Standing with leg braces - It's nice to get out of the wheelchair
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- čas přidán 13. 01. 2020
- Leg braces allow me to get out of my wheelchair and stand for short periods of time. It helps with bone density and circulation. It's also nice to be able to stand up and look someone in the face.
Thank you Erik Kondo, if it wasn't for you I wouldn't have any leg braces, such an incredible gift! Thank you for sending me your used pair and saving me thousands of dollars. Here in Canada a pair of leg braces can cost upwards of $6000.
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Got to love this kid, she's so feisty and has such beautiful eyes! 😇God bless her sweet girl!
SUCH COURAGE SUCH BRAVERY SUCH A COMMITMENT TO LIFE MAY YOU ALWAYS BE HAPPY
You have such a great attitude and your an inspiration to all.
Thanks for sharing, putting in the hard work in will pay off, inspirational
My husband is an aerospace engineer, and I bet I could get him interested in designing something like these. He just retired, our garage has become an engineering design lab. I'm a retired nurse, I bet we could research. The problem, I imagine, would be the regulatory demands more than design though. The price of those braces just seems outrageous!
Nancy! You and your husband sound like a god-sent pair that has the potential to make a huge impact on the disability world ;) If this is something that interests you I would be blessed to get on a call with you to talk about it. Feel free to email the contact in the description.... I am bursting with ideas that are looking for able hands to execute!
Mrs Nancy I'll be your geni pig if ya need aomeone
@@ProTipsForParas yes, I just spoke with my husband, sorry for the delay. My husband just said he will be happy to examine the electrical parts of a system of engineering of structural engineering and design for para systems. We know both electrical engineers and mechanical engineers. My oldest brother is also an engineer. I will keep the outreach. This is something I have been very sincerely aware of since my retirement.
@@twizteddreamz4095 please keep in contact, I am talking to my electrical engineer husband about the complexity of both mechanical engineering and electrical engineering components as well as both physical therapies to create a new way to improve health to para patients!
people who have the computer skills are creating braces and prosthetics that can be printed. I doubt there is much in terms of regulatory issues as long as insurance is not expected to cover the cost. I know a that ambitious college tech studentd have created some nice prosthetics for kids that need frequent changes to keep up with growth spurts.
I think I'm going to cry the day i can walk...hopefully very soon.
good luck it takes a lot of work but you can [i still fall from time to time but i swear and get up] in my prayers
Maybe, but probably not. I had my leg amputated and took me 3 months to get my prosthesis. I thought it’d be emotional... it was more of trial and error than anything else. Before I could start standing, my prosthetist basically was all up in my butt 😂. I guess depending on what you have to, you’ll more likely to not want to walk... I just remember how uncomfortable it was for me to start walking at 1st. Anywell, hope you do start walking soon and good luck 👍👍👍
You can do it! Had my leg for 53 year almost to the day. I can learn it, you can too! Prayers and thoughts of good hope and luck. Don’t let falling keep you down. It happens, just use your skills that you learned in PT and get up and carry on!!!
Sending prayers! And hugs!
Hope youre doing well!
Inspirational videos. Keep working. You are strong and tough.
I so admire this woman, thank you!
Great job on the videos! AK single leg. Ran across you vids looking for single AK help vids. Yours are down to earth and the way you adapt is inspiring big time. Pls keep them coming, great work!!
Started following your journey this week and I wanted to share how informative and helpful your videos are to me. Also, I always love all the houseplants in your videos!
Awe! Thank you for taking the time and paying attention :)
Go for it girl ! I am female long leg brace user too. Yes it is hard work and very tiring.
We need to keep care of our shoulders as we do not have testosterone for more muscle strength like our male guys do.
I was told 30 years ago by a SCI Dr. in BC Canada, who studied the bone density affer effects of the bones of the astonouts that travelled to the moon, then also studied SCI persons. He told me unless I wanted to spend minimun of 8-10 hours of weight bearing/day on my long leg braces, do it for other reasons than bone density.
Keep it up Jesse ! ❤
I loved doing it too!
What an amazing gift! Thanks for sharing
Оллох.хамамизга.рахим..килисн.омин
This video made me smile. 🌹
Thank you for this update 😁
thank you for making this video!
You do have a great spirit! I hope that some one will sponsor all the things you need! God bless you!
Made me happy kept up the work my neighbor walks with her legs and drives.
Just came across you. Great video to have discovered you. No self pity or drama, just facts. Kudos to Erik for sure. This will undoubtedly unlock new avenues for you. Wishing you the best.
Great to see you on stand!
Great attitude and spirit! I was surprised to hear that the Canadian medical system doesn’t supply these? $6,000 is pricey but everything medical seems to be. You are an inspiration to many!
We should never complain about our disabilities after watching how you manage. I have a partial amputation of right foot that caused other problems but NOW I can walk again with a lower leg brace and orthotic 👟. I’m 70 years old and I doing fine after 2 yrs of being off foot!! So happy to watch and listen to you. Sorry about your accident. We all think NOTHING can happen to us. Love ya kid!! 🥰. Don’t give up EVER !!
Thanks for taking the time to watch Karen. And letting me know you are still going strong at 70 :)
Karen Lara going strong at 70!! Nothing keeps you down!!
Thanks for making these vids!
Russ Griffith you are an inspiration to me, i am an above knee amputee for 5 -1/2 months now going thru therapy to learn to use my prosthesis its so much to take in but you have it together don't know you but very proud of you
Hope you are healing well and enjoying the freedom of adaptive walking!
I’m not in wheel chair , but I have known people and family member and I like your Volga. I think they very very helpfully and I enjoy them very much
Watching this video of you brought back so many memories. I dated a quad for 4 years and helped her do all the same stuff that you're doing. It was eye-opening situation. We dated for two years before I saw how tall she was after she got her leg braces. You get a whole different perspective on life and how people view you when you're handicapped. I applaud you and your man he's a good man You're a good woman God bless and I pray that you heal soon and one day you can walk again. 🙏😇
That will not happen.
Thank you Eric!!!
I love your physical and mental strength. You are such an inspiration. Watching your channel is so educational for everyone. Thank you for your time, effort and drive!
Thanks for taking the time to watch :)
We are association hadicapes from moroco we want coordination with association disabled there
Alan Carrick
Her vids do so much for her followers!!
So proud, keep going!!
Your video was very inspiring for other paras and quite informative. Thanks
Thanks for the message. Hope you're subscribed ;)
Your great attitude is inspiring ! 🇺🇸
You got a good man there! I been in a chair for over 30 years but can walk with a KAFO and a AFO and 2 canes. I’m a level L123 incomplete injury. Took me 5 years to take my first few steps so don’t give up. I spent years in the pool and gym working out to strengthen the few muscles I had. Life is much easier in a chair as our hands can be busy with what ever but it’s nice to stand and walk a bit!
Get yourself some lofstrand crutches or start with a walker, wouldn’t recommend wooden crutches or canes until you are stabilized!
Best wishes and work hard, you look like a hard working young lady....carpe diem!
I’m sure he is happy to help take care of you. What a beautiful person!!
He and I were not together for long.
You have an awesome spirit.
Those braces are so amazing
You are an inspiration. Thank you!
Thank you. You're welcome:)
I take it that Jesse is your significant other. I did notice the looks you gave him and the slight swaying during the embrace. He couldn't help but dance with you. Too cute!
Ken is right Ben. He's my man, and the man behind the camera and this entire channel :)
I would like to give thanks to Erik kondo forgiving you that leg brace. And thank you for sharing what all u people go through every day.God Bless u nd a have a good day.
@Walter White takes one to know one!!RIGHT?
@@rickduquette3399 what is that guy's problem? There was nothing creepy about what he said at all. The guy is just trolling
@Walter White you're toxic as can be man. You think it's creepy because he's not trans or something? Or that Ken noticed a fleeting moment between a beautiful hetero normative couple?
Bless you ..❤ this clips filled my heart and my eyes..❤ well done ..
It's lovey to have a partner who support you in whatever conditions you are.
You are a fighter!!! God bless you...😍
You are an inspiration to so many. Your optimism, spirit and knowledge of your condition are so uplifting. God Bless! 😇😇😇
Thanks for the kind comment Donna :)
Hii
I'm not paralyzed but I am a wheelchair user due to many health issues and u help me learn ways of getting around challenges I face. I have no muscle tone in my legs.
The closest I can do is use the standing frame. I use a blood pressure cuff to check bp. Thanks for the info!
Great job. Hopefully, as you're able to stand for longer periods of time, you'll be stronger and will see less side effects such as light-headedness, etc. You're a beautiful, inspirational, woman and I wish you all the best.
Thank you so much for posting this video I'm a welder by trade trying to figure out how to build some leg braces for a nice lady from Cameroon so just knowing what difficulties you know you guys go through helps me a lot best of luck to you
This was the first video of yours that I’ve seen, and I just wanted to say thank you! New para myself, so something touched me deeper than just the content at hand. And Jesse? Was that his name? Thanks to you also. You were both awesome and inspiring.
What an extreme inspiration you are; love your attitude and work.
Tom G.
An inspiration she is!!
I'm also paraplegia patient and very tough to live with that you so brave
I like this video so much that I watch it everyday
The love and connection made me tear up
Just found your channel today. I think you definitely kickass
That was very sweet of him to send you those. I hope that they help you.
Love them! Hope to get to using them more now that my back is in better shape :)
Praying for you.
Ive never seen this before. You can really see that your holding up all your weight. Good for you. I think doing the videos is going to help your recovery too.
So sorry praying for you god will heal love your videos ❤️❤️
Awesome, what an attitude to have, inspiring, keep it up. I'll be sharing this with a few patients in similar spots.
Please share the entire channel :) Thanks for tuning in
@@ProTipsForParas❤
I honestly started tearing up when you stood up honestly. Idk why.
Rory_Emery cause it was bad ass!! She not going to be chained to that chair!!
@@heatstroke3042 yup. And it was also inspiring.
I used to wear a KAFO for 25 years (my left leg was paralysed) I tried out numerous different brands and found that the Townsend & Ossur Braces are by far the best, the hinges are really durable and they scan you to make sure the fit is perfect. It’s awful just how much they cost though. But standing hugs are the best 🤗🤗
Damn, you stood for ages!!!!!! Well done. Holy smokes I can't get over it. You are one strong cookie 😊👍 I imagine a walker would be easier than crutches. Is that true? Oh and BTW. I love the outfit 😘❤️️ Thanks for sharing 👍 ... omg ... and you guys look so cute together!!
First, LOVE the name Driving Heels!
Second, I stand as much as I can in the places and states that I find myself in. Ideally a few times a week, but these days proving less.
Third, he is pretty cute isn't he ;)
Tyvm
I wish you all the best.
Thanks Erick!!!!!!!!!!!!!!!!!
Just seeing this now because my OT is recommending that i get some,And like i said i really find your vids to be very important to me.
Amazing! Keep it up. Try every day for a little while.
Standing must be the best feeling. Good girl
Thank you.
New subscriber! Enjoying your channel.
Suddenly~ after hug Love scene ^^ you look so happy.
Be Well.
I am with a spinal injury and used to use leg braces as well, when I was 6 years old. Used them for 2-3 years and then I stopped. That turned to be the biggest mistake ever, because when I stopped using them, not long after my legs lost their flexibility and I cannot stretch them fully now. Spoke to specialists and they all refused to do anything due to my mobility from waist down with an explanation that, even after a surgery, there won't be any long lasting improvement.... But yes, I agree on what you said there. We spend more time in a sitting position or laying down. When we want to stand up, the heartbeat is changing and it is impacting our organism and the whole body. The heart which used to be more relaxed and not needed to push so much blood across the body and out of a sudden we are forcing our body to change in a split second. However, I can't imagine what would it be if I ever step on my feet... Before I felt dizzy a lot and having hard time breathing until I got used to the braces. But now, after 20 years or so being in a sitting position .... That will be interesting experience.
Congratulations👍
You have found a very good man there.. I know your life is very hard at times but the fact that you are in love and have a wonderful person to share your life with warms my heart. I’ve been going through what I consider a rough time lately but you give me perspective. 💚😇😌
We have not been together since the end of Feb. It was good for a time. I am happier now.
Pro Tips For Paras oh I am sorry to hear that but I’m glad your happier now. If your heart so desires I’m sure you will meet someone else when the time is right. Blessings and love to you 💚
I tried leg braces and a walker for a few years. I thought it was going to be better than using my wheelchair. After falling several times, I put them in the closet and used them for just a weekly weight-bearing exercise.
This is amazing to see tht she is standing and yes with help. But that is so good for you becuz your body needs that circulation through out your body. Girl you got guts to do that. Hopefully they will come out with a walker for people that can’ stand by themselves.. create a an adult size walker that will help you move your legs to walk and at the same time a harness like seat in case your trying to fall it will catch you. A remote control walker for people that have spinal cord damage or what ever the case may be when it come to the spinal cord damage. Even thou that people can’t feel there legs or there behind by sitting all the time. This machine will help them move one leg at a time while the harness that protects your body from falling down. Even if its for 3-5 minutes to where you feel comfortable standing as long as you can. Keep strong stay confident in yourself and trust God for your everyday journey. Good job!
If I had £6,000 I would send it to you so you could get a pair that actually fit you, you're incredibly strong and brave I cried watching all your videos.
Good girl, never give up trying.
Mine. Wasmetal kafo brace. Thing were nearly 15 pounds on my 🦵 Never. Got to Itvlog Now. I'm wearin an afo
Beautiful heart 🤝
I had a mojor stroke and I lost my left side watching u gives me the dtrenght to keep fighting on I was looking at a company ottobock they have a brace called the c brace I am hoping to get it in the near future it’s very expensive in Northern Ireland keep going I wish u all the best xx
I do not know about the molded material of your new to you leg braces but some of the materials used for braces can be reshaped by using heat
Chum
I also have braces, but except it reaches around below the knee. Thinking of getting one of these
icried the first time i was able to stand out of my chair
Allan Warmflash
Best feeling in the world!!!
Try calf length compression socks to help with orthostatic hypotension. Can be bought online in different mmHg compression strength.
Thanks.
Awesome
KAFO’S are fantastic I wore them for over twenty years. It’s fantastic that you’ve found a pair that can work for you without having to fork out such crazy money. If the straps are struggling to tighten enough, I used to add adhesive velcro onto the plastic to stop them coming loose. If the soles are slippy you can add some hot glue gun strips on the underside. Standing hugs are the best and are so worth the workout🥵🤗.
Dark Knight OMG so true! I completely forgot about those ratchet straps, they are much more durable and they will allow for micro adjustments so much better plus they won’t twist the brace like velcro can when you’re trying to tighten them. They use those ratchet straps in prosthetics as well. 🙌🏻
I subscriber to your channel and have been enjoying them alot. I love building stuff. People tell me I can build just about anything. most stuff I build are things for me that a can't afford. But I want to build something that could be usefully for someone. Is there something that you think should be built that no one has built?
I use a wheelchair because of POTS and EDS. I have a lot of the same issues with standing and walking because of dysautonomia (dysfunction of the autonomic nervous system) and because the tendons and ligaments in my legs don’t work very well, although I do have full muscle function in my legs. Another way to help the blood pressure drop and heart rate increase when standing is to increase your salt intake along with your water intake beforehand. It won’t fix the lack of tightening in the muscles and veins to counter the force of gravity but it will help increase your blood volume, which will help with the dizziness. Wearing compression socks, tights, leggings, or stockings can also help reduce blood pooling and decrease lightheadedness.
Another tip: If you get a choice, start with a standing frame or stationary walker before switching to a rollator/walker with wheels or crutches. It’ll give you more stability and decrease your fall risk as you get used to working your remaining muscles to stay upright with your KAFOS. Loved this video. I hope you get lots of benefits from being able to stand more on your own power.
Killer tip with the standing frame :) New one for the repertoire!
Post notifications on and always
Awesome video Contant
Heat is how those are modified. And to go small enough to fit you properly they would need to be cut down a bit too.. Those are actually quite big for you. They also should have one more strap on the shin. I have made afos and modified many braces, knees, feet, hands, back shell, and wrists.. Thankfully I was able to come back from my leg paralysis due to neuro.
Very nice vid. I was injured two years ago and got similar braces for my legs. The walker will help you tremendously!
i just stumbled onto your video's this morning i injured my spine also five years ago at T2 to T12..i know exactly what you went though and go though everyday for me it was quite humbling...i wanted to say a whole lot more but i kinda lost the words...is your injury a complete injury or incomplete? i looked really hard but i couldn't tell, you move around so good I'm really glad i found your video's keep making them
Love you
you do good keep up friend
I can only imagine how awesome it must feel to get up on your feet when you spend your days seated in a wheelchair.
Timothy Courtemanche
It feels awesome those tips where epic
We are association hadicapes from moroco we want coordination with association disabled there
@@nourdinaitmelloul2212 how i wish you could help me have this leg braces.am from Philippines
I love mine. Yours are a little different than mine. Mine lock like yours by clicking them in place but you twist a little knob to get them to release. Anyhow I scoot slightly forward in my chair and push on my knees to lock them then to stand up without someone else I use either the kitchen sink or go outside and use the railing around the deck to pull myself up into the standing position. Oh one more tip which takes some getting used to. When hour braces are locked pull up so your tips if your feet touch the counter or railing turn back your chair up just a few inches so your feet have room to go flat. If you get dizzy or are done standing just extend your arms and you will fall backwards. If you don't have someone move your chair after your stand it'd still in the same place so you basically just fall into it. After you do that, unlock the braces so your legs go back down but it's nice because you don't need anyone to help lift you. You just use your arms to pull yourself up and since the tips of your shoes are against the cabinet it railing you don't have to worry about them sliding forward. I like using the railing the best but where the sink is cut out I feel line I can get a good enough grip to the edge if the sink if it's cold or raining to do the same thing.
I like finding railings where I use the same technique you speak about :) butting your toes into something solid and using a railing to pull yourself vertical. I haven't been brave enough to do this without someone close to make sure the chair doesn't slide away from me while lowering down into it.
Thank you for sharing!!
My accident was in 1974. T12/L1 complete. For over 30 years I used calipers and crutches at work and did not use the wheelchair. It took a lot of effort but was really worth it. I tried a set of calipers similar to the ones in the video but found that, without a flexible joint at the ankle, I could not walk up any sort of incline as my hip flexion could not compensate for the angle. Also I had a tremendous amount of sweat from the legs from the plastic of the prosthetic so I abandoned them and went back to the more traditional type of caliper. I was amused when visiting a museum in Indianapolis to see the sort of caliper I use portrayed as a museum piece but they certainly worked for me :-) Forty six years on, yes, I am having issues with my shoulders but I don't regret using them to the extent that I did as I had so many adventures that just would not have been possible if I hadn't persevered with them. Based in the UK.
Love this! Thanks for sharing Steve :) I still mostly cruise in the chair to keep my hands and lap free. Maybe one day I will find more love for the braces, or ones that better work for my injury level and body.
Dude. 46 years?! I'm 30 years into permanent paralysis and I have to say, hats off to you Steve! I'm impressed
Hiya, I’ve been watching this video. I have MS and am pretty much in my wheelchair all day. I recently started using a sit to stand aid which means I can pull myself up from my wheelchair and stand for long periods of time by holding onto the aid. It means i don’t rely on my husband to always help me stand. It’s also easier to do sit to stand exercises too.
Have you heard of one of these? I wonder if it could be useful to you?
You are so inspiring ❤️❤️
Very good 🙂
Btw You are incredible.
If you have a heat gun, I’ve heated the plastic on mine and bent them more to my shape. When the plastic cools, it’s permanent. You can remold these more to your fit that way. Just be careful with the heat. Hope you got these fixed. Your amazing 🤩 ❤
i want the power to make it right so brave you poor girl i feel so helpless
Dont spend too much time standing. I broke bones in my feet from using braces for to long. Kitchen counters work good for standing on your own. Theyre usually higher than most tables and more stable. God bless.
Where in Canada are you? I was in Alberta and all my braces were fully covered by provincial health insurance. I also didn’t pay for my wheelchair. All the daily aids I needed (such as grab bars, shower stool, grabbers, forearm crutches, etc) were also fully covered.
Dark Knight I lived in Alberta most of my life before moving to Germany. I, unfortunately, know AADL all too well. I was cost share exempt. There are circumstances where you can have new orthotics/prosthetics covered more frequently than every two years, you really just need your orthotist/prosthetist to document a genuine need (it no longer fits due to body size changes, it’s worn out/broken, etc). They really need to reconsider covering sports prosthetics and orthotics for adults. They provide for children, but not adults. They would end up spending far less in the long run if they helped us to be active and live healthy lifestyles. If her doctor prescribed braces for standing (he/she would need to think it’s a reasonable and genuine therapy) then they would be covered.