ABC News Broadcast_Archie Black

Archie Black, 4, is one of 13,000 Australians living with a rare genetic condition, but his diagnosis gives him no certainty for the future. The Black family were living in the small country town of Tambo, where Mr Black was the school principal, and celebrating the birth of their youngest, George when they received Archie's diagnosis.
Mr Black said Archie was currently tumour-free, but intellectually he was up to 12 months behind his peers. He also has difficulty with his mobility, renal system, hearing and experiences fatigue.
Learn more about their experience of NF and share to help grow understanding of the extreme variability of the condition.
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