Episode 1: We Have Parkinson's
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- čas přidán 31. 01. 2022
- This is our first podcast in "The Secret Life of PD". In this episode, we discuss symptoms leading up to our diagnosis, how we felt, and what we knew or thought we knew about Parkinson's.
Checkout other episodes here: / @thesecretlifeofparkin...
My dad has Parkinson’s since 2017 But only exercise can cure This message came from India Noronhas
Diagnosed in 1986 when I was 17 . Turning 55 next week. I have had it 38 years
Hey guys, listening from Tustin California. Very informative. Thank you so much. Diagnosed in 2021, September and 65 years old. Will continue watching your podcast. Unfortunately I had a reaction to the covid-19 vaccine shot that's giving me brain fog which adds to my Parkinson's disease diagnosis. Be well guys. Rodger
Hi Jessica, Maneesha here from Pune India. I am a PD patient since last seven years. Like to get knowledge about the disease. Your podcast is a good gesture and I already subscribed. Thanks for presenting this series.
My husband has PD diagnosed at 71, 3 years ago. We live in Queensland Australia and Dubai. The gym set up sounds fantastic. Our son owns a gym so we go there and he has a personal trainer once a week here when in Dubai but no one seems to know in Qld. I am going to take this back and hopefully get it set up at home. Thank you so much for talking about all of this. My husband is still in part denial and hard work. I need help too to deal with his verbal aggressiveness due to frustration.
I wish my husband had seen your videos before he passed a month ago. He had YOPD, diagnosed at 36, and died at 40. I know that everything you are both saying is everything he went through. I'm glad that you are doing this for other PD patients, so they can learn more and see that they're not the only ones dealing with this terrible disease.
Well done folks.
Cheers from Sweden (I am a 57 year old male with YOPD diagnosed in 2014), great initiative from you guys and I will be following this podcast/channel with interest! /Robert
I was diagnosed with young onset Parkinson’s on 3-28-2023. I underwent a Dat scan that was ordered by my primary neurologist and it showed that my dopamine levels were extremely low especially on my right side. I have tremors and no arm swing on my left side and rigid limbs. I was put onto Carbidopa/Levodopa and it’s been almost 2 weeks and I notice that my symptoms are a lot better when I take my levodopa and I can tell when it’s starting to wear off because my stiffness and my tremors are worse and my walking is slowed down considerably but once I’ve taken my pill and In about 20 minutes I’m back to normal.
I just got a preliminary diagnosis of Lewy Body Dementia. I can relate to your discussion. I'm currently on my 4th neurologist and the last two are movement specialists. The first was a US Navy doc who got transferred shortly after I began getting treatment. The second brushed off my concerns and said that I had essential tremor. The 3rd, a movement specialist said I was suffering from depression (which is true). It's taken almost 5 years to get a diagnosis. When I did my own research, I found that I have all the common symptoms of LBD but the doctors just can't see it. Perhaps my newest doc will be the one to make the diagnosis more definitive. Thanks for sharing your stories.
Thanks Brian and Jessica 😊 It's amazing how so many people have different symptoms.
Please keep doing this good work! We need these resources 🙏🏼
Greetings from Queensland Australia. Very wonderful sharing and a lot of valuable information. I am a 58 yo male with YOPD first diagnosed in 2006. I am following your channel. Now I am considering DBS surgery as an option for my treatment.
I so appreciate you both! 💕
This is good information. PD is so tricky to pin down and it’s a process to get diagnosed properly. It’s interesting hearing you Jessica talk about you self diagnosing to an extent, pretty much the opposite way I went about it ignoring my symptoms despite my coworkers concerns until a family member hit me with it directly that I might have PD. Subscribing!
Congratulations guys, really an amazing iniziative. Everything that can help change prespectives in YOPD is amazing! Thanks again and happy to help
Brian ... I spent years in orthopedic offices! I went to a MDS and was shocked but I made the appointment so how could I argue? In the back of my mind I knew.
Hello Jessica & Bryan, listening from Canada. Very informative. Diagnosed in May 2019. I’m 59 years old now. Will continue watching your podcast. I have rough time on rainy days………..any recommendations? Aurora ❤
I was diagnosed late 1998 but my neurologist first said it's nothing
Jessica did you have action tremors or resting tremors as your first symptom? I'm going in for a datscan next week. I have action tremors all on my right side with movement of wrist, elbow, shoulder, ankle. Super nervous.