The Autism Iceberg(s)

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  • čas pƙidĂĄn 1. 10. 2022
  • There's nothing new about the iceberg concept (especially on CZcams 😂) but when it comes to the world of autistic people, there's more than one...
    #EngageAutism #AutismAcceptance #ActuallyAutistic
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Komentáƙe • 86

  • @carnivoroussarah
    @carnivoroussarah Pƙed 11 měsĂ­ci +12

    I am autistic and so is my boyfriend. We have both been through horrific abuse. It makes us crazy as fuck. We still love each other and with the power of nutritgenomics we will both heal. I refuse to accept such treatment and I refuse to allow others to abuse my sweet loving boyfriend. I have videos on my channel of what we are doing. I hope they help someone. Love you all so much. ❀

  • @autiejedi5857
    @autiejedi5857 Pƙed rokem +31

    It does take a village, and all voices are needed!
    Love to all who are autistic, who love and support autistics and who make the effort to accommodate and respect autistics.
    Love and many thanks also to you Quinn! 💜

  • @freerideziege6047
    @freerideziege6047 Pƙed rokem +40

    Good to see you back.
    Actually it is a great moment. I start a very nice, new job in 3 days after 8 month of being unemployed. Its the first job i told my boss in advance that I am autistic. I am 40 and I only know that I am autistic since 2 years. I am so nervous to not make the same mistakes I did before when it comes to masking and trying to be the employe they want me to be, just to break down once again and lose my job after a short period of time.
    Thank you for encouraging me to be an advocate for myself. Your video makes me alot more confident to do it right this time, or at least much better then I did before.

  • @andreahalverson4547
    @andreahalverson4547 Pƙed rokem +31

    Nice to see you again, Quinn. This was such a hope-filled video; my grandson may, indeed, live in a world that will finally be kind and understanding of differences between autistic and neuro typical people.

  • @otakus1216
    @otakus1216 Pƙed rokem +11

    One of the few places I feel understood

  • @rushiaskinnerwallace6175
    @rushiaskinnerwallace6175 Pƙed rokem +4

    I know you’re saying that it’s other advocacy going on that’s educating people like the NT’s such as your boss, the attorney and the dentist who are increasingly engaging in more informed and inclusive ways with the ND’s. But I think it’s important to realize that videos like yours, and similar ones of other autistic people, are an essential part of that “other” advocacy. These videos provide important nuances , first person perspectives, additional solutions, and more. So, I think YOU’RE a reason it’s getting better. This is where people who are first hearing about autism can come, can be pointed to, to deepen their understanding. I’m thankful for that. It IS advocacy for all autistic people.

  • @linden5165
    @linden5165 Pƙed rokem +14

    Nice to see you back. I agree entirely - all advocacy, honesty, vulnerability and trust moves us forwards. I've had some very good experiences lately too with self-advocacy. It's almost hard to compute the reality of a good, supportive experience as it's not what I tend to expect, but more and more I see it as possible.

  • @anthonypena3322
    @anthonypena3322 Pƙed 7 měsĂ­ci +3

    i was dissappointed that we didnt see the same picture of an iceberg every 5 seconds but good vid nonetheless

  • @istarigreenman8235
    @istarigreenman8235 Pƙed rokem +17

    It's good to see you back Quinn, and I hope all is going well in your life. :-)

  • @kandm7710
    @kandm7710 Pƙed rokem +9

    Your explanations have been HUGELY beneficial to this NT lady who was desperately searching for information and explanations of living with autism for myself so I can help my very distressed ND (newly aware) lovely husband. Thankyou, you are a pretty wonderful advocate

    • @Autistamatic
      @Autistamatic  Pƙed rokem +3

      Thanks for your comment and the message you sent via the website. Feedback like yours warms my heart & confirms that this is worth doing.
      The period following Dx can be a difficult one for many of us, often because it means unpacking a LOT of misconceptions, but also because it presents us with countless unknowns. For all the knowledge & certainty it brings, it also carries passengers of self-doubt, regret and knuckle-chewing embarrassment as we relive our lives with new perspective. Our partners & families will inevitably share in some of this and if the relationship is good, they (like you) will want to help & understand.
      I hope his anxiety reduces soon and you both can start learning together about the new world you find yourselves in. There's plenty of content on the channel to offer insight & comfort and a hugely supportive community online.

    • @rushiaskinnerwallace6175
      @rushiaskinnerwallace6175 Pƙed rokem +2

      I ❀ witnessing this interaction

  • @alanguest1979
    @alanguest1979 Pƙed rokem +8

    Brilliant video Quinn, everyone somehow or in some way, can make a difference.

  • @rachelkrislov
    @rachelkrislov Pƙed rokem +3

    omfg if ANYONE responded to my neurodivergent anxiety by CALLING ME I would just implode

  • @melissamiller2696
    @melissamiller2696 Pƙed rokem +2

    This brought me to tears to hear you being cared for like that. Recently understanding I'm autistic at 77, I was wondering if I should let it all hang out. I recently saw a friend for the first time in months and blurted out that the newest thing in my life was discovering I'm autistic. I've been wondering ever since if I should have done that. This video encourages me to be open about it. What I didn't expect was her saying that makes sense to her. She's an intellectual, so assume it's not just stereotypes; but because of my delayed response, couldn't ask her to clarify.
    I think my best friend, after months of sharing with her, may be accepting that I'm autistic. Of course, I'm picking up on nuance. She wouldn't cast doubt out loud, except for the "we all feel that way at times."

  • @mrsm6727
    @mrsm6727 Pƙed rokem +14

    Great to see you back Quinn 😊 Brilliant video, as always, thank you!

  • @SpencerHunley
    @SpencerHunley Pƙed rokem +10

    Really, really needed this, especially now. Bravo, Quinn; well done!

  • @maaadkat
    @maaadkat Pƙed rokem +4

    I tried being more explicit with my boss once, but apparently using that kind of language in work emails is "unprofessional"

    • @reson8
      @reson8 Pƙed rokem

      Agreed. We had some issues at work and i expressed my disappointment in an email. My boss said to me that he thought we'd moved past that sort of thing. I chuckled inwardly, but stood by my point that if all else fails, that's what he can expect.

  • @PeteLittle1970
    @PeteLittle1970 Pƙed rokem +8

    so very well timed video. I've been off work for the last few weeks with a bad case of autistic burnout. I always used to hate trying to explain why I couldn't do what was being asked of me. However this time, I approached my manager and he straight away made all the correct noises and offered support that really helped without me asking. it was so liberating. My needs being met before I had to make a fuss over it. So this video could not be better timed. I was actually in tears of recognition at parts. Once again you've kicked the ball out of the park.
    Oh.. and my name's spelled Pete Little but it's pronounced Throat-Wobbler Mangrove ;) (for those that know their more obscure Monty Python sketches ;) )

  • @unapologeticallyautisanal3057

    Great video Quinn...Good to see you back.

  • @Truerealism747
    @Truerealism747 Pƙed rokem +14

    There's needs more research on autism and fybromyalgia

    • @olddeadbread
      @olddeadbread Pƙed 7 měsĂ­ci

      I believe Elher danlos is the connection. You should read about the RCCX gene theory

    • @Truerealism747
      @Truerealism747 Pƙed 7 měsĂ­ci

      @@olddeadbread yes the subconscious brain did you have SPD as a child thankyou

  • @MrAndywills
    @MrAndywills Pƙed rokem +6

    Welcome back Quinn, been keeping an eye on your channel for new content.
    There may be a lot of us who are able to self advocate. But there is still a need for the likes of your channel and videos to give the rest us valuable information and a framework for us to explain autistic lived experiences to non autistics/neurotypicals.

  • @cosmolosys
    @cosmolosys Pƙed 7 měsĂ­ci

    This reminds me of last year, when a police officer asked me how they should communicate because of my autism. I told them to be as honest direct and conrete as possible. That works the best and most efficient for me.

  • @willamthewisp2646
    @willamthewisp2646 Pƙed rokem +8

    Always appreciate your work.

  • @HypocrisyLaidBare
    @HypocrisyLaidBare Pƙed rokem +2

    Welcome back Quinn, another insightful video well narrated and balanced.
    I too believe that advocacy is not about brow beating neurotypical people but by getting them onside by showing them there is a wealth of benefit not only for the autistic person but also for themselves and their affairs and business around them. That their lives can be easier as a result of making our lives easier and understood.
    Unfortunately, many places claim to be inclusive and open to autistic needs yet fail catastrophically because of lack of "real" understanding and following non-autistic explanations and descriptions of autistic people and needs.
    I am referring to personal experiences with a local authority (Council / Town hall), regarding my son and ex partner who now lives in another town. That Council claimed they "knew" autism, failing to see that they cannot "know" autism, only "know" of it. I tried to explain that each autistic person is a different case, a different set of needs and a handout from a seminar is not "knowing" autism. It is "fact dissemination", statistical data.
    We may be statistical data points but beyond that we have needs and requirements that are not "disseminated" in those seminars.
    Sitting in a classroom looking at an overhead projector, half awake with boredom and longing for the end of the day, does not a good grounding in autism make.
    I was left feeling unheard, misunderstood and failed by the council referred to. Their involvement was critical and restrictive of and towards me. Their simple failures to grasp my needs was monumental in my view. Even now, they are ignorant of my needs, the process to correct those errors is equally flawed and still does not grasp my individual needs and is doomed to failure, simply because people are blissfully unaware of their own ignorance.
    I hope that one day my son will know a world where it is common place to understand autistic people better than it was for the likes of you and I Quinn.
    Here's hoping!

  • @RatsPicklesandMusic
    @RatsPicklesandMusic Pƙed rokem +2

    Thank you Quinn!! This is the main reason I let people know I’m autistic!

  • @thewise3551
    @thewise3551 Pƙed rokem +1

    Thank you mate. For all your help. I’ve just discovered this channel and it deserves more recognition. As a 44 year old man who has been referred for diagnosis, and is at present finding it very difficult to process this world, your videos are helping me finally understand how my brain works. I wish I could show them to everyone.

  • @sammyjade7359
    @sammyjade7359 Pƙed rokem +4

    I'm so please I found your channel. I find your voice super relaxing and your content is just what I needed at this particular time, being a newly diagnosed autistic person. Thank you so much for making your videos

  • @BeingAutistic
    @BeingAutistic Pƙed rokem +5

    Great video, thank you!!

  • @MariahBurley
    @MariahBurley Pƙed rokem +2

    I learned about the concept of the Autism Iceberg months ago from someone on Twitter when I was preparing to make my Stereotypes about Autism video.

  • @RaunienTheFirst
    @RaunienTheFirst Pƙed rokem +2

    I would like to congratulate your patron "stimpunks" on their fantastic pun

  • @mike-williams
    @mike-williams Pƙed rokem +2

    I've actually worked in a couple of university medical schools and found that some of the medical academics are the worst (having opinions on autism waaay out of their specialisations) and can be the most dismissive and confronting bosses I've encountered.

  • @thesteven2army
    @thesteven2army Pƙed měsĂ­cem +1

    Autistic peep here! This vid is very informative on certain topics that are not documented enough! :3
    (Sorry if i comment on the wrong vid)

  • @Keith_Mikell
    @Keith_Mikell Pƙed 8 měsĂ­ci

    It's wild that you were diagnosed so long ago and actually grew up as an early autist (early meaning diagnosed in the 80's i think you said). I wish i was diagnosed as a kid. it would have saved me tons of heartaches. It might have even stopped an opioid addiction that i had to kick. Cant look back though. Gotta keep moving forward. I was in a program as a kid bc i had a cleft palate and they gave me complete medical, dental, and everything. In that was speech and communication therapy. I beleive that helped mask my autism. Im also a rare breed meaning I have a different energy. people are either really respectful of me, hate me, love me, or dont care and cant handle my personality.

  • @chrisash5079
    @chrisash5079 Pƙed rokem +2

    Good to see you back Quinn,

  • @WilliamAlanPhoto
    @WilliamAlanPhoto Pƙed rokem +2

    I kinda wish the example you used was not abstract. I wanna cheer from the mountaintops about how the request was ridiculous and their solution obviously wasn't one! lol

  • @ajn2370
    @ajn2370 Pƙed rokem +3

    Great to see you back Quinn. Your videos have been a huge help to me.

  • @Ember_Green
    @Ember_Green Pƙed rokem

    Good to see you on the TL again, friend! Great video, wonderfully written 😭

  • @typhoontim2
    @typhoontim2 Pƙed rokem +2

    Thank you Quinn. This video was much needed.

  • @musingfoodie1041
    @musingfoodie1041 Pƙed rokem

    I just found your channel and I have been enjoying your videos. I love the visuals, very engaging! Many thanks for the content you share!

  • @francescoleman-williams911
    @francescoleman-williams911 Pƙed rokem +1

    An amazing video. Quinn, you make so much sense and explain these things with such eloquence! Thank you đŸ™đŸŒ

  • @michaelvandenheuvel317
    @michaelvandenheuvel317 Pƙed rokem +1

    Thank you so much for the support and encouragement you bring. It lifts my spirit In tuff times.

  • @dyctiostelium
    @dyctiostelium Pƙed rokem

    It is so heart warming to think we might be a tiny part of this resonance for better, less stressful lives.
    Thanks for all you do and all your clarity.

  • @towzone
    @towzone Pƙed rokem

    Thanks again, Quinn, for an excellent video!

  • @Tilly850
    @Tilly850 Pƙed rokem

    At 65, just discovered a month ago I'm autistic, I am on a path of gentle advocacy.

  • @martinmoxness6712
    @martinmoxness6712 Pƙed rokem +3

    You have such an importaint voice in the community' thanks for sharing :). You wouldn't happen to have any videos about imposter syndrome or masking?, couldnt find any

  • @gllmusic
    @gllmusic Pƙed 8 měsĂ­ci

    It's difficult trying to communicate with my partner when I'm overstimulated and what that means, and what my expectations are. Hearing bad music to me is worse than most physical pain, for example. Certain color patterns or bright light can cause a ton of stress and discomfort. Trying to survive in a neurotypical-dominated world is challenging at best, and a living hell at worst.

  • @paavohirn3728
    @paavohirn3728 Pƙed rokem

    Thank you! As always, you're an inspiration.

  • @Uatemysoul
    @Uatemysoul Pƙed 6 měsĂ­ci

    One day I came home and checked the mail box. I had a Jury duty letter. This just automatically set me off. " NOPE." I filed the paperwork to be dismissed. But it was 3 weeks before the date was supposed to be and I didn't know if I would be dismissed. I went from thinking this could be interesting, to this will be hell. I can't be the judge of someone else that's not fair. For 2 weeks my head was occupied by nothing but the looming dread of jury duty. I finally called and just said. " Hello, my name is Blank, I've been selected for jury duty, I'm autistic and I can't do this who do I need to talk to. I finally got in contact with the lady that wrote up the dismissal form telling me that she just sent my response. I was emotional, to say the least. " That's not good enough, I NEED you to tell me I don't have to do this." And only after that did I calm down. It was something neurotypical people would have brushed off as nothing. But for me it was a lingering dread that haunted my thoughts for two weeks until I had a meltdown.

  • @etunimenisukunimeni1302
    @etunimenisukunimeni1302 Pƙed rokem

    What a lovely video, although it almost broke me a bit. Reminds me of this TEDx talk My brain isn’t broken by Tashi Baiguerra, which had one of the most powerful messages I've ever heard: "There's nothing wrong with me. I'm just autistic!" relating to the realisation of what was causing all the troubles she had. Trying to fit into a world not fit for her.

  • @AutisticBrain
    @AutisticBrain Pƙed rokem +1

    Great video❀❀❀

  • @Barnesofthenorth
    @Barnesofthenorth Pƙed 9 měsĂ­ci

    Sadly my work is still not great at this, I've told them I'm autistic and would rather work from home as when I was in before COVID I was having constant shutdowns resulting in sitting for ages before being noticed then manager drilling me for what was wrong, before finally going home.
    Sadly while they have finally agreed to let me continue working from home they keep pushing for me to "try the office, you might like it now" saying they are "worried about not being at home and not socialising with people in work". No matter how much I say its the whole atmosphere and people trying to talk to me unwarranted while I'm working is a huge cause of stress they insist on asking all the time for me to try it.

  • @ds.laetitia
    @ds.laetitia Pƙed 8 měsĂ­ci

    This video kind of makes me sad. When you express your concerns, your feelings, your needs, you are ignored. When you do the same and labelling it autistic, you are heard. If only people accepted others as they are, with their differences, their specificities, even without any label, just take others for who they are, all of this wouldn't be so much needed. What about all of those who aren't diagnosed? They will keep on hitting a wall. Definitely, if I get a positive diagnosis, I will contact back the schools I went to and explain why my path to get a degree (that I didn't get) was so weird and difficult.

  • @camellia8625
    @camellia8625 Pƙed rokem

    It would have been good to know what the issue and solution proposed was.
    What an amazing solicitor service that offered to work to your preferred communication style and needs.
    I love your metaphor:
    Shoots of kindness in a dessert of indifference

  • @JoyFay
    @JoyFay Pƙed rokem +5

    ❀

  • @louispuer-ul2gg
    @louispuer-ul2gg Pƙed 2 měsĂ­ci

    If I do end being bald, that beard will become my only lifegoal.

  • @buttercxpdraws8101
    @buttercxpdraws8101 Pƙed rokem +5

    âœŒïžđŸ’•đŸ‘

  • @tomcontini9641
    @tomcontini9641 Pƙed 11 měsĂ­ci +1

    You're boss may have been scared of a disability lawsuit.

  • @eladhen2
    @eladhen2 Pƙed 8 měsĂ­ci

    Thank you

  • @silverriver7866
    @silverriver7866 Pƙed 10 měsĂ­ci

    I would love to hear more about how your wife advocates for you. The example you gave was very helpful.

  • @gonnfishy2987
    @gonnfishy2987 Pƙed rokem +2

    😼 yay

  • @Oddpistachio1
    @Oddpistachio1 Pƙed 10 měsĂ­ci

    My sound isn't working. I checked on a different video and my sound works fine on that one. Weird.

  • @kms50138
    @kms50138 Pƙed rokem

    🙌🙌🙌

  • @JoelFelsenstein
    @JoelFelsenstein Pƙed rokem

    Hey Quinn how are you shall we catch up soon?

  • @MiracleFound
    @MiracleFound Pƙed 4 měsĂ­ci

    Where do I go to find out if I am autistic?

  • @thelifester
    @thelifester Pƙed 6 měsĂ­ci

    I’m curious about why you said they instead of he or she. Do autists prefer that? I’m asking because my younger sister has asked to be called they and i think she’s autistic like me.

    • @shellydrelly
      @shellydrelly Pƙed 5 měsĂ­ci +1

      Autism and gender dysphoria are highly interlinked. It’s likely that she “identifies” as something between genders, but that’s something that she should be asked directly. Good on you for seeking out these answers

  • @RaunienTheFirst
    @RaunienTheFirst Pƙed rokem +2

    10:30 ACAB though

  • @michaelvandenheuvel317
    @michaelvandenheuvel317 Pƙed 2 měsĂ­ci

    So that people may see.

  • @Astrogamer52
    @Astrogamer52 Pƙed rokem

    Where's the iceberg?

  • @EBR1
    @EBR1 Pƙed 6 měsĂ­ci

    I think it's time that autism be taken out of the DSM just like Homosexuality was back in the 70's. Autism should NOT be considered a "Disorder" or a "Disease" of some kind that needs to be fixed. Like homosexuality, autism needs to be ACCEPTED as a difference or a neurodivergence, rather than something that needs to be fixed or corrected.

  • @RE-kk2cq
    @RE-kk2cq Pƙed 8 měsĂ­ci

    comment for the algorithm

  • @nicnic1190
    @nicnic1190 Pƙed rokem

    👌â˜șđŸ€—đŸ§Ź