Episode 5a Know ME - Lived Experience with Severe-Very Severe ME

Know M.E. the podcast where guest speakers talk about pressing issues surrounding Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and Post COVID Conditions. Join researchers, clinicians, and patient advocates as we take a deep dive into the most recent, evidence-based information, so that you too can know M.E.
This episode features Wendy Matthews speaking about her lived experience with ME/CFS, and includes a message for government.
A full transcript is available here: docs.google.co...
00:00 Introduction
00:25 Disclaimer
00:47 Episode Introduction
01:04 When did you first become unwell and how long did it take to get a diagnosis?
04:33 Was it Dr. Ros Vallings or your GP who made the diagnosis?
06:22 What was your life like pre-illness? What are you able to do now?
11:44 "deconditioning theory"
15:13 Learn from ME
16:11 What coping mechanisms and strategies have worked for you?
21:55 Severity category
22:27 What has been your experience in the hospital setting?
25:33 What would you like health professionals to know about ME?
26:01 We don't choose to be this way
29:11 What would you like government to know about ME?
33:31 Contribution to society
34:28 Disability classification
36:54 Conclusion
Disclaimer: ANZMES does not benefit from or receive any funds from any courses or products mentioned in this podcast episode. ANZMES does not provide medical advice directly to patients. Please always seek professional medical advice. This podcast is intended for health professionals seeking information on how to help patients with these conditions.
Health professionals can earn CME credits as they listen by subscribing to Know M.E. news at: forms.gle/ntH6...
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ANZMES is the national advisory for ME/CFS in Aotearoa/New Zealand. ANZMES offers representation, information, national level support, and research funding. ANZMES is a RNZCGP registered provider for continuing education.
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