So popular opinion, I would PAY for ya’ll to date. Nothing to do with CF just well matched. Also, the understanding of CF helps ❤️GIVE THE CROWD WHAT WE WANT hahaha
I laughed when Stephi mentioned people suggesting KETO to cure CF. God those people are irritating. Keto is NOT a cure all. We need to stop pretending it is
@@sinjon people think a cure is to go on a diet, but that’s not the case. Like, stop saying that. You’re not a doctor. Even though some doctors are dumb.
I’m so glad you and her met I know there going to be those people who don’t have cf say 6 feet apart rule but this is a decision they both made I have cf and I would do the same thing if I had my own choices to make
This is such a cool story... I had been following Stephi for a while... so glad she found someone to travel with... you guys seem awesome together... looking forward to new posts...
Hi! I'm a 7th grader who has done multiple projects on CF for school and I have been watching your channel for a while and it has really helped me. I hope you both live long, happy and healthy lives. You both have beautiful thoughts on life, living your lives the best way for you (and you only) regardless of what others think. Have a wonderful day/night and stay safe! 😁
I concur, Thank You Vertex. From a CF mom who understands everything that you guys have gone through and still go through. Hopefully Trikafta will be available soon all over the world. I’m so so happy for the both of you. 💜
I never probably would have come across your channel if it wasn’t for Stephi, may you both have many wonderful adventures both separate and together 🌺❤️🌺
Holy crap, I love you both so much individually but having you two together is way better! Like mashed potatoes AND gravy...happy thanksgiving to you guys and please continue to make content together!🙌🤟🏾✌️
If Trikafta helps so much now, will iit keep working the same indefinitely? Or is that something you can't really know yet? I love how you two are so comfortable with each other, that must feel so nice for both of you!
That’s currently a bit of an unknown. So far, barring any complications, Trikafta has kept working for people that have been on it since compassionate care. But, you never know. Just gotta live and enjoy it and if it happens, cross that bridge when we get there. Life’s too short to worry about the “what ifs” especially now. ❤️
It's so fascinating how much in common you got with others that struggles with chronic deceases, tho ^^ How you get through the day to day-basics, the ability to just don't care about others who misjudge you, that focus on just listening to your body, the motivations in the hard times and the ability to appreciate the things that matters and others forget...and so on... We all get put in categories by the society and doctors, but man... people who have gone through hell and back and just keeps on fighting have much in common... more than we think of on the daily basis. Thanks for being so open about everything...There is so much to learn from you two lovely humans ^_^ Best wishes and regards from Norway ^_^
Y'all look really good together! He reminds me of Charlie puth! And steffy's is just a doll!! I'll pray for y'all to have a good long and happy life together! Be careful on the road. Stay safe and take care.
I wish Claire had lived long enuf for this treatment. I hate that she died juuuust before it came out . It’s so unfair & I keep her alive in my heart always. ❤️
Stephi I just love this collab and love your videos!! You are so beautiful and have the most soothing voice!! I have a question. I understand how scary it is to not be able to breath!! I have COPD. I'm only 51 and I can not walk 30 feet without having to do a breathing treatment!! My quality of life is horrible! I can't leave my apt cuz I am never sure if I can get back inside. Does Trifecta help COPD patients?? I'm so happy for you both being able to live your lives!! Oh and he's not only adorable but super sweet!! 😊❤️ Much Love and Respect!! ❤️ Oh I just realized this is HIS channel!!!!!!😂 Well I'm embarassed!!😂 YOU JUST GAINED A NEW FOLLOWER!!!!!!! 😊 If you could answer my question if you know I would appreciate it!! ❤️
I think the best thing for my cf and health in general was keeping it in the back of my mind rather than in front. Unlike you, not so sure about Stephanie, but I didn't go to the hospital for the first time until I was 14 and in my first year of highschool. I've never met anyone else with cf because 1 I'm not a huge group guy I suppose and 2 I guess I never felt like I needed to reach out to anyone else really. I never really held myself back and when anyone tried too I wouldn't listen so I was always active when I was a kid until about the time highschool started, so I was playing kickball and football with kids from school during and after at the park everyday keeping up with everyone. I think that's the biggest advice I'd give someone with CF is don't slow down until you have positively too, make sure you take your meds and do what makes you happy because you never know when you wont
As for me, with my spina bifida, I'd rather someone ask politely and let me decide whether to answer or politely decline, rather than assume one way or the other; I'd much rather answer a question than have to be stared at, and if it's too invasive, I can say that too.
He is absolutely right it's definitely your gallbladder.. I had mine out cause it was only working at 9% and I was in so much pain.. and it took them 9 months to figure out what it was.. have. Hideascan if the pain comes back!!
If your gallbladder isn't working though it's much better to keep it there even if it's not working well. It's there for a reason. You might feel better having yours out but that's not going to be the right thing for most people. With no gallbladder there is constantly bile being secreted into your digestive system even when there is no food and that can lead to much more problems so it's not good to advocate for other people to have theirs taken out
I understand the need to not live life in fear of everything. But the issue with Covid19 unlike something like CF is that it affects the whole community. So I think it's important every person is as careful as feasibly possible in order to not inadvertently harm others. Two CF patients can hang out if that's their individual choice, but if we as a country ignore Covid precautions then we are endangering essential workers and others that have no choice.
We’re staying in a van 2ft from each other, so wearing a mask around each other is pretty pointless. But, we take tons of caution when out at stores and in busy places, especially if the place is a hot spot. We have like a combined 20 masks in the van and many many bottles of sanitizer and other things. We’ve been doing the mask and distance thing for 30 years (well, 26 for her) when in hospitals, so no worries! We got this. But I completely agree with what you’re saying. ❤️
@@MorganSolo That makes a lot of sense! I just wish everyone else would follow those same precautions you're taking as well. I'm just a little frustrated with the Covid19 response in general in the US.
Really glad to see and hear how well ur doing! I‘m really looking forward to trikafta as in my country they still are in the process of getting it approved which sucks. I‘m getting nuts knowing that it sits in the shelfs, waiting for some paperwork to be done.. How about lung bleedings, you had any since taking it?
I don't have CF. I had come across Stephi because of her travelling videos and then your's popped up as a suggestion. I really am enjoying these collabs now. Feel free to post a hair tutorial if you go the dread route.
I have had heart palpitations, and I take beet powder...haven't had one in three years. You can juice beets but it gets messy after awhile so beet powder in so much neater lol...beets beets beets....shaped like a heart for a reason 🧡
Think it must of been meant to be you two finding each other weither it's amazing friend ship or that and more what matters is you guys are there for each other enjoying life wish you both long happy successful full of adventure life thank you for sharing your journey 🧡
Just a question, curiosity might have killed the cat. But can’t two CF people end up killing each other? I’m all for what you two do, honestly! I love the fact that you guys are beating the odds.
Next time you and morgan are back in the Carolinas I'll make some vegan chili to properly introduce you to it. Also, Morgan has owed me 60 second recipes worthy meal for like 5 months.
My son has a genetic condition (not CF) and I agree it is so annoying when people suggest vitamins, a vegan diet, keto etc. It won’t switch off the faulty genes 🧬🤦🏻♀️🤬
It's also nice to be friends tho More freedom, less stress, less problems, less complications No attraction, true bond not driven by hormons So why stressing them guys Just let them be
People are so curious about illness and other things too I’ve got a rare genetic disorder that affects the development of all smooth muscle tissue which causes aneurisms in my arteries and other chronic complications if you ever herd about Jon Ritter he’s the most famous person with ACTA2, I watch stephs CZcams too
I have a brain tumor. My own mother literally said I should use Himalayan salt 🤣🤣🤣 I just fkn can’t with people. I’m like, “Mom. I cook with that shiz all the time. I would have been cured by now. “
penguin is the real star of this video
Positive vibes☮ and hugs🤗 from Cynthia on the Coast of Oregon!!☔♥️😁 #davesandersstepdaughter
Stephi your gorgeous and your smile is contagious! 🌹
I use to have so many tech decks back in the day omg!
hahaha :)
You're welcome to dread my hair. I live in North Carolina lol
I hate to be that annoying person because I know you guys are just friends but like... omg you guys are so cute together 😍
My thought too!!
Just friends? Noooo way!
So popular opinion, I would PAY for ya’ll to date. Nothing to do with CF just well matched. Also, the understanding of CF helps ❤️GIVE THE CROWD WHAT WE WANT hahaha
How much we talkin here? Cause you’d have to pay her a small fortune to deal with me 😂
What wonderful timing that trikafta came along before this pandemic. So glad you and so many others are doing so well.
Spamdemic Scamdemic Eugenics.... CF on the other hand is real and not anything similar to how we have renamed flu in the spamdemic
I laughed when Stephi mentioned people suggesting KETO to cure CF. God those people are irritating. Keto is NOT a cure all. We need to stop pretending it is
I’ve heard it for coeliac disease. I mean Coeliacs and CF are genetic diseases. How dumb can people be?
Yeah, that’s just dumb. I mean I think it would help some, but it’s obviously not going to cure it
@@hennessygarciahg it helps in that not having so much sugar thins the mucus some, but yeah definitely not a cure
@@sinjon people think a cure is to go on a diet, but that’s not the case. Like, stop saying that. You’re not a doctor. Even though some doctors are dumb.
They suggest it as a cure for type 1 diabetes (aka the autoimmune disease that is often diagnosed in children)
I’m so glad you and her met I know there going to be those people who don’t have cf say 6 feet apart rule but this is a decision they both made I have cf and I would do the same thing if I had my own choices to make
This is such a cool story... I had been following Stephi for a while... so glad she found someone to travel with... you guys seem awesome together... looking forward to new posts...
I ship it. I ship it hard. (love from a Stephi subscriber)
I kinda do too 🥰
I’m down for the ship. 🥰💓
HECK yes!
I ship tf out of this
We just need MORE Stephi and Cystik.
The vibe is immaculate in these videos! It’s fun 🖤
Hi! I'm a 7th grader who has done multiple projects on CF for school and I have been watching your channel for a while and it has really helped me. I hope you both live long, happy and healthy lives. You both have beautiful thoughts on life, living your lives the best way for you (and you only) regardless of what others think. Have a wonderful day/night and stay safe! 😁
You guys are so sweet together! Love one another and live life!! Woot!
I concur, Thank You Vertex. From a CF mom who understands everything that you guys have gone through and still go through. Hopefully Trikafta will be available soon all over the world. I’m so so happy for the both of you. 💜
I never probably would have come across your channel if it wasn’t for Stephi, may you both have many wonderful adventures both separate and together 🌺❤️🌺
You two are super cute together. Stay strong. A great friendship
New sub from Stephi’s channel here. This is such a chill video. You’re both very down to earth
Holy crap, I love you both so much individually but having you two together is way better! Like mashed potatoes AND gravy...happy thanksgiving to you guys and please continue to make content together!🙌🤟🏾✌️
I think we are all thinking the same thing, but if they want to be friends. Just let them be friends :))
I see sparks
I'm so happy you found each other!!
He is in love with you just after 3 days and I don’t blame him. You are the sweetest thing ever.
You can tell right after she said “what’s up guys I’m here let’s do it” he looked at her like damn that was cute as hell.
So glad Stephi has a traveling buddy! We shall see where it goes.
Just incredibly HAPPY THAT YOU N STEPHI ARE TOGETHER .
THIS WAS SUPPOSED TO HAPPEN.
If Trikafta helps so much now, will iit keep working the same indefinitely? Or is that something you can't really know yet? I love how you two are so comfortable with each other, that must feel so nice for both of you!
That’s currently a bit of an unknown. So far, barring any complications, Trikafta has kept working for people that have been on it since compassionate care. But, you never know. Just gotta live and enjoy it and if it happens, cross that bridge when we get there. Life’s too short to worry about the “what ifs” especially now. ❤️
@@MorganSolo ❤💜💙💚💛🧡☮☮☮☮☯☯☯☯☯ MAKE SURE YOU STICK WITH STEPHI. YOU TWO WERE SOOOO MADE FOR EACH OTHER
Follow you both, Glad you guys got to hang out.
You guys are so cute together! Stay safe and healthy on your journeys!
Nice to see Stephi happy, whatever you did keep doing it.
Love the dark humor 😂😂 please don’t every stop that because that’s what makes us. 6ft under is the perfect movie sequel
Coming from Stephi's channel.. you two are amazing... keep being amazing and follow your dreams..
Recommended! And I follow stephi and have been for a long time, happy to find you now too!
It's so fascinating how much in common you got with others that struggles with chronic deceases, tho ^^ How you get through the day to day-basics, the ability to just don't care about others who misjudge you, that focus on just listening to your body, the motivations in the hard times and the ability to appreciate the things that matters and others forget...and so on... We all get put in categories by the society and doctors, but man... people who have gone through hell and back and just keeps on fighting have much in common... more than we think of on the daily basis. Thanks for being so open about everything...There is so much to learn from you two lovely humans ^_^ Best wishes and regards from Norway ^_^
I lost my cousin and nephew from CF. Glad you guys are doing good.
I thoroughly enjoyed watching this 😀
Two of my favorite youtubers i have been following almost since the beginning🖤 stay u guys☀️
So happy for u two, modern medicine is amazing
Hell yes you are RAD af Stephi and your man's pretty damn cool too! So happy for you two!!
Just glad you guys are thriving
Y'all look really good together! He reminds me of Charlie puth! And steffy's is just a doll!! I'll pray for y'all to have a good long and happy life together! Be careful on the road. Stay safe and take care.
We live in Florida and chili is definitely a religious experience. Once the weather starts to cool down, we have chili about once a week!
Great couple! Stephi,so happy 4 u.💟
I have Sarcoidosis and my Dad always told me to run a few miles and I would feel better. 🙄 30 years later and the only way I run is in my dreams.
There's ONE bed in that van...... where do you think he is sleeping? On the floor???
Of course they are "togetherl".
Get it Steffi!!!!
Under the bed in the hobbit hole.
I wish Claire had lived long enuf for this treatment. I hate that she died juuuust before it came out . It’s so unfair & I keep her alive in my heart always. ❤️
Helen Murphree (below) made a very good point. I can’t imagine you guys going through this pandemic without first having been saved by Trikafta.
YOU GUYS ARE GREAT TOGETHER,TAKE CARE AND HAVE FUN LIFES TO SHORT
Love ya brother!! You are a great person and compliment to Stephi!! Have fun with the Queen of Cool!!
I have MS somebody told me garlic could fix me.i was like nope lol
MS here also
Gralic wont. But thiamine, lots of sunlight, grounding, magesium and methylene blue might.
Ms here aswel
Stephi brought me here! 😁
I went school with cf person all so and had bunch of people in my community that had cf we all hung out
Stephi I just love this collab and love your videos!! You are so beautiful and have the most soothing voice!!
I have a question. I understand how scary it is to not be able to breath!! I have COPD. I'm only 51 and I can not walk 30 feet without having to do a
breathing treatment!!
My quality of life is horrible! I can't leave my apt cuz I am never sure if I can get back inside.
Does Trifecta help COPD patients??
I'm so happy for you both being able to live your lives!!
Oh and he's not only adorable but super sweet!! 😊❤️
Much Love and Respect!! ❤️
Oh I just realized this is HIS channel!!!!!!😂
Well I'm embarassed!!😂
YOU JUST GAINED A NEW FOLLOWER!!!!!!! 😊
If you could answer my question if you know I would appreciate it!! ❤️
Came over from stephi
Such a great video. So happy for you guys! ❤
I would love seeing you both as a couple 🤩🥰
Very insightful and fuuuunnn!! Happy for you guys!💜
They are so cute. Im probably a lil biased since Ive followed stephie for years and I absolutely love her, but I like seeing them together.
I think the best thing for my cf and health in general was keeping it in the back of my mind rather than in front. Unlike you, not so sure about Stephanie, but I didn't go to the hospital for the first time until I was 14 and in my first year of highschool. I've never met anyone else with cf because 1 I'm not a huge group guy I suppose and 2 I guess I never felt like I needed to reach out to anyone else really. I never really held myself back and when anyone tried too I wouldn't listen so I was always active when I was a kid until about the time highschool started, so I was playing kickball and football with kids from school during and after at the park everyday keeping up with everyone. I think that's the biggest advice I'd give someone with CF is don't slow down until you have positively too, make sure you take your meds and do what makes you happy because you never know when you wont
U guys are legit sweet. Enjoying u both.
Yes I watch Ms Stephi.
As for me, with my spina bifida, I'd rather someone ask politely and let me decide whether to answer or politely decline, rather than assume one way or the other; I'd much rather answer a question than have to be stared at, and if it's too invasive, I can say that too.
This is too cute 😍
So happy for you guys!!
More please! Thank you. 🤗🤗♥️♥️
Love this video! Come to California!!!! I also have CF and in the clinical trial for trikafta (crazy it just for extended for 2 more years!!)
i love this video - you two are so authentic! and I love your long sleeved T-Shirt!
Yay..New Sub... now my life is complete! Congrats on all the amazing NEW MILESTONES both of u get to experience ;)
He is absolutely right it's definitely your gallbladder.. I had mine out cause it was only working at 9% and I was in so much pain.. and it took them 9 months to figure out what it was.. have. Hideascan if the pain comes back!!
If your gallbladder isn't working though it's much better to keep it there even if it's not working well. It's there for a reason. You might feel better having yours out but that's not going to be the right thing for most people. With no gallbladder there is constantly bile being secreted into your digestive system even when there is no food and that can lead to much more problems so it's not good to advocate for other people to have theirs taken out
I understand the need to not live life in fear of everything. But the issue with Covid19 unlike something like CF is that it affects the whole community. So I think it's important every person is as careful as feasibly possible in order to not inadvertently harm others. Two CF patients can hang out if that's their individual choice, but if we as a country ignore Covid precautions then we are endangering essential workers and others that have no choice.
We’re staying in a van 2ft from each other, so wearing a mask around each other is pretty pointless. But, we take tons of caution when out at stores and in busy places, especially if the place is a hot spot. We have like a combined 20 masks in the van and many many bottles of sanitizer and other things. We’ve been doing the mask and distance thing for 30 years (well, 26 for her) when in hospitals, so no worries! We got this. But I completely agree with what you’re saying. ❤️
@@MorganSolo That makes a lot of sense! I just wish everyone else would follow those same precautions you're taking as well. I'm just a little frustrated with the Covid19 response in general in the US.
Also I'm glad to see you're doing well. I've been following your channel for some time. ♡
Really glad to see and hear how well ur doing! I‘m really looking forward to trikafta as in my country they still are in the process of getting it approved which sucks. I‘m getting nuts knowing that it sits in the shelfs, waiting for some paperwork to be done.. How about lung bleedings, you had any since taking it?
Your a great person, super cute and kind. Love the video!
Came from steffi channel you both are great together
I don't have CF. I had come across Stephi because of her travelling videos and then your's popped up as a suggestion. I really am enjoying these collabs now. Feel free to post a hair tutorial if you go the dread route.
💜soft hugs 🤗
They have cf like me
Yall are so cute together ;)
Love yall!! O
Stephi Lee rules teach others that they can be just as strong we are all powerful
Here i am for part 2!
Cool pup
Omgggg y’all need to be together 💕
Ahh my two fave people how cute ❤️
Until your blue in the face double entendre
8:13 are you in love? Yes! Yep! 100%! ❤️
Explain pimento cheese and grits. Lol
I have had heart palpitations, and I take beet powder...haven't had one in three years. You can juice beets but it gets messy after awhile so beet powder in so much neater lol...beets beets beets....shaped like a heart for a reason 🧡
you two are funny
The worst thing i ever got told for EDS and GP was just try essential oils lol
omg im so sorry
Ugh! I hate it when people try to sell you things as a cure all. It’s mostly all BS
Just wanted to say hi since I also have EDS and co.
How do you both feel about the covid 19 vaccine? Will you get the shots? Is it recommended by your CF doctors?
I dated 2 people with cf and I have cf and had a double lung transplant
It's CRPS awareness month :)
Think it must of been meant to be you two finding each other weither it's amazing friend ship or that and more what matters is you guys are there for each other enjoying life wish you both long happy successful full of adventure life thank you for sharing your journey 🧡
Just a question, curiosity might have killed the cat. But can’t two CF people end up killing each other? I’m all for what you two do, honestly! I love the fact that you guys are beating the odds.
She mentioned that the medicine eliminated some of the strainsvin her lungs thst might have infected him
thanks for the sharing(answers) hopefully each time we see ya from here on out, they'll be a new dread each time...lol
She didn't know what chili is????
Don’t know how that’s a thing. People in the north eat chili too
i knew it existed but didnt know what it was made of hahaha
Next time you and morgan are back in the Carolinas I'll make some vegan chili to properly introduce you to it. Also, Morgan has owed me 60 second recipes worthy meal for like 5 months.
damn stephi is shy ;)
My son has a genetic condition (not CF) and I agree it is so annoying when people suggest vitamins, a vegan diet, keto etc. It won’t switch off the faulty genes 🧬🤦🏻♀️🤬
Two unsolicited opinions: 1. no more dreads on you! 2. You guys should be together forever.
It's also nice to be friends tho
More freedom, less stress, less problems, less complications
No attraction, true bond not driven by hormons
So why stressing them guys
Just let them be
People are so curious about illness and other things too I’ve got a rare genetic disorder that affects the development of all smooth muscle tissue which causes aneurisms in my arteries and other chronic complications if you ever herd about Jon Ritter he’s the most famous person with ACTA2, I watch stephs CZcams too
She is such a sweet girl take care of her she never responds to me on any of my replies on her page but let her know I think she's awesome 👍
Naaaa........i follow my my own foot steps .....but like the van
I wanted to leave positive comments on his videos but he has comments turned off! But both of your videos are amazing I love learning from you ❤️
Only on some. Most are still commentable.
I have a brain tumor. My own mother literally said I should use Himalayan salt 🤣🤣🤣 I just fkn can’t with people. I’m like, “Mom. I cook with that shiz all the time. I would have been cured by now. “