Meet Jennifer, who lives with
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- čas přidán 17. 05. 2018
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I have had this for 50 years. Did not expect to still be alive am 71. Hope to make it to 80! Han
g in there.
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Oh my word I so needed to hear this after being referred for biopses years after my initial symptoms started. Went to a surgeon for the giant hole in my nose and he is putting every individual thing together to suggest EGPA. And I have been freaking out waiting. I needed to hear that you can live a long healthy life with this.
napunta ako dito dahil kay ms kris. sana gumaling din sya
I have suffered with CSS EGPA for almost 30 years now ... not fun
good luck ... hang in there
anyone with this disease please inbox me on Facebook
Eva Pacchetti- D’Amaro with anything that helped !
I have Vasculitis stage EGPA. I'm going to Cleveland clinic in September to see a vasculitis specialist as my doctor's have runout of treatment options for me. We just can't seem to get the vasculitis under control.
Hope you are doing well now Megan and have found treatment that's helping you x
It's gotten progressively worse bur I'm still fighting.
Awwww I have been sick for 10 years I was miss diagnosed with fibromyalgia now they think I have this my dad has also been sick for 20 years