How all forms of Ehlers-Danlos can be fatal (raw discussion video/my experience)

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  • čas přidán 20. 08. 2022
  • www.scarlitrose.org

Komentáře • 5

  • @michele0324
    @michele0324 Před 5 měsíci +1

    You're 100% spot on. Thank you for raising awareness that all forms of EDS and/or associated comorbidities can be fatal and this is seldom, if ever, talked about amongst the medical community. The stress from having 10+ doctors, living in poverty and little support may be fatal in and of itself. ❤

  • @libbyandtai
    @libbyandtai Před rokem +4

    I Am always sending you positive vibes and Love Scarlit, been following your CZcams page for a long ass time. Be strong ❤️‍🩹

  • @AspieAnswers
    @AspieAnswers Před rokem +3

    Heya girlie, thank you for sharing your journey and experiences with us of your medical hostoy with ED'S &
    etc and that you're brave and I can see that you can fight the fight. Keep fighting girl.

  • @shannongreenwell1278
    @shannongreenwell1278 Před rokem

    I have Type two Classical EDS. And yes, there’s things that can be dangerous with my type of EDS. I can have POTS, Dysautonomia and other complications. I can have problems with my 💜, and other things. Collagen is found all throughout my body, and with it being bad , it can cause other complications. Please people do your research and get educated before making any Assumptions! I can turn my head around like a 🦉, even though I try to refrain from doing that.