Dr. Marcus Maurer discusses chronic urticaria symptoms, treatment and more...
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- čas přidán 2. 07. 2024
- Chronic urticaria expert Dr. Marcus Maurer has a message for patients who are feeling hopeless. In this video, we discuss chronic urticaria treatment, new research, systemic symptoms, what causes chronic urticaria, and more.
Here are some of the resources he mentioned:
Urticaria Resources: instabio.cc/3090517vwA1w3
www.ga2len-ucare.com/centers/...
urticariaday.org/
Join the Thrive with Hives community:
Thrivewithhives.com
/ ciuwomen Women's group
/ thrivewithhives community group
#urticaria #hives
I started seeing the first symptoms for this decease since 2011.
It got really bad tonight and I started looking CZcams videos and I recognize this doctor that I know before he was one of the best in research for hive , alopecia urticaria or any other name we can call this frustrating decease.
I been trying allergist, dermatologist with no results. I live with this now at least is not coming really often.
I don’t care so much anymore as soon as I don’t see it in my lips or under my foot.
Happy to be a member of Marcus's group.
Thank you so much for the depth of info and the recognition!!
Glad you found it helpful
This is so helpfull ,thank you
You're welcome. Happy to help.
So much hope!!
Thank you for the feedback. That's what I was hoping to achieve.
Angioedema is very scary when you experience it, thank you for alleviating some of that fear.
This is helping folks years later. Thank you both ❤
Thank you Sarah for your program which I'm sure many will appreciate with Dr Mauer's expert advise on this disease. I was a diplomat with my family in Bonn, FRG many years back and I have always been amazed by the medical expertise portrayed by german doctors in different specialties.I believe your good works and network will give hope to those suffering from this disease..👍👍🙏
Thanks for bringing this very Informative video about Chronic Urticaria with Dr.Marcus .😊
When you said joint pain and gastrointestinal issues is a part of this I felt so validated. So tired of the doctors dismissing it.
Yes! I'm so glad that he acknowledged this. I have been all over Google and the only symptoms you see listed in mainstream sites is angioedema and hives. I think it's important that we get this information out there. So many family members, friends, and physicians don't take our symptoms seriously.
@@Sarahlepsy thank you so much for doing this!!
We definitely get dismissed. Oh, it's anxiety...hogwash!
That is good news for us who is suffering from this urticaria..
Sarah, you are doing phenomenal work in this department, your work is helping thousands of people in understanding about their problem, Thankyou for all of this, more power to you
Thank you so much for your support
THANK YOU FOR THIS INFORMATION! Im in the middle of an EXTENSIVE rheumatology work-up since I started having symptoms several months ago. Its great to hear, well, we can rule that out, rule this out - but then again, it’s frustrating to hear the same thing.
PICTURES are worth $ BILLIONS.
DOCUMENT.
DOCUMENT.
DOCUMENT.
I’m glad to be here. Ty again!
Definitely frustrating! Hoping you find some answers and relief soon 🤞
i love him so much
Thank you for caring and treating us with respect. So many doctors don’t care at least the ones I’ve come across in the USA.
I know what you mean. Dr Maurer is doing great things for the chronic urticaria community. Hopefully his work will change this. It was wonderful to meet with someone who was truly passionate about helping us.
To finish my message I accidentally hit the wrong button. My uteria welts itching and deep muscle tissue pain seem to come when I wear clothing that puts pressure on any spot for any length of time. I will immediately stop the aspirin and ibuprofen products! And keep track of my food intake. I can't thank you enough. And I would love to have conversation with you! I have an appointment with the dermatologist in 1 month because it took that long to get into his office, and I will continue to take photographs of the affected areas as you said. Thank you thank you I can't thank you enough!
I just came across this CZcams. I think you just changed my life! I'm almost in tears just listening to you. I think with the information that you just covered and I'm not done watching your video that my use of Alka-Seltzer Cold Plus product that has aspirin in it is the key triggered to what's going on with me. What I have I think is pressure Utica area. I may be wrong. It
I hope you are feeling better!
I have urticaria and tinnitus. Annoying combo for sure! Good luck everyone.
Wow so many, I’m now taking Xolair shots once a month it helps. I had a little surgery on the back of my neck to remove a wart. And then my neck started itching and the hives spread from one side to the other. I am so upset. So I taken my antihistamine that was prescribed to me, took about two days for the hives to go away.
I have never had hives until 1 days after my Moderna booster. I am not anti-vax at all, but there is a Facebook group with over 3000
of us who had this delayed reaction. What happened to my mast cells? Thank you so much for an encouraging and informative video!
Any immune response can trigger chronic urticaria. I also have many new members in my Urticaria group who attribute their hives to the vaccine or COVID.
Same here
Wow, reason I checked comments was for someone to say this… I really believe I now have chronic hives due to my Moderna booster as well. Never had hives until two weeks after my booster.
sad that you must specify that you're not anti-vax in order to report an objective adverse event. That's not normal.
Same here may covid shot is Moderna after a month I always have this hives almost everyday😢 until now 4months already suffering this
I have had mines for over 3 years now
Thank you doctor mauer's im watching some of your video it helps so much because i have allergy now im taking belastine.
Thank you for this. I have been living with this for 8 years. Scalp to feet. I have contact urticaria, chronic urticaria, heat and cold urticaria. I'm on xolair, cyclosporine, prednisone and antihistamines. I'm a very challenging case. All of this was working until recently. Now nothing is working. I'm suicidal. I'm on a low histamine diet. I can't go outside at all because of the environment. I can't eat at any restaurant. I've lost my friends because I can't go or do anything. I can't handle it anymore. We can send people to the moon but we can't cure this? I now can't work and can't get disability. I'm a big fat mess.
I'm sorry to hear about your struggles. Did you see the other video I posted with Dr. Maurer? There are new treatment options on the way. Maybe you can ask your doctor about participating in a trial.
@@Sarahlepsy I didn't. Thank you so much. I really appreciate you and so happy I found your channel.
There's a link to the support group in the description as well. There are a lot of people who feel the way that you do. You aren't alone.
Go for IAFA
sorry piper, what is a antihistamine diet
I've had these issues since Summer 2007
I have had mine over a decade as well. It's really frustrating when they say "it will go away in one to two years." Not the case for many of us.
My 14 yr old has been having hives and rash all over the body for the last year. Usually notice them when he is sweating in gym class. We thought at first it was a new Detergent. Now he still gets them with using a sensitive Detergent. He has always been lactose intolerance but now we think it might be a milk allergy. His pediatrician aslo asked him about his school classes and if if he gets stressed about his grades. He does as he has all AP classes. The dr said that can also be a factor aswell. He loves sweets and thinks because he is thin and tall that he can eat all the sweets in the world. Does not get enough sleep and rest after his after school basketball practice. Needs about 10 hours sleep and only sleeps about 5 to 6 hours. Going to get a blood test to see if he is allergic to a specific thing....
My chronic hives started in childhood with exercise and cold or heat exposure. My children also have chronic hives so I feel for you and him. Cutting out sugar and dairy are great first steps. I would ask the doctor about a probiotic as well if he isn't taking one. I hope that you get some answers and he gets relief soon.
@Thrive with hives I also had the hives in my teens. They went away a few yrs later. I'm also lactose intolerant and stay away from dairy. Not big on sweets or sugars. I'm son definitely also has my sensitivities. I hope we get answers that way he knows what to avoid and doesn't have to take antihistamines on a daily basis. I will definitely look into prebiotics. Thank you for that advice.
I took one Asprin and Blew up with 30 minutes. Hives and angioedema.
Insulin resistance and mercury fillings toxicity are the most common ones for me
How did you figure that out?
@@lovindatJoan trial and error
I had chronic hives, as discussed by this doctor, for seven years. The drug I found that controlled the hives with no side effects was Atarax -25 mg tab daily. I took one tablet a day for 6 years. On the seventh year a new dermatologist I saw suggested I try a very restrictive diet for three weeks. I tried his diet and after about three or four weeks I was cured. I never determined what exactly was the trigger that caused my hives.
Thank you for sharing! Was it a low histamine diet?
Share how are you cure from hives. What's yr diet
I have MCAS, chronic hives, eosinophilic colitis…I finally found relief with xolair
I am from phils, been suffering for almost 6 mos, i'll take antihistamine but after 3days, thet back again.
If you haven't been to see a specialist, I would ask to see one. There are many treatment options available.
Just starting watching this and am so happy to listen. The comments are also very informative. I also developed csu after the Pfizer vaccine although my allergist doesn’t think this is a cause. Never had allergies or hives in my life before then and all my allergy testing was negative. Not antivac but will not be getting any boosters.
Happy to hear you found it helpful. Any immune response can be the catalyst for autoimmune/auto allergy diseases. We have many new members in our support group whose csu was triggered by the vaccine.
I also had a couple of CSU occurrences in the two years or so after taking the Pfizer vaccine. Maybe a reaction to all those DNA pieces that got included in the vaccines.
same here
He is a great doctor.
How can I contact him?
I have chronic urticaria since 2009. I was asked to test my thyroid/autoimmune diseases but tested negative. My IGE levels is in 770s. Not sure how to correctly fix this.
I didn't realize ibuprofen was a trigger, I've been using it all along!
I'm glad that you learned something new. Hopefully cutting out the NSAIDs will help you.
Yes it triggered CSU in me. I wish I knew.
I had a stomach bug for a few days. Went to work. My stomach was backed up a little. Ate a big meal after work, got home felt itchy. Starting getting hives all over and lip swelled. Every time I eat now 2 to 3 hrs later hives. Hard boiled eggs seem to be ok so far that's it. So I starve my self all day eat one meal and take children's liquid allergy. Haven't tried anything stronger yet.
Have you seen an immunologist? Nutrition deficiencies and stress can also exacerbate hives. It's just something to keep in mind. I hope you get on the rod to recovery soon 🤞
I get itchy pins and needles sensations sometimes parts in my body but I don’t see visible rash or signs on my skin. I get the symptoms when I experience heat, cold, spicy food, when I wear heavy jacket, when stressed or shocked.
Could this be heat hives? I also get the symptoms during cold and sudden change in temperatures
Sounds like Chronic Inducible Urticaria or CSU. Have you seen an immunologist?
Hi I am having food allergic hives any tips on how to get ride of it?
Have you been to an allergist? An elimination diet is also a good way to find your triggers.
what is the alternative for cardiac patients on Asprin?
It's risk vs. benefit when it comes to medications. Your cardiac health is a priority. If you are having reactions to your aspirin, you can discuss with your cardiologist about risk vs. benefits and potential alternatives.
I would like to know if EBV is the underlying cause of all the problems with Hives and skin that have come up since Covid 19 started?
Because chronic hives are triggered by an immune response, any infection can be a catalyst for chronic hives.
انا من الجزائر واصبت بالشري بعد تلقي لقاح جونسون حياتي اصبحت كابوس
ساعدوني حتى الإمكانيات المادية محدودة ارجوكم ساعدوني لقد اهملت اطفالي بسبب الاكتئاب
I just discovered your video, i have CSU from july 2022, everytime before i get angiodema on my skin, i have stomach pain, i have dijareja, throwing up and one eye swallows...i have a rash every month, 10 days, have been on diet low histamine..my question is , are there woman who got pregnant with CSU, because i want to get pregnant but i dont know what to expect during pregnancy and how CSU affects it? Can you please tell me if you have any info. I am so thankfull for your work ♥️
Welcome! I had a bit of a struggle conceiving, 6 weeks into pregnancy, my hives went into complete remission until 6 days post partum. A lot of women have a similar experience. A couple of things to consider would be looking for any thyroid disease or nutrition deficiencies, as these are very common in the CSU population and can have negative impacts during pregnancy.
@@Sarahlepsy i have hashimoto, insulin resistence and pcos, i got a baby through ivf, but i want more children and i dont know what to expect during pregnancy because in ivf treatment before pregnancy i have to take estrogen and progesteron pills the whole first semester, aspirin also...
I got urticaria with mild asthma after taking 2nd dose vaccine ,2months passed no more improvement ,it comes back when the antihistamine tablets stops. Can we cure it completely?
At this time there is no cure, only treatment. Many experience spontaneous remission. I have had it for over a decade and still take antihistamines daily to keep my symptoms under control.
I have urticaria science 9month,daily ,what to do,I loss my patience,take many treatment but not get relif
What have you tried?
My IGA q was high but gastro told me to not worry about it and I feel horrible on gluten
This is so common. I always tell people to listen to your body.
@@Sarahlepsy I need to lisen to my body my face gets puffy and have yellowish stools , anxiety , lethargy, bloated belly , even smelly f💨 sorry to much Info ect when I consume gluten !!!!
How long is too long to depend on antihistamines, 10 years? That's what I have been on. Yea, it dissapers after taking antihistamines but next day it pops up again. Did low histamine diet, worked for a bit and go on as usual later. I am just concerned about taking antihistamines for a long time!
Antihistamines are considered safe long-term, but they aren't without side effects.
@@Sarahlepsy what are the known side effects?
When I asked about being tested to find out which I have they said they don't do that. Is the care different for each?
Whether it's autoimmune or auto allergy doesn't change the treatment, although autoimmune can be more stubborn. If it's urticaria vasculitis treatment is different.
@@Sarahlepsy Because she said they don test for that (I suppose where I live) is it possible to try and navigate which I have on my own? I know that's not something you can just outright answer it's just a little overwhelming at this point.
@@cate2728 IgE level is typically low in autoimmune. Dr. Maurer talked more about this in the follow up discussion here czcams.com/video/ZFPcii7IdfA/video.html
Useing anti histamine for a long period. Will it creates serious health problems in future?
We are told that the new generation of antihistamines are safer. My goal is to wean myself off of them.
Green tea helps but it adventually returns I'm gona try eating healthier
Now I am also suffer from hives can u provide treatment and suggestions 🙏
You can learn a lot by watching my other videos. This one is the chronic urticaria treatment guidelines. czcams.com/video/V9QZ_rwBWYA/video.html
Sir I have chronic hives (body allergy) its now 7 months its too much painful
Now ok or not what diet you follow pls reply
I tried fasting for 24 hours to eliminate food allergies. No luck. I’m just allergic to myself. Got it since giving birth to my firstborn in 2001 and it never really went away. Could be allergic to your hormones as well.
Having this after birth, too. I was thinking it's hormones, but doc and neuropathic doc aren't listening to me.
This started happening to me after having a baby as well.
I am from India. And I have recently developed Urticaria... past 5 weeks. I would like to know what is the general line of treatment.
You will want to see your doctor for proper diagnosis and treatment. Generally they start with h1 antihistamines like Xyzal. H2 antihistamines may also be added if symptoms are not managed. It sometimes takes some combining of different medications and troubleshooting. Vitamin D is often low and many find that when they supplement there is a bit of improvement in their symptoms. For more information see the links in the description.
@@Sarahlepsy thankyou so much for the speedy response. Yes the doctors have started me on antihistamines. And after 2 weeks of not much progress they have put me on low dose of steroid and immunosuppressants. I am responding well. So just keeping my fingers crossed and hoping for the best ...trying to think positive that this will pass.
@@rupalipeshwae428are they gone now?
Some of you guys with systemic symptoms that don’t respond to antihistamines may want to consider autoinflammatory diseases. We often get misdiagnosed with chronic urticaria and unfortunately most doctors are not across it. Sincere best wishes to all in your health journeys.
Thank you for sharing!
Hi, I have reoccurring urticaria in a specific weather. Could it be autoimmune inflammatory? Doctors are not able to diagnose it correctly. They think it is some food allergy which is highly unlikely as per my observation over the years. Any suggestions, please?
@@nityatripathi347 is it an itchy rash? What weather seems to trigger it and do you have other symptoms with it?
@@NLRP3 Thank you for replying. Yes, it is kind of itchy and occurs during the monsoon season (Aug-Oct) with no other notable symptoms. Just huge warm welts/rash. Also, it doesn't happen every year.
@@nityatripathi347 I’m not a doctor but it sounds like you’ve identified the pattern linked with the monsoon season and there are a few articles online that discuss rashes which can be triggered with the drop in temperature and increase in humidity that can impact your skin microbiota. It doesn’t sound like it’s autoinflammatory as it doesn’t happen every year and is itchy. The itch is a clue that histamines are involved. It could also possibly be an allergy to something like pollens that are released at that time of year that you may not come into contact with every year. I hope you can figure it out and find something that helps!
I’ve had this from nose to toes for over 2 years now. Full body coverage with intense itch even in the scalp. Instead of being present 24/7 like it was for 1st year it now cycles up and down and is tolerable. Changing jobs to something low impact/stress has helped immensely along with a new antihistamine called Betahistine.
If I sweat, I break out. If it’s hot, sunny, cold, if I get sick, or get tired it’s a big breakout. So managing it means getting decent rest, avoiding nsaids, staying out of sun and avoiding cold climates, and avoiding foods that are attributed to inflammation. As for exercise, I walk which isn’t a high sweat activity but no more weight lifting or running on treadmill.
All of those things help me manage as well.
Rest of my life i doesnt hve this kind of allergy its so itchy and so damn evry day..i think it was the pills that i take evry day..plss help me what to do with this
Hi Florence. The first step would be to talk to your doctor. If you are experiencing a side effect from medication, there may be an alternative solution.
It seems exercise and drinking water can keep this horrible decease and the itch very low, I could almost say cure
It definitely helps!
is gaining weight one of the side effects of antihistamines?
It can be, yes
I have had a severe rash after the Pfizer booster shot. What is tge best treatment
This has happened to a lot of people. Any immune response can be a potential trigger. First step would be to seek out an immunologist or dermatologist who is knowledgeable about chronic urticaria. Antihistamines are the first treatment and are effective for many people. Your physician may trial you on different types/combos of these before escalating treatment to Xolair. Urticaria is considered chronic after 6 weeks.
Me and my identical twin both got hives after our Moderna booster (third shot). Going on 7 months, but it is slowly improving. Low histamine diet has helped a lot.
Same for me after Pfizer vaccine
How to battle chronic hives, I used very hot water for few seconds to a burning point,than turn cold water to the hive spot for a few minutes. Than get a wet cold wash cloth and wet it with cold water,ring it out lightly and cover hives spot for about 15 minutes. In a 12 hour or less. It will fade away
Thank you for sharing. I have heard this from others as well.
My reaction I've noticed was after every time I ate a Chef Boy R Dee product, especially the ravioli and spaghetti almost immediately after I consumed these nasty products, they are the worst, most toxic food .
Yes, these are definitely foods to avoid. Canned foods and tomatoes, plus many food additives, can be problematic.
What is the best diet for hives
I use a combination of low histamine and AIP in my Histamine Harmony Method program. Low histamine can be helpful for symptom management, and AIP helps address underlying immune dysfunction and gut healing.
@@Sarahlepsy how do I access the program
@@debsbenjamin4629 you can book a call with me here to see if you’re a good fit bit.ly/3N260rf
I have Urticaria, my hives are no longer visible, but I still feel the burning, stinging, itching, and prickly feeling
My scap is the worse. Still have symproms but without the visible hive. Ive done 5 injections of Xolair. DRs, and felloe suffers please share???
Same here try fexofenadine 180mg
I’m a beer drinker and I have a lot of hives in my back it’s gets worst everytime I have beer
Beer is a trigger for a lot of people. Alcohol is hard on your gut in general and is also high in histamines and a dao blocker.
@@Sarahlepsy that’s interesting I’m gonna look more into histamines
I am from india. And I am suffering from chronic urticaria last 10year .what I do??😭😭😭 Hives seen daily .
Same. Ayurvedic doctor told me to use baidyanath shitpitta banjan ras and unjha sarsaparilla to purify the blood along with liver detox juice. Hoping to see the results
What have you tried? It's really a complicated question. Other than taking medications, I did elimination diets to find my triggers, learned to better manage stress (a common trigger), and started using more "clean" personal care and household products. Look at the resources listed in the description. I have also had this for over ten years and although I have never had a true remission except during pregnancy, I have learned to manage my symptoms and find my quality of life again.
@@bala1385what is your condition of urticaria?
@@SarahlepsyI do all things homeopathic allopathic medicine and ayurvedic medicine also
Can air purifiers help urticaria
Reducing your exposure to environmental toxins and allergens can certainly help, but it's not a solution on its own.
Everything else don't work, barzolvolimab your savior wait for it.
Do you have Prof Marcus Maurer’s email id?
You can fill out the contact form on his website here www.marcus-maurer.com/contact/
Men get urticaria too, ya know. 🙄
Yes, they sure do.This particular interview was done for a women's group. Nobody said men don't get hives.
What does he mean by auto allergy? I thought this disorder wasn’t an allergy??
It's not an environmental allergy. People with auto allergy are having an allergic reaction to their own tissues.
@@Sarahlepsy brutal
@@Sarahlepsy same with me i think, it's chronic urticaria as per doctors, when I'm working in direct sunlight on site, the hives appears suddenly on my arms and legs
Low/non histamine diet and hives disappeared in 2 days.
Amazing. Thank you for sharing.
@@Sarahlepsy Ur welcome. Not Vax related; change of diet that included nuts and nut based products. Build up tipped my immune system and head to toe hives for 2 months. 24 hour fast followed by non histamine foods shifted it. Hope this helps someone. It's awful.
What's that pls tel mee
What's that low histamine diet pls reply
What is his email?
There is a contact form on his website www.marcus-maurer.com/contact/
sufferer
Does Dr Marcus speak German?
Yes, I believe he does
Ñññ
I don't want to live with this !
I'm sorry you are struggling with this. I have felt that way, too. I hope that you get into remission soon 🤞