This webinar, the second of a four-part series, follows the final stages of living with kidney failure, including treatments, symptoms and the physical experience.
Im 61 year old male with stage 5 kidney disease.. My GFR is slowly going down even on dialysis 3 X a week..My GP told me last week that my GFR is 3..I feel so drained after treatments even though Im at my dry weight.. Ive lost 85 lbs since starting dialysis 2 years ago. I have a VPN and when I log on I lay on the couch to watch TV..I drift off to sleep. A VPN keeps track of how long it has been on.. When I woke up and looked at the VPN, I had been asleep for 22 hrs 17 minutes. Im just sick and tired of being sick and tired and thinking about just ending it ... I could go out and have 10 or 20 beers and go that way..At least Id go with a smile on my face..Thanks for all that you do..
I hope you're still around. I'm sorry you're going through this. My grandfather is going through the same thing right now, and he's refusing to stop drinking despite the kidney failure. Please, please do not go out that way. There has to be another way, reach out more to other people. You're not alone in this, even an offhand CZcams comment like this is enough to have stuck with a random person you didn't intend - me.
This was very interesting. My son in end stage, stage 5 in his late 20’s. He is on hemodialysis 3x a week. He has been doing this dialysis for 1 year and 8 months. He has survived two broken hips. He is my titanium man. In addition he is underweight. The kidney affects so many other parts of the body. By the grace of God we do our best to live with him through all the complications.
I am stage 5 at age 35 with diabetes type 2 and high blood pressure. As I see it the day my kidneys failed is the day I died only thing is that the machine is keeping me alive, it's like looking at a bright star that is years away from earth. The star light in the night sky we see is a dead star that died eons ago we are looking at a star light from the past that still exists in the present. It's an unpleasant thought and feeling knowing this and the fact that I am a dead person walking who is still fighting to exist in the physical world.
@@Ayixlia You're not a dead person, there's a big difference between life and death. Any dead rich man right now would give you everything they had just to come back and live some more years even if it meant going 3x a week to connect to a machine. Life is the most precious thing a human has, be glad you're alive and breathing and seeing and hearing and experiencing things and nature and seeing family members, make the most out of your time and enjoy because death is a lack of all of those.
In my 30s I was posted to an isolated federal facility without the knowledge of its contamination and a remediation cleanup commencing immediately after my departure. In my 40s medical problems started showing up stomach ulcars, skin cancers, degenerative changes of chondromalacia, osteoarthritis, diabetes 2, kidney disorder stage 4 and prostate cancer. Now in my 70s have accept my future will include dialysis treatment I am glad for the extra few years allowed by this treatment. What I want now is to warn others not to completely trust others to stay honourable in situations that corruption can be both allowable and profitable.
This was so helpful. My husband has been on dialysis for over 5 years and it helped so much to hear that the anxiety we both feel about the future is normal and that there are resources for us in the medical community.
I am 69.5 years old, I have Heart Disease, (CABGx2) 6 years ago, Type II Diabetes, and clinical depression. My skin itches I scratch and I bleed. How long does anyone want to live like this? I live alone and I will not burden my family with this. Science is not always the best way to travel. I have chosen my path, and I will walk it with the Lord. Thanks for your Video.
Thank you so much for the discussion. I am 66 years of age with Stage 4 CKD. You talk about the alternatives to dialysis was very informative. My Nephrologist at the VA is pushing dialysis. I am liking the alternative comprehensive management. Thanks so much. God bless
There was a place where the video and sound froze for a couple of seconds and I really wanted to hear what the doctor had to say. It was about the stages and symptoms of a person dying of kidney failure. I really want to know what it is like, pain-wise, to die of kidney failure. Is there a lot of suffering? I really need to know.
This series is quite useful. But like the first session, this one was too general and elementary, covering material that one can easily access online from, e.g., Mayo, Cleveland Clinic. The session is called ‘Dying with Kidney Failure’. But much of the conversation does not cover that at all, but rather the medical treatment of chronic kidney disease. What does someone dying of kidney malfunction want to know? Essentially answers to 2 questions: What does the experience of dying this way involve - phenomenological, what is it like? And what can be done to ease the transition from dying to death? Very little in the session on these questions and virtually nothing until around minute 45. For future sessions, I suggest targeting what might be called the hard-core issues that are the real concern of people who are dying. I.e. adopt and speak from the perspective of the terminal patient instead of - as was the case here - the perspective of physicians. 58:53
I'm 58 and at stage 4. I progressed very fast from 2 so I probably don't have a lot of time. I would like this Active medical management care. I am certainly not getting that now. Where should I look? I'm in North East PA. Thank you.
Hi I have been on dialysis for 11 years I have had bad 2 years 3 hart attacks and 4 months a bypass op whitch was very hard on me but getting stronger day by day I still work but I work for myself so after dialysis I generally don't work on times I have to suck it up and do a job or 2 on my dialysis days however it is getting harder for me as lack of energy is a problem for me
😳? What about delaying dialysis? While at 5 CKD? A person in this condition suffers from anemia and has to undergo blood transfusions, is Epogen a good option to keep the blood count from dropping? Is Epogen a good treatment and is there any other options? There are many other medical issues when a person is at stage 5 CKD.
World Kindey Day Raising kidney disease awareness In the work place. When starting dialysis at Rotherham council they refused me days off for dialysis. I had to ask the dialysis team to change my dialysis days. Once the dialysis team rearranged my dialysis days my employer then threatened me with the sack if I didn't get my dialysis days changed. Then they threatened me with the sack if I didn't stop attending dialysis three days per week. They made working and dialysis an utter night mare with constant threats of sacking me. Constant questioning and demanding an exact date and time of a transplant and saying dialysis patients are liars and lazy. Daily threats of the sack if I didn't stop dialysis and work overtime as they had no staff just non crb checked agency staff most of the children's homes.
The Neuphrolismt spends at most 15 seconds per patient. Its really sad. For the techs sticking you, the have OJT, practice on us, take a test & their qualified. By the end of the week my fistula looks like it went through a meat grinder. Im 56 & was exposed to a chemical reaction. We’ve managed it until now. I feel like a money factory. I don’t have any family . The bad part about this is i had a surgery & they didnt read my notes & automatically started dialysis. Now i live a life of misery.
I really wish the facilitator would be quiet so the doctor could speak without the inappropriate noises. This isn’t a one-on-one conversation where the the listenneeds to indicate agreement or understanding. She was speaking to an audience.
Can’t listen to this with all the “mmmm hmmms” from the moderator. If she’d just listen instead of interjecting and interrupting, we’d all be able to benefit from this. Ugh.
Im 61 year old male with stage 5 kidney disease.. My GFR is slowly going down even on dialysis 3 X a week..My GP told me last week that my GFR is 3..I feel so drained after treatments even though Im at my dry weight.. Ive lost 85 lbs since starting dialysis 2 years ago. I have a VPN and when I log on I lay on the couch to watch TV..I drift off to sleep. A VPN keeps track of how long it has been on.. When I woke up and looked at the VPN, I had been asleep for 22 hrs 17 minutes. Im just sick and tired of being sick and tired and thinking about just ending it ... I could go out and have 10 or 20 beers and go that way..At least Id go with a smile on my face..Thanks for all that you do..
there is life with or without a body
Talk with your therapist! Prayers during this difficult time!
I hope you're still around. I'm sorry you're going through this. My grandfather is going through the same thing right now, and he's refusing to stop drinking despite the kidney failure.
Please, please do not go out that way. There has to be another way, reach out more to other people. You're not alone in this, even an offhand CZcams comment like this is enough to have stuck with a random person you didn't intend - me.
This was very interesting. My son in end stage, stage 5 in his late 20’s. He is on hemodialysis 3x a week. He has been doing this dialysis for 1 year and 8 months. He has survived two broken hips. He is my titanium man. In addition he is underweight. The kidney affects so many other parts of the body. By the grace of God we do our best to live with him through all the complications.
I am stage 5 at age 35 with diabetes type 2 and high blood pressure. As I see it the day my kidneys failed is the day I died only thing is that the machine is keeping me alive, it's like looking at a bright star that is years away from earth. The star light in the night sky we see is a dead star that died eons ago we are looking at a star light from the past that still exists in the present. It's an unpleasant thought and feeling knowing this and the fact that I am a dead person walking who is still fighting to exist in the physical world.
I hear what you are saying, well put.
I totally understand, same at age 51, plus I have calaphalaxis……🙏🏼❤️🙏🏼
@@Shannon71172 I hope you have support by loved ones around you.
@@Ayixlia You're not a dead person, there's a big difference between life and death. Any dead rich man right now would give you everything they had just to come back and live some more years even if it meant going 3x a week to connect to a machine. Life is the most precious thing a human has, be glad you're alive and breathing and seeing and hearing and experiencing things and nature and seeing family members, make the most out of your time and enjoy because death is a lack of all of those.
In my 30s I was posted to an isolated federal facility without the knowledge of its contamination and a remediation cleanup commencing immediately after my departure. In my 40s medical problems started showing up stomach ulcars, skin cancers, degenerative changes of chondromalacia, osteoarthritis, diabetes 2, kidney disorder stage 4 and prostate cancer. Now in my 70s have accept my future will include dialysis treatment I am glad for the extra few years allowed by this treatment. What I want now is to warn others not to completely trust others to stay honourable in situations that corruption can be both allowable and profitable.
I understand more about the 2 types of dialysis. Thank you. Continue your great work.
This answered many questions I had. Thanks for being honest about the different problems.
This was so helpful. My husband has been on dialysis for over 5 years and it helped so much to hear that the anxiety we both feel about the future is normal and that there are resources for us in the medical community.
Ur husbands age?
I am 69.5 years old, I have Heart Disease, (CABGx2) 6 years ago, Type II Diabetes, and clinical depression. My skin itches I scratch and I bleed. How long does anyone want to live like this? I live alone and I will not burden my family with this. Science is not always the best way to travel. I have chosen my path, and I will walk it with the Lord. Thanks for your Video.
GOD bless you my friend.
What a wonderful proram, thanks you all so much....and also thanks for bringing up chaplaincy. Best regards and blessings, Zeke
Thank you so much for the discussion. I am 66 years of age with Stage 4 CKD. You talk about the alternatives to dialysis was very informative. My Nephrologist at the VA is pushing dialysis. I am liking the alternative comprehensive management. Thanks so much. God bless
I have had a kidney transplant for 10 years. When my kidney fails I will no longer go on dialysis. I would rather die.
Accept islam before you die
@@HassanLoukili-ke1tq LOL, out of all the possible answers, this was the coldest one...
There was a place where the video and sound froze for a couple of seconds and I really wanted to hear what the doctor had to say. It was about the stages and symptoms of a person dying of kidney failure. I really want to know what it is like, pain-wise, to die of kidney failure. Is there a lot of suffering? I really need to know.
Thank you. Very informative!
This series is quite useful. But like the first session, this one was too general and elementary, covering material that one can easily access online from, e.g., Mayo, Cleveland Clinic. The session is called ‘Dying with Kidney Failure’. But much of the conversation does not cover that at all, but rather the medical treatment of chronic kidney disease. What does someone dying of kidney malfunction want to know? Essentially answers to 2 questions: What does the experience of dying this way involve - phenomenological, what is it like? And what can be done to ease the transition from dying to death? Very little in the session on these questions and virtually nothing until around minute 45. For future sessions, I suggest targeting what might be called the hard-core issues that are the real concern of people who are dying. I.e. adopt and speak from the perspective of the terminal patient instead of - as was the case here - the perspective of physicians. 58:53
I'm 58 and at stage 4. I progressed very fast from 2 so I probably don't have a lot of time. I would like this Active medical management care. I am certainly not getting that now. Where should I look? I'm in North East PA. Thank you.
Excellent video!
Hi I have been on dialysis for 11 years I have had bad 2 years 3 hart attacks and 4 months a bypass op whitch was very hard on me but getting stronger day by day I still work but I work for myself so after dialysis I generally don't work on times I have to suck it up and do a job or 2 on my dialysis days however it is getting harder for me as lack of energy is a problem for me
My has kidney disease but without a bad egfr? Why ?
😳? What about delaying dialysis?
While at 5 CKD?
A person in this condition suffers from anemia and has to undergo blood transfusions, is Epogen a good option to keep the blood count from dropping?
Is Epogen a good treatment and is there any other options?
There are many other medical issues when a person is at stage 5 CKD.
World Kindey Day
Raising kidney disease awareness In the work place.
When starting dialysis at Rotherham council they refused me days off for dialysis. I had to ask the dialysis team to change my dialysis days. Once the dialysis team rearranged my dialysis days my employer then threatened me with the sack if I didn't get my dialysis days changed. Then they threatened me with the sack if I didn't stop attending dialysis three days per week. They made working and dialysis an utter night mare with constant threats of sacking me. Constant questioning and demanding an exact date and time of a transplant and saying dialysis patients are liars and lazy. Daily threats of the sack
if I didn't stop dialysis and work overtime as they had no staff just non crb checked agency staff most of the children's homes.
The Neuphrolismt spends at most 15 seconds per patient. Its really sad. For the techs sticking you, the have OJT, practice on us, take a test & their qualified. By the end of the week my fistula looks like it went through a meat grinder. Im 56 & was exposed to a chemical reaction. We’ve managed it until now. I feel like a money factory. I don’t have any family . The bad part about this is i had a surgery & they didnt read my notes & automatically started dialysis. Now i live a life of misery.
I really wish the facilitator would be quiet so the doctor could speak without the inappropriate noises. This isn’t a one-on-one conversation where the the listenneeds to indicate agreement or understanding. She was speaking to an audience.
This was an interview! The doctor was speaking with her,not an audience. What they talked about was shared with the audience.
Luckily I rejected quite soon useless drugs from MDs. 🙂
I do not want dialysis. Would prefer a more conservative path, but no one listens.
Can’t listen to this with all the “mmmm hmmms” from the moderator. If she’d just listen instead of interjecting and interrupting, we’d all be able to benefit from this. Ugh.
Then don’t listen!
To bad she had to make it political.
If you can't get anything out of this because someone has different opinions than you, you're in a cult.