.
You’re an absolute inspiration I have been rejected and scored only 2 points I’m currently going through MR but I know they will reject me again so this has really helped as Ive been so scared of tribunal
I'm so sorry you are in this awful process. It's just evil it really is. Sometimes the MR process does work so don't lose hope...but if not do go to tribunal because that's where common sense and fairness wins! Wishing you all the best
Hi Finn, thank you for this video 🙏🏽.
Thank you for watching and for your kind appreciation!
I got zero points, I've done a appeal letter, will probably still get zero. Only problem is I suffer with bad aniexty so I'm not looking forward to the tribunal 😵😵😵
Im sorry they did this to you too, the good news is, that at tribunal, most people are successful. The panel were very fair and it was a completely different experience to the assessment. Dont worry about being anxious, they understand, I was a wreck!
Whoops. You owned that term for a good thing and your puppy brought that goodness full circle! Awesome great news. I love you and am so happy!😊
Yes he did! He took the power out of a painful word, turned it into something positive, and brought something magical!!!
My 23 year old son has cerebral palsy and is profoundly deaf.
When he was 14 he came to live with me due to violence in the home. His mother’s partner tried to strangle him. He came to mine one weekend and just broke down in tears. I immediately drove to his mums to pick up his belongings.
At the time he was on higher rate but his mum out of anger and the fact she’s Evil contacted the DWP to tell them he had got better and no longer needed pip (at the time it was disability living allowance). This was purely to get at me!
After 6 months of hard work he got awarded middle rate and he has been on it since.
His walking has now got a lot worse. He can’t find shoes to fit him anymore and can’t walk for more than 10 mins until the pain becomes too much. He lives independently in Derby with his blind/deaf fiancé.
Lastmonth he had a bloody Zoom call with an accessor that didn’t even want to see the state of his feet, or watch him walk.. I just don’t understand how they can can make a decision based on a zoom call! His partner told me he was in tears during the zoom call. The pressure was too much for him.
Anyway his decision comes through in another week apparently.
Sorry to waffle on!
Hi! I am really glad to hear this, so sorry for what you went through. Just wanted to ask, are the payments backdated for the months you didnt get the correct amount? If not, do you know if it posible you get the payments backdated if it goes to an appeal hearing?
I had a stupidly similar comment too, something like, 'sits down to get dressed we think resting for ten minutes after dressing is enough' 😶... I can't get washed or dressed most days full stop 😭 and if I do manage to, then I have to SLEEP for an hour or so. I'm so very glad you won and I'm so sorry you had to go to tribunal ❤️ thank you for sharing you story, it gives the rest of us hope amongst a system that is fundamentally broken 💔 xx
Thank you for your lovely comment. I cant help but share, I am just so angry that this goes on, and realise I am luckier than most as I have support so I can fight these people, so many people are alone and cant fight and so lose the money they are entitled to, t grates my cheese! So yes, any attention I can draw to this I wll!
And as for the stupid comments, I mean please! Sits to get dressed sounds like you just fancied a sit down! That does not describe at all the reality of life with this condition does it! Thankfully, the tribunal panel were so much beter and really understood he reality of living with an energy limiting condition. It was such a relief to feel seen and heard.
Lets hope this stupid sytem is changed ASAP!
Well done for winning, its about time there was some good news regarding PIP. My PIP claim was denied, then the reconsideration was denied, so tribunal time... They're trying to squash it by using Social Security Act 1998 Section 12, 8(b). Since I started my claim, some things changed so I thought I'd inform them of the changes, they don't like that so want my claim squashed, so I have to make a fresh claim, cheeky sods.
Keep fighting them all the way mate. Take em to an appeal if you have to just don't let the b@stsrds win.
Awww just hearing your story got me bursting into tears too. So sorry you had to go through all of this but you were truthful and consistent so its great you won in the end.
Thank you for sharing your story cos it gives us something to think about.
Bless you, thank you for such a lovely comment
Well done! We must always fight for our rights with having disability. X
I'm waiting for my tribunal, but it's funny about the scooter. I hired one today for the day to go to an appointment as there wasn't parking near. When I got off the scooter, I left my handbag in the basket! 🤦♀️ Was there about 10 minutes! Luckily, it was there when I got back, but my brain is so useless most of the time.
Oh no! That was lucky! I do daft stuff like that all the time. Went out one day and left my keys in the front door!
I'm so happy for you that it went well.
Thank you so very very much!
I just got turned down for PIP, I scored zero on all fronts, but know at least 5 people who are more able than me who get it, so I don't understand what went wrong. The interview was harrowing & made ne feel really disgusting & depressed. I haven't challenged it because it made me feel so dirty & triggered a really bad episode of PTSD, yet according to them, I am fine. I can assure you I am not. I almost never leave the house.
I also scored zero when I applied in 2017, despite having Marfan syndrome. Now I'm considering taking DWP to tribunal for a sanction they gave me for missing an appointment, but I'm wondering whether I should also question why I haven't been found to have limited capability for work.
Please please appeal you bloody deserve to be awarded pip good luck sweetheart xx
As someone that determines eligibility for certain public assistance programs, it hurts my heart that disabled and elderly are the ones that often have to fight the hardest for help. The most vulnerable in society.
I am so glad you are getting new wheels! Well deserved.
I am so fucking happy you have this steady income you can depend upon for you and Chris and baby furry boy, PIP. You owned
Really happy for you! I'm going through the tribunal process myself now! 😢
I'm so sorry you are going through this and I'm wishing you the very best of luck
@FinnTheInfinncible Thank you so much Finn! Your story gives us hope! 🥺❤️
Yay so happy for you!🎉
Thank you ❤
I don't understand how they blame dwp when they know it's atos and capita ect. They see it time and time again too. We need to go back to see and other medical professionals who are in charge of our care.
It makes no sense to for an assessor who's a ex mental health nurse, to assess a person with ms or myocarditis. Makes no sense.
I absolutely agree. The evidence needs to come from our main professionals involved in our care, and if an assessment is needed, then they must be someone who is qualified in understanding our condition.
Thanks for posting. I’ve recently been diagnosed and have never felt more alone. I’ll probably lose my job and income so it’s a scary time.
I'm so happy for you, such a pity it had to go this far! My wish would be that pip would be peer reviewed i.e. that it would be other handicapped people that do the assessing!
Again, so pleased that you eventually had the outcome that you deserve and needed so badly!
on another subject: how is your pots diagnosis panning out? heat does exacerbate pots symptomes so please make sure your staying cool!
love, light and spoons (as well as a cool breeze of fresh air) to all!
Thanks for sharing and congrats 👏
Thanks my friend!
I've been diagnosed with PoTS recently and need a wheelchair just to leave my house but the dwp won't increase my points (standard daily living, no mobility) so I'm going to tribunal. I've heard its a horrific experience in court, I'm so glad that yours was so positive. Fingers crossed mine goes just as well.
Wishing you all the best. I honestly found the court panel fair and friendly .
Remember it's about what you can do reliably,. repeatedly, safely to an acceptable standard for 50,% of the time.
The mobility criteria clearly states if a person cannot meet that then they should be found not able to walk any distance and therefore awarded full points for mobility
Thank you for sharing
Thank you for watching!
So pleased well done 👏
Thanks my friend!
With PIP assesments the assessors get a bonus for bumping people off the system that's at least what happened with me the citizens advice beaureau helped me last year when it came to PIP
It's so wrong that this is allowed to happen isn't it!!!
@@FinnTheInfinncible yes it is hopefully that'll change sometime in the near future
So happy for you ❤
Thank you so much 🙏
Just updated my health symptoms. Had assessment. Had 2 points taken away and lost basic. Yes I give a good assessment phone conversation. Letter came saying PIP taken away. But then I've had phone call from GP Doctor who had 5 minutes spare to talk. Before she sent off a letter for evidence. Which had been in her inbox for a while. So when I phoned for a MR I told them the Doctor had just sent her evidence back. PIP form is not suitable for purpose. They are on a drive at the moment to cut anyones PIP due to how much government pays out at the moment. But fighting for my PIP. Phone assessment was 90 mins but I sounded OK. Typical. I'll fight them all the way. 3.5 years Long Covid. 2nd phone call the other day cut me off at 5pm cos it was end of day for them but I hadn't finished going through my MR. Got text message saying will have to wait up to 8 weeks for another decision.
I have mod-severe M.E. too. That's good news, I'm glad you got an appropriate PIP award 😀xx
Thank you so much. Sorry you have this awful ME too
Im sooo happy to hear this Finn! You really deserve all of this and I am so happy to hear this!!
Thank you souch my dear friend!
Aw you had me in tears I'm so glad you stuck at it even though you felt so awful with them I won my tribunal but they still won't honour mobility even though that's what I am asking for but I won something so Ill bide my time for now but extremely happy for you finn 🎉🎉🎉
Thank you so much. I'm sorry you still haven't got the right award, I can understand how tough it is to keep on going. I'm not sure I'd have had the energy if they had only given me standard, to fight it further, despite knowing I'm entitled too it, it's just exhausting isn't it. They have to make this system less impactful for disabled and chronically ill people otherwise what is the point in this support?!
I am *SO* Happy for you! And maybe a little jealouse. Here Here!
Thanks my friend. I understand the envy, I hope you can get some equivlant support?
🎉 I just found out I won my pip tribunal after 2 years just waiting to find out about payment dates do you know how long it all takes as this is my first time getting pip
This is GREAT news! well done you! Two years of stress is over! It can take arond 4 to 6tuck in the system, so if you haven heard anyting at 4 weeks, do give them a call and a nudge!
Congratulations I’ve just found your channel. Could have done with your wise words earlier. My mum has just won a 7 year battle to get enhanced rate. She had to hire a solicitor in the end. Do you know how long it takes for he backpay to come though. We was told 4-6 weeks. But nobody has contacted her from pip as yet it’s only been 2 weeks.
Ah welcome to the FinnFam and congratulations to your mum! 7 year battle, that is utterly ridiculous isnt it? Well done to her for not giving up. If you havent got your Pip in 4 weeks, ring them. Mine got stuck in the system! I have finally got mine today at approaching 8 weeks!!!!
Hi could you help me please i have my review form here i been claiming and got 10 points for mobility as struggle to leave house but now im getting help to go out with support worker will i score 12 and get enhanced as cant go out without anyone x
It is such a cruel system. So very pleased for you lovely xxxx
Thank you sweets, thanks for helping me keep on going!
Good morning Finn congratulations on your win and for sharing this video I have just won my court tribunal like yourself it’s been a long hard year could you please let me know how long you had to wait to receive money or letter of from the DWP as I still are worrying something will go wrong for me even with the court report I just can’t trust the DWP
Thank you
Mark
Ah congratulations my friend! I'm thrilled for you, what a relief! My payments took 8 weeks to come through, because they messed up! So if you haven't had a letter or money by 4 weeks I'd give them a call. Stoked for you!
I've been agoraphobic for 10 years and i was told there's nothing wrong with me 😭
Oh Finn bless you 😩😭🥰 I'm happy for you but angry that you was put through so much trauma to get your PIP 🤬 Hopefully you're enjoying your new wheels now
Thank you for your kind words! It was a hellish time, thank goodness that's over ! And yes new wheels are amazing thank you!
Excellent news on the wheels and i hope that today finds you in a better place🥰@@FinnTheInfinncible ♥
I have been carer for my wife with MS for 21 years , but the DWP are getting harder and harder to deal with
She had her blue badge removed , I had my tax records leaked to DWP and published
I assisted a UC claim but two years later DWP recovered 8 months of benefits and we are awaiting a tribunal
DWP have failed to respond to the court service ..
Anyway well done!
The heart is in solidarity. I'm so sorry tlrhis is happening to you, it's completely unjust. Have you got someone like citizens advice helping you? I'm sending love and all the luck in the world
This has just happened to my fiance and we are going to start the appeal process this week.Glad it worked out for you,but 7 months is ridiculous
It's been 13 months in total since I first contacted them to declare the change of circumstances, first the assessment....which I then appealed with the mandatory reconsideration and had that turned down, then I appealed, and had to wait 7 months for this tribunal date. It's an awful process it really is and I'm so sorry your fiance is going through it too. If I can be of any help please pop me a message
@@FinnTheInfinncible Thank you so much I really appreciate that.I really hope your award and back pay enable you to make changes that make life with M.E. easier xx
@@sarahwardle5556 thank you. They really will, new wheels on order! Plus I can stop stressing about staying yes to work I don't have the spoons to do, and about my buffer of money disappearing! It'll also give me space to concerntrate ony health.....which is all I wanted to do in the first place before this entire process made it worse!
Fucking fantastic Finn 🎉 much deserved PIP reward ,I will get you both a celebratory coffee 🥰
Haha! Pretty much what we said!!!! Thank you so.much Deb!!! I cannot put into words how relieved I am and how much of a difference this is going to make! Thank you so much for your support!
I have ptsd after finding my mum on the floor a couple of days before she passed away, I have chronic sleep apnea and stop breathing on average 68 times an hour, my cpap allows me around 5 hours quality sleep a night, I have arthritis in both knees and one ankle. I work but by the end of my shift I'm physically shattered and my legs are swollen and in a lot of pain, my pip claim gave me 4 points and my reconsideration was rejected
i have my appeal hearing in April but i'm not expecting anything at this point
quick update I had my tribunal last week and im glad to report they ruled in my favour, i cried when i read the letter
i am grateful for posts like this that are both helpful and very inspiring
don't give up, it took me almost 2 years to get there
The form tell you to update them of any changes. When you do, you get slated for trying to update your health condition.
Yep! It's so hard isn't it!
I applied for my PIP tribunal in mid - August 2023, I live in Surrey. How do I have to wait for the date for my tribunal ?
Hi! Tribunal dates can often take a while, I waited 8 months for mine.
Tried sending a recording of the pip phone call assessment to the tribunal and twice I have accidentally sent them an embroidery video, there seems to be something wrong with the file, did you send a recording of that for the appeal?
I'm glad you recorded the assessment! I unfortunately did not. I would try sending the file again and if you have the same issue perhaps email.and explains and they might suggest sending it another way?
Thanks will do @@FinnTheInfinncible
I got my appeal pack before the tribunal and there is so many mistakes in the medical history and summary. Do you think as evidence for the tribunal i should write a document stating all the mistakes?
Absolutely yes! Make a list of everything that is incorrect, and state what is actually correct, if you can provide evidence too
@FinnTheInfinncible Thanks just found out from checking the files on my computer to my appeal pack that DWP missed ten documents of evidence and did not send it to the tribunal, I've had to resend them myself
Hi fin i have a mental health acute psychosis im currently waiting to hear if my claim is successful fingers crossed
I have everything crossed for you my friend
Such a Relief Finn ❤
It really is, thank you so much!
I got 10 points on both needed 2 points for enhanced I appealed how long will it take you reckon on average?
It depends where in the country you are really, but on average ots about a 6 to 12 month wait for appeals to be heard
HAPPY PRIDE
So so happy about the outcome!!
Of course we all knew how much you deserved this extra support. What a relief!!
The new scooter/chair should be fabulous.
l love Pips sleeping positions its hilarious 🥱😴😴
Thanks lovely man!!!! Thank you for all your support!!!! Such a relief to have this nightmare over! I put a video on the wheels I'm getting in our Discord server, did you see it? So excited!
Haye ,I'm going through it now,it's horrible how they lie about our answers to the questions they ask ,I really don't know how they get away with it ,it's disgusting how we are treating like we lie , yeah I get there is people out there who lie to get benefits,but going on the evidence that is given them ,they don't even check on ,they get away with it until the grateful tribunal gets a hold of your case and it's looked at properly,they shud put all pip cases to tribunal,you get treated better and respectfully,good luck in the future mate 💯🫶💫
I'm the 80 y/o lady..lol..I love you Finn! LOL!
Bless you! Love you too!
It's a very thoroughly messed up system and I'm sure the professionals in the tribunal must be sick of it as well. What a relief you now finally got the outcome you should have had in the first place! (((((HUGS)))))
[I posted this before but it seems to have vanished, possibly cos I included an external link. Apologies if I'm repeating myself here (this time without that link).]
If you, one of the most eloquent thoughtful honest people around, were repeatedly pushed back like that, there's little hope for anyone else, particularly if they don't have the support of a partner. The tribunal findings and your video series should be required training materials for assessors. I'm going to share a link to this video with the BBC podcast Access All which is about mental health and disability.
Oh how strange, I've had a look in my held for review comments and it's not there either, but I shall have a look at the site you mention.
You are absolutely right and
I think the reason my evidence and clear explanations were not taken into account, is because far too much weight was given to the assessor's report. His report was so inaccurate, left out key moments during that hour and he clearly had no idea about ME/CFS,. The section them seems to have been made from his view of my typical day rather than my ample evidence and elequemt explanations. This is what is going wrong, a random assessor should not be given so much weight!
This inhumane, unworkable, unfair , and incredibly harmful system needs to change. Asap!
Hello fellow Sufferer. Congratulations on winning your appeal. Finn what does this provide you? What can you now have that was not available to you before?
Finn I have been watching some eye opening videos from Drs. That Specialize in ME/CFS. To put it bluntly, it's a brutal illness. Utter Fatigue as if you've been ran over by a Train is just one part of this. PAIN, NEUROPATHY, HEAT INTOLERANCE, PROBLEMS SWALLOWING, JUST A Myriad of symptoms that seem so out of the blue yet hang around sometimes for years. And right now I'm in the worst place I have ever been After having this for 40 years. I am bed bound except when I go out on my mobility scooter with my service dog or God forbid when I have to take a drive-in my motor home . Other than that I'm in bed. And I was getting 78 hours a month of in home supportive services and I called up my social worker I told her how things were declining rapidly and without any red tape and hassles that you know all about she instantly said I am going to raise your hours to a 105 a month!! I was so ecstatic to get that extra help That I cannot believe I need, but I do need. Yes yes very few doctors understand this and that's the worst thing. Here you are suffering struggling depression awful, And then to boot you get a doctor that thinks it's psychological. Hey Finn how can I send you the channel oh but I would like to send, you could hear or read what other people are going through. That has been the biggest help to understand that other people feel like they're dying. one could die not because they don't love life or want to love life because like me I don't know how long I can keep going on like this . Please let me know or maybe I'll just send something to your email. I love you and I want you to know that I do understand all of it because I am living it. A lot of crying a lot of screaming a lot of being so frustraded at being so limited and in pain. One CZcams Channel is called
Fight 4 ME
the GREAT one from the Drs, is Channel name
Broken Battery
Video=moderate to Severe ME CFS. It's 1year old. Please watch this my friend. I love you
Hello my dear friend. Sorry I'm only just catching up with your comments. I'm much slower lately to reply. This money is there to help with the extra costs of having a disability and chronic illness, it comes in two components, a daily living component and a mobility component. We have the option to use our mobility component to lease a wheelchair , scooter, or car, I used mine to lease us a car to save us money and the back pay they owed me to buy my wheelchair straight out. The daily living I can use to just make life easier, but we are considering using it to pay for a few hours of home help as it's a lot for Chris to do everything around the house. It's not a lot of money but it helps.
This condition really is awful, made even more so by outdated views of it as psychological. It really annoys me!
I shall have a look at those channels, thank you!
Sending you so much love xxx
@@FinnTheInfinncible my dear friend!! How have you been? Wow this is an old comment. The one I wanted to share with you is no more than 3 videos ago. You were sharing alot about mental health issues you deal with. I loved that one. Finn there is big changes to share
However with hand neuropathy it's so painful I can't text. I am Thrilled to hear about getting a car and a wheelchair. I would assume but I don't know that this wheelchair is Fully electric, that way you don't have to use your arms. That is to hard a thing to do.. Anyways you do not have to get back to me on old comments. But if you do happen to see the one that was about 3 videos ago then you can comment back that would be cool. I really do want to know a couple of things. How are you feeling physically and what are your symptoms that are standing out the most. also with your mental health what are you dealing with It's so awful to be going for medical care and be gaslighted and have the doctor lie in reports it's happening to me right now and I hope I have enough strength To do a medical malpractice case against this doctor I have who has written so many lies and it's so abusive that she is obstructing my health care so now that I know because I read my reports I will be suing the medical group that she works for. anyways I'm happy that the good news came for you and I think it would be so wonderful if you get a caretaker or helper whatever you want to call them because they come And if you get a good one like I have now their presence will be something that will Lift your spirits as they help you deal with daily life. I love you my friend take good care of yourself say hi to Chris and of course adorable pip
@@FinnTheInfinncible thanks my friend. You are too kind to reply, given how draining it is. I hope this day isn't too stressful.
This is my third year fighting this shit my upper tribunal has sent it back to a first tribunal I tired at this point
Bless you, l understand the exhaustion. I wish you all the luck in the world with it
im glad you got it sorted! been dreading my reassessment and just got a letter through to say 'we havent had time to look at your reassessment so we are delaying by a year' PFFFT time to ignore it for another year lol
Well that's a relief for you! The whole thing is just too stressful and traumatic. It needs to be changed asap!!!
@@FinnTheInfinncible yes! hard agree it is horrible and makes no sense, much like every other service in the UK now... it is all just crumbling to the ground
@@ArtieCarden sadly so true. We need something radical to happen....other than a pandemic...
Can I get PIP, if I'm on War pension?
I think it depends on your age, I would ring the helpline and ask for advice
❤️❤️❤️❤️❤️❤️❤️
❤️❤️🌈
I had to look up what ME is, all the symptoms sounds like my situation 😭
I'm sorry you are experiencing this too. Have you been to your doctor?
My GAD has never been taken seriously 😔
I got refused my pip just because I can use the toilet by myself but I can’t do much else without some help. They really don’t listen to a word you say
That's daft, the arguments the use are ridiculous. If you haven't already, put in a mandatory reconsideration.
My daughter who has severe autism was denied pip because she could use a microwave with me stood next to her! I’ve reapplied but the outcome will probably be the same!!!!
That's disgraceful! Using a microwave is not pracring a meal to an acceptable standard! And if she has to have you stood next to her then she cannot make a meal without support. Please do submit a mandatory reconsideration, use all the evidence and word your answers using the descriptors, using the points of reliability, and to an acceptable standard, which using a microwave with your support isn't! And if you still get refused, which most still do at mandatory reconsideration, then take it to appeal. Most people win at appeal. Sending support and solidarity!
Just what Finn said, if they still refuse please don't give up. Take them to a tribunal and get back everything your daughter is entitled to.
sounds like these ones actually give a shit.
The tribuunal panel were so very different, they clearly wanted to understand howy symptoms affected me and had no agenda other than to understand. It was such a breath of fresh air!
I really admire you. Can I kindly ask, do you work/have any part time job? x
I'm self employed , I'm a blogger/vlogger/ writer/speaker though I'm struggling to do much these days!
@@FinnTheInfinncible I understand, try to be kind to yourself as well. Your videos really help. x
@@davewordsworth1251 thanks my friend
I think your puppy might be trying to alert you that you're not feeling well, my friend's dog would do that with her if it sensed her going to have a seizure/health issues.
I wish the U.S. would adopt the spoons measurement for stuff like that, it would make things SO much easier to describe or explain to people about how things are or aren't working for us when we go to our disability hearings! I waited 10 years to get mine, it was pure quagmire the whole time too.
Wonderful news, I'm so glad they finally listened and gave you what you needed! 👍🥲
Sounds like your system is just as screwed up and stacked against you as ours is over here. Sorry to hear about that. I had one of my representatives tell me that the judge wanted time and date of every appointment I had for the past year, so I typed them all up. I just copy/pasted and changed the dates to when the appointment was. They denied me my award once because "If you can type all that up, you're not disabled." I told them "Haven't you heard of copy/paste? That's what I did." They got mad at me for belittling them, but Id had enough of their 💩by then and figured if they wouldn't think I was qualified, I'd just give them a piece of my mind instead! I had to start a new claim.
AWWW! Pip is so adorable when he's sleeping 😍
I agree with you Finn, anyone trying for this, do not give up! I didn't want to let them crush another soul like mine as well. I had just enough stubbornness that I got through it, barely, but I did! It's worth the struggle. One step at a time, and always ask questions.
I haven't been on Instagram for a while, I should log in and see how woof-stock went! 🐕
Sending subscriber hugs of support heading your way! So happy that went well for you 😄