Understanding blood clots - Diagnosed with a pulmonary embolism (PE) at just 22
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- čas přidán 28. 04. 2019
- Have you been recently diagnosed with a blood clot (thrombosis / DVT / pulmonary embolism)?
Thrombosis UK have developed a series of short films to help share information about blood clots.
We would like to thank all those who contributed to making the films especially Chrissie, Robin and Anne.
The making of these films was made possible by Chris Pierce’s incredible fundraising in memory of his father, Tony and an educational grant kindly provided by the Childwick Trust.
Read more about Tony and Chris’s story: www.thrombosisuk.org/stories/...
I was just diagnosed with PE 5 days ago after a 15-hour flight. When I got home, 8 hours later, I had the worst pain in my left chest. It hurt every time I breathe in. Went to the hospital and did a CT scan and they found peripheral pulmonary embolism. I am now discharged and they put me on anticoagulant. Doing good so far.
It's so hard to see anyone who gives updates on them I had one a year ago I'm on blood thinners but I hope I get to live a full life!!!😢
I’m a survivor of this , there is one in my lungs i am on blood thinners it seems I’m improving week by week . But it’s psychological warfare one minute I’m fine the next one I’m finding it extremely hard and painful to breathe this stuff is no joke and I’m glad I caught it in time and I’m still able to be here for my 4 year old son. God gave me intuition that something was wrong and that saved my life
Same here . I'm supposed to go back to work this Monday and I'm terrified
I just got out of hospital with 2 cluster fucks of them... I'm scared. Hoping ur still alive. Some hope.
Hello I’m struggling right now the doctors don’t give me a straight answer I was diagnosed last year November and was on blood thinners I recently stopped about a month ago they said they don’t see any signs of clotting but I’m having really bad episodes of whole body numbness tingling feeling like I’m going to pass out fast heart rate and facial twitching the hospital told me my co2 levels were low but that was it they gave me fluids and sent me home I have no idea what’s going on with me and I’m scared at this point.
@@cheyennetorres9756 get you some Cayenne pepper . Mix it in a drink or cook it in your food . It should calm your blood flow down . And drink lots of water every day . I would say at least half a gallon or a gallon depending on your size . This should help a lot.
Im currently in recovery at home. I got out of hospital last Wednesday after 7 days in hospital. Im 27 and have no health problems. It was a complete shock when I got taken to hospital and told me I have two massive clots in my lungs. They said if I didn’t come in that day it would of been a different story. Im feeling a lot better but it still does not feel real to me even after being discharged.
Sorry to hear. I hope you’re doing well. Please do get diet consultation and follow it. That way foods can’t make it worse.
I hope you are OK now day's
I love your Posh British Accent!
I was on the depo shot for abt 2 years & found out that it was causing blood clots to form in both of my lungs. (Pulmonary embolism). I could’ve died 🥺😭😭 my symptoms were leg pain (it felt like a Charlie horse).. I ignored that for a couple of weeks and then I started to have shortness of breathe... nerve pain on the side of my rib cage & when I breathed in and out it literally hurt so bad, that all I could do was gasp for air. That’s when I took my behind to the ER & was admitted to the hospital. My doctor put me on blood thinners & Lovenox shot for 3- 6 months. within 3 days of taking them, I started to feel so much better, it was shocking. The doctor told me to never get back on birth control.
how's your condition now? did you stop taking blood thinners?
same thing with me back in 2019 from taking the combination BC pills and i was only on them for 3-4 months 😫 the pain was so bad that i couldn’t even sleep at night so scary 😔
Where was your pain in your chest? My pain is almost directly in the middle. Got checked out but came back negative but still have chronic DVT.
I'm on the depo shot two years and was just yesterday diagnosed with pulmonary embolism. Totally stopping the DEPO shot. I'm scared. Levonox is a blood thinner. And yeah I breath better with the shot. I was able to sleep a few hours. Just so scared bc I also have rare autoimmune diseases. And you can still die even after diagnosed even months to a year later.
How are you doing now? I was just diagnosed with multiple clots in my lungs yesterday. They gave me a couple injections in my tummy and started me on Apixaban. I’m terrified. But I have faith that God will heal me. I hope everyone going through this overcomes this as well!! 💜💜💜
Some doctors can be useless. I had what seemed like a heart attack. I was sweating and gasping for air, my body was paralyzed almost. I had been very stupid thinking it was something eaten so I didn't call an ambulance but went to my cardiologist the following day. He did an ECG and ultrasound and said I was all good. I continued working for a month but with chest neck and arm pain till one night I had an episode that almost killed me. I called the ambulance but because of lack of oxygen the operator could not make what I was saying, I could not even walk to open the door for the ambulance team. Once at the hospital, I was diagnosed with a big PE on both lungs. I was told this was very serious I was in ICU for almost 2 weeks. I'm still having palpitations and some pain. Conclusion if you have pains in your chest and breathing issues insist that you see a pulmonologist and cardiologist.
I had vague nagging symptoms as well for a while until the crisis hit and I had taken myself into a and e as I got short of breath gradually over time until the day of the crisis but had thought that I was unfit and needed to go on a diet but no I wasn't I was ill!
Same with me!!
I watched this 2 years ago in my second year medical school.... in my final year of medical school at the age of 22 I was admitted with bilateral blood clots :(
Just been discharged but very worried about my long term heart health as CT had shown heart strain :( I'm so tired and short of breath, I'm normally very fit and run miles every day and this is crushing for me
How are you doing right now?
I have Bilateral PE's.
I have a heaps of clots in my right lung, and "only" a couple in my left lung.
It's such a struggle and has caused me so many extra health problems on top of that.
Can you share the extra hard problems? My family member was diagnosed with the same and I want to know what to be careful for. Thank you
@@toralora Firstly, I'm so sorry that your family member has been diagnosed with this. I wish them well and a speedy recovery! 💙
Well, I personally have a heart related issue now because of it. I had to have oxygen masks and tubes in regularly. Shortness of breath has been an issue during and after. I got fluid on the chest & lungs and needed it all drained out (which was the most painful thing I've ever experienced)
I still experience pain, and have some lung damage from both the clots and the draining procedure.
If I think of anything else, I'll add it.
I hope that helps! 🙏🌺
@@sarahsalsa2461ur age???
My gorgeous fiance 34 has just died from a pulmonary embolism 😭😭😭
I'm genuinely sorry for your loss
Sorry for your loss
I'm sincerely sorry for your loss 😪😪😪
Im sorry to hear that.
Thanks all still not getting easier x
I just got out of the icu after spening 16 days there for bilateral pulmonary embolisms. Blood clots in both my lungs and both lwgs at the same time. Dr.'s have no clue where they came from or the cause. Symptoms just came back so.back to the emergency room i go 😢
Were you on birth control pills?
Please update and let me know how you’re doing. You’re in my prayers. I was just diagnosed yesterday with multiple little clots in my lungs. They sent me home the same day after they gave me a couple shots and started me on Apixaban. I hope you have a speedy recovery. I knew this is so scary!!
Im 24 and had 3 clots in my lungs afew months ago from my pregnancy. Was terrifying, never knew if I was going to wake up, constantly crying. I've had my little girl now and I'm due to stop taking my injections but my health anxiety is through the roof, I went to a&e today and they said everything seems fine and I'm on blood thinners so I probably don't have another pe, but since coming home I'm slowly struggling to breathe and I can't tell if its my anxiety or not :( feel like my life is over and I'm going to die young :( I hate it, especially not having the reassurance and being told nothing can reduce the risk 😢
🙏
It’s sad because of pregnancy we go through risks . Being a woman is such a disadvantage. I wish women won’t have any birth complications at all
Exactly how I feel. This has been the worst experience of my life .
I have a pulmonary embolism. Scary shit. I have autoimmune diseases and they hate me lol. But now I'm so scared. I'm 36 was diagnosed yesterday of a PE . It says online you can day 3 months to a year after diagnosis. I keep trying not to cry. Terrified. It's my son's birthday in two days and he is afraid I'll die on his bday. Idk what to expect or what to do. Just worried.
How's yr health right now.
If it was that serious your Dr. Would of admitted you to the hospital. If it's a small clot then they tend not to be a big deal. I have 117 in both lungs and legs currently and spent 16 days in the icu and just got out 6 days ago
@@cass6474How are you doing now? I was just diagnosed yesterday with multiple clots in my lungs. They have me two shots in my tummy and started me on Apixaban and sent me home. I’m so scared.
Hi Chrissie, I am on warfarin medication for life after suffering with multiple blood clotts on the lungs resulting in pulmonary embolism, around seven years ago now. Can I ask do you take warfarin medication and if so how do you get on with it ? I live a normal life but do very occasionally get out of breath, especially when walking up any inclines. Also have the odd anxious moment but keep a very positive outlook and go about everyday life as normal.
Best wishes for the best of good health, happiness, wellness and wellbeing.
Michael.
@nki Genuinely very sorry to hear of the sad loss of your stepfather.
Warfarin is extremely dangerous as the PE.
Elaquis is the best blood thinner switch to that if possible
21 when i went to the er to find 36 clots affecting both lungs. 23 now and still barely recovered.
How on earth are you alive
@@WronTon
I don't know. My hemotologist never could find a definite cause. The only thing that hasn't been tested for is lung cancer.
I'll just quote what my doctor had told me, when he said, "I don't usually like to push my beliefs on anybody, but in my personal opinion, I think God has a plan for you."
This was after explaining the size range of blood clots. That on one end you'd never know it was there, because it's too small to detect, to you wouldn't know it's there because, if it were you'd be dead. He said most of mine, were on the, "you'd be dead" side, with two of them that he suspected to be infarctions.
He then gave me stories of the only two times he had to step away and take a breather in the 5 years he worked as an emergency responder, which were when he responded to two different call, from which two close friends of his died from pulmonary embolisms. One of which died on the way to her, and the other, 5 minutes after gasping to him, "I...can't, I......can't.........breathe, then immediately going into cardiac arrest. He said that afterwards, the blood clots hat filled up both of the medics hands.
Two of the main reasons that he decided to switch professions, and become a family care physician.
Did I mention I walked into the haspital fine, all except the severe chest pain and coughing blood, and was released the next.
The hardest part in all of this, is not being able to do anything to prevent more clotting besides, taking blood thinners indefinitely, because I don't know what caused them in the first place. That piece of knowledge has really smothered any motivation, to do anything that might make myself more healthy. That and living in constant fear and paranoia of a reoccurring pe. And the people around me bewildered that im not better, and hounding me to make an effort such as, "get a job," combined with their failure to help me with anything besides barely; food, water, and contepting shelter. I don't get encouragement, just dissapointment, and expectation. I'm told what I should do, an constantly criticized for what I can do. Though nothing I ever do seems good enough. And all this is coming from direct family members. Im failing to see the plan that God intended for me, but I do regret going to the hospital that day.
Sorry to be in such a negative mindset. But all that being said, I am hopeful for the future, and have faith enough for an expected end, to power through with God's strength and merce. Good day.
@@jacobmarshall5391 oh this breaks my heart. You must feel so completely alone. My husband has little blood clots all throughout both lungs, and he is on Eiliquis, which is causing problems with his bones. Been off work since November (it is now January) and says he cannot work like this. (Easy bruising and having bone issues now)
People who don't understand things are so quick to judge. Especially family.
God DOES have a plan for you. A plan to prosper you and not to harm you. And he is already using your story to give my husband a sense of solidarity, and that is no small thing.
@@npoweh Amen, and thank you!!! Lord Jesus Christ bless you and your husband with Love, Peace, longevity, health, and prosperity, in his name, Amen, and amen!!!
Did u do any ct scan ?
Here with PE and Myxoma
How are you doing now? I’m struggling right now the doctors don’t give me a straight answer I was diagnosed last year November and was on blood thinners I recently stopped about a month ago they said they don’t see any signs of clotting but I’m having really bad episodes of whole body numbness tingling feeling like I’m going to pass out fast heart rate and facial twitching the hospital told me my co2 levels were low but that was it they gave me fluids and sent me home I have no idea what’s going on with me and I’m scared at this point.
@cheyennetorres9756 stay on the blood thinner for life honestly that's your best bet
I was diagnosed last night with 2 clots in my right lung that was caused by my birth control pills . Thank god they were small & they put me on blood thinners and have discharged me due to my blood work and bp being consistently good also bc they know it was caused by me taking the pill. I have a daughter & I could barely handle being away from her i couldn’t imagine 10 days . I’m happy to be home but still on a ton of pain , when did your symptoms /pain clear up like how soon ?
Shaye Marie Smith that's what happened to me as well and I had clots in both lungs and was kept in the hospital overnight and they had sent me home after dinner on the following day with an anticoagulant prescription.
Joanne Saltfleet I’m hoping to be off the meds soon . It was caused by my birth control pill so I had a CT recently & have to get blood work once more to make sure the clots are completely gone . Praying for quick healing 🙏🏾🙏🏾🙏🏾
My sister died of this when I was a teenager years ago.... and tonight my mom went into the hospital and was diagnosed with this too. I'm watching these vids trying to educate myself on it .... since I cant sleep. :/
How are u all doing? What meds ru on
@@brookiebiceps4743 I'm doing well thanks for asking and you?
I am on xarelto 20mg which you take once a day and only need blood tests now and again which is better than warfarin.
The black and white cat looks like Zoe the black and white cat my sister in law had with its markings who died when she was 22!
With blood clots they don't discriminate on how young or old you are.
I have PE too i was diagnosed 1 month ago im 14 and it was very painful
Can you tell the symptoms? Please
@@lilithrealm fast heart beat and pain when you take a deep breath. For me it just got worse and it couldn't breathe
@@peeyourpoo5947 thanks for sharing your experience I hope you are ok
@@lilithrealm yes I'm way better if your feeling symptoms please go to an emergency room before things get worse. PE is life threatening
Did u do ct scan ?