Kidney Disease: What Dialysis has done for me.

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  • čas přidán 9. 09. 2023
  • What has dialysis done for me?
    How dialysis has made my life harder and what gifts it has given me after going through Kidney Disease and living now with Kidney Failure or ESRD.
    Part 4 of my Preparing for Kidney Disease
    Part 3: • Kidney Disease: The sy...
    Part 2: • Kidney Disease: My Sto...
    Part 1: • Kidney Disease: Functi...
    NOTE: My channel is for awareness, community and entertainment purposes only. Nothing on my channel is meant to be taken as medical advice. I am NOT a doctor nor am I medically trained. I'm a patient who is suffering from Kidney Failure caused by FSGS. Be your own health advocate as you work with your healthcare provider.
    Baxter Health Corporation supplies my Cycler, PD fluids and supplies. My supplies are delivered to my home.
    My clinic is Dialysis Clinic, Inc. ( DCi )
    #kidneydisease #hemodialisis #peritoneal #kidneyfailure #ESRD

Komentáře • 59

  • @demsyciu
    @demsyciu Před 3 měsíci +3

    When i accompany my father to consult with nephrology in my country, i spoke with a patient who was on dialysis about a year or two and now he's off the dialysis.. his stage up from 5 to 4

  • @user-xj1je2oc3i
    @user-xj1je2oc3i Před 2 měsíci +1

    Praying for u. I do treatment 3x a week . Been on dialysis since last July. Its been hard but i thank God im still here. Be bless

  • @bigd3407
    @bigd3407 Před 8 měsíci +5

    I understand I had my PT catheter installed on Thursday September 7th 2023. I've been watching your videos and I find them very helpful thank you so much.

    • @kidneykeeping
      @kidneykeeping  Před 8 měsíci +1

      I hope everything is going well for you and that you are starting to feel better from surgery. Thank you for letting me know that my videos have been helpful.

  • @alexitselentis7904
    @alexitselentis7904 Před 2 měsíci +1

    Thanknyou for sharing yoyr story, you're an inspiration and give strength to many others, best regards from Greece 🇬🇷 ❤

  • @paulnsharon5641
    @paulnsharon5641 Před 8 měsíci +3

    Was on hemodialysis for five years six hours a day seven days a week.( Terrible life experience) GOD is good made a friend received a kidney “ live is good “ stay strong praying for you and your family 🙏🙏🙏🙌

    • @kidneykeeping
      @kidneykeeping  Před 8 měsíci

      Wow! Having to do hemo everyday must have been so draining on you. I'm glad that you persevered and now have a kidney.Thank you for comment!

  • @estellezimmerman1199
    @estellezimmerman1199 Před 8 měsíci +6

    Thank you for sharing your thoughts and true feelings. You are amazing lady. God Bless you and your family 🙏.

    • @kidneykeeping
      @kidneykeeping  Před 8 měsíci

      Thank you! You always leave such kind comments!

  • @gene108
    @gene108 Před 8 měsíci +4

    Your videos are informative and supportive. Thank you.

  • @206stonner
    @206stonner Před 8 měsíci +10

    I wish I started dialysis sooner. I waited until my body became so toxic that the damage to my body was irreversible. Starting dialysis at 35 was a life changing event that was a choice made for me. The 7 years I went to North West kidney center ( Seattle) was a full time job. Ive been fortunate that someone blessed me with a kidney. A stranger that had passed away has given me a new lease on life. It has been 5 years since my transplant life could not be better. So if you are undecided like I was please listen to your doctor or in my case find on that you feel conferrable with before its to late.

  • @SherryN72
    @SherryN72 Před 8 měsíci +3

    Thank you for doing these videos. I’m stage 4 and you give me hope.

  • @nanalesawood2529
    @nanalesawood2529 Před 7 měsíci +2

    Hi thank you for your videos. The day I got my EGFR results back I stumbled upon your channel. Your postive outlook is Awesome!
    I was in shock.when I started my research of what a 57 GFR means.
    Thankful I know now though.
    I went to the ER bc I was experincing an allergy from an antiboitoc. They ran the blood test and said I have acute kidney damage. I then took the results to my Primary Care Physican and this Wenesday I am going to have the same test run again. I am hoping that previous test result was bc I had extreme dehydration.
    Thanks again for the informative and postive content.❤😊

  • @bron-sconcess.10
    @bron-sconcess.10 Před 8 měsíci +3

    Incredible!
    1st your last video (the first I've seen); the improvement shows, even though you were great! This video, you sound really well!
    You are a bright light shining. Shedding love and wisdom. After meeting you on video, no way can I spen a moment negatively 🤗 God bless, always.

  • @rufuscusack2962
    @rufuscusack2962 Před 8 měsíci +5

    I'm so sorry for what you are going thru with this. However, I am truly grateful for your videos. Thank you for all this important info that may help myself and others! GRATITUDE!!

  • @amarishgoel1963
    @amarishgoel1963 Před 8 měsíci +4

    We totally understand what you are going through, thank you for helping the community.

  • @jeannem4475
    @jeannem4475 Před 8 měsíci +2

    I am so glad you posted this. I too am on home dialysis (PD) for a year now. But I still itch like crazy, still feel very fatigued and extremely short of breath all the time. Also have to have regular iron treatments and Epogen. Just wanted you to know I'm pleased for you and have hope from your inspiration.

    • @kidneykeeping
      @kidneykeeping  Před 8 měsíci

      Thank you for you kind words! I'm sorry that you're still very itchy and fatigued. I hope that your discomfort will lessen so that the day to day will become easier for you.

  • @janettebolin2991
    @janettebolin2991 Před 8 měsíci

    I appreciate the positive outlook you have on your journey. Blessings to you and thank you for sharing. ❤

  • @adele865
    @adele865 Před 8 měsíci

    Thank you so much for sharing your journey. I have CKD and have taken much of your story to heart. I am trying hard to look after my kidneys, thanks to your channel I know how important it is to be vigilant. 🙏

  • @user-zn7uf9wg3v
    @user-zn7uf9wg3v Před 8 měsíci

    You are an incredible inspiration.
    Thank you

  • @marygatdula2744
    @marygatdula2744 Před 8 měsíci +1

    Thank you for sharing!

  • @MaryDelnero
    @MaryDelnero Před 8 měsíci +1

    I'm getting my pd catheter on Thursday. Your videos have helped me so much. I know it's not going to be easy. Thank you.

    • @kidneykeeping
      @kidneykeeping  Před 8 měsíci

      Hope you are doing well after surgery and I hope your recovery is quick! You can do it!

  • @user-rl3iw8tt9j
    @user-rl3iw8tt9j Před 2 měsíci

    Thank you for sharing.

  • @nomad5375
    @nomad5375 Před 4 měsíci

    Praying for you.

  • @lorengaffin4469
    @lorengaffin4469 Před 8 měsíci +2

    Thanks for sharing. I was on PD for approximately 5 years and homeodialysis for two years before my transplant. I was able to travel abroad several times during this ordeal and everyone was very understanding about my shortcomings. Now that I have had the transplant, I’m very conscious of every aspect of life and don’t take for granted. 7 years on dialysis was a life experience I wouldn’t want anyone else to experience. There are so many emotions involved and the people around you have to have an understanding of what you are experiencing every minute, hour and day. I’m very grateful that I persevered and count my blessings everyday.😊

    • @kidneykeeping
      @kidneykeeping  Před 8 měsíci +1

      Thank you sharing your story and letting others know that even though having to do dialysis is hard, you were able to travel and have support and understand from others.

    • @Makemsayuhhhnananana
      @Makemsayuhhhnananana Před 3 měsíci

      Did u have high blood pressure during diaylsis

  • @iluvmy67cuda
    @iluvmy67cuda Před 4 měsíci +2

    I have PKD which is not curable. When my kidneys go into full failure I'm going to go on palative care and pass away. I don't want to go through dialysis and all that and I'm too fat to be eligible for a transplant. I just want to get it over with and go wherever we go next. I'm only 40.

  • @garyheinzman6855
    @garyheinzman6855 Před 7 měsíci

    I feel so much better on dialysis. Refreshed. Once I finally get my fluid intake down, I should be all set

  • @ninclarke1357
    @ninclarke1357 Před 8 měsíci

    Thank you ❤️🙏

  • @emmanuel-kennethgoode8660
    @emmanuel-kennethgoode8660 Před 8 měsíci

    Many thanks for sharing this your life experiences and personal insights with the whole world to motivate others to find beauty and purpose in life

  • @lindak1768
    @lindak1768 Před 3 měsíci

    My son just found out he has kidney disease. He’s 42 and stage 4. He is a veteran so the VA is his medical. It’s been hard.

  • @artbylesleymilne
    @artbylesleymilne Před 8 měsíci

    Hi, I dont know if you've done a video on it yet, but are you on a transplant list or did you opt to not have one?

  • @trustinginhim3189
    @trustinginhim3189 Před 8 měsíci

    Is your hair still dry. Nothing I use is getting rid of my flaky scalp. Thank you for your videos! I love them

    • @kidneykeeping
      @kidneykeeping  Před 8 měsíci +1

      My scalp feels better, but I did figure out that I was using too strong of a shampoo and that was causing my scalp to be too dry. Which is nice because now I just buy the inexpensive shampoo. I don't know if you are suffering from the same thing but it is frustrating when you try so many different products and nothing seems to help. Thanks for watching my videos!

  • @vahanikakahorongo4343
    @vahanikakahorongo4343 Před 8 měsíci

    I am from Africa Namibia I thank you for your inspiration speeches I so proud of you give me life I am dialysis six years some times having short breath and itching and I I travel 200km to get my dialysis to nearest town three times a week and its very hard thanks I need any help please thanks

    • @kidneykeeping
      @kidneykeeping  Před 8 měsíci

      Being on dialysis and having to travel three times a week must be really hard and takes up a lot of your time. Thank you for taking the time to leave a comment and I'm glad my videos were helpful for you. Keep going and I hope you have support from friends and family.

  • @carolynhorne9863
    @carolynhorne9863 Před 4 měsíci +3

    Wow I hate you sound so unhappy, I'm on dialysis, it been three years now at first I thought it was the end of the world, my lifestyle hasn't changed a bit except of course 3 days a week early morning dialysis, my days for whatever I wish, no more stress out job, unless I want to work and no financial worries. Enjoying my best life at 60, but I do understand some people are on a lot of meds and feel drained all the time, I thank the Most High, for being healthy and feeling great all the time and having a great outlook on life, PRAISE GOD!

  • @ewabialo9375
    @ewabialo9375 Před 8 měsíci

    ❤❤❤

  • @abdaalmehdi1719
    @abdaalmehdi1719 Před 5 měsíci +1

    Try sodium bicarbonate

  • @sovie3988
    @sovie3988 Před 8 měsíci +2

    Hello good morning sis.. How are you.. Thank you always sharing good information 🙏🙏🤝
    Sis my hemoglobin always low.. Now 8 only .. Im ready using injections but very slowly to be upp 😇😇how about you sis thank you❤🌹🙏
    Godbless you always sis ❤

    • @kidneykeeping
      @kidneykeeping  Před 8 měsíci

      I'm doing well friend. Thank you! And having your hemoglobin down to an 8 is really hard. I found that I ran out of energy really quickly and I had to take lots of breaks. I hope the injections will help your numbers to go up!

  • @ogbeborchristabel9276
    @ogbeborchristabel9276 Před 8 měsíci

    Big thanks to Dr emuakhe on CZcams from Africa for having every criteria to human health, his kidney cleansing herbs saved my dad's lives from the unfortunate situation.

  • @andrewdietrich2460
    @andrewdietrich2460 Před 8 měsíci

    W

  • @erickyle5604
    @erickyle5604 Před 8 měsíci

    Shush, you are most definitely a warrior.
    You said it yourself!!
    If you get knocked down, you will get back up again.
    That is the very essence of a warrior.

  • @JustMe-wg7xg
    @JustMe-wg7xg Před 2 měsíci

    Can you get you a kidney? Are you a candidate for one I pray you are … good luck

  • @tishkerrville8942
    @tishkerrville8942 Před 8 měsíci +1

    You don't look well at all 😪

    • @ZzXZ636
      @ZzXZ636 Před 4 měsíci +3

      She does look very well . She is fair skinned , and also a beauty .
      BTW If you have nothing nice to say , say nothing . 🤬

    • @tishkerrville8942
      @tishkerrville8942 Před 4 měsíci +1

      @ZzXZ636 I will Say or Think whatever the fk I want to say mofo

    • @ZzXZ636
      @ZzXZ636 Před 4 měsíci

      @@tishkerrville8942 So you only think about YOURSELF , then why be in a site where people are trying to support each other MOF ?

    • @ZzXZ636
      @ZzXZ636 Před 4 měsíci +1

      @@tishkerrville8942 🤬

    • @flightsimpro8979
      @flightsimpro8979 Před 4 měsíci

      What an absolute tool. She looks perfectly fine.