Torsades de Pointes Patient Testimonial: Steve Ciani
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- čas přidán 27. 08. 2024
- Torsades de Pointes patient Steve Ciani shares the story of his treatment at Maimonides Medical Center.
Steve Ciani, a bus driver and life-long Brooklyn resident lost consciousness while a mechanic was working on his vehicle. It turns out that Steve suffers from a rare heart condition called short-coupled toursades, which was treated by Dr. Yisachar Greenberg, Director of Electrophysiology and Pacing at Maimonides. Steve credits Dr. Greenberg and his cardiology team with his successful recovery.
For more about the Maimonides Heart & Vascular Center, please visit:
www.maimonidesm...
I also have Torsades de pointes, I don’t feel so alone with you sharing your story. Thank you
I'm currently a mess the way you say that you were. The amount of anxiety is monstrous.
Thanks,for sharing. I am just out of hospital, I suffered a sudden Tdp 4 days ago, I am white uk female mid 40's. Am not a drinker, drug user & am normally fit & healthy, have no family history, its the first one my dr has seen, I was treated with magnesium via IV drip, had blood rate of 188 & in 20 mins of being on drip bloodrate settled to 74, it was so responsive & quick, was prescribed; bisoprolol, aspirin & paracetamol. Its scary but I was lucky too to get a dr who recognised Tdp symptom.
My daughter was born on October 25th 2019..3 days after she was born we found out she had torsades de pointes. With no family history, or anything structurally wrong with her heart. They placed a pacemaker to regulate her heart rate because when it fell to low it would cause her to go into torsades de pointes. Now at 8 months old. She takes 2.8 ml of Erythromycin.. since then there have been no reaccurance of torsades de pointes. 🤞🙌🙏
Good for you😁 I'm 36 and just went through it, got a defibrillator and every doctor says I'm lucky to be alive.. Having a hard time dealing with it😥
I couldn't deal with an implanted device.... I rather go out peacefully 😌
thank you for sharing your story!
Had TdP last month, fortunately it happened when I was already in the ER (I was having pulpitations already) and they were able to immediately treat with magnesium. I've had a prolonged qt interval ever since I was treated for nausea with droperidol. I only had one dose but I suffered terrible side effects and now I have this. It's really awful and scary.
it's called R on T if anyone is curios; this is what triggers Torsades
sometimes we hate something that is good for us. Not that I would want a toesades de pointes, Cheery video :)
What did he _feel_ ?