Addressing Viewers Questions & Comments Along With An Update About The Hopeful Clinical Trial
Vložit
- čas přidán 19. 12. 2019
- "In this video I address my viewers comments and questions. I also give an update on my eligibility of that last clinical trial, that we had hope in. This is the one that my onco and I discussed, at the end of my last video called
"December 2019 Onco Appointment (Not Looking Good)"
Here is the link- • December 2019 Onco App...
This channel is about the life of me and my 3 children. With our Lord leading the way, we support each other, as we fight our battles and celebrate the our victory, in a difficult world where me, a single mother who is in active treatment for not only 1, but 2 terminal (Metastatic, Stage 4) cancers. I make videos about my cancer journey, personal trials, and some fun videos, and videos with my kids. Something to do to take my mind off of the cancer.
To learn more about my cancer history, please continue to read the following...
I was originally diagnosed back in 2010, with stage 3b ER/PR positive, HER2 neg Breast cancer in my left breast. After about 2 1/2 of active treatment, I went back to full time work, with scans and dr visits every 3 months. From this time, till 2015, I was closely watched by my treatment team, and I had no KNOWN, sign of Cancer.
However, by the middle of 2015, my blood levels stopped getting better, & started to go in the other direction. I also kept getting sick, to the point were it was greatly effecting my ability to work. So in October 2015, my boss put me on medical leave. I then got sicker, I kept getting misdiagnosed till Jan 2016.
In Feb 2016, I was diagnosed with a rare terminal melanoma. with no skin involvement. After chemo failed, a combo immunotherapy treatment was approved. I had infusions every other week, which kept me stable till Feb 2018. My normal 3 month scan showed that I had 2 new small nodules in my lungs. This, they believed, was my Melanoma starting to grow again. But they decided to continue with treatment, and repeat scan in 3 months. However, a week after my Feb 2018 scan, my daughter noticed a new lump on my chest wall. It kept getting bigger. So a scan was ordered for the last week of March. This scan discovered a new chest wall tumor, plus a few other tumors. After a biopsy, they diagnosed me with a new, (possibly mutated) form of Breast Cancer. This time I was diagnosed with Metastatic (terminal) Triple Negative Breast cancer. Although my doctor insists that it is a totally different Breast Cancer from the first breast cancer, that was ER/PR pos, HER2 Neg. Because this one was ER/PR neg, and HER2 neg, aka Triple Negative.
From that point on, I have been on a number of different oral, and IV chemo's and I even had 2 different types of Radiotherapy for pain on that tumor, and some under my arm, for pain, in Nov 2018. Thank God this did shrink the tumors a bit. However, the chest wall tumor got really infected, and is now a painful, messy stinky ulcerating cancer wound, with a bunch of small tumors surrounding it. Many of these chemo's did slow down the growth of my cancer for a bit. But it always started to grow again. And I now have lots of permanent side effects from them. I just stopped Doxil ( Doxorubicin Liposomal) or "The Red Devil", almost 2 months ago, do to the possible new tumors. Thank God, that chemo didn't cause hair loss though. (Gotta take joy in the positives, no matter how small. Right?) Anyway, about a month before that, I noticed more tumor growth on my chest wall, and in my right arm nodes. So after a ct-scan confirmed this to be more cancerous growths, I was taken off this chemo, and now waiting to hear if I got into another clinical study, for Stage 4 triple negative, but Androgen positive. If not, I will start another chemo. In the meantime, I have been trying to get my ulcerating cancer wound, (my formerly radiated chest wall tumor), to heal, and praying that God helps me see just what I need to be doing, as far as treatment goes.
I know that this was a quick explanation of my cancer story thus far. If you would like a more detailed description, I have made 2 videos about my story. Please feel free to watch them. I am also ok with answering any questions. So feel free to ask.
"My Cancer Story Part 1 (Years Before Cancer & Breast Cancer years)"
• My Cancer Story Part 1...
"My Cancer Story Part 2 - Stage 4 Metastatic Mediastinal Melanoma (No Skin Involvement)"
• My Cancer Story Part 2...
I now have a GoFundMe.com account -
www.gofundme.com/f/grosso-fam...
And you can also follow me on my Instagram page!- tammygrosso
Hope you are feeling well hun, pls update us soon if you can. 😘🌸💕
I hope you have a wonderful and blessed Christmas with your children!💓🙏
cancer is so complicated, don't know how you manage to keep the information organized. God bless you and your family, and have a Merry Christmas. Will be thinking of you. Ann
Honestly, I think my brain forgets 10 typical thing people remember, for 1 new thing. I seriously am forgetting things like everyday day words. My kids get so frustrated, but end up treating it like a game of charades. Lol! But then again, that could be chemo-brain too.
Continuing to lift you and your family in prayer. Big HUGS sent your way.
Hello Tammy. Like you, I was diagnosed with TNBC. Mine March 2019 stage 2A grade 3; no node involvement. I had AC+T neoadjuvant, double mastectomy and 30 RT treatments. Now taking Xeloda since prior chemo didn't result in PCR. Have you taken Xeloda or Keytruda? I think of you and your family often. You are an inspiration to many of us. Keep the faith, keep your chin up in the midst of despair and never quit asking questions and fighting!💪🙏
joi smith hi Joi I noticed you mentioned not a complete PCR in your case have you seen the new findings on circulating tumour cells. This week a lot of new findings have been released search TNBC recent on CZcams to see interviews. There is a new clinical trial at Indiana University starting for ladies such as yourself. I also had TNBC stage one but surgery before chemo and live in Australia where there are not a lot of trials or Xeloda on offer. Cheers Annie
@@davidpsaila7105 thanks Annie...i did see a report something about it. Do you recall the name of the article?
Thinking of you this Christmas Eve. I hope you and your kids have a wonderful day tomorrow. Keep the Faith and keep fighting. Much love and prayers for you Tammy.
Hi I’m happy you are at least getting some chemo at this stage. Your doctor could also add a drug called Bicalutamide which has been used to block the androgen receptors same principle as the drugs used to block estrogen. This drug is used also for metastatic prostrate cancer so I believe this drug is available without a trial if your insurance will approve. Cheers Annie x
Hi Tammy I hope that you are doing well I came across an article I felt you need to read “case report of long-term survival with metastatic triple negative breast carcinoma” Ben MN-Fai Chue available to read through google. There are some interesting information in this article about a lady similar to yourself who is now 15 years in remission. Particularly the use of a cream called Imiquimod which was applied to her external tumours. Every day I see new things coming up keep the faith and hang in there. Praying for you. Annie xx
that is that is something I will read,
for sure
@@TammyGrosso I don't mean to be"Debbie Downer" but I read that article and it states that to the authors knowledge that patient is the ONLY long term survivor of metastatic TNBC. In my case I'm doing everything I can to prevent it going metastatic.
Have you heard about the trial about "XmAb20717 Immunotherapy for Advanced Triple Negative Breast Cancer" on breastcancertrials.org for Triple Negative Breast Cancer for patients that haven't responded well to other treatment? My assumption is that you and your doctor have tried basically every trial or to get into them, but it might be worth looking into it.
here is the link and it's the first one on there.
www.breastcancertrials.org/bct_nation/mts/metastatictrialsearch.seam?attributes=2&comefrom=%2FBCTIncludes%2FAvonPfizer%2Fmetastatic-trial-search.html&triplenegative=positive&evidenceOfDisease=other&gender=female&menopausalStatus=post&yob=&zip=
Hi long have you Been diagnosed stage 4
Hold on for new trials - - you never know
check out the link I sent