After I had Brain Fog, I got A Double Diagnosis of Kidney Cancer & PNET | Burt's Story
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- čas přidán 9. 03. 2023
- After experiencing intense brain fog, Burt went to the hospital where they found out he had bad internal bleeding from ulcers. Doctors subsequently discovered a double diagnosis of pancreatic neuroendocrine tumor (PNET) and kidney cancer.
In this story, Burt shares his nightmare hospital experience where he almost bled out on the table, how he found out and processed his diagnosis, and how he strives to make sure cancer never defines him.
Full story & transcript → www.thepatientstory.com/patie...
The interview has only been edited for clarity.
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Please don't say sorry for us, there's nothing to be sorry for. We hope and pray to heal .
🙏 ❤️ 🙏
For You
Always & Forever
Amazing strength. I prayed 🙏 for your healing through this terrible disease.
Because he is still young and has a loving caring family whom he wants to be with.
You are such a smart patient and it looks like you are getting some amazing care. Thank you for your story and your insights. May all your treatments be successful and may you get that long and happy life you deserve!
I went into the ER with intestinal blockage and vomiting after dealing with light coloured diarrhea and constipation on and off more than usual for about a month. They told me a lot of times before, I had irritable bowel, and I was not thinking to be told anything else this time.
So it came as a surprise, when they told me after tons of blood and other examinations. They said, absolute confirmation was only possible after tumor removal. Fine needle aspiration said either pancreatic adenocarcinoma (months to weeks survival) or Neuroendocrine cancer of the pancreas (good two digit survival, if the KI67 Is low.
So they did the distal pancreatectomy and removed the tumor. Spleen is still in place and the big incision was fine except my connective tissue weakness caused scar hernia, so they had to do scar repair right a month after the initial surgery.
It came out as Low grade 2,no lymph node involvement, no metastatic proof, so I and my team of health care providers are on a watch and screen every few months regime, replacing digestive enzymes as needed.
NET are as individual as fingerprints, and they are discovered either by coincidence or rather late in their being there.
So if you feel, something is not right, stick to finding out what is wrong.
I just got to know a NET person, who is around 25 Years with NET Diagnosis. It is as Burt said a cancer one lives with.
Great uplifting attitude and approach, thank you so much.
Thank for your story. You are right there are no immediate support group to help you with the initial blow of your cancer diagnosis!😢
Wow amazing story, two problems at once. ThNk you for sharing. And may you live long and prosper
Hang in there! Others are out there with the same issues! Thanks for sharing. ❤️🙏
Great interview,this guy gets it.
Best of luck to you.
Diet is a very large part of this….thank you for sharing
🙏
Why does he want to live so bad. Whats so great about life.
Cancer makes you think like that I get it
I guess your naturopath doctor was worthless. All the best to you