Awful to think how there’s probably people out there stuck in a. Psychiatric Ward knowing they shouldn’t be in there. And every time they might try to insist they shouldn’t be there, they are not psychotic and they need a specialist doctor they are dismissed as being delusional. Friends & family have come to terms with them being mentally ill, and they’re just left to deteriorate & die in a psych ward.
The clock test is such a BASIC congnative assessment test the fact that no one besides Doctor Najjar thought to do it really shows how appallingly neglectful the American medical system is.
Literally if anyone would have ordered a speech therapy or occupational therapy eval at any point, like what happens routinely in rehab hospitals, it would have been spotted. I'm a speech therapist and I have people drawing clocks almost every day.
We still have a lot to learn about NMDA encephalitis. Doctors need to listen to their patients and family. It's so misdiagnosed and it's scary. It is a terrifying disease because the diagnosis is often late. I'm so glad the movie "brain on fire" is spreading awareness and bringing it to light. I have done research on NMDA encephalitis and the statistics are scary, it affects mostly women in their adolescent. In saying that it is often misdiagnosed due to the presentations such as self harm, hallucinations and personality disorder. We must keep on fighting and being educated in this particular illness and keep helping young women.
My GF is currently suffering to this disease. :'( She is positive with Anti NMDAR encephalitis and is still in treatment. I really hope she recovers. I miss her so much. There will be a minute where she recognizes me and smiles at me then goes blank again. :'(
MissBlackKitty1997 how did you recover? I am in a psych ward. I am taking rexulti strong psych meds but it’s not the cause, what caused it was going off my previous psych meds risperidal 3 to 2.5. I have chronic brain inflammation now for 8 months. What’s the steps to get diagnosed. I have court tomorrow, this is real and I am wondering what’s the medication they give? Can you respond ASAP?
@@YoungBuddha as far as I know i was diagnosed with a lumbalpunktur, spinal fluid, and got a special type of chemo called rituximap? + lots of stuff to keep me alife. I do not have Any memory going through Any of this, but My family and boyfriend kept a journal during My blackout
Hey Susannah... Im so glad you are well and recovered... 👍💕That doctor deserves an award. I work in a specialist neurology ward that covers all of Scotland and we get cases of anti NMDA receptor encephalitis.. Its frightening for the patients and family and as a psychiatric nurse aswell as Im dually qualified it scares me to think how many must have went undiagnosed years ago and many lived there days in psychiatric facilities.. Im so glad more is known about it now and getting diagnosed as early as possible is crucial to a full recovery. I am so glad that Doctor was there and used his knowledge to test for the condition. 😊Loved the movie brain on fire 👍
At 7:45 seconds the male anchor person seems to suggest that mental illness is separate from and different from physical illness. Mental illness is physical illness. Mental illnesses, like schizophrenia and bipolar disorder, are medical conditions that are treated with medications that alter the brain's neurochemistry in order to correct the proportions of certain neurotransmitters active in various areas. Conditions like schizophrenia and bipolar are physically characterized by an abundance or lack of dopamine in different areas of the mesolimbic and mesocortical pathways. The same goes for clinical depression and generalized anxiety disorders. While I have enjoyed Susannah's book, I feel that there is a desperation to differentiate her condition as a separate thing from "mental illness". I can acknowledge that it is different from a physiological perspective. However, Susannah's book contains allusions to alyssums and "One flew over the cookoo's nest" references that simply reflect continued ignorance about mental illness. The fact that her parents were initially terrified that she might be admitted to a psych ward again confirms that some people just can't move past the stigma. MENTAL ILLNESS is PHYSICAL ILLNESS. Just like when a diabetic patient has too much glucose in the blood, mental illness is when there are too many or too few neurotransmitters at various receptor sites. Mental illness is not something that a person can fix by simply working on the "wellness" or personality. Although i found this story to be fascinating, there was an opportunity here to not just spread information about anti-NMDA-receptor autoimmune encephalitis… but to perhaps also raise awareness about mental illness and help break down the stigma.
Natalie Holden Maybe her parents knew she was physically ill and the symptom-treatment medications that are typically given to those with "mental illness" would not save her life.
I have moyamoya disease. The movie had so many similar moments & memories for me. The scene with the dripping sink. I had a freak out after neurosurgery in the hospital claiming I could hear water dripping from the ceiling that no one else was hearing.
This is actually incredibly revolutionary, another book called Infectious Madness by Harriet Washington speaks on this specific theme that mental illness is simply our brain with a flu in the same way bacteria makes us have a cold sometimes bacteria can affect the brain which will have psychiatric representation. I feel incredibly sad for Alllllllllllllll those people who this type of disease has inflicted who are in psychiatric wards or dead due to a misdiagnosis 😓
After a TBI I had to fire my family practice for refusal to send me further up the line to neurological care and advanced imaging. If I had stayed, the new doctor would have thrown myle in a psyche ward for not accepting her misdiagnoses. She had the nerve to question me about why I was blaming my post-traumatic symptoms on the brain injury rather than complications from medication I was taking in order to work after some previously acquired serious work injuries. The movie made me cry. She is such a strong lady, but I must also say that if you do not have top-notched insurance with cataclysmic coverage and family with good heads and hearts to insist on proper care you will be misdiagnosed and thrown away. Her parents are CHAMPS ! Head injuries and brain conditions are supposed to be subjects of funny entertainment and sadistic sports anomalies to be overlooked in society. It is a good thing she has good parents !
I watched the movie. Thought the relationship of the two parents working together was interesting, even though they were divorced. Good that the office staff at the New York Post recognized that Suzannah had an illness and shouldn’t be fired. I would have liked to see a scene of what the brain biopsy showed. So interesting how the mechanism of this new disorder is now understood because of the work of neurologists, pathologists, immunologists, and affected patients.
Pretty much this EXACT same thing happened to me this time last year. I'm now nearly completely recovered from ADEM Encephalitis. Still too scared to watch "Brain on Fire." Too real..
I don't blame you, this is so scary! Jesus will help you face and overcome those fears tho. He can Set you free from them if you ask. Much love to you!
I'm a kid and I've already been diagnosed but I'm working to find the right treatment. I was diagnosed with P.A.N.S. and the difficult thing about it is that there's very few doctors who understand it. Some don't even believe in it and think you're flat out crazy like they thought for this girl. Luckily I found a doctor who understands it. Some think that it's a form of Encephalitis. Either way it comes from an infection that goes untreated for a little while such as, strep throat or lymes disease. It causes the immune system to attack the brain just like this. It affects a part of the brain where OCD and anger are. Causing you to have OCD, tics, and agitation episodes. At one point I went into a catatonic state for a few days which the doctors couldn't explain. These things are a long process and it's sad to think of how many of these people get put in a psych ward or something.
the doctors never knew what was wrong with my mum, she had similar symptoms.. they diagnosed her with "CJD" n told us there was no hope.. she died in a nursing home months later. so scary n sad to think it could've been something like this & she could have been saved..
Sarah McFly it did stay true to the story but I also felt like I was watching a lifetime movie. My sister has this exact strain of encephalitis and seeing it on the screen was crazy because it was spot on to how she was. She was undiagnosed and misdiagnosed for two months. My moms friend is the one that found this disease after searching online for weeks. Literally the craziest thing ever
Doctors love to blame psychological issues, alcohol, drugs, and partying when they cant find a real reason. They tried this crap with me for 6 years until I gave up on them coming up with a diagnosis and I researched and identified my own problem. I had CRPS and presented on day 1 with symptoms anyone familiar with this condition could have diagnosed.
I saw something about a boy on Facebook, then someone mentioned brain on fire, so I watched the trailer for the film and then I've ended up here. Woh what a journey 😂😂😂 anyway.... What an amazingly interesting story. Can't wait to watch the film.
sweet haaart can u email me and I'll give u my phone number so I can talk tI you more about it. Long story. If u want. My email is childofGod42980@gmail.com
Sorry to hear. I have also had a traumatizing experience with an illness very similar to anti-NMDA called acute porphyria. What I went through haunted me for awhile but I've learned that time heals.
Credit goes to parents who did everything, from pressurizing doctors to denying psychiatric ward to get their child back to life I live in India , such a poor country Doctors took 4 years to detect brain dysfunction because of Anemic hypoxia In those 4 yrs they gave me antidepressants to treat anxiety n depression Lol Value of life in India is zero If you are not rich , then you are going to suffer n die
What meds are you on or diet .. did you have similar symptoms.. I have 12yrs with so called organic cognitive issue but I too was healthy than I’ll like her .. chronic migraines debilitating bs sesiours .. and had flashing of light in vision 24hr’s ... she got ill sprout the sam yr I did
I came here because my lecturer asked me to watch brain on fire on Netflix as we just learned encephalitis. But I don't have Netflix, so I search in CZcams. Hahaha.
Very similar has happened to me too... I was very fearful all of the time and wanted to kill myself even in front of the family few times and in the hospital. I am still having PTSD from the psychiatry gard they have put me in for 2 weeks and after the hospital I still had nightmares and few times I was waking in the middle of the night or couldn't sleep alone. I hope it will get better. I had lost my job too and my boss was like Susanna's pretty harsh in the end and didn't care about the illness really.
I think I have encephalitis but had a normal mri. Just like susanah. Posted this by the way.. This is how I feel Right now I'm in crisis zone to be honest😭 I have chronic pain everywhere that's getting worse and worse every day and every hour, also including my sickness too. I can barely type because I don't have the strength and it hurts. I can't sit up or hold my head and neck up and went from walking too not even being able to sit up etc in a short amount of time.. I have visual and auditory hallucinations that cause me to freak out I'm moody and sometimes aggressive and uncontrollable and now can't stop swearing My memory is progressively getting worse and so is my mood and mental health Frequently crying Lack off sleep but on zopiclone No meds working Incontinent with number 2 Had to have a catheter because I can't go for a wee Random shaking Dizzy Painful eyes and barely have the energy too open them. Painful when shut too Can't talk properly and forgetting what I say. Feeling unusually hot, yet normal temperature Aggitation Possible seizures Fainted several times Lathargic Loose more and more energy every day Technically mute or selectively mute. Get angry every time I talk Uncontrollable anger Not feeling safe Feel invisible Suicidal No patience Getting angry at anything and anyone Sensitive to light Amplified senses Tinitus Paranoia Neck pain Unstable in dark when I could walk Third time I can't walk and every time gets worse Intense internal itching down below Severe depression Anxiety Rare chromosome deletion called 2q37.3 Autism Anorexia Bpd (supposedly) Ahlos-danlos syndrome Neorologist did reflex tests and found my reflexes over working because my right leg suddenly started shaking. He thought it was the link between my legs and brain weren't working properly. Normal mri I'm at loss with these symptoms and I'm seriously at crisis point as I can't deal anymore. 😭 I thought I had encephalitis, but not looking like it now 😑.. They now think its a mitochondrial problem... Don't think so though :(
I show symptoms:/ .. idk how to get the help .. don’t have much support of love ones she luck to have you .. I’ve been living with symptoms since Susan got ill .. wondering if it was something trending in foods that lead to it .. so weird
Based on what I have seen in hospitals and ICUs in the US, doctors that have studied oversees are far better at diagnosing illnesses that American graduates.
Just seen this video as my daughter aged 34 was a carer at ninwells hospital and has been a carer for 19 years and exact same happened to her they have eventually dignosed her with encephalitis NMDA and is getting put on steroid this week I’m praying she gets a full recovery this has been a scary painful frightening time for her and our family as we knew she was a normal happy young woman’s and then to some one who was taking seizures fainting then in and out of confusion then eventually never really knew us then angry like Tourette’s talking hands going just starring at us .it is the saddest thing and feeling of helplessness so praying this world just want to say this needs to be researched my daughter is still in hospital and has this today 14 march2022 praying she recovers she is on steroid drip hoping it helps
See this is the difference between American doctors and doctors outside of the US. The IMGs/FMGs think and look outside the box. This is why it's so important to hire physicians from other countries, because they have been trained to diagnose quickly without the confusion that American doctors have.
I'm in Ohio Ann's I'm going thru this but the drs and hospitals won't listen to me they just think I'm either a druggie or crazy and I'm not either. The way I'm feeling physically and the brain feeling like is on fire and my spine and just everywhere is making me feel anxiety & paranoia and nobody will help me I'm REALLY afraid I don't want to die or end up brain dead. Please help.
I watched the movie and certain parts of it were at bit funny the disease of course isn’t funny but some the acting is just so good. (I’m saying like when she was jumping on the office table)
My step-dad had this it was his months of madness he had the exact same symptoms and misdiagnosis' we only realised that he wasn't the only one with Brain on Fire
+digitalmediafan Yes, it was terrifying seeing him like that and I remember the dinner where he started talking in tongues and said he was going blind.
My brother is in hospital right now im really worried not sure what to do or go..he has similar symptoms and doctors haven’t found anything yet. Any suggestions?? Please
Somehow you need to get in contact with Doctor Souhel Najjar who diagnosed this lady...www.northwell.edu/find-care/find-a-doctor/neurology/dr-souhel-najjar-md-11363999
6:06 The right side of your brain actually doesn't control 100% of your left visual field. The optic fibers are half-crossed meaning that the fibers are both ipsilateral and contralateral therefore resulting in your left hemisphere to control the left and right visual fields and your right hemisphere to also control the left and right visual fields. That's not even including myers and barums loop that include the temporal and parietal lobe that control the inferior and superior visual field. I don't believe the drawing of her clock had much to do with the visual field but a form of cross connections with the corpus callosum within her brain.
Allison Rowley I'm actually one year away from graduating with my Ph,D in Cognitive Neuroscience. So I'm not a doctor quite yet, but I would say pretty close!
sandra dearing The male, Phil Schofield, won't have had a clue what mono is as we don't use that term at all that in the UK, we call the disease glandular fever, I had never heard of mono either so had to Google what we call it in the UK
does anybody know of the Dr name that helped her, I believe my sister has this she has the same symptoms as her, and the drs. that she is going to cant find anything.
I would love to know prior to this episode whom she meant and what new experience she encountered. My theory more then the doctors diagnosis’s is this young lady had an encounter with the Jinn.. believe it or not there are other existences’s that live amongst us.The good and bad spirts..ok the doctor may have diagnosed this through his works, and steroids for the receptors for in her brain, but the majority of deaths in this transit life is down to these jinns.. Whether one decides to believe or not is their choice, but I am pleased she has recovered.. The truth will eventually come to surface..
Multiple sclerosis is another type of autoimmune disease that attacks the brain. Instead of inflammation it causes lesions (basically holes) in your brain.
Who came here from brain on fire (Netflix) 🙋
MisisAlva Madison Me its so good
Me!
This movie was powerful, I had to watch it 4 times already on Netflix. Will this movie be available on DVD or BluRay???
I watched the movie then I found out that my school had her book and I read it
Mee
It should be called "Najjar Illness" so people will remember the clock drawing that Dr Najjar asked her to draw. Amazing. Bless him.
@Isa Tailor whatever
He is Syrian Doctor
Nah I had it before her it should be named after ME!
@@KathrynwithaY narcissist
@@sorayawhetung8661 Oh really? And I couldn't possibly have been joking? 🧐
Scary to consider the number of people with conditions such as this who have been misdiagnosed.
Or not diagnosed at all and just died :(
There are millions of us.
Number one assumption of people around the patient is that he or she is Possessed 🤤
Doctors think they God. They need to know that them not finding a diagnosis doesnt means there there isnt anything there to find.
Awful to think how there’s probably people out there stuck in a. Psychiatric Ward knowing they shouldn’t be in there. And every time they might try to insist they shouldn’t be there, they are not psychotic and they need a specialist doctor they are dismissed as being delusional. Friends & family have come to terms with them being mentally ill, and they’re just left to deteriorate & die in a psych ward.
The clock test is such a BASIC congnative assessment test the fact that no one besides Doctor Najjar thought to do it really shows how appallingly neglectful the American medical system is.
Literally if anyone would have ordered a speech therapy or occupational therapy eval at any point, like what happens routinely in rehab hospitals, it would have been spotted. I'm a speech therapist and I have people drawing clocks almost every day.
the doctor who wrote down 2 bottles of wine instead of 2 glasses of wine a day should be dismissed!
Definetly...
He's doing worst case. In the book, it says that doctors inflate it because people lie about their vices.
I’m so glad she spoke out and went public. My wife has this and it’s so scary and you just can’t help. Bless her soul for doing this.
Is your wife in recovery?
I have this
Dr.Suhil Najjar deserves much more appreciation
The doctor who solved her problem is Arabic Syrian his name is sulail najjar Syrian doctors are so famous in the world
Salamos Othman the best
Suhail Al Najjar from Syria yes
Incredibile
Dr. Souhel Najjar graduated from Syrian university in Damascus , I am very proud of you Doctor Najjar
هوى دكتور وليس دكتوره وهوا من سوريا
Glad to see she’s recovered and is very knowledgeable about the disease, a very sharp woman
Used to work for this doctor. Really great guy, and thorough.
I just finished her book. Everyone should read this book!!!!
I did, but who s gonna help me in a small town where they havent even heard about it, and the millions like me...
Does it say how she was treated?
Yes! As good as the movie is it just can't capture her brilliant writing ..
@@Pursuit4happiness It is a very through book and yes it does but can't remember the medical names..
We still have a lot to learn about NMDA encephalitis. Doctors need to listen to their patients and family. It's so misdiagnosed and it's scary. It is a terrifying disease because the diagnosis is often late. I'm so glad the movie "brain on fire" is spreading awareness and bringing it to light. I have done research on NMDA encephalitis and the statistics are scary, it affects mostly women in their adolescent. In saying that it is often misdiagnosed due to the presentations such as self harm, hallucinations and personality disorder. We must keep on fighting and being educated in this particular illness and keep helping young women.
İ am so thankful to God she is fine.. happy for her...Love from Syria.
I'm also from Syria
From Aleppo ...
Her doctor was syrian who saved her life
Hope you are doing ok take care
@@mes6945 ممكن الترجمة لو سمحت
I watched brain on fire and it’s so realistic.
My GF is currently suffering to this disease. :'( She is positive with Anti NMDAR encephalitis and is still in treatment. I really hope she recovers. I miss her so much. There will be a minute where she recognizes me and smiles at me then goes blank again. :'(
How is she now?
Is she okay now? x
I recovered from this myself a little more than a year ago, if you need to talk, let me know.
Hope your girlfriend is on her way to back ❤️
MissBlackKitty1997 how did you recover? I am in a psych ward. I am taking rexulti strong psych meds but it’s not the cause, what caused it was going off my previous psych meds risperidal 3 to 2.5. I have chronic brain inflammation now for 8 months. What’s the steps to get diagnosed. I have court tomorrow, this is real and I am wondering what’s the medication they give? Can you respond ASAP?
@@YoungBuddha as far as I know i was diagnosed with a lumbalpunktur, spinal fluid, and got a special type of chemo called rituximap? + lots of stuff to keep me alife. I do not have Any memory going through Any of this, but My family and boyfriend kept a journal during My blackout
Hey Susannah... Im so glad you are well and recovered... 👍💕That doctor deserves an award. I work in a specialist neurology ward that covers all of Scotland and we get cases of anti NMDA receptor encephalitis.. Its frightening for the patients and family and as a psychiatric nurse aswell as Im dually qualified it scares me to think how many must have went undiagnosed years ago and many lived there days in psychiatric facilities.. Im so glad more is known about it now and getting diagnosed as early as possible is crucial to a full recovery. I am so glad that Doctor was there and used his knowledge to test for the condition. 😊Loved the movie brain on fire 👍
I was in tears watching the movie
Very happy with Susanna's sweet recovery and wishing her a happy family life
Great thanx to the doctor who saved her life!
At 7:45 seconds the male anchor person seems to suggest that mental illness is separate from and different from physical illness. Mental illness is physical illness. Mental illnesses, like schizophrenia and bipolar disorder, are medical conditions that are treated with medications that alter the brain's neurochemistry in order to correct the proportions of certain neurotransmitters active in various areas. Conditions like schizophrenia and bipolar are physically characterized by an abundance or lack of dopamine in different areas of the mesolimbic and mesocortical pathways. The same goes for clinical depression and generalized anxiety disorders. While I have enjoyed Susannah's book, I feel that there is a desperation to differentiate her condition as a separate thing from "mental illness". I can acknowledge that it is different from a physiological perspective. However, Susannah's book contains allusions to alyssums and "One flew over the cookoo's nest" references that simply reflect continued ignorance about mental illness. The fact that her parents were initially terrified that she might be admitted to a psych ward again confirms that some people just can't move past the stigma. MENTAL ILLNESS is PHYSICAL ILLNESS. Just like when a diabetic patient has too much glucose in the blood, mental illness is when there are too many or too few neurotransmitters at various receptor sites. Mental illness is not something that a person can fix by simply working on the "wellness" or personality. Although i found this story to be fascinating, there was an opportunity here to not just spread information about anti-NMDA-receptor autoimmune encephalitis… but to perhaps also raise awareness about mental illness and help break down the stigma.
+Natalie Holden So very true. Exactly my thoughts!
Why do doctors and insurance companies continue to treat the brain as tho its not a part of the body!!??
Natalie Holden thank you thank you thank you
Its Philip Scholfield the presenter. Its just a job for him, he couldnt careless aslong as his multi million pound salary is being paid
Natalie Holden Maybe her parents knew she was physically ill and the symptom-treatment medications that are typically given to those with "mental illness" would not save her life.
I have moyamoya disease. The movie had so many similar moments & memories for me. The scene with the dripping sink. I had a freak out after neurosurgery in the hospital claiming I could hear water dripping from the ceiling that no one else was hearing.
This is actually incredibly revolutionary, another book called Infectious Madness by Harriet Washington speaks on this specific theme that mental illness is simply our brain with a flu in the same way bacteria makes us have a cold sometimes bacteria can affect the brain which will have psychiatric representation. I feel incredibly sad for Alllllllllllllll those people who this type of disease has inflicted who are in psychiatric wards or dead due to a misdiagnosis 😓
After a TBI I had to fire my family practice for refusal to send me further up the line to neurological care and advanced imaging.
If I had stayed, the new doctor would have thrown myle in a psyche ward for not accepting her misdiagnoses. She had the nerve to question me about why I was blaming my post-traumatic symptoms on the brain injury rather than complications from medication I was taking in order to work after some previously acquired serious work injuries.
The movie made me cry. She is such a strong lady, but I must also say that if you do not have top-notched insurance with cataclysmic coverage and family with good heads and hearts to insist on proper care you will be misdiagnosed and thrown away.
Her parents are CHAMPS !
Head injuries and brain conditions are supposed to be subjects of funny entertainment and sadistic sports anomalies to be overlooked in society.
It is a good thing she has good parents !
I'm soo happy we had a syrian Muslim doctor near her in NY who was able to help her fully recover.
I'm just glad she had a good doctor! Doesn't matter whether Muslim, Syrian, Caucasian etc People are people!
فخر لي سوريا والعرب الدكتور سهيل نجار ♡
I watched the movie. Thought the relationship of the two parents working together was interesting, even though they were divorced. Good that the office staff at the New York Post recognized that Suzannah had an illness and shouldn’t be fired. I would have liked to see a scene of what the brain biopsy showed. So interesting how the mechanism of this new disorder is now understood because of the work of neurologists, pathologists, immunologists, and affected patients.
Pretty much this EXACT same thing happened to me this time last year. I'm now nearly completely recovered from ADEM Encephalitis. Still too scared to watch "Brain on Fire." Too real..
I found it hard to watch so I would maybe avoid for now.
I don't blame you, this is so scary!
Jesus will help you face and overcome those fears tho.
He can Set you free from them if you ask.
Much love to you!
HUGS!
Thank you! i was diagnosed with Myasthenia gravis auto immune disease watching your movie has been a massive inspiration.
Very interesting to watch and her book was amazing to read, from a nurse's perspective. Amazing.
Great book, beautifully written by Susannah:) Glad to see she's doing well
God bless her. What a Miracle
Ughh just came from Netflix movie 6 stars and just finished her fire book **BRAIN ON FIRE** and it is powerful!!!
An immune therapy should be tried on people with Schizophrenia if they show the same symptoms than patients with Susanah's condition.
Big pharma wont allow it.
@@mk698 why?
I am big pharma and I want to see some good studies on it, there is a lot of treatment resistant diseases presenting as schizophrenia.
I just watched the movie and now i cant wait until i get the book
Incredible & very brave lady! Just seen the film Brain on Fire
She is exactly like the girl in the movie
Just a bit
Out of all the bad things that could happen to someone their brain being destroyed has to be the worst
So Proud to be Syrian... Good Bless Syria ✌🏻✌🏻
I'm a kid and I've already been diagnosed but I'm working to find the right treatment. I was diagnosed with P.A.N.S. and the difficult thing about it is that there's very few doctors who understand it. Some don't even believe in it and think you're flat out crazy like they thought for this girl. Luckily I found a doctor who understands it. Some think that it's a form of Encephalitis. Either way it comes from an infection that goes untreated for a little while such as, strep throat or lymes disease. It causes the immune system to attack the brain just like this. It affects a part of the brain where OCD and anger are. Causing you to have OCD, tics, and agitation episodes. At one point I went into a catatonic state for a few days which the doctors couldn't explain. These things are a long process and it's sad to think of how many of these people get put in a psych ward or something.
Thank God she's OK eventually.
That dr. Is brilliant
the doctors never knew what was wrong with my mum, she had similar symptoms.. they diagnosed her with "CJD" n told us there was no hope.. she died in a nursing home months later. so scary n sad to think it could've been something like this & she could have been saved..
This is not rare it’s rarely diagnosed
The fact that it took many doctors to find out what it was??? Is is a rare disease, that is why doctors didn't know what it was
Its not rare its newly discovered and 85% of thr doctors havent even heard it.
The new Netflix film really stayed true to the story! Check it out, it's called Brain on Fire.
Sarah McFly it did stay true to the story but I also felt like I was watching a lifetime movie. My sister has this exact strain of encephalitis and seeing it on the screen was crazy because it was spot on to how she was. She was undiagnosed and misdiagnosed for two months. My moms friend is the one that found this disease after searching online for weeks. Literally the craziest thing ever
briannaashley94 wow that is fascinating. Thanks for replying. How was it for you going through that? What did you suspect was wrong with her?
Also read the book!!
I watched it when it was psychology lesson. We trained to diagnose her with something. And it wasnt easy tho....
Is there a way to find out more about this illness and therapy?
شكرا د سهيل النجار بارك الله لك /والحمد والشكر لله/
Doctors love to blame psychological issues, alcohol, drugs, and partying when they cant find a real reason. They tried this crap with me for 6 years until I gave up on them coming up with a diagnosis and I researched and identified my own problem. I had CRPS and presented on day 1 with symptoms anyone familiar with this condition could have diagnosed.
Yes so true. Doctors are fairly useless .Many have diagnosed themselves for a long time now and successfully not just with this condition I mean...
I saw something about a boy on Facebook, then someone mentioned brain on fire, so I watched the trailer for the film and then I've ended up here. Woh what a journey 😂😂😂 anyway.... What an amazingly interesting story. Can't wait to watch the film.
My daughter experienced this same thing!!
How is she now?
How is she now ? Hope she's well now
My gf just recovered from this.
THANK MY GOD
Can you ask her and tell me how you recover from it?
lunarrequiem is it through surgery
Marilyn Bahoura she talks about curing it from 7mins in
I'm glad she did.
I had it the same exact disease, it is really really scary till this day am still really scare it is really traumatic .
LaShawna Blanton please tell me are u alright
sweet haaart can u email me and I'll give u my phone number so I can talk tI you more about it. Long story. If u want. My email is childofGod42980@gmail.com
Ask for a lumbar puncture. It will show signs of infection if you have it. They'll send you for an MRI after that.
Sorry to hear. I have also had a traumatizing experience with an illness very similar to anti-NMDA called acute porphyria. What I went through haunted me for awhile but I've learned that time heals.
I was diagnosed with this in January. I cant believe i found another person with it.
Credit goes to parents who did everything, from pressurizing doctors to denying psychiatric ward to get their child back to life
I live in India , such a poor country
Doctors took 4 years to detect brain dysfunction because of Anemic hypoxia
In those 4 yrs they gave me antidepressants to treat anxiety n depression
Lol
Value of life in India is zero
If you are not rich , then you are going to suffer n die
Wow, that's so sad. I hope you are doing better! You are in my thoughts 😕🙏
I hope your doing well
What meds are you on or diet .. did you have similar symptoms.. I have 12yrs with so called organic cognitive issue but I too was healthy than I’ll like her .. chronic migraines debilitating bs sesiours .. and had flashing of light in vision 24hr’s ... she got ill sprout the sam yr I did
So many people out there have something like this.
Watching the movie now 👍🏻
My aunt has been diagnosed with this (bridget wells) and I'm trying to find out more about it
the movie is so awesome you should watch it
It is and I did !
I came here because my lecturer asked me to watch brain on fire on Netflix as we just learned encephalitis. But I don't have Netflix, so I search in CZcams. Hahaha.
I can’t imagine how tired she would be of repeating the same things to so many interviewers
My 3 year old son have this.. We are in the hospital as we speak. I would love to talk with her about this and if she could help me
Phenom Facemob how are you and your son doing? Praying for you 💕
انه الطبيب السوري العظيم سهيل نجار فخر سوريا والعرب
Very similar has happened to me too... I was very fearful all of the time and wanted to kill myself even in front of the family few times and in the hospital. I am still having PTSD from the psychiatry gard they have put me in for 2 weeks and after the hospital I still had nightmares and few times I was waking in the middle of the night or couldn't sleep alone. I hope it will get better. I had lost my job too and my boss was like Susanna's pretty harsh in the end and didn't care about the illness really.
Terrible what happened Susannah! And that doctor is an eminence!
Me gustaria leer ese libro en estuviera en espanol mi sobrina esta pasando por esa enfermeda
Susannah is beautiful
Moms always know their children.
I think I have encephalitis but had a normal mri. Just like susanah.
Posted this by the way.. This is how I feel
Right now I'm in crisis zone to be honest😭
I have chronic pain everywhere that's getting worse and worse every day and every hour, also including my sickness too.
I can barely type because I don't have the strength and it hurts.
I can't sit up or hold my head and neck up and went from walking too not even being able to sit up etc in a short amount of time..
I have visual and auditory hallucinations that cause me to freak out
I'm moody and sometimes aggressive and uncontrollable and now can't stop swearing
My memory is progressively getting worse and so is my mood and mental health
Frequently crying
Lack off sleep but on zopiclone
No meds working
Incontinent with number 2
Had to have a catheter because I can't go for a wee
Random shaking
Dizzy
Painful eyes and barely have the energy too open them. Painful when shut too
Can't talk properly and forgetting what I say.
Feeling unusually hot, yet normal temperature
Aggitation
Possible seizures
Fainted several times
Lathargic
Loose more and more energy every day
Technically mute or selectively mute. Get angry every time I talk
Uncontrollable anger
Not feeling safe
Feel invisible
Suicidal
No patience
Getting angry at anything and anyone
Sensitive to light
Amplified senses
Tinitus
Paranoia
Neck pain
Unstable in dark when I could walk
Third time I can't walk and every time gets worse
Intense internal itching down below
Severe depression
Anxiety
Rare chromosome deletion called 2q37.3
Autism
Anorexia
Bpd (supposedly)
Ahlos-danlos syndrome
Neorologist did reflex tests and found my reflexes over working because my right leg suddenly started shaking. He thought it was the link between my legs and brain weren't working properly.
Normal mri
I'm at loss with these symptoms and I'm seriously at crisis point as I can't deal anymore. 😭
I thought I had encephalitis, but not looking like it now 😑..
They now think its a mitochondrial problem... Don't think so though :(
I pray you're getting the right treatment for this rare condition.... this needs medical attention
my daughter is recovering from auto immune encephylitis very scary
Prayers for her comfort
How is she now?
I show symptoms:/ .. idk how to get the help .. don’t have much support of love ones she luck to have you .. I’ve been living with symptoms since Susan got ill .. wondering if it was something trending in foods that lead to it .. so weird
Based on what I have seen in hospitals and ICUs in the US, doctors that have studied oversees are far better at diagnosing illnesses that American graduates.
Just seen this video as my daughter aged 34 was a carer at ninwells hospital and has been a carer for 19 years and exact same happened to her they have eventually dignosed her with encephalitis NMDA and is getting put on steroid this week I’m praying she gets a full recovery this has been a scary painful frightening time for her and our family as we knew she was a normal happy young woman’s and then to some one who was taking seizures fainting then in and out of confusion then eventually never really knew us then angry like Tourette’s talking hands going just starring at us .it is the saddest thing and feeling of helplessness so praying this world just want to say this needs to be researched my daughter is still in hospital and has this today 14 march2022 praying she recovers she is on steroid drip hoping it helps
How would think be compared to Migraine Encephelopathy?
The Doctor is SYRIAN
His name Suhail Al Najjar
Also Steve Jobs father is Syrian
It’s really weird seeing this morning without holly 😕
See this is the difference between American doctors and doctors outside of the US. The IMGs/FMGs think and look outside the box. This is why it's so important to hire physicians from other countries, because they have been trained to diagnose quickly without the confusion that American doctors have.
Why 30 people don’t like this interview?!!!
Respect to the Syrian Arab doctor Dr Suhil Najjar ❤️
I'm in Ohio Ann's I'm going thru this but the drs and hospitals won't listen to me they just think I'm either a druggie or crazy and I'm not either. The way I'm feeling physically and the brain feeling like is on fire and my spine and just everywhere is making me feel anxiety & paranoia and nobody will help me I'm REALLY afraid I don't want to die or end up brain dead. Please help.
Ask for a lumbar puncture. It will show signs of infection if you have it. They'll send you for an MRI after that. God bless, you'll be okay. x
LaShawna Blanton How are you doing today? I hope everything is okay and that you got help
LaShawna Blanton Way PllmzndieieieuskkssskdmkdddsszmsmsnhshshzzhsyzzgZbnnnsnzznnnshaajajsajpjz
C
C
I
Makqqqkqer Lynn was e
@@lisandranazario745 Are you better now?
LaShawna Blanton Make the doctors and nurses watch the movie- BRAIN ON FIRE and these interviews!!!
I watched the movie and certain parts of it were at bit funny the disease of course isn’t funny but some the acting is just so good. (I’m saying like when she was jumping on the office table)
Movie coming out!
My step-dad had this it was his months of madness he had the exact same symptoms and misdiagnosis' we only realised that he wasn't the only one with Brain on Fire
Sadie Whittington but he was diagnosed correctly eventually ?
+digitalmediafan Yes, it was terrifying seeing him like that and I remember the dinner where he started talking in tongues and said he was going blind.
Sadie Whittington Yes a nightmare for you all but he's 100% ok now ?
+digitalmediafan Yes he's back to normal again now thank you
My brother is in hospital right now im really worried not sure what to do or go..he has similar symptoms and doctors haven’t found anything yet. Any suggestions?? Please
Somehow you need to get in contact with Doctor Souhel Najjar who diagnosed this lady...www.northwell.edu/find-care/find-a-doctor/neurology/dr-souhel-najjar-md-11363999
how s your brother now is he ok Don herculano sanchez 100%oaxaqueño
6:06 The right side of your brain actually doesn't control 100% of your left visual field. The optic fibers are half-crossed meaning that the fibers are both ipsilateral and contralateral therefore resulting in your left hemisphere to control the left and right visual fields and your right hemisphere to also control the left and right visual fields. That's not even including myers and barums loop that include the temporal and parietal lobe that control the inferior and superior visual field. I don't believe the drawing of her clock had much to do with the visual field but a form of cross connections with the corpus callosum within her brain.
CaptiN __ ok Dr. CaptiN
Allison Rowley I'm actually one year away from graduating with my Ph,D in Cognitive Neuroscience. So I'm not a doctor quite yet, but I would say pretty close!
Who gives a shit??!!
Delicate information is important to be accurate.
It’s crazy to me how horrible some doctors are. Thankfully she found an incredible one!
I just watch this movie on Netflix and I cried through the entire thing. This is so relatable! I wonder what type of steroids she took?
Susannah look so Much like ashley benson
Wow
Because we do not know much about mental illness, that is the issue here.
Watch brain on fire it’s a great film
Najar is the real life dr house
Amen
they are talking for her
That doctor is the real life House
some of the worst interviewers ever. The male is clueless to what mono is...and interrupts often. He continues to read from his own invisible script.
sandra dearing The male, Phil Schofield, won't have had a clue what mono is as we don't use that term at all that in the UK, we call the disease glandular fever, I had never heard of mono either so had to Google what we call it in the UK
I had no idea what mono is ... in the UK we call it glandular fever!
We in the UK don’t call it Mono we call it glandular fever , hence why he was confused.
I know what mono is and im in the UK and it is used here.The interviewers are awful I agree.
I follow tennis and the word Mono has been used countless times from uk analysts and players. So the UK do know it and what it means.
Similar situation happened to me
#ParaNeoplastic #NMDA #Encephalitis #warriors
Susan diagnosed with autoimmune encephalitis by Syrian neurologist
American-Syrian.
does anybody know of the Dr name that helped her, I believe my sister has this she has the same symptoms as her, and the drs. that she is going to cant find anything.
Suheel Al najaar.
Had something very similar happen to me from a flu shot in 2012. Lost my mind.
I didnt realise it actually happened
I have this illness. Autoimmune Encephalitis
Ur lucky to be diagnosed.
You’re so beautiful 💕
i can't draw a clock when these episodes happen. but doctors don't know this
I would love to know prior to this episode whom she meant and what new experience she encountered. My theory more then the doctors diagnosis’s is this young lady had an encounter with the Jinn.. believe it or not there are other existences’s that live amongst us.The good and bad spirts..ok the doctor may have diagnosed this through his works, and steroids for the receptors for in her brain, but the majority of deaths in this transit life is down to these jinns..
Whether one decides to believe or not is their choice, but I am pleased she has recovered..
The truth will eventually come to surface..
Does anyone know for a fact if this has anything to do with "Multiple sclerosis" ??????
Why is multiple sclerosis in quotes?????
Hazem Ammari in her book she mentions they tested her for it because of similar symptoms but nothing more
Multiple sclerosis is another type of autoimmune disease that attacks the brain. Instead of inflammation it causes lesions (basically holes) in your brain.