Support Vitiligo

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  • čas přidán 14. 09. 2017
  • Hello, I am SushAmita Pradeep (Sushmita) Jain.
    #SupportVitiligo, picturizes my experience with Vitiligo which is commonly called as white patches.
    This might be the experiences faced by many people who have Vitiligo or any skin condition which directly impacts their appearance in some or the other way. It might be considered as autoimmune. Most importantly, it’s misinterpreted/stigmatized and that’s one of the reasons I wanted to come up with something which would put forward a message that reaches out to all of you. I have given my best in gathering the facts out of my own experience. Hope it helps.
    I did not realize what Vitiligo was and did not take it much seriously as a kid (10yrs old) but I realized it was impacting my self-image in certain ways and definitely the way others looked at me or sympathized with me made me feel very low at times. I personally felt weird and funny by the way people would stare at me and pose questions for which I had no proper answer as a kid. I didn’t take it seriously but what made me serious was it was impacting my family in a certain way. My parents and brother did everything to get me cured. We also visited many religious places and offered prayers. In my family, there has been no family history of Vitiligo The people whom I have known closely were always supportive.
    Most of the times, I felt as if I was unnecessarily sympathized and after one point I couldn’t stand sympathy. I soon realized my own worth and it changed my perspective entirely. I started focusing on improving myself in every way possible and adopted new habits like cycling, meditation and swimming which gave me a lot of relaxation though am still a work in progress.
    I had unexpected life changes too. I faced rejections, stigma and I faced a very major loss. I lost my brother. What I am trying to say here is that, I have faced certain situations very closely. I felt, when I can survive certain aspects then why should I let anything bother me anyway. We all are blessed in many ways and I decided to focus on what I can do.
    I bet you, If Vitiligo wouldn’t have happened to me then I wouldn’t have been this strong of a person which I have become over the years. It gave me an entire new perspective about life and more importantly a beautiful perspective of how I look at myself and everyone around me.
    I decided and wanted to self-advocate Vitiligo. This video is very special to me and I have put a lot of effort into this. It has taken me around 3 years to implement. I am thankful to everyone who were part of this.
    Co-incidentally, I met my husband just 2 weeks after the completion of the shoot of this video and we got married within the next 6 months. He doesn't have Vitiligo. It was an arranged marriage and this exactly happened when I completely stopped worrying about anything much and my complete focus was finding what I wanted to do in my life. Everything naturally fell into place. I did have my doubts which is very natural but I kept going with a hope that everything is for a reason.
    Hope this strikes the right chord with you. This video was shot an year ago.
    To add further,
    I have undergone many treatments and my parents have tried all sorts of treatments.
    To name a few- Phototherapy (Narrowband UVB/UVA) - Partially successful in my case.
    Skin Grafting, Punch Grafting, Melanocyte Transplantation and many more treatments including Homeopathy, Ayurveda & Allopathy. Success of most of the treatments depends on an individual and varies from one person to another.
    Facts
    • Vitiligo affects around 1-2% of the world’s population.
    • Vitiligo is often mistaken with Albinism.
    • The difference in vitiligo and Leucoderma is only their onset. Vitiligo is self-generated while Leucoderma can occur after a cut, a burn or after allergy from some chemical.
    Famous Personalities who had/have vitiligo - Source (Wikipedia)
    To name a few, Michael Jackson. (“King of Pop”),Justice P.Sathasivam (23rd Governor of Kerala), Winnie Harlow (Canadian Fashion Model).
    “Life will bless you, test you and get you through many experiences just to build you, so that you can fulfill the purpose of your life.”
    For Credits, refer the video.
    Music |
    FairyTale Waltz by Kevin MacLeod is licensed under a Creative Commons Attribution licence (creativecommons.org/licenses/...)
    Source: incompetech.com/music/royalty-...
    Artist: incompetech.com/
    Green Leaves by Audionautix is licensed under a Creative Commons Attribution licence (creativecommons.org/licenses/...)
    Artist: audionautix.com/
    Italian Morning by Twin Musicom is licensed under a Creative Commons Attribution licence (creativecommons.org/licenses/...)
    Artist: www.twinmusicom.org/
    This work is licensed under the Creative Commons Attribution-ShareAlike 4.0 International License. To view a copy of this license, visit creativecommons.org/licenses/b....

Komentáře • 970

  • @queenninjabunny
    @queenninjabunny Před 6 lety +92

    This made me cry a little because I have this skin condition I get embarrassed to go out and socialise because it.

    • @sushamitasushmitasupportvi9439
      @sushamitasushmitasupportvi9439  Před 6 lety +8

      Briana Beals Hey Briana.. I do understand.. You can get in touch and also follow posts on the FB page SupportVitiligo ..it might be helpful to you

    • @saifansari5186
      @saifansari5186 Před 3 lety +7

      Try Unani medicine / homeopathy or Ayurveda for vitiligo to go frm roots. Also babchi oil application and then sunlight exposure in morning helps. Think positive. In sha Allah... U'll be fine.

    • @nipungautam6190
      @nipungautam6190 Před 3 lety

      want to connect with you mam

    • @eshasultanaeshasultana4919
      @eshasultanaeshasultana4919 Před 2 lety

      Same to me

    • @vidyadeshpande3678
      @vidyadeshpande3678 Před 2 lety

      llllllllll

  • @truptisatm3113
    @truptisatm3113 Před 5 lety +34

    My husband has accepted me.... So I wish u get someone similar who loves I for the way you r

    • @sushamitasushmitasupportvi9439
      @sushamitasushmitasupportvi9439  Před 3 lety +2

      Hello, I was married by the time this video was finally out and now I have a kid too :).
      Thank you for your comment! :) If you are a person with Vitiligo then you can join us on our support network if you are not part of any support group by messaging us to +91 9845668296 on Telegram App.
      Stay connected with us on social media 👉
      Facebook Page -
      facebook.com/SupportVitiligoSJ/
      Instagram Page -
      instagram.com/supportvitiligo?igshid=1uvxq8gxzk7kg

  • @akashtak4531
    @akashtak4531 Před 6 lety +486

    I also got vitiligo on my face and now whenever people ask me about white patches on my face I simply tell them that these are tattoos.
    I have little attitude. 😀

    • @belugaaa6649
      @belugaaa6649 Před 6 lety +15

      thats awesome man :) keep that attitude and you will go longer

    • @sahirk8795
      @sahirk8795 Před 6 lety +4

      That's great

    • @ankitjain-fb8yx
      @ankitjain-fb8yx Před 6 lety +1

      thanks

    • @ankitjain-fb8yx
      @ankitjain-fb8yx Před 6 lety +4

      bhut sundar video
      bt jeevan m bhut samna krna pdta h.
      mujhe bi h vitiligo. no married. my. contact no. 08233242751

    • @wittynatty9820
      @wittynatty9820 Před 6 lety +1

      Are you undergoing treatment bro ? I like your attitude. Be strong.

  • @oinamromila9106
    @oinamromila9106 Před 6 lety +114

    People should understand vitiligo as its non contagious and it didn't harm the body. Its not fatal and vitiligo person can lead a normal life. Its just happens due to lack of melanine.

  • @Snehapadval
    @Snehapadval Před 5 lety +102

    I have vitiligo since 7 yrs . I m beautiful the way i m . Love yourself n be confident. N stay possitive. There are people who really understands this but there are jerks too. Just ignore them n concentrate on possitive things n people. Love you all. Love myself.

    • @sushamitasushmitasupportvi9439
      @sushamitasushmitasupportvi9439  Před 5 lety +2

      Hi Sneha, you can visit SupportVitiligo. Org for more info

    • @AM-xr6iv
      @AM-xr6iv Před 5 lety

      hye sneha.Can we talk if you dont mind?

    • @apurwaranathunga2865
      @apurwaranathunga2865 Před 5 lety

      Sneha...ur words r realy powerful...it supports all 2 build their confidence...lv frm SriLanka!!!

    • @jaikumarsingh1326
      @jaikumarsingh1326 Před 4 lety

      I have a white spots in my hand and lag... You have a treatment ...you can help me

    • @nidhimalviya2011
      @nidhimalviya2011 Před 4 lety

      @@jaikumarsingh1326 narrowband is the best treatment ...I also used this treatment ..it works

  • @petbiscette8872
    @petbiscette8872 Před 5 lety +49

    Beautifully done, very informative. The actress did an amazing job in showcasing vitiligo for what it really is. Let us continue to break the chains of stigma.

    • @sushamitasushmitasupportvi9439
      @sushamitasushmitasupportvi9439  Před 5 lety +1

      Thank You :) If you are interested in volunteering for us, you can write to info@supportvitiligo.org or Telegram us to +91 9845668296.

  • @incharagowda5989
    @incharagowda5989 Před 5 lety +28

    Thanks CZcams for recommending this.... 😍😍it helps people to change their minds.. Liked it.. 😊

    • @sushamitasushmitasupportvi9439
      @sushamitasushmitasupportvi9439  Před 3 lety

      Thank you for your kind words! :) If you are a person with Vitiligo then you can join us on our support network if you are not part of any support group by messaging us to +91 9845668296 on Telegram App.
      Stay connected with us on social media 👉
      Facebook Page -
      facebook.com/SupportVitiligoSJ/
      Instagram Page -
      instagram.com/supportvitiligo?igshid=1uvxq8gxzk7kg

  • @manjunatharamakrishnappa4925

    I too have it. But if you understand this line. "You have to do the best with what God gave you" everything start changing. Your life attracted by positive things. Negativity goes away.

  • @sannidhibali3290
    @sannidhibali3290 Před 6 lety +27

    Inspirational and awesome

  • @julfahussain2050
    @julfahussain2050 Před 5 lety +6

    This so beautiful story, n I like the most, the mother who teach her daughter scars on moon.. Wow such beautiful line.. If people teach their children's good things like this way. I believe world become more beautiful n happy..

  • @ipsitadas4748
    @ipsitadas4748 Před 6 lety +89

    My mother has vigiligo on her hands, feet and back. It started when she was 6 years old. A lot of treatment has been done, it did reduce slightly but recently it is increasing all over again. This has never been a problem for me to accept since I grew up watching her living her life gracefully.
    This video reminds me of my mom and dad. They had an arranged marriage and my father didn't have any problem with the vitiligo marks. People should be more accepting towards vitiligo as it is only a skin pigmentation problem and nothing serious. The vitiligo donot define a person as there is a lot more to the person than those marks.

    • @sushamitasushmitasupportvi9439
      @sushamitasushmitasupportvi9439  Před 6 lety +4

      Ipsita Das It felt so good reading through your message Ipsita :).. I have been Kolkatta for a quite long time before. Would like to get in touch. Please do drop a message to the page SupportVitiligo

    • @ipsitadas4748
      @ipsitadas4748 Před 6 lety +1

      Hi Sushamita.. it would be nice for me to get in touch with you too. Though I am a Bengali, but I from Guwahati, Assam. I visit Kolkata once a year.
      And is the page in Facebook?

    • @sushamitasushmitasupportvi9439
      @sushamitasushmitasupportvi9439  Před 6 lety +3

      @@ipsitadas4748 Hello, yes the page is on facebook, you can message me there. I am also in the same name on FB.

    • @ipsitadas4748
      @ipsitadas4748 Před 6 lety +1

      @@sushamitasushmitasupportvi9439 I have liked your page and also sent you a friend request. It felt very good after I watched your video. It was truly one of a kind. Got to see the visual presentation of few of the struggles that my mom faced till now.. Hope you keep on encouraging people with vitiligo with every step you take. More power to you..!

    • @sushamitasushmitasupportvi9439
      @sushamitasushmitasupportvi9439  Před 6 lety +1

      @@ipsitadas4748 Thanks a ton! My pleasure :)

  • @shardul29
    @shardul29 Před 5 lety +2

    Very Nice ...i like that when Mom telling her daughter in a simple way that she'll understand ... Hope parent's should educate their children's like this...

  • @jeannelucas3132
    @jeannelucas3132 Před 4 lety +4

    May all children have a mom as insightful as the one at the beginning of this video.

  • @mishty5898
    @mishty5898 Před 6 lety +12

    Wow really was a amazing story with some of cruel cultures how it goes 😘

  • @MsHoney400
    @MsHoney400 Před 6 lety +164

    Very good video. Here is my story I am 24 years old I have vitiligo since I was 12 years old I started doing UVB and PUVA therapy I had some spots on the face and body they are all gone just my hands and feet will need more time. I got engaged 2 weeks ago to a boy whom I have been rejecting for 2 years there were also other people interested in me and they have asked for my hand. Finally, I said yes to my Fiance he is a very good and handsome man. He and his family know everything about me he is a computer science engineer. Don't be sad God kept someone special for you. I believe there will be a cure for vitiligo in just a few years. So chill focus on life.

    • @newvick06
      @newvick06 Před 6 lety +4

      Hi Angel, i also have white spots... some are light and some are visible more... i thought its tinea verse and tried selsun but didn't worked and its neither vitilgo. Still don't know what is it and its not there on much visible areas. Nothing on face or on fingers etc. Its on my back and arms, legs area... i feel sad when i wear Tshirts as it is visible and looked at near arms. Though my sis tells to wear Tshirt as it looks good but because of the problem i wear shirts with sleeves. Didn't go to water park because of it :*(
      I just wish that yours also get cured soon and i hope that nobody have skin conditions... had to it many times and can't enjoy life. Full sleeves shirt works good and no issues so i can understand how anybody feels when they are on face or hands. Hope there will be 100% cure sooooon :)

    • @MsHoney400
      @MsHoney400 Před 6 lety +2

      newvick06 thank you for sharing your story I hope there is cure I always feel like I have a very big shortage in my life and I am less than everyone. I never take part in social activities it makes me even more depressed 😢

    • @newvick06
      @newvick06 Před 6 lety +4

      Yes i also felt same but i think its okay... let it go... live life completely. Those who love u will never feel any negativity and those say bad then either they don't have knowledge or are morons ;)

    • @veenakumari5854
      @veenakumari5854 Před 6 lety +6

      newvick06 ...Ya...U r right...But sometime people are not sport... They are looking like weard..That time to uncomfortable.

    • @dhammadipdhakde5569
      @dhammadipdhakde5569 Před 6 lety +5

      Live for yourself.don't care that what people would say.there are more people who understand that heart beauty is most imp than skin beauty.and never be depressed.create yourself so that people will salute you

  • @rajkvd
    @rajkvd Před 6 lety +2

    Thanks Sushmita for lovely video... Really touching

  • @cynthiadsouza2790
    @cynthiadsouza2790 Před 6 lety +4

    I absolutely love you.
    Thankyou so much for this motivational video.. It definitely proved to be a motivation for me..

  • @studylamp41
    @studylamp41 Před 5 lety +3

    Thanks....the whole team who is just making this video to make sure about it that vitiligo is not just a disease.......its only a negativity in our society in the peoples who never intrested to know about it ,and having no more humanity.....i like and love everyone who have purity in there soul,there minds and there behaviour no matter what there skin or what there color is.....

    • @studylamp41
      @studylamp41 Před 5 lety

      @@sonaligupta7102 No,i have no spots,but my best friend have but i like it too much.

  • @zionsassistivetechsolution3133

    This is the most inspiring story i have heard in recent times. May God continue to bless you and use you mightily. Amen

  • @drcwellneascenter
    @drcwellneascenter Před 5 lety +3

    Such a wonderful message been conveyed in great way!!

  • @shreemanovegaayurved-sma3408

    Being a doctor i know how important to maintain a positive attitude in these patients. Hats off to you guys, really nice and appreciable video. keep it up

  • @suganeshwaran7561
    @suganeshwaran7561 Před 5 lety +4

    Very nice video liked it a lot.
    Special things happens to special people

  • @abundantkp
    @abundantkp Před 5 lety +7

    I have vitiligo and totally relate to you but I'm happy that you making such amazing videos to help people like us be more confident and love ourselves more 😀

  • @jyotikumar7479
    @jyotikumar7479 Před 5 lety

    I just want to say thank you. Great job. Great initiative.

  • @LucigooseyX
    @LucigooseyX Před 6 lety +4

    Thank you, this was beautiful and expressed so well.

  • @Sai9962
    @Sai9962 Před 4 lety +4

    Respect every person irrespective how the person looks, beauty lies in heart people who understand this are the best

  • @pradyingle
    @pradyingle Před 5 lety

    Excellent video. Well done and keep it up. What everyone in the world needs to understand is that all of us have got this white skin underneath. It is the amount of melanin pigment that adds colour to our skin. If this pigment is missing in some parts of the skin it’s not the fault of that person. It’s just a skin condition and NOT a disease. Moreover it’s much safer to have this condition than a disease like diabetes, hypertension , heart attack or asthma etc that has life related risks . Education is the key.

  • @TheKoolajay
    @TheKoolajay Před 5 lety

    You are a true champion girl👍🏻 Hats off to u👏👏👏👏

  • @divyasai8604
    @divyasai8604 Před 5 lety +4

    She is beautiful May God bless u dear B hpy always

  • @monicasmith2148
    @monicasmith2148 Před 5 lety +11

    The woman in this video is awesome. What a great mindset to know that one can lead a fulfilling life just by loving themselves

    • @sushamitasushmitasupportvi9439
      @sushamitasushmitasupportvi9439  Před 3 lety

      Thank you for your kind words Monica! :)
      Stay connected with us on social media 👉
      Facebook Page -
      facebook.com/SupportVitiligoSJ/
      Instagram Page -
      instagram.com/supportvitiligo?igshid=1uvxq8gxzk7kg

  • @manjushaparuthikkat
    @manjushaparuthikkat Před rokem

    aaj aise hi tumhara video dekhne ka mann kiya. i think isse pehle jab bana tha, tab dekha tha. acha laga itne time baad tumko dekhkar aur aawaz sunkar :).

  • @aniket_speaks5520
    @aniket_speaks5520 Před 2 lety

    I really salute your positivity. You are truly an inspiration. Thank you so much for this motivational video.

  • @technophilia2229
    @technophilia2229 Před 6 lety +3

    fantastic u s ..really u have lot of dare and confidence as well as positive mind . you rise confidence of all person suffering from vitilligo

  • @nishathakur4175
    @nishathakur4175 Před 6 lety +7

    Very Inspiring...
    Great Initiate..
    I too have this, ppl ask me abt this & i tell d same story.. at d end I confidentially told them i don't have any prblm... It can't make me weak.. I don't see it as a prblm I'm well educated confident Independent..
    By seeing my confidence ppl actually get happy..

    • @Stormac
      @Stormac Před 6 lety

      watch this guys Natural way to eliminate vitiligo:
      czcams.com/video/4I_7iHUjJ84/video.html

    • @sushamitasushmitasupportvi9439
      @sushamitasushmitasupportvi9439  Před 6 lety

      Nisha Thakur Good to hear from you Nisha. Please follow the SupportViitligo page on facebook. You can also connect with me through the page.

  • @kiranbambhaniya057
    @kiranbambhaniya057 Před 5 lety

    Awesome positive thinking...mind blowing...god bless you

  • @cheyennetrujillo430
    @cheyennetrujillo430 Před 4 lety

    Very helpful in understanding this condition. I think it's beautiful and wish more people understood.

  • @surajpatil1606
    @surajpatil1606 Před 4 lety +4

    U are motivator for us❤️❤️..Thank you so much..

  • @rxbegin7229
    @rxbegin7229 Před 5 lety +3

    Hello frnds i m also hvng d same problem since last 28 yr aur
    Jo bhi is vitiligo k sath life ji rha hai bas wahi hamari problm samjh sakta hai ignorence marriage me problm aur sayad bhut kuch jo words me likhna muskil hai lekin is problm ka ek hi solution hai ham sab jo bhi is problm ko face kar rha ek family ban jate hai hum ek dusre k acche frnds bn sakte hai sayad hme hamare life partner bhi is family me mil jaye

  • @Himanshu-mu8fl
    @Himanshu-mu8fl Před 4 lety

    Wow, it was an amazing story to spread awareness about vitiligo. I really got motivated after watching this video.
    I also got an important lesson from your video "accept your reality and yourself".♥️♥️♥️
    Do make more videos like this and spread awareness about vitiligo.
    Till day, I didn't knew about this disease,
    I also thought that it's a contagious disease. although I am not affected with this disease.But I've seen that people infected with vitiligo hesitate to socialize or go out. So a message to all the people who are infected with vitiligo ,vitiligo is just a colour condition where skin starts loosing it's colour.
    #supportvitiligo

  • @nandinisugandhi748
    @nandinisugandhi748 Před 5 lety

    just needed this video,people do ask such questions which hurt a lot,my 10 yr old sister have got it and people are concerned about her marriage!! spreading awareness is a must,they blame it on your heredity and won't marry to any of your generation!!!

    • @sushamitasushmitasupportvi9439
      @sushamitasushmitasupportvi9439  Před 5 lety

      We understand. If you have any queries or need support please email to info@supportvitiligo.org

    • @deepakyadavji9694
      @deepakyadavji9694 Před 4 lety

      Mdamji ap lecor capsule and livcon capsule aur lecor oil use kijiye esse hmar sfed dag 10 se 12 mhine me pura thik ho gya hai 1 mhine me hi result milna shuru ho gya tha aur 2 mhine ke bad koi nya dag bhi nhi dikha aur koi said effect bhi nhi merricart.in se mangvata tha

  • @monisham6919
    @monisham6919 Před 5 lety +5

    Such a beautiful message.. Thanks for this video sissy... Love u for ur positive attitude... That makes u..🤗👉🤙
    Until u said this message even i don't know about vitiligo, hence this video might be an answer to many people's questions..

  • @priyaa.r2527
    @priyaa.r2527 Před 5 lety +6

    Great video.. keep up the good work.. the worst that vitiligo patients suffer is mentally n emotionally because of the society.. I am suffering from vitiligo as well, happily married with a baby.. My husband is one of my greatest pillars to face the society.. he doesn’t have vitiligo.. There are lot of people who understand that it’s just a skin tone n doesn’t impact in any other way.. Good luck.. have a positive attitude.. life’s with u..

  • @crispysunny1183
    @crispysunny1183 Před 5 lety +1

    Shandaar Kamaal aur Bindaas

  • @vaishalij3134
    @vaishalij3134 Před 6 lety +2

    flawsome-->> flaws are part of life which should be embraced and its awesome when accepted :)

  • @deeptiravishankar3692
    @deeptiravishankar3692 Před 6 lety +5

    This made me cry 😔my dad feels bad as he has this vitiligo....we all must treat everyone equally...don't make vitiligo ppl untouchable

    • @sushamitasushmitasupportvi9439
      @sushamitasushmitasupportvi9439  Před 5 lety

      Hi Deepti,
      Sorry for late reply..I understand.. You can share the details if we could help you in anyway.
      If you need any support (or) if you want to share anything (or) if you wish to volunteer for vitiligo awareness then please write to info@supportvitiligo.org

    • @nitenpawer551
      @nitenpawer551 Před 9 měsíci

      Kahase ho aap❤❤

  • @cekunal
    @cekunal Před 6 lety +12

    This is Great Piece of work.
    You Look beautiful, and you are even more beautiful with your being.
    I just saw your facebook profile, congratulations on your wedding.
    Wish you all the very best for future.

  • @madhulikaraomalhotra6544
    @madhulikaraomalhotra6544 Před 5 lety +1

    I am also a part of this club and if I had a rupee for the number of times I have been asked whether I was burnt as a child I would be a millionaire!!! I am married, I have two healthy children who don't have vitiligo. I just wanted to write this to tell everyone that this doesn't affect anything of consequence. I am so glad you made a video like this. God bless you.

  • @prasenjitbhattacharya4716

    Hats off to your initiative. I am so impressed by this video!

  • @anamfathima7197
    @anamfathima7197 Před 6 lety +31

    Amazinggg! This is lyk my life video! Donno wats gonna happen in future tho!

  • @vknadiger
    @vknadiger Před 6 lety +40

    Its only Skin Color with Different look. It should not be considered as disease. I also have it since from age of 5 years, and with my own experience, I found that, this is related to emotions. Whenever we are sad/emotional it spreads, and when we are happy, and carefree, it stops spreading. There are so many people around us, that makes us to feel we are not alone.

    • @surashreesengupta8599
      @surashreesengupta8599 Před 5 lety +5

      Vinaykumar Nadiger yes this is because the membranes in the brain and the skin has very close connection...my doc explained that to me....she told me something that the membranes are made up of epidermis which is there on the skin as well...positive thinking really matters when one is trying to cure vitiligo. And it's not a disease...it's a disorder....

    • @jyothsnajonna4692
      @jyothsnajonna4692 Před 5 lety

      Yes

    • @ujwalaukey7258
      @ujwalaukey7258 Před 4 lety

      Agar aap thik hona chahte ho to ek bar aap Amazon se Livcon capsule, Lecore capsule aur Lecore oil Ka review bhi pad lijiye mere bhai. Contact 9767955885

    • @latathefoodista3997
      @latathefoodista3997 Před 3 lety

      hiii... Vinay... where do you stay??

  • @shebangart4418
    @shebangart4418 Před 5 lety +1

    Great movie
    These people need a lot of love. The mindset behind these is when people feel deeply not loved and not wanted. So selflove is important. But also people around them..if they can shower love WORLD WILL BE A BETTER PLACE.
    I have healed also people with vitilgo by coaching them in transforming their mindset and chakra healing.

    • @marchmello1528
      @marchmello1528 Před 4 lety

      Can you help me?

    • @shebangart4418
      @shebangart4418 Před 4 lety +1

      @@marchmello1528 for consultations you can email me on shebanghealingart@gmail.com
      ( fees required)

  • @akshatan4520
    @akshatan4520 Před 4 lety

    Thank you 🙏🏻 sharing this . Keep motivating dear 😊

    • @sushamitasushmitasupportvi9439
      @sushamitasushmitasupportvi9439  Před 4 lety +1

      Thanks Akshatha! :)
      You can stay connected with us by following us @SupportVitiligo on Instgram & Facebook. Link is available in our website www.supportvitiligo.org

  • @warrior_monk4654
    @warrior_monk4654 Před 6 lety +61

    Wow! Never thought anyone would make a video about the problems that people with vitiligo face 😇. Even I feel sad sometimes for being an victim of vitiligo but now I've completely accepted... You got burned ??? Always get this question😂😂😂

  • @dhirajshinde6762
    @dhirajshinde6762 Před 6 lety +3

    inspirational thank u so much

  • @jeevagautami236
    @jeevagautami236 Před 5 lety

    Wow... Nyc concept... It changed my mind also.

  • @izhaankhokhar5328
    @izhaankhokhar5328 Před 5 lety +1

    You know vitiligo or not it doesn't matter indeed you are doing great and hopefully over the time period even better. Hope you do good and it doesn't stop you. Take care

  • @aakankshatiwari2117
    @aakankshatiwari2117 Před 5 lety +8

    I wish people could be this nice to people with acne but they can’t!

    • @sushamitasushmitasupportvi9439
      @sushamitasushmitasupportvi9439  Před 3 lety

      Thank you for your kind words! :)
      Stay connected with us on social media 👉
      Facebook Page -
      facebook.com/SupportVitiligoSJ/
      Instagram Page -
      instagram.com/supportvitiligo?igshid=1uvxq8gxzk7kg

  • @sudipkhastagir9989
    @sudipkhastagir9989 Před 4 lety +5

    My grandma have vitiligo too in whole body. So I support it

  • @bharathym9016
    @bharathym9016 Před 5 lety +1

    Really inspired short-film.

  • @anubhajoshi1407
    @anubhajoshi1407 Před 2 lety

    That's so lovely and positive video! Thank you for this ♥

    • @sushamitasushmitasupportvi9439
      @sushamitasushmitasupportvi9439  Před 2 lety

      Glad you reached out to us :)
      If you are a person with Vitiligo, Would suggest you to join our support network which I manage voluntarily and people share and network with other Indians with Vitiligo and know their personal experiences related to Vitiligo Management and various treatments which might be useful to you. If you are not part of any support group then ping us on Telegram App to +91 9845668296.

    • @Ashi..Sharma
      @Ashi..Sharma Před rokem

      Didi aap ko vitligo hai kya mujhe bhi vitiligo hai aap koi medicine le kya

  • @sadashivudubalabhadra4186

    Thank you for this video.

    • @sushamitasushmitasupportvi9439
      @sushamitasushmitasupportvi9439  Před 5 lety

      Welcome :)
      For more information please follow the FB page SupportVitiligo.. You can message in case of any support required.

  • @rajeducationhub6542
    @rajeducationhub6542 Před 6 lety +10

    Nice vedio actually I am suffered this disease I can understand that what is reaction to our society

  • @shanahamza7139
    @shanahamza7139 Před 3 měsíci

    This gave me a new hope.
    I was diagnosed with vitiligo when i was 6 years old. Now im 25, completed my masters and BEd, working as a teacher. I had a strong positive insight about my life and goals throughout these years. But when my parents tell me about my marriage, it kills me from inside. I was aware of my skin condition from the childhood, and already had bad perceptions and prejudices about my marriage. I never thought it will happen to me, i conditioned me like this. I was always alone, and i believe that I'm the best when I'm alone. I surrounded myself with positive vibes and motivation. I suppressed the fact of vitiligo and masked myself with over positivity, which eventually turned into narcissism. Now my relationship with my parents is collapsing day by day and my mental health is deteriorating by thinking about marriage. I have pressure from every side, and my life has really become a mess! Im extremely afraid of rejections... I don't know what to do!!!

    • @sushamitasushmitasupportvi9439
      @sushamitasushmitasupportvi9439  Před 3 měsíci

      Hello, your feelings are natural, I used to feel the same. Can relate to your emotions. Please try doing what helps you and do check out my video on mental health and wellness, might be of help. You can also stay connected with me on Insta - @sushamitajainj

  • @aafrinjabin5980
    @aafrinjabin5980 Před 6 lety +1

    Even I am suffering from the same problem since childhood. But I always ignored people talk, they will say according their thinking and perception. I think good about myself, its not a disease its just a discoloration. Accept yourself, live life fully and let the world go to hell.

  • @ram_rahim_creations_officials

    Very good video, I m also facing same thing.

  • @rajk9329
    @rajk9329 Před 6 lety +4

    I am 39 years old now and got infected when I was 30 years old. I was engaged when I was 27 and I still feel if I get the vitiligo before marriage, I would not have married my wife. patches are spreading quickly and unable to control. sometimes i feel uncomfortable when mingling with friends and family members but living as I have to. I still unable to accept my condition. This is from my bottom of my heart. This video is amazing and thank you for making it for who suffer for the vitiligo.

    • @sushamitasushmitasupportvi9439
      @sushamitasushmitasupportvi9439  Před 6 lety

      John Raju
      Thanks John.
      You can follow the FB page Supportvitiligo. Pls go through posts in the page, it might be helpful to you.

    • @rajk9329
      @rajk9329 Před 6 lety +1

      Thank you sooo much, Sushmita. This is really great help. I follow the posts in FB.. Thanks again!

    • @sushamitasushmitasupportvi9439
      @sushamitasushmitasupportvi9439  Před 6 lety

      John Raju Thanks John. You can connect with me on the page as well, if you wish to.

    • @jobtemperature8999
      @jobtemperature8999 Před 5 lety +1

      @@rajk9329 sir please try unani medicine one of my friend got cured. Good luck..

    • @rajk9329
      @rajk9329 Před 5 lety

      @@jobtemperature8999 Thanks a lot madam. This is really great news and appreciated for your reply. Where do I get that Medicine and how long does it take to cure? Your help is highly appreciated.

  • @CharuMitraJoshi
    @CharuMitraJoshi Před 5 lety +1

    Beautiful and Very Positive Video

  • @thatwitch4455
    @thatwitch4455 Před 5 lety

    Very good video, and educational! ❤️

  • @2gblagyt782
    @2gblagyt782 Před 2 lety +2

    I'm also suffering from vitiligo but I never mind it😎
    That's my attitude

    • @sumanshrivastav7508
      @sumanshrivastav7508 Před 2 lety +1

      Mere bete ko 3 sal phle sfed ho gye the 2sal to bde nhi lekin bad me bdne lge the bhot si medicine di lekin koi frk nhi pda ak din yu tube pe Lecor capsule aur Livcon capsule aur Lecor oil ke bare me pdha to maine mangvaliya aur o1din tha aur aaj din mere bete sfed dag thik ho gye hai ayurvedic hai koi side effects nhi Amazon se mangvaethi,,

    • @rahulsonvane4713
      @rahulsonvane4713 Před rokem

      Mai apne sfed dag ki vjhse bhot hi preshan tha bhot mhngi medicine li medicine lo to thik ho jata band kro bdne lagta tha fir maine CZcams pe Lecor capsule aur Lecor oil aur Livcon capsule ke bare me pdha aur amazon se mangvaliya ab 8se9 mhine ho gye hai sbhi dag thik ho gye hai bhot hi achh medicine hai ayurvedic hai sfed dag ke liye best medicine hai ye;

  • @anilthapa4035
    @anilthapa4035 Před 6 lety +4

    I can relate to this. ....I've been asked the same questions several times

    • @sushamitasushmitasupportvi9439
      @sushamitasushmitasupportvi9439  Před 5 lety

      Thanks for writing Vitianil! If you need any support (or) if you want to share anything (or) if you wish to volunteer for vitiligo awareness then please write to info@supportvitiligo.org

  • @narayanajapa968
    @narayanajapa968 Před 6 lety +1

    Inspirational. Thanq very much

  • @searchlight1036
    @searchlight1036 Před 4 lety

    This video actually gave me courage .........it's true that whatever happens I need to accept myself .....:)

  • @rakshithravish2291
    @rakshithravish2291 Před 6 lety +4

    Really your a inspiration for me

  • @riteshmeena007
    @riteshmeena007 Před 6 lety +17

    I HV also white patches on my body . I can understand these problems. So many times I feel uncomfortable with unknown person bcoz those first questions always asked about vitiligo . May be i had to also faced marriage problem but luckliy I got love in my life . She is really too good she never feel shame with me . Before two years we got married. Now we r living happily. . I love you My Sari. . Thank for the beautiful part of my life. .

    • @sushamitasushmitasupportvi9439
      @sushamitasushmitasupportvi9439  Před 6 lety

      riteshmeena007 thanks for the message. Would like to know more about your beautiful story :) Please do message to the facebook page SupportVitiligo

    • @noureenbatool7333
      @noureenbatool7333 Před 5 lety +1

      @@sushamitasushmitasupportvi9439 main apse aik bat krna chaahti hun ap please isitrhan ki videos bana kr kya dekhana chahrhi hu ap please ase videos na bnayen jis s bandy ka dil dukhy aur jise ye masla hy wo aur zada sochy ap kuch Acha dekhao ghomny phirny wali vidros b bnao maza dekhao itni tensions han insan ki zindagi mein aur ap isko lekr Beth gae hun ap thek hugae hu achi bat hy dosro ko b kru lekn please life ko change b dekhao logo ko possitive b dekhao ye kuch b nahen hy jiski apny itna bandia hy English women's ki vidros dekhu wo zindagi jeeti han itni larkio ko ye masla hy lekn sirf wo stress nae leti aur is ko apny sir par itna havi nahen kerti to unki wahen ruk b jati hay ap sab Indians ki jab b videos dekhu bus yahi hy isk sath sath kuch Acha b dekhao taky humy b khushi hu

    • @noureenbatool7333
      @noureenbatool7333 Před 5 lety

      @@sushamitasushmitasupportvi9439 ap bht achi hu but life ka maza b share kru sirf isy discuss mat kru

    • @sushamitasushmitasupportvi9439
      @sushamitasushmitasupportvi9439  Před 5 lety +1

      @@noureenbatool7333 Hello Noureen. Comment karne ke liye Shukriya :) aap jo keh rahi hai woh sahi hai. Aur Is video mein bhi awareness, reality aur positive attitude mein hi focus kiya gaya hai. Isme hasi hai, khushi hai aur sachhai bhi darshaane ki koshish ki gayee hai. Isme aatma-nirbhar hokar zindagi jeene ka sanket diya gaya hai.

    • @noureenbatool7333
      @noureenbatool7333 Před 5 lety +1

      @@sushamitasushmitasupportvi9439 mam ap bht payari hain kuch b nahen hy apki skin ko apko aik nahen hazar rishty milskty hain humy bus Allah ka shukar ada krna chahea k koi asi bemari nahen jis s mout ajae ya hum mazor hun jis ki hmy tension hu yeto aik skin ka masla hy jisky ab bht hal hugae hain so please aik video bnayae jis me ap ghomen hmy achi achi jagaen dekhayen apni maze ki diet dekhayen payare payare kapre phny ap jesi ap khud hain wase he video b

  • @noneofyourbee-siness
    @noneofyourbee-siness Před 6 lety +2

    I really salute your positivity. You're truly an inspiration. Before watching this video I too had various misconceptions about Vitiligo(I didn't even know the name),this video has changed my perspective!

  • @pavithran2028
    @pavithran2028 Před 4 lety

    😘 you are really gorgeous mam... Thanks for this awareness vedio for us, love you guys who all are work together for making this vedio....

  • @MR-qf7nu
    @MR-qf7nu Před 5 lety +13

    My daughter has vitiligo. She is 14 and started when she was 10 yrs old.

    • @deepakyadavji9694
      @deepakyadavji9694 Před 4 lety

      Ap lecor capsule and livcon capsule and lecor oil use kijiye esse hmar sfed dag lgbg 10 se 12 mhine me pure thik ho gye hai ayurvedic hai aur koi said effect bhi nhi 1 mhine me hi result milna shuru ho gya tha merricart.in se mangvata

    • @aadhyasvegkitchen4235
      @aadhyasvegkitchen4235 Před 3 lety

      White spot treatment 100%recovery if you are interested contact me

    • @lakshminarayanak1113
      @lakshminarayanak1113 Před 2 lety +1

      @@aadhyasvegkitchen4235
      Yes I am interested pls shar contact details......thx

    • @aadhyasvegkitchen4235
      @aadhyasvegkitchen4235 Před 2 lety

      @@lakshminarayanak1113 ping me my page

  • @drsadiasohail7890
    @drsadiasohail7890 Před 6 lety +4

    Loved this video

    • @sushamitasushmitasupportvi9439
      @sushamitasushmitasupportvi9439  Před 6 lety

      dr 18 Thank You :) If you are interested to know more stories,facts and informations and get connected to the page SupportVitiligo

  • @ushasinchu5920
    @ushasinchu5920 Před 6 lety +1

    ur right, there r some people who understands u ....awesome video

  • @farhatjamal5408
    @farhatjamal5408 Před 3 lety

    U are so beautifull Di.... And most important thing u are positive about all situations

  • @suzanajain1799
    @suzanajain1799 Před 4 lety +5

    Support vitilogo.. I m too suffering from this disease .. And it's been 10 years now, the white patches are in my legs . I get sad when I think about my future..but when I see that there is not only me many people are suffering from same and supporting this.. I feel happy and confident❤

    • @sunnysoniyal8567
      @sunnysoniyal8567 Před 3 lety

      Bhai mai apne sfed dag ki vjhse bhot preshan tha ak din maine utbe pr lecor capsule and livcon capsule and lecor oil ke bareme coment pde achha laga aur maine Amazon se mangvaliya doctor ki slahse shuru kiya aur 1 mhine me sfed dag ke upar black spot aana shuru ho gya aur dag bdna bhi ruk gye pichle 7 mhine se ye medicine le rha hu ab1 hi chotasa dag bcha hai doctor ne kha hai 2 mhine me o bhi chala jayega ayurvedic hai ap bhi jrur try krna...

    • @aadhyasvegkitchen4235
      @aadhyasvegkitchen4235 Před 3 lety

      White spot treatment 100%recovery

    • @Railwayfanclub95
      @Railwayfanclub95 Před 3 lety

      Apko shi huwa mam

  • @nethrasr7375
    @nethrasr7375 Před 6 lety +3

    Appreciated 👍

  • @preeti806
    @preeti806 Před 5 lety +1

    Good video..very positive approach

  • @sumitsharma-yo9ff
    @sumitsharma-yo9ff Před 5 lety +1

    प्रेरणादायक और सराहनीय पहल...

    • @sushamitasushmitasupportvi9439
      @sushamitasushmitasupportvi9439  Před 5 lety

      Thanks Sumit.
      For more information please follow the FB page SupportVitiligo. Also, the website www.supportvitiligo.org

  • @deekshanayak1469
    @deekshanayak1469 Před 4 lety +3

    M also having vitiligo but i recovered 75 persent wid the help of UV narroband treatment wid possitive attitude😊 and i thoght that my god having a great plan for me ...... I lv my self

    • @vamshiofficial7140
      @vamshiofficial7140 Před 3 lety

      How much cost for uv narrowband treatment

    • @nitenpawer551
      @nitenpawer551 Před 4 měsíci

      आपकी स्यादी हो गई नाही हो गई तो बताना

  • @Ajay-ph1ei
    @Ajay-ph1ei Před 5 lety +4

    I also got little vitiligo and got scared like hell. I was a child then. When we eat things with artificial colors, it happens. It was happening in pairs on my body.. I applied Baakuchi thaila (oil) and those spot got well.. And stopped happening in new places. Ayurveda has an effective treatment for it.. when it is in initial stages. Do not ignore it.

    • @rinkichauhan1440
      @rinkichauhan1440 Před 3 lety

      Can u give me ur number..my 8 months daughter has it and I m very scared.

    • @Ajay-ph1ei
      @Ajay-ph1ei Před 3 lety

      @@rinkichauhan1440 Why do want number? Buy this oil online. It is available on amazon as Babchi oil. Apply it with cotton swab on affected place and expose to sunlight for 10 minutes. Initially there might be some itching and blisters but that would subside.

    • @nancyrathore9679
      @nancyrathore9679 Před 3 lety

      @@rinkichauhan1440 hello mam I will help you in curing your daughter

    • @nancyrathore9679
      @nancyrathore9679 Před 3 lety

      @@rinkichauhan1440 mam u can contact me here is my no. 9320213179

  • @chetanaverma2396
    @chetanaverma2396 Před 6 měsíci

    Wonderful video. Thank you so much. Such videos will definitely make things easier for people with vitiligo. But I have to say something here- yes, things have improved in India and people don't discriminate a lot. But when it comes to marriage, things are still not good. I am 35 and doing pretty well in life but my parents are kind of struggling to find a match for me. I have told them to give it a pause because I believe that if someone is destined to come into my life, he will come anyhow. Why to try that hard. But still they wont stop trying. You know what, its so surprising to see the 'man ego' you know where they may have lots of vitiligo spots on their skin but they seek a girl with no or very little vitiligo. Sorry for this long comment but I just wanted to say that if you are a woman with vitiligo, it is still a bumpy ride ahead. But yes, life goes on and lets hope for the best 🙂

  • @biswasarpita3269
    @biswasarpita3269 Před 4 lety

    Awesome creation......👏👏👏

  • @earndaily290
    @earndaily290 Před 5 lety +17

    In india you can not marry if you have vitiligo .... They could accepet criminal but they could not accepet a person who has a vitiligo...i don't think so that is good thinkg at all...every one has to right live their life but they can not becouse Society don't accepet them just becouse they have vitiligo.. Bytheway nyc video..i like it...😊😊

    • @sushamitasushmitasupportvi9439
      @sushamitasushmitasupportvi9439  Před 5 lety +2

      Thank you :)
      Marriage primarily depends on 2people who are open to differences and celebrate similarities..

    • @sushamitasushmitasupportvi9439
      @sushamitasushmitasupportvi9439  Před 5 lety +2

      It mainly depends on the two individuals Arshi. Different people have different experiences. I am married and there are many who have spouse with or without people viitligo and are also leading a happy life
      If you need any support (or) if you want to share anything (or) if you wish to volunteer for vitiligo awareness then please write to info@supportvitiligo.org

    • @earndaily290
      @earndaily290 Před 5 lety +1

      @@sushamitasushmitasupportvi9439 thank you so much mam.. Actually mam everyone should undestand that vitiligo is just a skin digits not any big issue but people don't want to do that thats why i was saying ..but i support it ..i know this is not anything big issue and one more thing is that i heartly loved a person who has vitiligo and i proud of him just for his vitiligo ..becouse he is different from others and i will cure his vitiligo with my love...😊😊

    • @The_Pradhan_The_Headstrong
      @The_Pradhan_The_Headstrong Před 4 lety

      Who told you such things. It's not reality. I have seen such marriage in my locality. Inner beauty is important than outer beauty

    • @The_Pradhan_The_Headstrong
      @The_Pradhan_The_Headstrong Před 4 lety

      @@earndaily290 love se kese thik hoga . Just enjoy what you have . Don't worry about the scar.

  • @kjrajputincanada6886
    @kjrajputincanada6886 Před 4 lety +4

    Do phototherapy work.. where is this service available in India..?

    • @sushamitasushmitasupportvi9439
      @sushamitasushmitasupportvi9439  Před 3 lety

      Hello! Glad you reached out to us :) As we are not doctors, we might be unable to suggest a particular treatment for you. We can definitely provide you with a support network to share and network with other Indians with Vitiligo and know their personal experiences related to Vitiligo Management and various treatments which might be useful to you. If you are not part of any support group then ping us on Telegram App to +91 9845668296.

    • @nancyrathore9679
      @nancyrathore9679 Před 3 lety

      @KJRajput vlogs why are you trying phototherapy you must try our lucokit treatment it's fully based on herbs and approved by ayush mantralay and give you amazing results

  • @mohammedmomin845
    @mohammedmomin845 Před 5 lety

    Immensely worth to watch the video 😍😍😘😙😙

  • @priyark8737
    @priyark8737 Před měsícem

    Hi ,I also had vitiligo from past 6 years I had rejection from many people, this video gave me some motivation to accept me more and more thank you for the video

  • @niranjanchannel4588
    @niranjanchannel4588 Před 6 lety +3

    👏👏👏👏👏👏

  • @AartiSharmachinu
    @AartiSharmachinu Před 5 lety +15

    I have vitiligo since 15 yrs. Now I am 26 with my whole body white patches ,and married 5 yrs, my husband is my life and very supportive, although in my life nobody hates me for my vitiligo. If u are good soul ,outer beauty not necessarily. This video is heart touching, so I write here, rather I have no problem with my skin.

    • @AkRural
      @AkRural Před 3 lety +1

      You are lucky. May Allah keep showering of blessings on you and your family

    • @AartiSharmachinu
      @AartiSharmachinu Před 3 lety +1

      @@AkRural ty

    • @AkRural
      @AkRural Před 3 lety

      Always welcome sis. Pray for us for a better and happy life

    • @Ashi..Sharma
      @Ashi..Sharma Před rokem

      @@AartiSharmachinu hello didi aap ko kuch fark hai kya mujhe bhi vitiligo hai

    • @AartiSharmachinu
      @AartiSharmachinu Před rokem

      @@Ashi..Sharma puri body pr h ab mujhe, thik nhi hue

  • @jgarden8937
    @jgarden8937 Před 3 lety

    Beautiful girl with a great attitude. I acquired vitiligo at age 39 and it took out the left side of my face and a small portion of the front scalp. My eyebrow, eyelashes, and front/ middle of my hair all turned white. No one in my family has it and no doctor has been able to figure out how or why it happened. I maintain a healthy lifestyle. I tried tacrolimis as well as 22 painful hits with the excimer laser to bring the pigment back. Nothing worked. Without my make up, it's definitely a conversation piece. I'm grateful that I have a supportive family and over the course of 5 years, I honestly don't care anymore how it looks or what anyone thinks. For the smart asses who just have to comment out loud, I just say that I was struck my lightning and survived. That tends to shut people up quickly. 😆😆

  • @jahnavimanchi7977
    @jahnavimanchi7977 Před 5 lety +1

    superrr and awesome

  • @mohanpadma33
    @mohanpadma33 Před 6 lety +6

    Dear all pl use Loukoskin syrup and ointment for lecoderma it is working ... An Ayurvedic product

    • @sushamitasushmitasupportvi9439
      @sushamitasushmitasupportvi9439  Před 5 lety

      Hi Mohan,
      If you have used Lukoskin and have found results theb please share your experience and details. Email them to info@supportvitiligo.org
      It mught be useful to others..

  • @shruthigkshru5455
    @shruthigkshru5455 Před 6 lety +4

    i love this vedio

    • @sushamitasushmitasupportvi9439
      @sushamitasushmitasupportvi9439  Před 6 lety

      Shruthi G K Shru Thank you so much Shruthi. You can visit www.supportvitiligo.org for more info and follow on social media for more info

  • @shashibajajbhawnani2857

    Loved it...God bless you

  • @TheLia169
    @TheLia169 Před 5 lety

    Great... Much informative...