My Experience with Severe C. Difficile Infection| Inflammatory Bowel Disease| Crohn's Disease

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  • čas přidán 27. 04. 2023
  • Sharing my story about a dangerous infection that I battled - C. diff & how I finally overcame it. Check out my Crohn's Disease diagnosis story for more context. Useful resources regarding C. diff are listed below.
    www.mayoclinic.org/diseases-c...
    www.cdc.gov/cdiff/what-is.htm....
    www.ncbi.nlm.nih.gov/pmc/arti...
    Contact me: irajewelwellness@gmail.com

Komentáře • 151

  • @rnnumi7945
    @rnnumi7945 Před rokem +26

    The C-Diff poops are awful. No one understands the urgency until they catch it. Seriously, it is like 10 secs from "the feeling of need" to uncontrollably going. And that's like 20xs a day (if lucky). Great video.

    • @irascrohniediaries
      @irascrohniediaries  Před rokem +8

      That’s exactly right! An urgency I’ve never experienced before or after. It is truly awful. Thanks for your comment.

  • @janycebrown4071
    @janycebrown4071 Před 5 měsíci +17

    The C Diff spores are almost untreatable! I caught C DIFF in July, 2023. I was in the hospital after blood loss. I haven't taken antibiotics for about 6 years, but I had a compromised system so I caught it! Hand sanitation will alcohol DOSE NOT KILL THE SPORES! You MUST use soap and water!
    Im am in a 70 day study using Egg Yolk Antibodies! Wish me luck 🙏 ❤

    • @Drobalar-Drsebi
      @Drobalar-Drsebi Před 2 měsíci +1

      My heart will remain grateful Dr OBALAR channel till forever, for the medical attention you showed me when I was battling with my HPV virus, you showed care in every way, and with the help of your herbal medication I was deeply shocked to see it work

  • @JacobAaliyahJordanCasarez
    @JacobAaliyahJordanCasarez Před 3 měsíci +10

    I got c diff about a year ago it was recurring,and my stomach has never been the same, i definitely have post infectious ibs now , i changed my diet to whole foods only and it has helped , i ended up having a FMT to clear the recurring c diff infection, but man my body has never been the same , it is a nasty nasty infection that messes you up. I got ulcers in my colon from it and it has been a battle tested year for sure just trying to recover from it still . I was in a bad place mentally also because of it , i am better now , but wouldn't wish this on anyone . Have a great day everyone GOD bless

    • @Drobalar-Drsebi
      @Drobalar-Drsebi Před 2 měsíci

      My heart will remain grateful Dr OBALAR channel till forever, for the medical attention you showed me when I was battling with my HPV virus, you showed care in every way, and with the help of your herbal medication I was deeply shocked to see it work

    • @thebayareastandout
      @thebayareastandout Před 2 měsíci +1

      I have it now and had never heard of it. I did just finish a bottle of prescribed antibiotics recently for something else but I wasn't warned that antibiotics could kill the good bacteria in your gut. I did need those antibiotics though. I had diarrhea where I had to the go to the bathroom about 20 times in a 30 hour period. Now Im just had my first day taking vancomycin. The pain isn't that bad at least yet but too many trips to the bathroom, had a bad headache, and was feeling weak in general and bought a thermometer because I knew something wasn't right and when my temperature was 104 I drove myself to the emergency room and was diagnosed after testing. Those are my symptoms but some way low or high readings of anything associated with iron after having my blood tested

  • @gasconnade9863
    @gasconnade9863 Před 4 měsíci +10

    thank you for sharing your story. i had c diff for over two years- it must have been off and on, but i had to quit jobs because of it. awful pain.

    • @Drobalar-Drsebi
      @Drobalar-Drsebi Před 2 měsíci

      My heart will remain grateful Dr OBALAR channel till forever, for the medical attention you showed me when I was battling with my HPV virus, you showed care in every way, and with the help of your herbal medication I was deeply shocked to see it work

  • @jessicakimberly1996
    @jessicakimberly1996 Před 4 měsíci +8

    Thank you for this. Was just diagnosed with C Diff. Came out of nowhere. We're trying to afford the medication. Wish me luck.

    • @kindermaus
      @kindermaus Před 3 měsíci

      @jessicakimberly1996 may you recover completely and quickly return to your normal life

    • @Drobalar-Drsebi
      @Drobalar-Drsebi Před 2 měsíci

      My heart will remain grateful Dr OBALAR channel till forever, for the medical attention you showed me when I was battling with my HPV virus, you showed care in every way, and with the help of your herbal medication I was deeply shocked to see it work

  • @tarahoude5135
    @tarahoude5135 Před 4 měsíci +11

    I had c.diff for over 4 years before it was diagnosed. It wasn't for lack of complaining about my symptoms...I was put right on antibiotics. My doctor now has me on 10 weeks of prednisone, in hopes to reduce swelling in my colon from the colitis. I'm still in so much pain. This is a horrible disease!

    • @Drobalar-Drsebi
      @Drobalar-Drsebi Před 2 měsíci +1

      My heart will remain grateful Dr OBALAR channel till forever, for the medical attention you showed me when I was battling with my HPV virus, you showed care in every way, and with the help of your herbal medication I was deeply shocked to see it work

    • @erical7131
      @erical7131 Před měsícem

      Prednisone can also make C diff come back. I know out of experience. Have you tried other alternatives like a Turmeric or ginger?

    • @tarahoude5135
      @tarahoude5135 Před měsícem

      @@erical7131 It did come back, tenfold! It was terrible. I'm positive it's back again. It's wearing me out! I have been drinking turmeric and ginger teas. That's it. I won't see my specialist until September, that's so far out!

    • @feefee3036
      @feefee3036 Před 10 dny

      @@erical7131can u explain

  • @thebigerns
    @thebigerns Před 3 měsíci +4

    THANK YOU for making & sharing this video… we all know how hard it is to discuss this stuff and how welcome it is hear an actual human speak from a shared experience instead of just that cold and clinical doctor medical-speak. This disease and its treatment makes me feel so untouchable, so separated from other humans and humanity. It kills my spirit even as its killing my guts. Doctors can't really treat the isolation or shame C.diff produces, or hand out injections of courage when needed… just hearing that I'm not alone is so good right now, when all doctors can offer is medicine… don't get me wrong - love my doctors & care teen BUT they are all on the other side of shared human exprtornce. Thank you, sorry for rambling.

    • @Drobalar-Drsebi
      @Drobalar-Drsebi Před 2 měsíci

      My heart will remain grateful Dr OBALAR channel till forever, for the medical attention you showed me when I was battling with my HPV virus, you showed care in every way, and with the help of your herbal medication I was deeply shocked to see it work

  • @audreystarr6166
    @audreystarr6166 Před 3 měsíci +5

    Girl not tmi at all. It's a relief to hear u be so open. Thank u. I was just diagnosed 2 days ago. I have ibd, recurring sibo, and autoimmune issues..and have zero care atm besides the urgent care I went to. How do u know when u need to be hospitalized? I'm still running to the toilet at least every hour. 2 days ago it was every 5-10 mins alllllll day and into the next day. I'm on antibiotics for it but it's really really uncomfortable/painful and I'm so swoolen.

    • @Drobalar-Drsebi
      @Drobalar-Drsebi Před 2 měsíci

      My heart will remain grateful Dr OBALAR channel till forever, for the medical attention you showed me when I was battling with my HPV virus, you showed care in every way, and with the help of your herbal medication I was deeply shocked to see it work

  • @patriciagulizia3780
    @patriciagulizia3780 Před měsícem +2

    Thank you so much! Over 65 and on my second round of c-diff. Have been prescribed Dificid so I am hoping for success. Your video has been very informative!!

  • @colleenoaksferrigno
    @colleenoaksferrigno Před 7 měsíci +30

    That cdiff pain is like no other. The only way I can describe it is as someone is throwing a 50lb or more medicine ball at your stomach, while your intestines feel like theyre on fire, while a hot knife is searing through said intestines. 1st time I thought was horrid. It wasn't nearly as horrible as the second go-around. I made my peace with God that night in the hospital bed. Unless the docs and nurses could help me, I felt that I might've passed. It took months to get better and as a parting gift I now have IBS and take meds for it. 0 stars. Do not recommend.

    • @cghrios783
      @cghrios783 Před 4 měsíci

      It sound like a unbeatable experience I’m very sorry. But do you mean that because of this you got ibs?
      After taking meds for c diff the antibiotics are so harsh on your gut. But most people do not try to populate bacteria. I got it after a salmonella infection.

    • @colleenoaksferrigno
      @colleenoaksferrigno Před 3 měsíci +1

      @cghrios783 I ended up with Post Infectious Irritable Bowel Syndrome. That has calmed down but I still take medicine for it, when needed, a few times a week. I take Bentyl. It works very well for me.

    • @colleenoaksferrigno
      @colleenoaksferrigno Před 3 měsíci +1

      @cghrios783 oh no, salmonella? Do you know how you acquired that? I forgot to add that I was on antibiotics for 20 years without probiotics. My microbiome is compromised at this point but I've made steps to try to improve it.

    • @Drobalar-Drsebi
      @Drobalar-Drsebi Před 2 měsíci

      My heart will remain grateful Dr OBALAR channel till forever, for the medical attention you showed me when I was battling with my HPV virus, you showed care in every way, and with the help of your herbal medication I was deeply shocked to see it work

    • @Drobalar-Drsebi
      @Drobalar-Drsebi Před 2 měsíci

      My heart will remain grateful Dr OBALAR channel till forever, for the medical attention you showed me when I was battling with my HPV virus, you showed care in every way, and with the help of your herbal medication I was deeply shocked to see it work

  • @anjbum
    @anjbum Před 2 měsíci +4

    Ira, thank you so much for sharing this hugely important information!!! I literally got more information watching and listening to you than I did in all my reading. God bless you!

    • @Drobalar-Drsebi
      @Drobalar-Drsebi Před 2 měsíci

      My heart will remain grateful Dr OBALAR channel till forever, for the medical attention you showed me when I was battling with my HPV virus, you showed care in every way, and with the help of your herbal medication I was deeply shocked to see it work

  • @kristis4147
    @kristis4147 Před 3 měsíci

    My nephew just got diagnosed with this. THA K YOU FOR SHARING YOUR JOURNEY

  • @machelanderson3885
    @machelanderson3885 Před měsícem +1

    Thank you for your Story. If only more people would share vs. hiding the true fact of something embarrassing as "poop" to talk about. I was diagnosed early this year. I was visiting my mother in a nursing home. Talk about the saying "I brought you in to this world and I can take you out". I'm trying not to be so cold but the pain and hurt is so real. I rather have not known how I contracted the disease. I have just finished on my second round of Vancomycin, and I am 59 years of age. I have two more weeks before I can get into see the Gastroenterology. I'm trying to stay positive but it is becoming difficult. I go into health care and I feel unclean and dirty especially since it came back. One thing that I am trying to do is work on my good gut biome. Probiotics are good and all but focus on more of prebiotics. I have made fermented garlic with honey and Elecampane tea from roots and eat the roots as well. Three times a day, to help promote the good health in the gut. I haven't made the announcement yet of this disease but hope to soon after I see my Doc in gastro. For any updates of my herbal help in healing this horrific disease and other herbals, look me up on FB at Homesteading_for _two also on Instagram. Prayers for continue healing and look forward to following you on your journey as well.

  • @laniengonzalez3951
    @laniengonzalez3951 Před 4 měsíci

    Thank you for sharing your story. I would first like to say that Im sorry you're going through so much at such a young age. I know your personal experience is going to help so many who are dealing with C.diff.
    My brother has been in the hospital for a heart attack, caught pneumonia, and now C.diff. I know this video will help him to understand what he will be facing for the years to come. Thank you again for sharing your story. I will keep in you in my prayers

    • @irascrohniediaries
      @irascrohniediaries  Před 4 měsíci +1

      I really appreciate that and happy that this can help your brother. I'm sorry to hear that he's going through all of this right now. I'm sending all the love and positivity to you all and hope he feels better soon.

  • @valeriasamario
    @valeriasamario Před 4 měsíci +6

    Thank you so much for making this video! I unfortunately am currently going through my c diff recovery and was starting to get bummed out that I'm still having some pain and discomfort and awful BMs when I'm almost done with my medications. But hearing a human talk about this has really helped me feel more comfortable, that it may last longer than expected. So now I will know what my best next steps are. I hope you're doing great and feeling healthy ❤😊

    • @irascrohniediaries
      @irascrohniediaries  Před 4 měsíci +2

      I'm so happy I could help you in some way. It is not easy but I really hope you feel better sooner than later. Yes, I did not know it could come back or last a while either so better to be prepared.

    • @diegojaviersj
      @diegojaviersj Před 4 měsíci

      what does BM mean?

    • @valeriasamario
      @valeriasamario Před 4 měsíci +1

      @@diegojaviersj bowel movement

    • @Mrsbribradley
      @Mrsbribradley Před 4 měsíci +2

      I am currently dealing with this right now too after being prescribed with an antibiotic. I just finished vancomycin I thought I was feeling better . But now I don’t have an appetite again 4 days after medication & feeling really tired . Loose stools In thr morning only use the bathroom 1 time a day . I’ve been dealing with this a month lost 10 pounds . It’s so hard

    • @lucindacarrasco6107
      @lucindacarrasco6107 Před 3 měsíci +1

      ​@Mrsbribradley same thing is happening to me now.Its been 2 weeks since I went back to work .Feeling sick again........

  • @MrDerekRobinson
    @MrDerekRobinson Před 4 měsíci +1

    It's a really great possibility that you could have caught c diff from the daycare. Its very common in children overwhelmingly. How can it be determined that you definitely didn't get it from daycare? My daughter had it alot in daycare and it's contagious amongst children but it's typically mild cases

  • @nancyp4337
    @nancyp4337 Před 10 měsíci +8

    Thank you so much for sharing your story. I went undiagnosed with CDiff for almost 10 months!! My final trip to the ER I was almost delirious, dehydrated, swollen and sore. A wonderful doctor finally figured out what was wrong with me. I just finished a 2 week course of Vancomycin and am waiting to see how I get along. I also got a related arthritis that CDiff triggers. Did you experience that as well?

    • @jenniferlloyd9574
      @jenniferlloyd9574 Před 6 měsíci

      Undiagnosed for 10 months?! I'm so sorry...
      Were you having chronic diarrhea the entire time??

    • @nancyp4337
      @nancyp4337 Před 6 měsíci

      @@jenniferlloyd9574 pretty much the whole time. At the end i was losing 6-7 pounds a week. I just found out I have colitis, maybe from the cdiff.

    • @Dwightinho56
      @Dwightinho56 Před 6 měsíci +1

      Me too!! I am still not 100% over it but much better after I did an FMT (fekal microb. transplant) in June, and I’m slowly but surely getting there🤗. The arthritis connection you mention is very interesting🤔. After the C diff I have had a sudden problem with all joints. At once🤣. It is very weird. Do you know any more about this?

  • @christyboyd1432
    @christyboyd1432 Před 5 měsíci

    Just found out today that I have c-diff. Only found out today after messaging my dr to look at my test results that I had to have done last week. Of course I have some questions? Messaged the dr and waiting on a reply! Maybe you can help til I hear back from her. I have no clue how I got it! No clue if it’s contagious! I really need to know whether or not it’s contagious..if I need to stay away from my grandkids til it’s took care of? Would you happen to know?!? Thank you so much

  • @bonchauvin5744
    @bonchauvin5744 Před 25 dny +2

    I am 73. I keep getting c diff from antibiotics. I’ve been sick again and suspect I have it again. So so sick, it’s horrible. Chills, body aches, stomach cramp, diarreah, I feel like I’m going downhill. Did you get really sick in general from c diff. Extreme body aches, very sick digestive stuff, chills, headache, etc? I’m scared I’ll never get better..bon

  • @user-gw6vg7gw4t
    @user-gw6vg7gw4t Před 7 měsíci +3

    My daughter just was released from the Hospital from having Sea Diff. She was very sick. Thank you for your video it was very helpful to fully understand this awful infection she was battling. It has been two weeks since she was released. My question is how long will you be contagious?

    • @jenniferlloyd9574
      @jenniferlloyd9574 Před 6 měsíci

      You shouldn't be contagious after completing treatment provided the final tests are negative. Spores can live five months to years! I read that a 9:1 water/bleach solution is the only thing that kills the spores. You have to throw out blankets, clothes, underwear, etc.

    • @Dwightinho56
      @Dwightinho56 Před 6 měsíci

      If she has been on antibiotics and they have released her, she is not contageous anymore. If there will be a recurrence she will be contageous again. It is a hard bacteria and infection to get rid of.

  • @roxanapal6364
    @roxanapal6364 Před 8 měsíci

    My son still take vanco in descaladation but also jaradiphilus probiotic so i saw great effects ceck that term all will be very happy find new heal.

  • @Pieisyummy999
    @Pieisyummy999 Před 5 měsíci +1

    The way I wish I could forget my time with cdiff. I ended up having cdiff around 7 different times over 2 years when I was first diagnosed. I kept going in and out of the hospital every month and eventually we learned I have a genetic predisposition to get cdiff 😭 I also did so many treatments, flagyl, vanco, and multiple stool transplants

    • @pinkpanty10x
      @pinkpanty10x Před 5 měsíci

      Hi, I have c diff for the 3 time right now. I’m waiting to see a specialist in early January. I read the a fecal transplant costs approximately $9,000 ! Was this your experience??

    • @Pieisyummy999
      @Pieisyummy999 Před 5 měsíci

      @@pinkpanty10x hey there! I’m so sorry you are dealing with that friend it’s truly the worst. At the time I was lucky enough to be young enough to be covered under my parents insurance and since they both worked for the state I didn’t have to deal with the out of pocket cost. That being said though I think there are some payment options out there (similar to if you have co pay assistance with an infusion medication)

  • @sonestia777
    @sonestia777 Před 9 měsíci

    I’m going on 6 months, I’ve had Vanco 4x and Dificid once. It’s the dehydration that I’m struggling with now I’m trying to handle myself because I’m a hard stick and it’s hard to get IVs in me so I don’t want to be a pin cushion in the ER for iv fluids.

  • @diegojaviersj
    @diegojaviersj Před 4 měsíci

    For anyone with immune system compromised, how can you take antibiotics and be sure not to catch (activate this)? what can be done to prevent this when you are sure you need to take a course of antibiotics? And why would have been the reason why you got it (I know you said Antibiotics, but were you prone to other diseases)?

  • @charlottehayward5943
    @charlottehayward5943 Před 8 měsíci +6

    My husband had this. His Dr. Finally put him on Flagyl long term. After 3 months he got over it. It is a probiotic.

    • @Dwightinho56
      @Dwightinho56 Před 6 měsíci +9

      Flagyl is not probiotic but an antibiotic.

  • @erickiabartee6898
    @erickiabartee6898 Před 8 měsíci

    I also had C_difff in 2016 I had it for 3 weeks before I went to the hospital I could not eat or drink anything. And to make matters worse I have cerebral palsy and if you think having having diarrhea is a cakewalk compared to c-diff with cerebral palsy

  • @jcdanforth
    @jcdanforth Před 4 měsíci

    I have this now. I super frustrated. I’m 52. Took no antibiotic to get it. But I was in a hospital for weeks with my mom and my dad lives in assisted living. I don’t know how this happened. I am on 3rd round of medication vancomycin. The dificid is 4000$. They want me to see GI on Feb 14th. I guess next would be stool sample. But I went to hospital twice when I thought it was gone due to heart rate and headache. My wbc is fine. Everything fine. But I have slight inflammation. This started last October. 😢

  • @tashieslots4379
    @tashieslots4379 Před rokem +4

    Thank you for this informative video and your soothing manner of speaking. I was wondering if C-Diff is ever spread by workers in restaurants? I'm familiar with the antibiotic factor, but wondering how else you can get ill from it. TFS

    • @TheBiancalov
      @TheBiancalov Před 10 měsíci +2

      My gastroenterologist told me I could have gotten it from meat. Chicken possibly. Alot of meat have antibiotics in it. I now only buy organic antibiotic free chicken with no hormones...vegan life sound real good right now. 😭. Pa I didn't get it from any meds I don't know how j got this

    • @irascrohniediaries
      @irascrohniediaries  Před 10 měsíci +2

      Thank you for your comment! In theory, it could certainly spread that way if someone hasn't properly washed their hands who is infected. It can also live on the skin and be spread that way. That's from my basic research.

    • @Dwightinho56
      @Dwightinho56 Před 6 měsíci

      I got my infection from my hospital stay. It is a verrrry well known bacteria in hospitals, senior citizen homes etc. but anyone can get it anywhere as it is extremely contageous and survive on surfaces for at least a month. Regular cleaning procedures do not work on this bacteria. Pure Chlorine was the advice given to me. Patients infected with C. Diff should always be isolated in hospital environments. C. Diff can kill you depending on the Toxin you are contaminated with. But you can also be a carrier of this bacteria, and when your immune defense is lowered due to other causes you will get an infection out of nowhere. Most common cause is antibiotic cures that not only cures a bad bacteria but wipe out all of them. That’s when the evil/bad bacteria like C. Diff takes over extremely fast.

  • @cghrios783
    @cghrios783 Před 5 měsíci

    Thank you so much for your story.
    I wanted to ask I if I may a coupling questions.
    Is it true that the smell is very different?
    After you took flagyl and it did not cure you, was it as bad as when you first got c diff?
    How were your symptoms or chrons after this c diff infection?
    Do you know of any cure of chrons with the 💩 transplant?
    Thanks so much.

    • @irascrohniediaries
      @irascrohniediaries  Před 4 měsíci

      Hi! Yes, the smell is distinct to say the least, it is very different. I will say the initial onset of c-diff was the worst and when it came back later no it did not send me to hospital like the first time but was still bad. Once I got on medication (remicade) at the time my crohn's symptoms were relieved for a while. As of right now, no there is no cure for Crohn's. I hope you are well!

    • @cghrios783
      @cghrios783 Před 4 měsíci

      @@irascrohniediaries thank you fir replying. You got chrons before the infection then?
      Do you know how your diagnosis of chrons came about?

  • @everichards8480
    @everichards8480 Před 10 měsíci +6

    So I currently am dealing With a recurrent C Diff, they have me on vancomycin again and like you said it’s strong! & I feel the side effects. I’m currently trying to find a probiotic to take to help or just some type of natural remedies if they exist…
    Crazy thing is I have no idea how I caught it either…I’m only 33 but I did recently have a baby and a c section but I caught The c diff months after giving birth
    I’m glad I found this video though because now I know I’m not the only “young” person who caught this. 😅

    • @irascrohniediaries
      @irascrohniediaries  Před 10 měsíci +1

      Thank you for sharing! Wow that is so strange as to how you contracted it. My dr at the time recommended Florastor which is what I took. I really hope you can get rid of it once and for all. I know how draining it can be especially with a new baby.

    • @doeidaho2101
      @doeidaho2101 Před 10 měsíci

      Eat Greek yogurt daily. Fage plain since it is full of good bacteria . Do not eat sugar unless it is in fruit. Try to eat Keto until you get your strength back. Add fruit & whole grain toast to that so you don’t drop too much weight. I lost weight with C-diff. So sick I didn’t want to eat.

    • @Dwightinho56
      @Dwightinho56 Před 6 měsíci

      A strong probiotic on prescription (in my country anyway🇳🇴) is something called Precosa 250 mg. Also goes under it’s real name Saccharomyces Boulardii. It has helped me a lot, especially if I have had to be on antibiotics again and presumably would be an easy target for a recurrence episode with C. diff. I used to have no faith in stuff like this, but for me they have worked wonders. Here they are a bit expensive though.

    • @DRSRPrime
      @DRSRPrime Před 5 měsíci

      I’m 33 as well and idk how in the world I got this! lol. Not on any antibiotics. I do work at a hospital but I work with ppl who want to donate blood , not with patients…so maybe somebody had it and I got it from whatever surface. It’s been 2 weeks now! I’m taking vancomycin hydrochloride right now

    • @renaew7181
      @renaew7181 Před měsícem

      I caught c-diff after having a c-section last year. My symptoms started 1 week after the c-section.

  • @Roshe73
    @Roshe73 Před 10 měsíci +6

    I have had c diff for over 3 months since the previous
    doctor put me on Pylera which was too strong for my body. I had vancomycin for 10 days after 2 weeks the diarrhoea started again. I am going back to the doctor tomorrow. I am getting fed up of the toilet and used over 6 packs of 10 of toilet paper 🙈 I had so many tests it’s so frustrating and exhausting. I’m tired so hopefully tomorrow I get some solution. I lost over 5 kgs and had zero appetite. Yes water diarrhea over 10 times a day lost count, no sleep fever and they did not tell me that recurrence can happen🥹 yes weak immune system. I had to pay for vancomycin as it’s not covered by insurance. The doctor might want me to get a colonoscopy. He might put me back on vancomycin again not sure 🤔 thanks for this video 🥰 it’s is a miserable experience as it affects your life and well being.

    • @irascrohniediaries
      @irascrohniediaries  Před 10 měsíci +3

      I'm so sorry you are going through this! It takes so much out of you, I understand your pain 😟Yes all of the testing is exhausting on it's own. I really hope you get some relief soon. Thank you for sharing.

    • @jenniferlloyd9574
      @jenniferlloyd9574 Před 6 měsíci

      Google the protocol for cleaning with bleach. One guy threw out all his bedding, blankets, clothes, towels, etc... Those spores can survive for months to years and bleach in water I'd the only thing that works.

    • @AntiOTRS
      @AntiOTRS Před 5 měsíci

      How are you now?

  • @nathanharper3896
    @nathanharper3896 Před 2 měsíci

    I have it now, was diagnosed a week ago, waiting for the robotic surgery.

  • @TheBiancalov
    @TheBiancalov Před rokem +6

    Oh yea..I did 10 days of vancomycin, doctor wants me to retest in a week..but my stool is still mucus like and green..yuck sorry guys 😔. I have diarrhea every other day. Constipated others..I've shed so many tears over this crap girl 😭

    • @irascrohniediaries
      @irascrohniediaries  Před rokem +4

      I know exactly what you're going through. Vancomycin is rough. I'm so sorry this is happening to you ☹ Hoping you find relief soon.

    • @doeidaho2101
      @doeidaho2101 Před 10 měsíci +7

      I had c-diff 5 yrs ago after surgery. My doctor put me on a strong dose of vancomycin which didn’t help. She doubled the dose & then tapered me off gradually. In the meantime I washed everything in my home with a solution of bleach water. For the many bowel movements my doctor said to take Peptole Bismol, tablets, six at a time so I could leave my home to keep appointment’s & buy groceries. It worked. After almost a year of tryouts get rid of it, I am free. Spores stick around so really important to wash everything with bleach that you touch so it doesn’t come back. Terrible infection to say the least. Wish anyone who has it a safe recovery because it can be fatal.

    • @irascrohniediaries
      @irascrohniediaries  Před 10 měsíci +4

      @@doeidaho2101 Thank you for sharing your story! Wow I am so happy you were able to overcome c-diff. It is an uphill battle for sure & thanks for the tips!

    • @AntiOTRS
      @AntiOTRS Před 5 měsíci

      @thebiancalov did you get rid of it?

    • @TheBiancalov
      @TheBiancalov Před 5 měsíci

      @@AntiOTRS yes I did. Vancomycin helped and cleaning with bleach solution in bathroom

  • @amg4897
    @amg4897 Před měsícem +1

    I have Ulcerative colitis, and now I have cdiff, I have been on meds for 11days now, I’m afraid it’s not working but I have 4 days left

  • @JoshuaHampton-yt4sz
    @JoshuaHampton-yt4sz Před 5 měsíci +1

    I have ulcerative coltis and pancreatitis and chrons and cdiff and it sucks

  • @flowerflower3398
    @flowerflower3398 Před 8 měsíci

    Did you consider fmt !!

  • @mattmatthew2440
    @mattmatthew2440 Před 5 měsíci +1

    C diff is awful,i have crohns and had to get a colectomy,i caught it after i went in for a colonoscopy and it keeps coming back every three weeks after taking vanomycin,ive tried dificid,as well but its expensive,im getting sick of this awful bacteria,has anyone had success with florastor?

  • @Goku_MuiThaGoat1
    @Goku_MuiThaGoat1 Před 6 měsíci

    I am currently with c.diff entering month 7 😢 after IV antibiotic for appendicitis for 5 days. Failed vanco x1 , dificid x2 now on vanco taper but i can feel that i failed..... struggling with cleaming too much

  • @jah0524
    @jah0524 Před 4 dny

    Thank you for this video. It was very informative. Just one bit of criticism... It's hard for me to hear your soft voice over the music. The music is competing with you, and I don't think it's necessary.

  • @DRSRPrime
    @DRSRPrime Před 5 měsíci

    Question: how does this work with going back into work?? Did you have to stay out or could you go back?

    • @DRSRPrime
      @DRSRPrime Před 5 měsíci

      Only symptoms I have are a little stomach ache when I need the bathroom but after I go it goes away. No fatigue or fever or chills…

  • @brandileigh_thepoet
    @brandileigh_thepoet Před 5 měsíci +2

    Dificid is over $4000 without insurance. I just finished mine yesterday. I'm unsure if I'm well or not. I'm passing a lot of old blood.

    • @joshborja8012
      @joshborja8012 Před 27 dny +1

      How are you doing. I am on dificid right now

    • @brandileigh_thepoet
      @brandileigh_thepoet Před 27 dny

      @@joshborja8012 I’m doing much better now but it was about 6 months of hell. I hope you feel better soon!

  • @brendand8794
    @brendand8794 Před měsícem

    I've done Vanco and Dificid, both didn't work, im very worried at what to do next. The doctor wants to try Vanco taper but Im afraid it wont work. I just rather go straight to FMT

  • @NickGelo
    @NickGelo Před 8 měsíci +3

    currently battling recurrent cdiff... went about 6 months undiagnosed and then finally got a stool test from my GI doctor. (Not her fault that I didn't get one. This was the first time I had ever saw her and I didn't have watery stools luckily so it wasn't really thought to be c diff. Nor had I had a history of Antibiotics) I failed Vanco, then Dificid, and am currently on a 25 day Dificid taper right now. Hoping for the best but this SUCKS. FMT is the next step if this fails. My symptoms before treatment were light stomach pains, EXTREME fatigue, night sweats, elevated heart rate and Anxiety. I never really under stood the gut brain connection until I had this infection, My mental health has never been worse....

    • @jenniferlloyd9574
      @jenniferlloyd9574 Před 6 měsíci

      How is your C Diff??

    • @Dwightinho56
      @Dwightinho56 Před 6 měsíci +3

      I did FMT in June this year and it’s the best thing I could have done for the damage C. Diff did to my intestines. It sounds gross but actually isn’t. It’s just like another coloscopy and you don’t see or smell a thing. It is done very proffessionally. The donors are thorougly screened for every possible thing and the Transplants are delivered by a company dealing only with this kind of treatment. Officially registered for safety. The whole procedure takes less than 15 min. It’s the prepping the day and night before that takes time and pain😬🫣.

    • @NickGelo
      @NickGelo Před 6 měsíci

      @@jenniferlloyd9574 seems to be better a month out from the taper! Only time will tell now…

    • @NickGelo
      @NickGelo Před 6 měsíci

      @@jenniferlloyd9574 I was honestly hoping for it… if the taper I was on failed that was the next step but I seem to be doing okay after the taper!

    • @irascrohniediaries
      @irascrohniediaries  Před 4 měsíci

      I'm so sorry you're going through this. The fatigue makes it impossible to carry on but if you get a chance please update me on how you're doing.

  • @allisonerickson3598
    @allisonerickson3598 Před 8 měsíci +3

    I’ve been defeated for two years I still cannot get my doctors to help me 😢

    • @jenniferlloyd9574
      @jenniferlloyd9574 Před 6 měsíci

      What's going on with your two year C Diff journey??? Doctors won't help???

    • @angelaprice3435
      @angelaprice3435 Před 3 měsíci

      Mine was the worst got it in the hospital. I have IBS I stayed on probiotics for the longest time up until a year ago. I recently went to the er for a uti and kidneys. The minute they mentioned antibiotics my mind went back to probiotics. I'm taking these along with the antibiotics. Get to a gastrologist.

  • @debramartin9396
    @debramartin9396 Před 5 měsíci +1

    I have cdiff and sepsis. The stool tests are not accurate at all.

  • @aboutsummermsw
    @aboutsummermsw Před 5 měsíci

    What was the medicine you said worked best? Difficit? I couldn't understand.

  • @lindaschuknecht2063
    @lindaschuknecht2063 Před 10 měsíci +2

    My son is going through this right now...Flagyl, Vanco taper, then a long Vanco taper and now just starting Dificid. How long was your treatment with Dificid?

    • @irascrohniediaries
      @irascrohniediaries  Před 8 měsíci +1

      Thanks for sharing, I hope your son begins to feel better. I was only on dificid for a short time I don’t remember exactly. But nothing compared to how long I took Vanco

    • @id6673
      @id6673 Před měsícem

      If one family member has it does that mean health family members living with them can also get it or do they have to be immuno compromised to get infected?

  • @BigDro1323
    @BigDro1323 Před 3 měsíci

    I was just diagnosed today after dealing with what seems to be mild symptoms since December. Bubble guts, the diarrhea 2 to 3 times a day. I’m actually going to pick up my prescription of vancomycin. Any advice? My diagnosis came after taking clindamycin or however ya spell it as well.

    • @tarieC7
      @tarieC7 Před 3 měsíci

      This is exactly what happened to me. I took clindamycin and now I have this just started vancomycin. How are you feeling now

    • @user-zx8zf7bn6x
      @user-zx8zf7bn6x Před 2 měsíci

      Same happened to me, how are you feeling now?

    • @user-zx8zf7bn6x
      @user-zx8zf7bn6x Před 2 měsíci

      ​@tarieC7 how are u feeling now?

    • @tarieC7
      @tarieC7 Před 2 měsíci

      @@user-zx8zf7bn6xI feel better now, I took vancomycin and florastor probiotic, drank kombucha and ate kimchi, just did all I could to get some bacteria in my gut. You will get through it

  • @kimthompson6029
    @kimthompson6029 Před měsícem

    My husband got c diff after his kidney transplant 😢 it was horrible!

  • @sheneathahollowell2750
    @sheneathahollowell2750 Před 7 měsíci

    Man it’s so rough .

  • @alanzapotocky4607
    @alanzapotocky4607 Před 2 měsíci

    Sorry about Ibd and cdiff diagnosis I’ve been in some boat since 2019 chrohns disease sucks, constant fatigue, diarrhea, fistula four of them, iron deficient and recently the current naturalopath im seeing determined that I have an infection raging in my intestines and butthole long sorry story short the herbal cocktail and charcoal protocol doesn’t seem too be working yet so in 2 months time it might be back too the drawing board.

  • @TheBiancalov
    @TheBiancalov Před rokem +4

    Currently on month two of dealing with c difficile. I have no idea how I caught this. I haven't taken any antibiotics in years..my 4 year old niece came home with a stomach flu.. diarrhea vomiting the whole family.. everyone recovered but me. Did you experience any pain under your ribs. What was your diet like. Could you eat cereal etc.. also do you recall the probiotics you used..I'm taking saccharomyces boulardi. And floraster

    • @irascrohniediaries
      @irascrohniediaries  Před rokem +3

      I was advised to take florastor also. I had no appetite for months, I was put on a soft diet and ate bland foods that were easy to digest like white rice, baked chicken. I could not tolerate cereal at the time. Keep me posted on how you are doing in the future. Hopefully you can get rid of this sooner than I did. ❤

    • @everichards8480
      @everichards8480 Před 10 měsíci +3

      So I currently am dealing With a recurrent C Diff, they have me on vancomycin again and like you said it’s strong! & I feel the side effects. I’m currently trying to find a probiotic to take to help or just some type of natural remedies if they exist…
      Crazy thing is I have no idea how I caught it either…I’m only 33 but I did recently have a baby and a c section but I caught The c diff months after pregnancy.
      I’m glad I found this video though because now I know I’m not the only “young” person who caught this. 😅

    • @TheBiancalov
      @TheBiancalov Před 10 měsíci +2

      @@everichards8480 🤗 I believe it is the food smh. I take saccharomyces boulardi or floraster.. dairy free yogurt. And manuka honey from the health food store. I sprinkle tumeric on everything I eat

    • @everichards8480
      @everichards8480 Před 10 měsíci +2

      @@TheBiancalovI definitely can believe that! So crazy…& I love turmeric I put it on everything as well hehe I haven’t tried the Manuka honey I’ll have to pick up some! Thank you for the response

    • @charlottehayward5943
      @charlottehayward5943 Před 8 měsíci

      It is highly contagious.

  • @lovelysosweet8386
    @lovelysosweet8386 Před 8 měsíci +1

    Omg i hope I don’t get it again!

  • @auntieanna
    @auntieanna Před 2 měsíci

    High dose Saccromyces Boulardi!!!

  • @unstarsam5163
    @unstarsam5163 Před 5 měsíci +1

    A lot of people get better with meat only diet

  • @westonhuffman7908
    @westonhuffman7908 Před 4 měsíci

    Well, I wanna get a fecal transplant.

  • @tommysherman7155
    @tommysherman7155 Před 2 měsíci +1

    You was losing weight looks like you could do with another bout of c.diff

    • @user-zx8zf7bn6x
      @user-zx8zf7bn6x Před 2 měsíci

      If u have nothing nice to say keep your horrible mouth shut

    • @Drobalar-Drsebi
      @Drobalar-Drsebi Před 2 měsíci

      My heart will remain grateful Dr OBALAR channel till forever, for the medical attention you showed me when I was battling with my HPV virus, you showed care in every way, and with the help of your herbal medication I was deeply shocked to see it work