I was around 5 years old when I got my first epileptic seizer and now I'm 23. A medically declared lifelong epileptic patient due to my traumatic medical history. Being from a developing South Asian country epilepsy also comes with lots and lots of societal challenges. A much-needed video it was! Hats off to all the epileptics out there, you are doing great and you can do wonders!
My seizures have changed over the years. I started my epilepsy at 27 years old with gran-mals. Today I have focal seizures but several times a week. I do feel the aura and usually able to protect myself by sitting down. I do have too many seizures and it is affecting my memory. If I am able to I am going to have brain surgery. Wish all my epileptic friends strength, hope, and success with your process of healing. 💜
Celebrate your epilepsy, let everyone know you have it so you can talk about it. I found out so many people have it when I became open about it and it gives me so many opportunities to discuss and help others.
Fellow epileptic here, well done 👍🏻 my journey...well it's a story for the ages as it took me 11 yrs of pain, being put through a coma and fighting for answers until i finally went to a epilepsy centre and was on a sleep deprived eeg for 4 days in a row that finally showed "enough proof" that indeed it was epilepsy. I been through a lot of medical pain, gaslighting, ignorance to overtreatment but i am currently on keppra and Cenobamate and for the most part I'm seizure free although there have been adjustments in my dosages to counterct side effects vs the seizures themselves; I'm hopeful to get my drivers license in a year's time 🤞🏻in the meantime I'm happy to wake up each day and be alive s corny as that sounds as i almost lost my life because of it. I go to a epilepsy support group and even though I'm not the most social person out there, I'm happy i have now friends we go to activities to and raise awareness and everyone understands each other on a level that is, well, different (but not to neglect the fact in saying someone without epilepsy wouldn't understand.) and is wonderful. Much love, ~ Mila 👒
Young as well as epileptic is a tough place to be. It's like the feeling of wanting to finish a bucket list before you lose consciousness again. Bravo on being a high-achiever. You look invincible, but everyone needs to be sure that good health is strong, not extreme. Right now, I'm not understanding why but my personality is fearless.
I suffered epilepsy attack at the age of 23 I was working in office & fell down in front of desk, I am 35 now, fighting with epilepsy, consuming medicine from a decade, fedup with everything
I was diagnosed with childhood epilepsy, and suffered grand mal seizures. Now at 25, my epilepsy is resolved however I have a panic disorder now that makes me terrified of it coming back. I needed this video, because even though I'm no longer epileptic, my life is still being plagued by it.
It really can become debilitating. I think it's the unpredictability of it, for me I also remember coming out of my one and only grand mal seizure (I was then consequently diagnosed with a brain cavernoma, lesion which had started to bleed) my condition is well controlled but I have a condition now whenever I feel movements/twitches in my right arm, I panic and have basically a panic attack which mimics seizure symptoms because I'm so terrified of having another seizure and possibly not waking up. It takes its toll, most definitely and just know you're not alone. Are you able to seek help to talk about it?
Too true. I'm still having seizures, they started more than 40yrs ago. And it's only with this attitude of acceptance & positive determination I'm smiling & loving life. Sure heading for my 70's has me worried what's ahead, but I'm keen to enjoy the best quality of living possible.
We oftentimes let our imagination send us down a dark spiral. Gratitude, fortitude, and patience are paramount. Suffering is a part of life. What matters is how we respond to unforseen circumstances. Be smart and if you have epilepsy, be vary cautious driving and operating heavy machinery. Thanks for your time.
I had my first seizure when I was in my twenties it wasn't long after that I had my second I was put on Tegretol it controlled my seizures for about thirty years until they started back up to having a seizure every minute until they found the right mixture to last me for another five years now I don't know what they're are going to be able to do now sure they are less but I loss the control I had when my seizures was first controlled I have a lot to be thankful for with my three year old who I pray every day for that I can be around until he's grown but I just thank the Lord for each day and also pray for a complete healing if it's in God's will thank you for your story this is mine just not writing as well.
I hope to do a TedTalk someday as an educator with epilepsy. Changing my career in midlife, I enjoy my new career, but even with brain surgery and seizure freedom, we still battle with memory loss and fatigue.
I was around 5 years old when I got my first epileptic seizer and now I'm 23. A medically declared lifelong epileptic patient due to my traumatic medical history. Being from a developing South Asian country epilepsy also comes with lots and lots of societal challenges. A much-needed video it was! Hats off to all the epileptics out there, you are doing great and you can do wonders!
My seizures have changed over the years. I started my epilepsy at 27 years old with gran-mals. Today I have focal seizures but several times a week. I do feel the aura and usually able to protect myself by sitting down. I do have too many seizures and it is affecting my memory. If I am able to I am going to have brain surgery. Wish all my epileptic friends strength, hope, and success with your process of healing. 💜
I pray for you🙏🏼❤
My grandmother taught how to make traditional medicine to cure epilepsy...I wish I can help anyone suffering from this
can you please tell us@@amossenamela4571
As someone who had Epilepsy when I was a Kid I believe all Epilepsies are curable and hope someday everyone will be cured.
Celebrate your epilepsy, let everyone know you have it so you can talk about it. I found out so many people have it when I became open about it and it gives me so many opportunities to discuss and help others.
Fellow epileptic here, well done 👍🏻 my journey...well it's a story for the ages as it took me 11 yrs of pain, being put through a coma and fighting for answers until i finally went to a epilepsy centre and was on a sleep deprived eeg for 4 days in a row that finally showed "enough proof" that indeed it was epilepsy. I been through a lot of medical pain, gaslighting, ignorance to overtreatment but i am currently on keppra and Cenobamate and for the most part I'm seizure free although there have been adjustments in my dosages to counterct side effects vs the seizures themselves; I'm hopeful to get my drivers license in a year's time 🤞🏻in the meantime I'm happy to wake up each day and be alive s corny as that sounds as i almost lost my life because of it. I go to a epilepsy support group and even though I'm not the most social person out there, I'm happy i have now friends we go to activities to and raise awareness and everyone understands each other on a level that is, well, different (but not to neglect the fact in saying someone without epilepsy wouldn't understand.) and is wonderful.
Much love,
~ Mila 👒
Young as well as epileptic is a tough place to be. It's like the feeling of wanting to finish a bucket list before you lose consciousness again. Bravo on being a high-achiever. You look invincible, but everyone needs to be sure that good health is strong, not extreme. Right now, I'm not understanding why but my personality is fearless.
I suffered epilepsy attack at the age of 23 I was working in office & fell down in front of desk, I am 35 now, fighting with epilepsy, consuming medicine from a decade, fedup with everything
I was diagnosed with childhood epilepsy, and suffered grand mal seizures. Now at 25, my epilepsy is resolved however I have a panic disorder now that makes me terrified of it coming back. I needed this video, because even though I'm no longer epileptic, my life is still being plagued by it.
It really can become debilitating. I think it's the unpredictability of it, for me I also remember coming out of my one and only grand mal seizure (I was then consequently diagnosed with a brain cavernoma, lesion which had started to bleed) my condition is well controlled but I have a condition now whenever I feel movements/twitches in my right arm, I panic and have basically a panic attack which mimics seizure symptoms because I'm so terrified of having another seizure and possibly not waking up. It takes its toll, most definitely and just know you're not alone. Are you able to seek help to talk about it?
Glad you’re recovered. What medications did you use?
I am an epileptic for the last 50 years, been through this & much more.
I also have had seizures for 40 years. There are tons of meds and better surgical treatments these days. This young guy has lots of hope!!!!
Too true. I'm still having seizures, they started more than 40yrs ago. And it's only with this attitude of acceptance & positive determination I'm smiling & loving life. Sure heading for my 70's has me worried what's ahead, but I'm keen to enjoy the best quality of living possible.
We oftentimes let our imagination send us down a dark spiral. Gratitude, fortitude, and patience are paramount.
Suffering is a part of life. What matters is how we respond to unforseen circumstances.
Be smart and if you have epilepsy, be vary cautious driving and operating heavy machinery.
Thanks for your time.
I had my first seizure when I was in my twenties it wasn't long after that I had my second I was put on Tegretol it controlled my seizures for about thirty years until they started back up to having a seizure every minute until they found the right mixture to last me for another five years now I don't know what they're are going to be able to do now sure they are less but I loss the control I had when my seizures was first controlled I have a lot to be thankful for with my three year old who I pray every day for that I can be around until he's grown but I just thank the Lord for each day and also pray for a complete healing if it's in God's will thank you for your story this is mine just not writing as well.
Embrace adversity. This is great.
I have grand mal seizures since I was 17 now 38 when I saw this video I cried after watching it
So charming, so accomplished, so humble
fellow epileptic over here. didn’t know how much I needed this video. this is absolutely amazing.
Fantastic talk! Thank you for sharing your story.
You're awesome. Thank you for the inspiration.
Thank you for giving us such an amazing testimony. I have epilepsy and this is so encouraging❤️
I hope to do a TedTalk someday as an educator with epilepsy. Changing my career in midlife, I enjoy my new career, but even with brain surgery and seizure freedom, we still battle with memory loss and fatigue.
some negative things in life makes you stronger
I thought he would be sharing how he overcame seizures