I have pulmonary and ocular Sarcoidosis and it's throughout my entire lymphatic system. This is just what has been biopsy confirmed and scanned for now. I don't know if it's anywhere else. I don't have insurance so I'm always looking for ways to manage this while I try (in vain) to get some help. My vision and breathing are getting worse by the day and it's very scary. I also have autism and so do both of my kids. My son is severely autistic. I need to be there to take care of them both in the long term but right now I don't know what the future holds. Anyway, sorry for the long post. It's cathartic to post something where someone will understand.
Wow! Yes, that is a lot. Please reach out and let us know if you have any questions or if we can help in any way. You can email me at Abigail@LifeandBreath.org. I'm glad you found is.
I have pulmonary and ocular Sarcoidosis and it's throughout my entire lymphatic system.
This is just what has been biopsy confirmed and scanned for now. I don't know if it's anywhere else.
I don't have insurance so I'm always looking for ways to manage this while I try (in vain) to get some help.
My vision and breathing are getting worse by the day and it's very scary.
I also have autism and so do both of my kids. My son is severely autistic. I need to be there to take care of them both in the long term but right now I don't know what the future holds.
Anyway, sorry for the long post. It's cathartic to post something where someone will understand.
Wow! Yes, that is a lot. Please reach out and let us know if you have any questions or if we can help in any way. You can email me at Abigail@LifeandBreath.org. I'm glad you found is.
@@lifeandbreathfoundation thank you so much...I will reach out to you for sure.