You are so right. I got the diagnose a year ago and I read everything about PD and listening to every talk from experts. I think I have to stop doing this and enjoy my life. I am 73 years old. So there will be no cure for me. Thank you Jeremy. You are so positive. Greetings from Germany.
I gotta say I love your yard and the trees! So lovely! Science and research is tough, takes time and lot's of money. In one of my videos about orgasms....there were researchers looking at the brain during orgasm but they had a hard time studying people with Parkinson's because they couldn't stay still in the MRI. Then two weeks ago I got an MRI and have to say there is NO way I could orgasm during an MRI....all the banging and scary noises and cage around your head. I was beyond amazed they found people who could 🙃Hold on to hope and live life while you can! 🥰
I get a little excited whenever I read about a new potential cure. The excitement subsides when I realize the article I’m reading is 10 years old. Myself, I would settle with finding a way to just slow the progression.
The closest thing to a magic pill is exercise. Coming up on three years after diagnosed. I’m 3.5 hours north of you in IL. If you’re up and moving you’re still in the fight, keep it up brother.
I agree Jeremy!! I have it, it is what it is , so I just do what ever I can and get on with life. I live alone with my dog and that makes it less demanding in some ways. Larry
@@JeremyMcdonald I hope that did not come off as negative or that I am letting this nasty thing have its way with me!! That is certainly not my thing. I treat it as best I can with the thought of an unwelcome guest and try not to look back at my days before it showed up. I try my best to be thankful and creative with my approach to what I would like to do and celebrate what I get!!
Always appreciate some straight talk. The one thing I hear from friends and family about PD is a reassurance that a cure is “right around the corner.” They mean well, and probably just don’t know what else to say. So, I politely nod and give my canned response: “thanks, here’s hoping for one.” Hope is a good thing, but it might be better when combined with perspective. Best to just try and carry-on, and not let the wait for a cure overtake us us while neuroscience does its thing. Great topic; thanks for broaching it.
I live with this disease assuming I will not see a cure. I believe when a cure comes it will be related to some sort of gene therapy. I suspect it will not be of much use to those of us deep into the disease. This is not depressing to me but just my realistic outlook. I continue to do what I can to slow the progression with exercise and mostly healthy eating. I hope a cure is found down the road and no one else has to live with this. I trust my doctors to help guide me in living the best life possible. Love your attitude. I will not go chasing unicorns.
Hey J Mac!! I just got home from a long HIDA test on gallbladder. I had dyskinesia. My symptoms were awful. I will be happy if medical professionals knew more about Parkinson’s. I’m talking about ER doctors, general practitioners, radiology technicians, and more. They were totally shocked when I froze to the floor and couldn’t move at all. I’m bumming today.
That sounds terrible, Karen! I’m finding that a lot of doctors don’t understand Parkinson’s at all. I feel like sometimes I am explaining to them what it’s like. I hope you are on the mend soon!😕
Thanks Jeremy. I feel the same way . Most don’t know which drugs exacerbate PD symptoms. There’s a lot they don’t know. The hardest thing today, was not being able to walk out the door-even with a cane. I had to be wheeled to the car. My son drove. I will feel better tomorrow. I always do.
It's FAVA BEANS!!! Ha! I'm on a message board where one woman constantly comments that eating fava beans "cures" PD and I'm like ok I'm pretty sure if that works we would know it. Peace out!
Gutentag Jeremy, Wie gehts? I'm ok, dx w PD aswell I try to stay busy now painting made beaded necklaces keeps my brain busy thank God I am ok on right side. Tremors on left side of body. Notice upon doing my art work i shake less cause I'm concentrating on something I guess. I would love cure or less nerve pain would help!! So any advise will help. So I love the fact we can meet up and speak, someone may come up w good advise! Stay strong ❤
Well said brother!! Yes 🇨🇦 in da house!! Go oilers go!! Ya brother, I agree with you. I’ve been told that I may not be suitable for……dbs 😮 video on that coming soon!
Thanks for your thoughts, I'm completely with you. Everybody waits for a cure, but this doesn't effect my daily life with pd. Will you wear a swiss tshirt too? ;-)
By the way, I don’t find your subjects anything but informative even if they’re tough. Even if you’re not waiting for a cure, you’re living your best life and helping so many! Thank you, JMac
It's always ' 5 years away ' .... like the sign in British pubs ' free beer tomorrow ' it never comes.... your approach is bang on - live your life. The meds can work pretty well and lots of new ones coming on stream. 👍
You are so right. I got the diagnose a year ago and I read everything about PD and listening to every talk from experts. I think I have to stop doing this and enjoy my life. I am 73 years old. So there will be no cure for me. Thank you Jeremy. You are so positive. Greetings from Germany.
Vielen dank! I am part German on my Mutter’s side.
I gotta say I love your yard and the trees! So lovely! Science and research is tough, takes time and lot's of money. In one of my videos about orgasms....there were researchers looking at the brain during orgasm but they had a hard time studying people with Parkinson's because they couldn't stay still in the MRI. Then two weeks ago I got an MRI and have to say there is NO way I could orgasm during an MRI....all the banging and scary noises and cage around your head. I was beyond amazed they found people who could 🙃Hold on to hope and live life while you can! 🥰
My yard is indeed my sanctuary! I’m happy you got to see it. On another note, I doubt that I could have an orgasm in an MRI, either!😆🤣🤣
Same here with Lewy Body Dementia...always promising. Nothing new. Hallucinations are awful. Seniment here also. Well said my friend.
Sorry to hear that, bro. I haven’t had hallucinations, but they sound terrible. Keep in touch!
I get a little excited whenever I read about a new potential cure. The excitement subsides when I realize the article I’m reading is 10 years old. Myself, I would settle with finding a way to just slow the progression.
❤️❤️❤️
Thank you!
Oh my gawd Jeremy! I spit out my coffee watching this episode. 😂
😁
Hi Jeremy, danke für deine lieben Grüße. Gruß Sven
Du bist ein guter Freund, Sven!
The closest thing to a magic pill is exercise. Coming up on three years after diagnosed. I’m 3.5 hours north of you in IL. If you’re up and moving you’re still in the fight, keep it up brother.
Amen! Thx, Mark!
If we concentrate on cures we miss the present
@MikeMercury So true. So true.👍
Couldn’t have said it better myself!
I agree Jeremy!! I have it, it is what it is , so I just do what ever I can and get on with life. I live alone with my dog and that makes it less demanding in some ways.
Larry
I would add this.. the person that I was is just that. Make the most of every single day, no matter what !!
Good advice, Larry!
@@JeremyMcdonald I hope that did not come off as negative or that I am letting this nasty thing have its way with me!! That is certainly not my thing. I treat it as best I can with the thought of an unwelcome guest and try not to look back at my days before it showed up. I try my best to be thankful and creative with my approach to what I would like to do and celebrate what I get!!
@@larrysimpson6087 Aman!
Good discussion!
Nice to. know you liked it!
Always appreciate some straight talk. The one thing I hear from friends and family about PD is a reassurance that a cure is “right around the corner.” They mean well, and probably just don’t know what else to say. So, I politely nod and give my canned response: “thanks, here’s hoping for one.” Hope is a good thing, but it might be better when combined with perspective. Best to just try and carry-on, and not let the wait for a cure overtake us us while neuroscience does its thing. Great topic; thanks for broaching it.
I think you are probably right about people not knowing what to say. I just put on a brave face and say that I take it one day at a time. Thx, Ken!
I live with this disease assuming I will not see a cure. I believe when a cure comes it will be related to some sort of gene therapy. I suspect it will not be of much use to those of us deep into the disease. This is not depressing to me but just my realistic outlook. I continue to do what I can to slow the progression with exercise and mostly healthy eating. I hope a cure is found down the road and no one else has to live with this. I trust my doctors to help guide me in living the best life possible. Love your attitude. I will not go chasing unicorns.
Chasing unicorns…..that’s a great way to put it. Wish I would have thought of it!
merci Jeremy
Hey J Mac!! I just got home from a long HIDA test on gallbladder. I had dyskinesia. My symptoms were awful. I will be happy if medical professionals knew more about Parkinson’s. I’m talking about ER doctors, general practitioners, radiology technicians, and more. They were totally shocked when I froze to the floor and couldn’t move at all.
I’m bumming today.
That sounds terrible, Karen! I’m finding that a lot of doctors don’t understand Parkinson’s at all. I feel like sometimes I am explaining to them what it’s like. I hope you are on the mend soon!😕
Thanks Jeremy. I feel the same way . Most don’t know which drugs exacerbate PD symptoms.
There’s a lot they don’t know.
The hardest thing today, was not being able to walk out the door-even with a cane. I had to be wheeled to the car. My son drove.
I will feel better tomorrow. I always do.
It's FAVA BEANS!!! Ha! I'm on a message board where one woman constantly comments that eating fava beans "cures" PD and I'm like ok I'm pretty sure if that works we would know it. Peace out!
It sounds like something Hannibal Lector would say!😂
Gutentag Jeremy, Wie gehts? I'm ok, dx w PD aswell I try to stay busy now painting made beaded necklaces keeps my brain busy thank God I am ok on right side. Tremors on left side of body. Notice upon doing my art work i shake less cause I'm concentrating on something I guess. I would love cure or less nerve pain would help!! So any advise will help. So I love the fact we can meet up and speak, someone may come up w good advise! Stay strong ❤
Alles klar heir! I loved your painting! Keep up the good work, Inez!😎
Keep it lit from ireland
Ah, Ireland! As you can probably tell from my last name, Ireland means something special to me. I hope to visit one day!
You are a great dude
Thank you so much!✌️
Never a cure
In my lifetime, probably not.
Well said brother!! Yes 🇨🇦 in da house!! Go oilers go!! Ya brother, I agree with you. I’ve been told that I may not be suitable for……dbs 😮 video on that coming soon!
That really sucks! Can’t wait to hear about it,
Thanks for your thoughts, I'm completely with you. Everybody waits for a cure, but this doesn't effect my daily life with pd. Will you wear a swiss tshirt too? ;-)
I will put it on my list! Thx!🇨🇭
The fact that they really don’t know what causes it tells me they aren’t close to a cure.
Exactly! Thx for watching, Jack Mac!
By the way, I don’t find your subjects anything but informative even if they’re tough. Even if you’re not waiting for a cure, you’re living your best life and helping so many! Thank you, JMac
Not waiting for a cure. Just trying my best to live with this disease. Will you wear a T-shirt with the Canadian flag?
It’s first on my list!🇨🇦
@@JeremyMcdonald thank you!!!
It's always ' 5 years away ' .... like the sign in British pubs ' free beer tomorrow ' it never comes.... your approach is bang on - live your life. The meds can work pretty well and lots of new ones coming on stream. 👍
Free beer tomorrow! We don’t have those signs in the USA. Probably cause some dumbass would try to sue!😂