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Thrombosis UK
United Kingdom
Registrace 24. 10. 2014
The official youtube channel for Thrombosis UK. For more information visit our website: www.thrombosisuk.org
Coping with Panic, presented by Prof Paul Bennett
Session One, filmed June 2024
Part of the live 'coping with...' series developed by Prof Paul Bennett and Thrombosis UK to provide support and information to anyone struggling with the psychological impact of a blood clot.
This recording shares Prof Bennett's presentation, providing guidance and tips on recognising and coping with panic after a diagnosis of a blood clot.
Support sessions are available to join live, free of charge, and future meeting dates can be found on the Thrombosis UK website. During live meeting, there is opportunity to ask questions, discuss and share. Please be reassured that only Prof Bennett's initial talk is recorded.
Part of the live 'coping with...' series developed by Prof Paul Bennett and Thrombosis UK to provide support and information to anyone struggling with the psychological impact of a blood clot.
This recording shares Prof Bennett's presentation, providing guidance and tips on recognising and coping with panic after a diagnosis of a blood clot.
Support sessions are available to join live, free of charge, and future meeting dates can be found on the Thrombosis UK website. During live meeting, there is opportunity to ask questions, discuss and share. Please be reassured that only Prof Bennett's initial talk is recorded.
zhlédnutí: 138
Video
DOACs in extremes of body weight
zhlédnutí 210Před 2 měsíci
Prof Raza Alikhan and Tristan Groves discuss evidence, challenges and considerations in direct oral anticoagulation use in extremes of bodyweight. First presented at NTW'24.
VTE updates from Wales
zhlédnutí 67Před 2 měsíci
Chaired by Andrea Croft, the pane look at updates and innovation in VTE prevention and management across Wales: - VTE Guidelines and their implementation in Obstetrics & Gynaecology - a local success story, Tehmina Riaz - Standards for scanning and reporting of a DVT and PE, Dr Rhys Morris - Enhancing Patient & Carer Experience, insight by Sue Wooller - APPLE Approach to VTE Prevention in the h...
Selected Oral Poster Presentations at NTW'24
zhlédnutí 63Před 2 měsíci
Chaired by Prof Simon Noble and welcoming: Dr Ulfat Sardar & Dr Yendrila Chatterjee: - Adherence to guidelines when requesting an ultrasound Doppler for suspected DVT cases. Dr Daniel Dinarvand & Dr Andre Colindres Castillo: - Striving for Zero Adverse Outcomes: Audit and Implementation of VTE Prophylaxis Measures at St. Peter’s Hospital. Dr Jack Pryce: - Prospective VTE prophylaxis assessment ...
Challenges in diagnosis of VTE
zhlédnutí 128Před 2 měsíci
Presented by Prof Beverley Hunt OBE: - Challenges in Diagnosis Dr Matt Fay: - Presentation in primary care - Prof Catherine Nelson-Piercy: - Inadequacies of current diagnosis of VTE on non-pregnant and pregnant
Innovative modes for anticoagulation and VTE care
zhlédnutí 85Před 2 měsíci
Prof Roopen Arya chairs this session first shared at NTW'24. With presentations on: - Anticoagulation Stewardship, by Rosalind Byrne - DVT management in primary care, from Dr Matt Fay - PERT, from Dr Karen Breen
Should, and can we improve the quality of communication during consultations
zhlédnutí 40Před 2 měsíci
Prof Paul Bennett looks at aids to help communication in healthcare
Spontaneous VITT
zhlédnutí 56Před 2 měsíci
Prof Beverley Hunt OBE, Dr Sue Pavord, Dr Will Lester and Prof Marie Scully consider: A new thrombotic syndrome: Spontaneous VITT - How to recognise - How to diagnose - How to treat
VTE from a Scottish Perspective
zhlédnutí 75Před 2 měsíci
Chaired by Dr Catherine Bagot and developed in collaboration with Dr Julia Anderson, VTE from a Scottish Perspective welcomes presentations from, Dr Robert Noble, Dr Hanan Mustafa, Dr Julia Anderson, Dr Colum O’Hare, Dr Peter Douglas and Dr Catherine Bagot, looking at: - Splanchnic Vein Thrombosis - Superficial Thrombophlebitis in Pregnancy - how we treat - IVC filters, insertion, retrieval, ap...
The PERIOD Study
zhlédnutí 68Před 2 měsíci
Consultant Pharmacist, Jignesh Patel, discusses findings form the PERIOD Study.
UKCPA: Anticoagulation in Women’s Health
zhlédnutí 148Před 2 měsíci
presented at NTW'24 vc, this webinar considers the use of anticoagulation in women’s health. It is aimed at HCPs who are responsible for caring for women and/or who initiate and manage anticoagulation.The following topics will be covered:The management of heavy menstrual bleeding in patients taking anticoagulation.Advising women requesting contraception or HRT who have a history of VTE. Chaired...
New Research in VTE
zhlédnutí 135Před 2 měsíci
Discussion and update with Prof Beverley Hunt OBE, Dr Francine Heatley, Sarah Whittley, Sarrah Peerbux, Dr Dan Horner, Dr Xavier Griffin. Sharing updates on, PETs Trial, GRACE Trial, THRIVE, TiLLI and the DIRECT Study.
VTE SN: Practicalities of DOACs with case studies: considerations when selecting a DOAC
zhlédnutí 100Před 2 měsíci
Presented at the NTW'24 virtual conference, May 2024. Becs Walsh and Alexandra Butler consider, discuss and look at case studies on considerations when selecting a DOAC in VTE.
A new thrombotic syndrome Spontaneous VITT
zhlédnutí 351Před 3 měsíci
Presenters at NTW'24 discuss this newly identified condition and consider: 1. How to recognise, 2. How to diagnose, 3. How to treat. Chaired by Prof Beverley Hunt OBE with presentations from Dr Will Lester, Dr Sue Pavord and Prof Marie Scully.
Anticoagulants and Your Periods
zhlédnutí 327Před 3 měsíci
A patient information film developed by the thrombosis team at Kings College Hospital, London.
Frequently asked questions about anticoagulation
zhlédnutí 479Před 6 měsíci
Frequently asked questions about anticoagulation
DOACs in cancer associated thrombosis: Sub-group challenges and considerations
zhlédnutí 301Před 8 měsíci
DOACs in cancer associated thrombosis: Sub-group challenges and considerations
VTE Specialist Network Questions & Answers in VTE Prevention and Management
zhlédnutí 124Před 8 měsíci
VTE Specialist Network Questions & Answers in VTE Prevention and Management
THRomboprophylaxis in Individuals undergoing superficial endoVEnous treatment, study details
zhlédnutí 43Před 8 měsíci
THRomboprophylaxis in Individuals undergoing superficial endoVEnous treatment, study details
Low Molecular Weight Heparins Should Be Prescribed by Their Brand Name Techdow sponsored symposium
zhlédnutí 42Před 8 měsíci
Low Molecular Weight Heparins Should Be Prescribed by Their Brand Name Techdow sponsored symposium
News at XI Moving beyond the direct oral anticoagulants, Masterclass
zhlédnutí 131Před 8 měsíci
News at XI Moving beyond the direct oral anticoagulants, Masterclass
Supporting training and practice in venous thromboembolism (VTE)
zhlédnutí 141Před 8 měsíci
Supporting training and practice in venous thromboembolism (VTE)
Masterclass: Venous Thromboembolism and Gender-Inclusive Women's Health
zhlédnutí 112Před 8 měsíci
Masterclass: Venous Thromboembolism and Gender-Inclusive Women's Health
MDT case studies in lower limb thrombosis - haematology and vascular surgery perspectives
zhlédnutí 94Před 8 měsíci
MDT case studies in lower limb thrombosis - haematology and vascular surgery perspectives
Diagnosis and management of DVT and PE with case studies
zhlédnutí 325Před 8 měsíci
Diagnosis and management of DVT and PE with case studies
Masterclass with Dr Jean Connors: New Learning in Cancer Associated Thrombosis
zhlédnutí 198Před 8 měsíci
Masterclass with Dr Jean Connors: New Learning in Cancer Associated Thrombosis
Diagnosing VTE in Same Day Emergency Care: how rapid point-of-care testing can improve patient care
zhlédnutí 335Před rokem
Diagnosing VTE in Same Day Emergency Care: how rapid point-of-care testing can improve patient care
The real struggle in the UK is how to get a doctor to stop saying "its just anxiety". I am having symtoms of PE but getting knowhere because my GP and A&E are all saying its Anxiety and sending me home. I think I need to actually almost die before the y do actual tests.
Hello i develope dvt with pe after giving birth and i took a medicine for 3 month but there is no result so i start enoxaparin injection for 3 month the clot is on my left upper leg part can you help me by telling me wich exrcise is better please i beg you🙏🙏🙏🙏🙏
I live in the US and had PE twice over a 2 year period I am glad I happened upon your program seeking for an answer to the extreme exhaustion especially in the first 2 months . I fell asleep at the dinner table anywhere. This was quite new despite a history of Pulmonary hypertension Having listened to your discussion I feel extremely relieved because when I tell the physicians about my exhaustion it is dismissed as though it is almost hypochondriac in my opinion This morning I woke up feeling pretty well then here comes this low energy so I decided to search for an answer because I know I am not imagining these episodes I am a go person. This video is extremely beneficial for me. At least I am sure I am normal Thank you very much.
Thanks to this channel & team behind, for this helpful video on blood clots! I used Planet Ayurveda's supplements and saw great results. My friend also experienced fewer complications with their clots. These herbs are effective and natural! 🌿
You are right. Doctor's have their needs and objectives and patients have different needs. Also we sometimes have insights that aren't obvious: I am a 56 year old man and I had BP of 150/80 HR 90. Perhaps for some people that is normal but not for me: my resting HR is 55 and BP 125/80. I worried about the impact on my life during and after treatment. How much of my life will I have to change and is that acceptable to me?
I broke my ribs and then 2 months later I went to A&E (after visiting a walk in centre) with terrible chest pain and shortness of breath. They were laser focused on my heart. They sent me home having diagnosed costochondritis after ruling out a heart attack. A month later I visited my GP with truly shocking chest pain - still no diagnosis so I was sent for an MRI. A week later I was in A&E having coughed up blood: even then the doctor had to push to get me a chest CTPA scan. Only then was I diagnosed with multiple bi-lateral PE and pleural effusion. I had calf pain, not long after breaking my ribs, that felt like cramp. This continued on and off since.
As somebody who is prescribed Apixaban 5mg x2 daily for life long since 2021 I have never had anybody throughout the NHS have any interest in monitoring me once. Any time I’ve asked questions I’m told there is no concerns using Apixaban. Thankfully your video has made me realise I’m being lied to again by so called doctors as you say there’s no studies into it so is there any wonder if the NHS couldn’t even care to document a patient they advised to take such ‘medication’
Good bless dr imenherbal on CZcams imen for help me cure my heart disease❤
GaslightthepublicUK
Imperial College London, really you want the public to listen to these liars post covid injections?! 🙄 We see you.
it was a very useful lecture and both of you are stunning. thank you so much for your information
Could someone please do a video for just men with APS?
I broke my ankle 2 weeks after the AstraZeneca vaccine. I then got bilateral PE's 2 weeks after that. My GP refused to consider that the vaccine could have played a part, but reluctantly agreed to give the Pfizer for the 2nd vaccine. Is there any way of knowing? Many thanks
@debby3959. if you can email admin@thrombosisuk.org they will be able to discuss with you
Can I please ask your help and advice on my own personal situation as I can not find anybody at the NHS . I had a myocardial infarction at 42 years old. Then stupidly had the AstraZeneca that caused unprovoked extensive bilateral pulmonary embolism. Been on Apixaban ever since but GP surgery’s keep ignoring all my requests for help. Diagnosed again with Worsening Bilateral PE. Current GP fails to even document my health and I’ve shown no improvement in 3 years . Centre chest pain is now constant and gets really bad at times. Bpm 160 at rest . Blood ox 78 . Can walk 25 metres then can’t breathe. I know my body can’t keep this up yet I’ve no help Please I need advice
Hi - can you email admin@thrombosisuk.org and they will be able to reply
Shame that nobody did reply
@@JL-ui5xl we did reply - please email admin@thrombosisuk.org who will be able to discuss your questions with you
Absolutely nothing was said to me by anyone after blood clot diagnosis, after pricedure for stent placement. Nothing. I was 80. Alone. Scared. Nothing said about how I might exercise or continue to live alone. Thank you for your help and educafion. .
my bro has been released from hospital and he still has clot in lungs. what exercise he can do to get rid of the clot?
Thank you so much! I am recovering from a CVST and I am getting weaker by the minute...
Please contact me .
SO after having ITP 4 weeks after C19 Vax, my hemotoligist has said probable cause, Ive looked through my records and cant find a P4 test, this was back in March 2021
I was given no information. I left the hospital not knowing if I could exercise or be active. Thanks for making this video.
It's the diagnosis from "medical professionals " with the oh you have pulled a muscle, it's a muscular injury... like yeah I never did anything to do that, but hey you know best right, well actually no, you do not, 2 times I was misdiagnosed and both times had a P E ... more training and listening to the actual patient! People die because of lack of care and knowledge!
thank you so much xx I wish you well and am grateful for all the help in blood clotting
Thank you 😊
الجنة تحت أقدام الأمهات ….طاعة ماما وبابا يصدق كل كلام ماما لأنهم ببيبقوا متفقين
Thank you very much for all the advice given. As a post DVT patient I was afraid how should I start doing exercises. But you smart ladies gave me the confidence and guidance to get on the track once again overcoming the anxiety. Thank you so much.❤❤
Some doctors can be useless. I had what seemed like a heart attack. I was sweating and gasping for air, my body was paralyzed almost. I had been very stupid thinking it was something eaten so I didn't call an ambulance but went to my cardiologist the following day. He did an ECG and ultrasound and said I was all good. I continued working for a month but with chest neck and arm pain till one night I had an episode that almost killed me. I called the ambulance but because of lack of oxygen the operator could not make what I was saying, I could not even walk to open the door for the ambulance team. Once at the hospital, I was diagnosed with a big PE on both lungs. I was told this was very serious I was in ICU for almost 2 weeks. I'm still having palpitations and some pain. Conclusion if you have pains in your chest and breathing issues insist that you see a pulmonologist and cardiologist.
I was diagnosed with blood clots throughout my body and three pulmonary embolisms in October of 2023. I lost my job due to my health. Now, I have to use a shower chair and a walker to get around. I run out of breath very easily. I'm from the US, and they told me the only treatment for me is a blood thinner. I've tried to tell them my condition is worse, but they don't listen, so I've accepted my fate.
No, this is not your fate.. you decide your fate.. be proactive- be up to date with newest knowledge on your conditions.. be up to date with new medical technology… critique your health and improve it every sec, min, days, months, years… neverthelesss give up on your fate, best of luck
Thanks. That’s really helpful. I have a couple more questions eg flying long haul on DOACs and natural alternatives to DOAC. What’s the best way to raise these?
Hi @Paul, please email annya@thrombosisuk.org who will be able to help you with further questions.
Important topic which is not really discussed with patients if my own experience is typical. I had a DVT 2022 and the subject of PTS was not discussed with me nor the measures I could take to best avoid it. This needs to change.
Exactly the same happened with me. Every person who has suffered a DVT should be given this advice and then be offered a Duplex Vein Mapping Scan. I lost eight years of my life suffering the same leg ulcer and only being offered compression hose. I was and still am an extremely fit and athletic runner, yet I still suffered with venous leg ulcers. I no longer suffer them because if the procedures I had at a specialist vein clinic in London. I hope you got all of my other comments because they’re all disappearing from my end 👍🏼
Thanks eve.@@eveoakley6270
Great Job by Thrombosis UK
I believe APS is super undiagnosed
🌹 Promo*SM
Thank you so much
our video is very beautiful. I like it a lot. I have been trying to talk to you for a long time. I am waiting for your response. Please give me a chance to talk to you. I am a professional digital marketer and CZcams marketing expert.👍
I was just diagnosed with PE 5 days ago after a 15-hour flight. When I got home, 8 hours later, I had the worst pain in my left chest. It hurt every time I breathe in. Went to the hospital and did a CT scan and they found peripheral pulmonary embolism. I am now discharged and they put me on anticoagulant. Doing good so far.
It's so hard to see anyone who gives updates on them I had one a year ago I'm on blood thinners but I hope I get to live a full life!!!😢
Thank you very much. Back to gym Gradual approach is the way. Playing safe from kitchen cutting and chopping Anxiety killed me. Advantage is I was active at.
Bless you my mother had a severe stroke. She had had a clot in her leg when young. More knowledge within the medical field needs to be done.
Im currently in recovery at home. I got out of hospital last Wednesday after 7 days in hospital. Im 27 and have no health problems. It was a complete shock when I got taken to hospital and told me I have two massive clots in my lungs. They said if I didn’t come in that day it would of been a different story. Im feeling a lot better but it still does not feel real to me even after being discharged.
Sorry to hear. I hope you’re doing well. Please do get diet consultation and follow it. That way foods can’t make it worse.
Thankyou so much 💓 this video is very helpfull 😊
Great lecture.Hopefully a cure will be discovered for post-thrombotic syndrome.
Coming back to watch these presentations 4 months later and wow! The wealth of knowledge/information here! Thank you so much for this!
Thank you ladies. I was just diagnosed with a blood clot in my leg and did not yet know what to do to get stronger. This was very helpful.
Hi Paul, I suffered an unprovoked pulmonary embolism 4 years ago and whilst I haven’t had a panic attack I do have significant problems with concentration , memory loss and generalised anxiety to the point where I experience a heart flutterings. Could these long term symptoms be common years after the PE?
I have Bilateral PE's. I have a heaps of clots in my right lung, and "only" a couple in my left lung. It's such a struggle and has caused me so many extra health problems on top of that.
Can you share the extra hard problems? My family member was diagnosed with the same and I want to know what to be careful for. Thank you
@@toralora Firstly, I'm so sorry that your family member has been diagnosed with this. I wish them well and a speedy recovery! 💙 Well, I personally have a heart related issue now because of it. I had to have oxygen masks and tubes in regularly. Shortness of breath has been an issue during and after. I got fluid on the chest & lungs and needed it all drained out (which was the most painful thing I've ever experienced) I still experience pain, and have some lung damage from both the clots and the draining procedure. If I think of anything else, I'll add it. I hope that helps! 🙏🌺
@@sarahsalsa2461ur age???
5:00 Clear and concise explanation.
I lost 4pregnancis because noone in UK wants to help me. I had one baby only because doctor from Poland gave me medicines I needed. So how come in Manchester someone can show you what to do and how when you in a risk group and I went through all this miscarriages and they didn't do anything even when I told them about conditions
Hi dear ..... I'm in the same situation I had 3 miscarriage.. can you please tell me what medicines Dr gave you and help to have a healthy baby
Did you take injection on daily basis
@@madhusharma243 hi a have them now to try because I did find out about trombophilia. Before I had clostilbegyt, luteine and something else
I was in the situation so I translated my test results from private clinic abroad and took them to the GP and told them about my condition and they recorded it and referred me to a consultant who gave me the treatment and monitored me during pregnancy.
Nice that this gentleman understands that people with post-thrombotic syndrome often slip through cracks medical care.
Impressive Presentation
15:27 Absolutely. This is a serious condition that shouldn't always be treated with out-patient strategies.
I am 42. Diagnosed with lupus and other 4 autoimmune diseases. I had a DVT this is how I found I had lupus cause I almost die . A year later I got a hysterectomy done because I have chronic hemorrhages and I was anemic . Now that I am quite balance in terms in health I am gaining a lot of weight . And have low levels of ESTRADIOL AND ESTRONE I can’t get HRT my hematologist said is not safe due to my DVT. But my primary doctor said he is in disagreement that is not fair for a woman to live with hormones imbalance. But now I don’t know what to do . Sometimes I lose hair my weight is increasing I hope for a good alternative
Lupus here too and hysterectomy