My Tony Update - Starting Cancer Treatment

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  • čas přidán 27. 05. 2024
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Komentáře • 324

  • @ChelseeSpalding
    @ChelseeSpalding Před 15 dny +6

    Words of encouragement.
    Hey, Tony.
    In 2014, I was diagnosed with Triple Negative Breast Cancer stage 3a. With at that time, I was given 20% chance to make it a year. But, God, had a different plan. I'm here 10 years later to tell you, that God is still in the miracle business. 🙏 ❤ My prayers are with you and Natalie and your family. Blessings, Chelsee.

  • @TedBouskill
    @TedBouskill Před 16 dny +58

    Remember Natalie. You must ask for and get as much help as you can. People will be amazing in a situation like this. It's most important to maximize your time and strength with Tony, not doing chores that others can do for you.

  • @nancymccartan1045
    @nancymccartan1045 Před 16 dny +23

    We got you boo! I wish I could afford a membership but even though I cannot, I am here quietly every day in love and support. You do what you have to do. When my daughter died, my community put me back together again. Love builds bridges and we love you and Tony to the moon and back. Biggest hugs to you and Tony....you are in my heart.❤

  • @Dannieannie7
    @Dannieannie7 Před 15 dny +10

    I am not one to comment much....but I want you to know that this woman you have never met, never spoken to, thinks about you and My Tony often. You two have touched so many souls and I hope that gives you some comfort.❤

  • @ShulaMG
    @ShulaMG Před 16 dny +13

    I am so impressed with Tony’s approach as well as yours. It is so very healthy. Sending hugs 💜💜💜 (I’m a former hospice nurse. If I can ever help, please let me know.)

  • @LindaScott3558
    @LindaScott3558 Před 15 dny +10

    When I couldn’t eat solid food for a while, my daughter began to pulverize whatever she was cooking for dinner with some broth. It had the consistency of baby food. After living on protein drinks, I thought it was the greatest gift she could ever give me.

  • @robindickman4419
    @robindickman4419 Před 16 dny +17

    I have been married 40 years and my husband has lung cancer that has now spread and congestive heart failure . He has on going chemo / inmunal therapy. He's already had chemo and radiation even with all that his cancer spread. It's so hard it's terrible. I'm so sorry. All you can do is love him . I know you do❤

    • @patrishawhitenburg7841
      @patrishawhitenburg7841 Před 15 dny +4

      Sending you and your husband strength and love. I'm sorry you're both going thru this as well. Eff cancer.

  • @karenw1706
    @karenw1706 Před 16 dny +16

    I took care of my mom in home hospice for 22 months. Hardest but most fulfilling thing I have ever done. Hospice came in and a nurse sat with my mom and I and took notes and wrote her life story for all of us. Things I never knew about we learned and she loved reminiscing. I have so many things I can or could tell you about this process. I am a never-in and love listening to you. thinking of you

    • @TracyfromtheBurgh
      @TracyfromtheBurgh Před 15 dny +2

      This is so heartwarming that you remember this about the hospice nurse. It was a memory of a hospice nurse assigned to my Gram, that directed me to become one when I went back to school for nursing. I feel so honored when families trust me to take care of their loved one in this most difficult time.

  • @user-so8jk9lp7g
    @user-so8jk9lp7g Před 16 dny +10

    Natalie my dad passed from cancer and as bad as it was to see him suffer, I was so very grateful for the wonderful talks we had that would never have happened if he died suddenly! My heart goes out to both of you😰

    • @Redhead155
      @Redhead155 Před 16 dny +2

      @user my dad was diagnosed and we were told about 6 months. He passed about 6 eeeks later. A friends dad was also diagnosed about the same time and they were told 6months also and they had him for 18months. Wish we had had my dad for 18 mos

  • @lilycastle9926
    @lilycastle9926 Před 15 dny +4

    Hey Natalie, 25-year bone marrow transplant survivor here. Some of the things that got me through the medical isolation were: puzzles, mahjong, sudoku, and funny movies. Physical letters were extremely important to me, as well as anything that promoted human connection. They have really great dictation software now, so if he wanted to write a letter (for instance to his boys) but didn’t have the energy, this might be something to look into. If he has any inclination towards doing some scrapbooks, where he journals about a photo, that can be a great way to pass the time. Anything at all that makes you feel like you are being productive is amazing. Maybe he could voice dictate letters to congressmen and women about Scientology. Sending you prayers. Please take care of yourself as well, Natalie.

  • @JerseyJan527
    @JerseyJan527 Před 16 dny +17

    Caught 1/2 live and 1/2 in replay. Tony your sons are very handsome. You have a great family in every way. 😊

  • @OnTheHappyHealingTrain
    @OnTheHappyHealingTrain Před 16 dny +9

    My tears are falling, this is so honest, raw and beautiful. Thank you Natalie and Tony for sharing, I pray for you both and ask for miracles to shower you!❤‍🩹💔❤🙏

  • @jesusisGod1434
    @jesusisGod1434 Před 16 dny +8

    I’m praying for your man Tony, iam praying for a miracle and for comfort and rest. In Jesus name. Amen. ✝️❤️

  • @kellyh3356
    @kellyh3356 Před 16 dny +10

    Get that palliative care team working on the CPAP red tape. Also, talk about lymphatic massage and acupuncture possibilities. My cancer center offers those services for free. Take one thing/day at a time. ❤

  • @debraaschenbrenner271
    @debraaschenbrenner271 Před 15 dny +15

    IMPORTANT: I am an RN for 40 years, as well as use CPAP myself. Suggestion from this Care Manager: a mailed sleep study may not be what is needed for Tony. A sleep study will be needed and can adapt to him sleeping in a recliner. He may also need oxygen with the CPAP. Take the CPAP you have to the appointment. Ask to have approval for study with insurance as STAT. Hope this helps.

  • @PawsForAndrea
    @PawsForAndrea Před 16 dny +11

    💚🌺💚 Loved it when your special guest popped in. Natalie & Tony, please know that you are completely surrounded by love, along with wishes for strength, healing & peace in these terribly challenging times. You are not alone. We are here for you & your entire (extended) family. You are such an important part of this community ~ always & forever! 💚🌺💚 #MyTonyStrong

  • @Kangamoos
    @Kangamoos Před 16 dny +7

    I feel for you, as my Cheeky and I have been going through a much less traumatic but strangely similar situation. First it was prostate cancer, but it responded well to (HDR) brachytherapy, then it was the kidneys. Cheeky had one removed (it was stage 3), and then we did a year of immunotherapy (Keytruda). So far all scans are coming back clear since he finished that. Keytruda did permanent damage to his lungs as a result, but we'll take the asthma and Cheeky being currently cancer free! Cheeky gets scans every 3 months, and so far so good. I am hoping Immunotherapy is able to help give Tony longer too

  • @originalann
    @originalann Před 16 dny +6

    I’m, turbo-praying for MyTony and family. You both bring us so much joy, Natalie and MyTony, that it makes not being able to fix things for the both of you so upsetting. But we all come with a variety of gifts, abilities and strengths. We as a community will do what we can to lift you both.

  • @pault54
    @pault54 Před 16 dny +6

    my mother had cancer, surgery, radiotherapy the works she was cured ,lived to 90 , good luck tony the technology is amazing

    • @Redhead155
      @Redhead155 Před 16 dny +1

      My cousin too. They were told stage 4 colon. She did an experimental drug therapy and she has been clear for over 10 yrs

  • @fionastube2011
    @fionastube2011 Před 14 dny +1

    So sorry to learn about your dad and your Tony. Wow. Cancer has touched my family too. My daughter had 2 bouts of melanoma; my husband is 10 years out of throat cancer; my m-i-l had cancer… it’s beyond rough. And you cry, sweet lady, cry when you need to. 😢❤ Just want to give you hugs. CANCER SUCKS. It just does.

  • @user-zq6le3zs7x
    @user-zq6le3zs7x Před 16 dny +9

    Natalie, maybe have Tony do some videos of things for his kids and you. Also so self care try Musi c it lifts the spirit and changes the brain. Maybe music and sunsets can be something you two do... Prayers said and will continue! Such a treat to have Tony pop in!

  • @lindamessmer4257
    @lindamessmer4257 Před 16 dny +5

    Natalie I usually just lurk but on the 19th of May my best friend who was my mom passed away from cancer 10 years ago. She passed approx 6 months after she was diagnosed (she was at stage 4). The point of this is allow yourself to grieve because your whole world has been turned upside down and you are going through the stages of grief which can be difficult. My thoughts and prayers are for you and Tony❤

  • @SusanF1fan
    @SusanF1fan Před 16 dny +10

    The way that I’ve learnt to accept help is to remember that I’m always the first person to help friends and family whenever they need it and knowing how it makes me feel to helpful. Remember that is the motivation for those around you offering help.

  • @cynthiajagneaux3949
    @cynthiajagneaux3949 Před 15 dny +1

    The feeling we want you & Tony to have is peace, love, & comfort. My brother died 2 years ago. He had kidney cancer after surviving prostate cancer. He did immunotherapy until it no longer worked. We loved, laughed, & told stories with family & friends around him any time he felt up to it for 2 years until the week before he stepped into Heaven. The time my other brother & I had weekly with him will be cherished forever & the memories are so sweet.

  • @HillCountryBluebonnet88
    @HillCountryBluebonnet88 Před 16 dny +7

    🙏 Prayers for Your Tony 🙏 For strength, health, healing and recovery.
    Preventative screenings for early detection is key.
    🙏Prayers for you as well Natalie 🙏
    You have a wonderful family support system. Don’t be afraid to ask for help.
    You need to allow yourself to take small breaks from being a caregiver.
    You need to think of it like the emergency oxygen masks on planes.
    You have to put the mask on yourself first so you are able to help him.
    You can’t let yourself get completely overwhelmed before you ask for help.
    You are going to have to completely let go of that bullshit Scientology conditioning that is still hiding in your head.
    That lie that says to hold everything inside, to not show your emotions.
    It is okay to not be okay sometimes.
    It is okay to be scared.
    It is okay to not always feel positive.
    It is okay to get angry.
    It is okay to get frustrated.
    It is okay for you and your Tony to talk to each other about your hopes and fears.
    You also have a large SPTV support system that is always willing to listen, to cry with, to let you know that we are here for both of you.
    I think it was very important that you went home, that you took that time with family.
    I just want to give you a hug and tell you that you are not alone.

  • @jonnytexans8661
    @jonnytexans8661 Před 16 dny +6

    My Tony keep fighting brother! The 20th I got prostate surgery too …. My first scope I looked at the table asked if those things were for me to rest my arms…the nurse said nope..welcome to our world…. Keep fighting …nat has my email in the millions she gets if you need to talk…praying for you my tony

  • @lavenderbridges
    @lavenderbridges Před 15 dny +1

    6:50 I can imagine and I can empathize. Being “choked “is actually how they found my thyroid cancer. Subsequently while treating that thyroid cancer, they found my second primary cancer, which was renal like Tony. I am sending you both and all your family, the most love and Aloha that I can possibly muster up from Maine.

  • @kellywalker1120
    @kellywalker1120 Před 13 dny +1

    Oh Natalie !! Listening to this just breaks my heart !! I’ve lost my brother (pancreatic cancer) and my sister to glioblastoma. Both were very aggressive… my brother was 3 weeks from diagnosis to death…. He has been given time to fight this …. Enjoy and be thankful for everyday you are together … love you both !!! Prayers 🙏🏼

  • @Cali_Gali
    @Cali_Gali Před 14 dny +1

    I’m an every day lurker that loves to start my day with your updates. Sending you and Tony tons of love and light. We got you!! ❤❤❤❤

  • @TrishafromMN
    @TrishafromMN Před 14 dny +1

    Natalie and Tony,
    I don’t normally comment. I want you to know that I am praying for you daily and multiple times per day. Praying for strength and peace. Natalie, please, please take care of yourself. Being a caregiver is the hardest job. Make sure you take time for yourself. Deep breathe…drink lots of water, rest. My heart breaks for you. 😢

  • @Ms.Withholdy
    @Ms.Withholdy Před 16 dny +5

    Sweet Natalie and sweet My Tony, I’m so sorry you’re going through this difficult time. My heart goes out to you both. ❤😢❤

  • @HiMyNameIsSonia
    @HiMyNameIsSonia Před 16 dny +6

    My Tony and Natalie…you got this!!! One day at a time. Sending love and prayers for healing ❤🫂

  • @Kati-did
    @Kati-did Před 16 dny +6

    Cold is for inflammation and warm helps relax muscles. I had thyroid cancer and got better sleep in a recliner as well. Maybe get him a neck pillow to help keep his head back. I use a memory foam one, found it better than ones with beans. The weight on the front of your throat makes you feel like you are being choked. It is so hard to reach out to people that offer. Making a list is a great idea. All my love and prayers for help and guidance in the journey.

  • @nitasnook519
    @nitasnook519 Před 16 dny +4

    On an excel spreadsheet for each day, on each column, put a small picture of each medication, name of medication, time to take meds. Maybe check column when medication given.

  • @bsincinerator
    @bsincinerator Před 16 dny +5

    I have learned that saying things out loud is MUCH harder than thinking them. ❤

  • @jennifereber4391
    @jennifereber4391 Před 8 dny

    My daughter's dad had a severe stroke almost a year ago..she's only 19..she can relate to how everything has changed for thier relationship so much.He may never leave a nursing home..he can't walk or talk alot..seeing what you're going through just mourning the little everyday life things reminds me of what she's dealing with and as her mom it's so painful to see your child go through something that you can't do anything about.i told her about your story and she definitely relates..praying for peace and strength fot you and my Tony...he's all our Tony now!

  • @fannymarie
    @fannymarie Před 15 dny +1

    Crying like a baby over here in Sweden.. love u both. Loosing my mother to dementia right now. Its hard to see someone get sick. ❤❤❤

  • @nancystittgen
    @nancystittgen Před 14 dny

    Natalie, when my first husband was ill, I often thought I would be able to communicate without breaking down. I found that it was hearing myself speak that triggered the tears. Love to you and your Tony. May you both feel the love the support of everyone around you.

  • @SandyYurkinsPowers
    @SandyYurkinsPowers Před 15 dny +1

    yes we will be here to embrace you. my brother just lost his wife a few weeks ago and he is feeling very lonely. Not many of us are brave enough to have over 18,000 friends. LOL love you both. thoughts

  • @Mrs.Ivy_
    @Mrs.Ivy_ Před 16 dny +5

    Natalie I don’t how you do it. My heart aches for you. You are such an inspiration. Sending you ❤ and prayers and strength and serenity ❤

  • @carriehindman478
    @carriehindman478 Před 16 dny +4

    Love to you both! Every situation is different, but when my mother was going through cancer, she had a lot of panic when she couldn't breathe. The oncologist prescribed ativan....she called it her "breathing medicine" because it stopped the panic and allowed her to intake more oxygen.

  • @judyyougotthis
    @judyyougotthis Před 12 dny

    We got you. We got you, we got Tony, we got your sons. We got you.

  • @bsfagan13
    @bsfagan13 Před 14 dny

    I love you so much, Natalie, and My Tony. I'm in the progress in the last 2 weeks of being there for my 91 year old mom after a large stroke. I feel you. And my daughter's fiancé (50) has stage 4 lung cancer. He has maybe 6 mos, 12 mos with a special chemo concoction left. Very sad.

  • @Tbrown3125
    @Tbrown3125 Před 15 dny +2

    Tony’s treatment sounds really similar to my MIL- stage 4 lung. This time last yr we didn’t think she’d make it to Xmas. She’s still alive today. If nothing else, it gave her more time. Best of luck to you. #mytonytough

    • @Tbrown3125
      @Tbrown3125 Před 15 dny

      She had an 11cm tumor, among others in her body. After the first month, that tumor was reduced to 2cm. Miracles can happen

  • @maytheforcebewithyou4313
    @maytheforcebewithyou4313 Před 15 dny +2

    Have someone close to you, go over your friend list, and have them call alone, so they know, and can spiritually support you. They will feel so blessed to be part of uour lives through knowing, even if you can't call them yourself because its too exhausting at this time, when you need to spend energy intentionally. I hope that helps, there are great spirits all around you, surrounding you. Maybe a HA ceremony over zoom witth Hawaiian Atolia on Maui. My cousin has participated in the tea ceremonys at her house, and its healing, and lifts and connects you to the ancient eternal spirits of your birthland. Aloha🌺🌺🌺🌺🌺🌺🌺🌴🌴🌴🌴🌴🌴🌊🌈

  • @dorifrance4937
    @dorifrance4937 Před 15 dny +2

    Natalie,thoughts and prayers to you and Tony. Ask the pulmonologist if Tony can do a home sleep test. I was able to do one when I needed a cpap. For self care, if you have family and friends who are willing to come and be with Tony, take them up on it to take some time for yourself. Caregiver strain is very common.

  • @teapotts8407
    @teapotts8407 Před 12 dny

    Another nurse here. Speak to the palliative nurse and social worker. They can help greatly in getting equipment you need. Walker and wheelchair. He’ll might fight you a bit on those ; you will be persuasive as possible. Ask him to tell you, and you do it. That way he still feels worthy and useful. Talk with the social worker or patient management about getting reimbursed for caring for him at home.

  • @FeralCherylontheloose
    @FeralCherylontheloose Před 15 dny

    Sending you both so many gentle hugs, Natalie. I couldn't kiss my mum before she passed because of the meds she was taking. I totally understand. We got you. We're here when you need us, Natalie!!! 💜

  • @CR-qt4ff
    @CR-qt4ff Před 15 dny +1

    Caregiving is hard..plain and simple. Let your friends cook for you. hire neighbor hood kid to cut the lawn. If Hospice is available, they are AMAZING!
    Please take care of yourself LET PEOPLE LOVE AND CARE FOR YOU BOTH!!🙏

  • @dem9259
    @dem9259 Před 15 dny

    Wow, does Tony have a winning smile, or what?!?! Amazing!!
    Your story is similar to my own when my mom had Cancer. She was my very best friend in the world. It was a great blessing that we were together through it all.
    Nataie, it sounds like you are doing everything right Seeetheart.
    Tony, that smile- it melted me through the TV-!!!

  • @kristinadjurfors8280
    @kristinadjurfors8280 Před 16 dny +4

    You ned too ask for help, because you’re friends they want to help. Because I been where you are and I have been that friend, as a friend you are just happy to help because otherwise you don’t know what to do. Don’t forget that❤️So give them the list, and please talk with the doctor or cancer society because they should help. Because Tony needs his beauty sleep🥰. Thank for sharing with us, it helps us to a lot. And the laundry 🤔 it doesn’t matter if some clothes changes color.😆it isn’t important. When I was sick my husband made it for 3 years and nothing hade the original color, but I didn’t care😉🥰. You got this Natalie, the community got you both❤. Tony you looked as handsome as always, checking in un us❤loved that you did that. Thank you again both of you for letting us share this with you🙏🥰❤️

  • @AK-Beach
    @AK-Beach Před 15 dny +1

    Both of you are in my daily prayers. Sending love from Pensacola Florida. We have never met but I feel like I know you.

  • @Christen_w_a_C
    @Christen_w_a_C Před 13 dny

    If it helps, when you allow people to help you and My Tony you are giving them by a gift too by allowing them to express their love. ❤️❤️

  • @AuntieM728
    @AuntieM728 Před 13 dny

    I'm so sorry! We love u and your Tony!
    I am on a similar journey with my sister now. Get help with EVERYTHING, mowing the lawn, cooking, cleaning, laundry. Goal: don't lift a finger except 1. self care and 2. Tony care and lovin on your man! Peryud!

  • @patoz572
    @patoz572 Před 14 dny

    You can now do a sleep study in your own home.
    Also remember to shut the lid on the toilet when flushing, this I learned last year during my own cancer battle.
    Your palliative team will be able to help with many things, use them as much as you can. Lastly, accept any and all offered help needed, someone to sit with Tony while you shower, cook meals for you and other family members who are there helping, folding a load of laundry, etc so you can spend all your time with Your Tony ❤ Get a dining chair with arm rests.
    Praying for peace & comfort for both of you & your families.

  • @Sparklemesilly1
    @Sparklemesilly1 Před 16 dny +5

    Replay: Could you go for walks using a wheelchair and cool umbrella ☔ ☔ for a cover, fresh air and a change of scenery good be good for you both. Hospice will help by providing wheelchair & bed use a gait belt always for safety. Our hearts are with you always💗💗

  • @inesdecastro2522
    @inesdecastro2522 Před 14 dny +1

    I am so sorry you and Tony are undergoing such a strenuous time. You and him will find your way through this. You are so strong Nathalie, you are a force of nature with a huge heart. Be open to little miracles taking place everyday. You too need to breath gently and take care of yourself. Make the most of every moment. Quality air like a ionizer in the room may be great and some essential oils .
    Don’t let fear or anxiety creep in. Stay calm , sit with him and let the love soothe you both .Little things can go a long way 🙏🧡

  • @nancymckinney1006
    @nancymckinney1006 Před 15 dny +1

    As children bring their broken toys with tears for us to mend,
    I brought my broken dreams to God because He was my friend.
    But then instead of leaving Him in peace to work alone,
    I hung around and tried to help with ways that were my own
    At last, I snatched them back and cried, “How could you be so slow?”
    “My child,” He said, “What could I do? You never did let go.”
    Essentially, the poem is talking about allowing yourself to trust others by letting go. That is the key to being able to overcome times of turmoil. During hard times it is important to remember you are not alone. All around you there are people who love and support you. It’s important to remember that while it can seem noble to face your issues on your own, you don’t have to. It takes great strength and courage to ask others for help, and it takes even more courage to be able to give them your problem and have them fix it.

  • @ccg5137
    @ccg5137 Před 13 dny

    Natalie, I did an AT HOME SLEEP STUDY last year. They send you home with a small machine that you sleep with for the night then you drop it off the next day to get the results analyzed. They aren’t always as reliable due to user error but my results were conclusive. The clinic I went to did a good job of walking me through it.

  • @barbtries
    @barbtries Před 14 dny

    when my mother had a stroke and then cancer, one of the most important things I did was write down all my questions for the doctor. he could be hard to get in touch with and I just didn't let him off the phone until all of my questions were answered. I'm so sorry that your Tony is sick. fuck cancer, hugs.

  • @iamgabriel5823
    @iamgabriel5823 Před 15 dny

    Natalie -- I am so impressed with how strong you are. Cancer doesn't just happen the patient it happens to the whole family. Re the c-pap machine -- surely there are social workers and case managers on Tony's treatment team that can help you navigate thru all your needs. A hospital bed could be very helpful with Tony being able to sleep. If the time comes, please allow Hospice to help you. The Hospice team are the comfort control experts. They are better at comfort control than the doctors are. When I worked for Hospice so many family members said, "I wish we had called you in sooner." Cancer seems to be such an inhuman and undignified process. When I worked for Hospice, I really struggled with making spiritual sense out of watching patients go thru the challenging cancer process. What helped me deal with that was something that was said to me when I had a near death experience. What I was told was that "everything is in Divine right order". Over time I have come to know that was true. One of the most important things that people need to do when facing your situation is making sure your finances are in order, especially if Tony paid the bills and did all the financial dealings. Natalie -- I'll bet you have always been the first one in line to help others -- IT'S YOUR TURN NOW! Many blessings and prayers to you.

  • @TeriBeri215
    @TeriBeri215 Před 16 dny +4

    Sending you and Tony the biggest hugs, lots of love, and my prayers.

  • @Graciegtx
    @Graciegtx Před 16 dny +2

    My prayers for you and MyTony are part of my nightly ritual. Listen to Dan Vasc, Amazing Grace. You will experience the most uplifting joy in the moment. Love you both!

  • @lilycastle9926
    @lilycastle9926 Před 15 dny

    When my Mom was dying, she was in denial that she was going through that process, but I got her to write me a letter for the day that I would eventually have children in the future. I cherish that letter so much-I have it framed. Is there anything Tony would like to have written down?

  • @yrb9128
    @yrb9128 Před 16 dny +2

    A potty chair before he needs it should be handy. They can be adjusted to be taller than a regular standard toilet and this feature is helpful. When not in use covering it with a thick puffy blanket or quilt will disguise it and allow it to have a function as a dressing chair.

  • @Redhead155
    @Redhead155 Před 15 dny

    Natalie I think you were looking for after OurTony left is energized. The feelings you get from your family, friends and the YT community is energizing.

  • @originalann
    @originalann Před 16 dny +2

    59:23 Joking allows us to not skirt these hard issues and not always be grim. My late bff’s kids used to joke about ‘there goes mom playing the cancer card’ anytime they had to give in to her, like letting her have the last piece of pizza. They would always have a lot of laughter over it.

  • @be.kind.to.animals
    @be.kind.to.animals Před 16 dny +2

    ❤ love the thumb nail. This is so hard on both of you. As someone who was a caregiver I know how stressful it is. You are giving such a gift to Tony to be there for him.

  • @ratherbeinmaui9689
    @ratherbeinmaui9689 Před 15 dny

    On the replay. My heartfelt prayers and love are sent to Tony and you Natalie. A special love comes once in a lifetime. You and Tony have plenty left to share and live. May you be blessed with many, many years ahead. I am keeping you in my thoughts and prayers. 🫶🤙🏼

  • @fredherzberger4677
    @fredherzberger4677 Před 16 dny +3

    I have been where you are now. Don't doubt yourself. You are coping well. ❤

  • @Donna_9917
    @Donna_9917 Před 15 dny

    We love you Natalie & MyTony. I like many others think of you often. We’re all hopeful for the best treatment and holding space as you navigate through these difficult times. Lean into the support. ❤

  • @chrissyakers
    @chrissyakers Před 15 dny

    You’re going through so much with Tony, since returning from HI. Lots to learn & process. We are indeed here for you.
    Your tears were shared by me. Opening up the hurt & releasing it this way is so healthy!
    Wishing you both love & health, as you navigate this newest path.💖💖💖

  • @yrb9128
    @yrb9128 Před 16 dny +2

    You can do a series of static recordings with Tony recalling precious times family memories and stories you want you are great great great great great great great great great grandkids to know.

    • @jesusisGod1434
      @jesusisGod1434 Před 16 dny

      If he is awake, maybe give him a set up to record stories for his sons and Natalie.

  • @TaMi_SD
    @TaMi_SD Před 15 dny

    I just want to hug you both. It’s the most challenging part of life, and I admire your strength and tenacity. He’s lucky to have your love. You’re lucky to have his love. Holding space for everyone on a journey like this. Y’all are warriors.

  • @ruthannmckalip2654
    @ruthannmckalip2654 Před 15 dny

    I lost my husband of 18 years but was extremely grateful for the 9 months we had from diagnosis to his passing. I pray you and Tony have many, many good times together as long as he can. This time is precious!

  • @lavenderbridges
    @lavenderbridges Před 15 dny

    Well hello, @My Tony!! ❤️❤️❤️ so great to see you! Much love to you.

  • @teapotts8407
    @teapotts8407 Před 12 dny

    Natalie this is going to be one of the hardest things you are going through. This is your support group. You have questions just as online. Take care of yourself too. Don’t worry about the house. Being with Tony and care for him and yourself, those are the important things. Ask family to help clean.

  • @WindyCityThetanWatch
    @WindyCityThetanWatch Před 16 dny +3

    I’m on Team Tony. Stay strong; give em heck!

  • @KathySantoni
    @KathySantoni Před 16 dny +3

    Prayers for Complete Healing for your Tony and prayers for you and his Loving support Team.💚🙏💙 Inspiring steps in your self care💐🦋keep it up, dearie 🌺...so valuable to give so generously in caring for a Beloved...💚highly recommend Clint Ober's Earthing documentary ...as one of the myriad ways Nature is so lifegiving & healing. Much Love.💝

  • @tracyshriver8197
    @tracyshriver8197 Před 16 dny +3

    Here’s a few things. MD Anderson and Houston are number one in cancer treatment. It’s always worth checking out. And I can explain more later, but not every place has the same care. Your insurance may have a care advocate because they are a huge help. Straight oxygen might be an option other than a CPAP. during Covid, my mom had lung cancer we bought hazmat suits, which were just white jumpsuits and wore them so we could do hugs. That might be an option to get that touching. I’m so sorry you’re going through this. I’ve actually been through this kind of thing with lots of people, unfortunately. You can do that. You got this! pray for complete healing. We will keep you in our prayers.

  • @SusanB.-MayPeacePrevail
    @SusanB.-MayPeacePrevail Před 16 dny +4

    A lot of suggestions to sign in to hospice, but while on the journey with my hubs, I learned that palliative care was best until there is no desire for life saving measures like immunotherapy- they won’t give treatments like immunotherapy, if on hospice which is for end of life comfort only. Sending love, care and prayers for you both as you navigate this journey!🙏🤍

  • @Gloria0217
    @Gloria0217 Před 16 dny +1

    Nothing is impossible for God. Keep the faith, God is still in control. Praying 🙏 for Tony.

  • @Tracylyn42
    @Tracylyn42 Před 16 dny +2

    I feel like Tony’s treatments will be some kind of a break through discovery helping thousands of people. I don’t think I worded that right but like op said Universe has a plan

  • @Beth-ie
    @Beth-ie Před 15 dny +1

    Prostate cancer is INSANELY genetic in my family! Every single male who lived over the age of 60 got it - except my one and only brother, who is in his 60's. It's like a dreaded test you know someday you're destined to fail - and he has two grown SONS! My Dad's was big, but didn't spread. Poor guy had to deal with a lot of side effects from surgery over 25 years ago (he has since passed - but not from any cancer.)
    LESSON: Get your PSA checked annually starting at 40 if it's in your family, or 50 if not! WE LOVE OUR MEN!!!! #FCANCER!

  • @qienna6677
    @qienna6677 Před 15 dny

    Man...sometimes I have to groan at how boring and adulty I've become. Listening to you talk about keeping track of his meds has me thinking "I could sort that with a colour-coded spreadsheet..." I'm so boring that spreadsheets get me excited!

  • @DazedNana5280
    @DazedNana5280 Před 15 dny +1

    You are so freaking strong in the face of unbelievable heartache. So many prayers and love and mad respect for your grace in the midst of the storm. ❤❤

  • @cindyswitzer1957
    @cindyswitzer1957 Před 15 dny

    You and Your Tony (also our Tony ❤️) has so much love and so many prayers continuing ❤️

  • @joward481
    @joward481 Před 16 dny +3

    Sending love & hugs to you both. I hope you can feel the support from your friends here in 🇬🇧 ❤.

  • @TracyfromtheBurgh
    @TracyfromtheBurgh Před 15 dny

    I am so happy to hear that you have a palliative team involved. They are tremendous for the goals you both have.

  • @jennifermariejoyce
    @jennifermariejoyce Před 14 dny

    Natalie~ You are a beautiful soul. Thank you for being vulnerable with us. Sending you lots of love and a great big hug 🩵

  • @Nope_tythough
    @Nope_tythough Před 15 dny

    When I was going through treatments, I wasn't sure what to say when people asked how to help.. my suggestions were to educate themselves about the cancer to better understand. Much love to you both... You're a strong woman, and grief happens when we are walking into a "new normal".. be gentle with yourself

  • @janeS9773
    @janeS9773 Před 16 dny +2

    What beautiful boys Tony has! My heart, though defective, lol is with you always!! xo

  • @SReneeL77
    @SReneeL77 Před 15 dny

    4:30 I'm so glad you listened to Tony and everyone else and that you went. You would have always regretted not going. Being there was important.
    💙🕯️🌊

  • @pix6136
    @pix6136 Před 16 dny +2

    It gets me mad that after all these years if "cancer research" these hospitals snd Doctors haven't got tgeur acts together to gave the support and equipment in place for families who have to navigate these things. You would think diets, alternative tgerapies, sleep and health aids would be high on the list for almost every family

  • @user-sd7uh4rk7u
    @user-sd7uh4rk7u Před 15 dny

    Susan from Australia , Tony and Natalie I so feel for you both . Tony is such a beautiful person . I wish the best for both and hopefully the medical team works miracles❤

  • @Neuropsych93
    @Neuropsych93 Před 15 dny

    Remember, try not to get lost in the difficulties of caregiving. Latch on and create memories and love within it ❤ Lean in and on others. Your family is in our hearts and prayers.

  • @dazedbydogs
    @dazedbydogs Před 15 dny

    Consider therapy. One of the things that happened after my mom died was my stress and exhaustion hurt me bad. Mentally and physically. I wish I had done therapy while mom was getting treatment.

  • @lizzynottle6590
    @lizzynottle6590 Před 15 dny

    Sending you and Tony love and I'm praying for a miracle for him to be healed. My heart goes out to the both of you. ❤

  • @susancook6115
    @susancook6115 Před 15 dny

    I just now catching this and I just have no words. I don’t know if you mind or not I’ll be praying for my Tony and you and the family. This is heartbreaking

  • @tara6777
    @tara6777 Před 14 dny

    I have never needed this many tissues, watching a live. I totally understand, finding a true love.❤
    Sending you both strength and love.
    *you keep smiling and doing the shimmy for him!