ANZMES videos
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#GlobalVoiceForME World ME Day 2024 Holly
Holly is a #GlobalVoiceForME this #WorldMEDay listen as she describes her lived experience with #myalgicencephalomyelitis #mecfs #chronicfatiguesyndrome
#globalhealthcrisis #worldhealthorganisation #worldhealthorganization #worldmealliance #anzmes #longcovid #longcovidrecovery
zhlédnutí: 53

Video

#GlobalVoiceForME World ME Day 2024 Cathy
zhlédnutí 35Před 2 měsíci
Cathy speaks as a #GlobalVoiceForME with 40 years lived experience with #myalgicencephalomyelitis #chronicfatiguesyndrome #mecfs #WorldMEDay #worldmealliance #anzmes #worldhealthorganization #worldhealthorganisation #longcovid #longcovidrecovery #NursesDay #DisabilityDenial
#GlobalVoiceForME World ME Day 2024 Lou
zhlédnutí 77Před 2 měsíci
Listen to Lou shed light on what needs to be done for people living with #myalgicencephalomyelitis as she joins us in shedding light on this #GlobalHealthCrisis #GlobalVoiceForME #mecfs #longcovid #longcovidrecovery
#GlobalVoiceForME World ME Day 2024 Years
zhlédnutí 136Před 2 měsíci
How many years have you been ill with ME/CFS? Some are newly diagnosed after remaining ill after contracting COVID-19, some have had ME/CFS for a few years, some for decades, some for almost their whole life. These people with ME are the #millionsmissing from schools, workplaces, and families. They are isolated. Now with COVID-19 being the number one trigger for ME/CFS surpassing Epstein Barr V...
#GlobalVoiceForME World ME Day 2024 Olivia
zhlédnutí 58Před 2 měsíci
Olivia shares her lived experience as a former academic researcher. Listen as Olivia becomes a #GlobalVoiceForME for #MyalgicE awareness. #WorldMEDay #globalhealthcrisis #worldmealliance #worldhealthorganisation #worldhealthorganization #anzmes #myalgicencephalomyelitis #mecfs #longcovid #longcovidrecovery
#GlobalVoiceForME World ME Day 2024 Tamara
zhlédnutí 53Před 2 měsíci
Tamara joins us as a #GlobalVoiceForME calling for more research and funding. #GlobalHealthCrisis #myalgicencephalomyelitis #mecfs #chronicfatiguesyndrome #longcovid #longcovidrecovery #WorldMEAlliance #anzmes
#GlobalVoiceForME World ME Day 2024 Cath
zhlédnutí 93Před 2 měsíci
Listen as Cath becomes a #GlobalVoiceForME this World ME Day, May 12, 2024. Millions of people globally will relate to Cath's lived experience. #WorldMEDay #worldmealliance #anzmes #worldhealthorganization #worldhealthorganisation #globalhealthcrisis #nursesday #myalgicencephalomyelitis #mecfs #longcovid #longcovidrecovery
#GlobalVoiceForME World ME Day 2024 Steve
zhlédnutí 64Před 2 měsíci
Listen as Steve Murray, ANZMES Executive Committee member, describes the impact of long COVID on his and his family's life. #GlobalVoiceForME #WorldMEDay #GlobalHealthCrisis #worldhealthorganization #worldhealthorganisation #myalgicencephalomyelitis #mecfs #longcovid #longcovidrecovery #worldmealliance #anzmes
#GlobalVoiceForME World ME Day 2024 Fiona Ange
zhlédnutí 72Před 2 měsíci
Join ANZMES President Fiona Charlton and Vice President Ange Robinson as they unite as a #GlobalVoiceForME calling for more research and funding. #GlobalHealthCrisis #myalgicencephalomyelitis #mecfs #chronicfatiguesyndrome #longcovid #longcovidrecovery #WorldMEAlliance #anzmes #worldhealthorganisation #worldhealthorganization
AGM 2023 3 of 3
zhlédnutí 48Před 8 měsíci
The 43rd Annual General Meeting of Associated New Zealand Myalgic Encephalomyelitis Society Incorporated (ANZMES). Video 3 of 3 Video 1: AGM proceedings Video 2: Farewell presentation to long standing executive committee member and past president - Heather Wilson Video 3: Presentation by Dr. Sarah Dalziel - a summary the latest research presented at the November 2023 NCNED Griffith University c...
AGM 2023 2 of 3
zhlédnutí 26Před 8 měsíci
The 43rd Annual General Meeting of Associated New Zealand Myalgic Encephalomyelitis Society Incorporated (ANZMES). Video 2 of 3 Video 1: AGM proceedings Video 2: Farewell presentation to long standing executive committee member and past president - Heather Wilson Video 3: Presentation by Dr. Sarah Dalziel - a summary the latest research presented at the November 2023 NCNED Griffith University c...
AGM 2023 1 of 3
zhlédnutí 32Před 8 měsíci
The 43rd Annual General Meeting of Associated New Zealand Myalgic Encephalomyelitis Society Incorporated (ANZMES). Video 1 of 3 Video 1: AGM proceedings Video 2: Farewell presentation to long standing executive committee member and past president - Heather Wilson Video 3: Presentation by Dr. Sarah Dalziel - a summary the latest research presented at the November 2023 NCNED Griffith University c...
Episode 8 Know ME - Biomedical Research
zhlédnutí 126Před 8 měsíci
Know M.E. the podcast where guest speakers talk about pressing issues surrounding Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and Post COVID Conditions. Join researchers, clinicians, and patient advocates as we take a deep dive into the most recent, evidence-based information, so that you too can know M.E. This episode features Professor Warren Tate speaking about international ...
Episode 7 Know ME - Dysautonomia
zhlédnutí 155Před 9 měsíci
Know M.E. the podcast where guest speakers talk about pressing issues surrounding Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and Post COVID Conditions. Join researchers, clinicians, and patient advocates as we take a deep dive into the most recent, evidence-based information, so that you too can know M.E. This episode features Dr. Sarah Dalziel discussing dysautonomia and resea...
Episode 6a Know ME - Carer/Family Lived Experience with ME and lC
zhlédnutí 132Před 10 měsíci
Episode 6a Know ME - Carer/Family Lived Experience with ME and lC
Episode 6 Know ME - Respiratory and Complementary Medicine
zhlédnutí 93Před 10 měsíci
Episode 6 Know ME - Respiratory and Complementary Medicine
Episode 5b Know ME - Developing Fibromyalgia as a Teenager
zhlédnutí 64Před 11 měsíci
Episode 5b Know ME - Developing Fibromyalgia as a Teenager
Episode 5a Know ME - Lived Experience with Severe-Very Severe ME
zhlédnutí 187Před 11 měsíci
Episode 5a Know ME - Lived Experience with Severe-Very Severe ME
Episode 5 Know ME - Lived and Professional Experience of ME and long COVID with Dr Asad Khan
zhlédnutí 391Před 11 měsíci
Episode 5 Know ME - Lived and Professional Experience of ME and long COVID with Dr Asad Khan
Episode 4a Know ME - Strategies for Management of ME, lC, Fibromyalgia, chronic pain
zhlédnutí 181Před rokem
Episode 4a Know ME - Strategies for Management of ME, lC, Fibromyalgia, chronic pain
Episode 4 Know ME - Symptom Management Strategies for GPs
zhlédnutí 108Před rokem
Episode 4 Know ME - Symptom Management Strategies for GPs
Episode 3a long COVID Diagnosis
zhlédnutí 89Před rokem
Episode 3a long COVID Diagnosis
Episode 3 Know ME - Diagnosis of ME/CFS
zhlédnutí 188Před rokem
Episode 3 Know ME - Diagnosis of ME/CFS
Coming up next June 8
zhlédnutí 38Před rokem
Coming up next June 8
ANZMES oral submission to Health Select Committee
zhlédnutí 72Před rokem
ANZMES oral submission to Health Select Committee
Dr Olivier Caunes discusses primary care for PEM
zhlédnutí 324Před rokem
Dr Olivier Caunes discusses primary care for PEM
What is PEM and how do we avoid it?
zhlédnutí 530Před rokem
What is PEM and how do we avoid it?
Learn all about PEM this World ME Day 2023
zhlédnutí 177Před rokem
Learn all about PEM this World ME Day 2023
Special Episode Part Two: Petition oral submission - Know M.E. Series
zhlédnutí 60Před rokem
Special Episode Part Two: Petition oral submission - Know M.E. Series
Special Episode Part One: ME/CFS, disability and health equity - Know M.E. Series
zhlédnutí 210Před rokem
Special Episode Part One: ME/CFS, disability and health equity - Know M.E. Series

Komentáře

  • @sharonsparks07
    @sharonsparks07 Před 14 dny

    Would love to see an update video.

  • @jj-py9kf
    @jj-py9kf Před měsícem

    Is daily diarrhea for years a symptom for this? Just curious if its common among sufferers of cfs.

    • @KimSB12
      @KimSB12 Před měsícem

      Irritable bowel syndrome could be the culprit, a lot of people have it, even without CFS.

  • @Pensioner1203
    @Pensioner1203 Před 2 měsíci

    Hi i am newly diagnosed 😢

  • @Pensioner1203
    @Pensioner1203 Před 2 měsíci

    Hi i am newly diagnosed😢

  • @Pensioner1203
    @Pensioner1203 Před 2 měsíci

    Hi i am newly diagnosed advice u give me please stop me breaking down😢

  • @Goated12348
    @Goated12348 Před 2 měsíci

    Watching this in 2024. Nothing ever changes. They don't care about us.

  • @Alfie-Crypto
    @Alfie-Crypto Před 2 měsíci

    Truely inspirational talk Richie - I’m in the same boat at the moment

  • @willowithywindle
    @willowithywindle Před 2 měsíci

    ~~❊💚❊~~

  • @willowithywindle
    @willowithywindle Před 2 měsíci

    ~~❊💚❊~~

  • @willowithywindle
    @willowithywindle Před 2 měsíci

    ~~❊💚❊~~

  • @me-cfs-strategiesforhealing

    Thank you for this powerful message

  • @BielieVanDieBosveld
    @BielieVanDieBosveld Před 2 měsíci

    Be strong girl. I'm sending love.

  • @noelgillett346
    @noelgillett346 Před 3 měsíci

    the number one most important medicine for CFS ME is Epsom salt. not some crazy, advanced, expensive and patented molecule from a lab at some big pharma corporation or a university.

  • @gracemiller3861
    @gracemiller3861 Před 3 měsíci

    I developed ME/CFS last year due to COVID. It makes me sad that people have known this for so many years and still refused to listen. I genuinely thought I was listening to a video made very recently.

    • @Truerealism747
      @Truerealism747 Před 2 měsíci

      I've had it 26 years they have known for decades do you have hypomobility check out rccx gene theory pain is my worst symptom

  • @meman6964
    @meman6964 Před 4 měsíci

    Haer my sarcasm, "This makes it easier for me doctor".....screw the patient, let's make the DOCTORS job easier. Puke.🤮 Also this man CHUCKLING after describing some awful symptoms, 🤮

  • @brisvegas859
    @brisvegas859 Před 6 měsíci

    2024 ME/CFS patients still suffering. What is funny about this illness is that health professionals are so ignorant, that they confuse the (depressive, anxiety) symptoms as the disease themselves, rather they are a by-product of living with ME/CFS, and having to frustratingly explain to people how unwell you actually are.

  • @SK-uf9cl
    @SK-uf9cl Před 6 měsíci

    Thank you

  • @RamonaMcKean
    @RamonaMcKean Před 7 měsíci

    Mold can lead to ME/CFS. I believe that is what happened to me. Then I got covid that exacerbated every awful symptom. Covid, in and of itself, can lead to ME/CFS. 😒

  • @Joepipsquiggle
    @Joepipsquiggle Před 9 měsíci

    EXTREME STRESS Brought on CFIDS ME for me... IT'S VERY VERY debilitating

  • @oralie.bordeaux
    @oralie.bordeaux Před 10 měsíci

    What is your experience with toxic mold?

  • @oralie.bordeaux
    @oralie.bordeaux Před 10 měsíci

    How familiar are you of the outbreak at Lake Tahoe in the 1980's? If you aren't...please check out Exposing Mold & Erik Johnson who was the prototype for CFS in Lake Tahoe. I have this illness. What he teaches is the only thing that actually truly helped me. I would never wish this illness on anyone it's awful. I have no one. Your daughter is lucky she has you two.

    • @brendabrenner2891
      @brendabrenner2891 Před 8 dny

      Been to Tahoe, remember this well, have long covid, which set this all off😥❤️

  • @Fiawordweaver
    @Fiawordweaver Před 11 měsíci

    😢what advances have occurred in 2023. I need to find a doc that believes chronic fatigue exists.

  • @canadian7494
    @canadian7494 Před rokem

    If 50 more dr,s kids would get Cfs they were outdoors be working none stop on this.

  • @clarysagemannoroth
    @clarysagemannoroth Před rokem

    Does anyone know the book he mentioned at 13-ish minutes?

    • @nevermnid
      @nevermnid Před rokem

      It’s Chronic Fatigue Syndrome M.E.: Symptoms, Diagnosis, Management by Dr Rosamund Vallings!

  • @AniBAretz
    @AniBAretz Před rokem

    Thank you for providing this video. Its information is very important, particularly regarding the wide range of times possible between exertion and PEM, and the wide range of times possible that PEM will last. It's this feature which makes patients look crazy to uninformed medical professionals and even to ourselves. I describe it as ME/CFS gaslighting us.

  • @mumsow
    @mumsow Před rokem

    I got it 30 years ago after bad flu and although it was beyond awful was fortunate enough to get to the point where I could manage it and always had to be mindful of my limitations but gradually with good nutrition lived an active life. Unfortunately after getting several Covid infections I'm now very limited and can't believe I'm back there again.

  • @JaneSmith0709
    @JaneSmith0709 Před rokem

    I'm so happy to see symptoms of my disease getting some attention! Thank you so much, doctor and host, for doing this video!

  • @earringsbyerin
    @earringsbyerin Před rokem

    Thank you - what an amazing and proactive doctor!

  • @jewelleryaddict
    @jewelleryaddict Před rokem

    Have been watching this woman this doctor with hope for something to help me and my fellow sufferers for 33 years now. She has done so many studies but nothing fruitful has really come of her work that has led to real help, a cure of any kind, or a drug. Most of us all still in bed most of the time. Anything that has helped most of us has been done by our own research. Was myself diagnosed inn1985/8 when there was a large outbreak at Incline Village look it up, but nothing has come to really help. She knows a lot but why are most of us still after 30 years of her research still in bed? There should be something by now to help us and those suffering with long covid. Just saying.

  • @chihuahuapixieprincess2482

    I caught Glandular Fever 27 years ago at 35: fit, happy fabulous career. I fought it every step of the way but sadly still have ME - I can manage a 40 minute walk with my Chihuahus but no house work. However I went to the gym with ME as soon as I was able but then I'd be bedridden for days afterwards. Most people make a good recovery but I never managed despite being the most positive driven person I know. It's amazing to see a happy person talking about it because usually it's people lying around talking about it.

  • @DKVestergaardDK
    @DKVestergaardDK Před rokem

    This condition is far worse than a life long jail sentence.

  • @molchmolchmolchmolch

    I love her. Now I wanna be a scientist again.

  • @cultugarvealgarve7380

    The number 1 thing doctors are missing for M.E/CFS recovery! on youtube think of emdr, fishoil, magnesium, melatonine, vetgetables and fruits on a daily base, take care

  • @jesshastings1927
    @jesshastings1927 Před rokem

    I feel like the exercise info is detrimental here

  • @allie54774
    @allie54774 Před rokem

    I've had issues in the past with vitamin d & iron and had to have strong levels of supplements. I take daily vitamin d forever. I'm guessing I should probably be taking others too 😅 (I have me/cfs & apas)

  • @reinamendez1
    @reinamendez1 Před rokem

    A lot of good information. Thank you

  • @lorriwalker3180
    @lorriwalker3180 Před rokem

    Do you think there is a link between Fibromyalga and CFE to MS?

  • @lorriwalker3180
    @lorriwalker3180 Před rokem

    I can so relate to your daughters story

  • @shakefishgamingpro
    @shakefishgamingpro Před rokem

    Check out this book: the Great Pain Deception by Steve Ozanich. Dear friends of mine have healed from CFS after reading this literature and uderstanding the mindbody process. It helped me heal from severe chronic pain and has helped thousands of others!

  • @MELDYKATZ
    @MELDYKATZ Před rokem

    I just hate when someone tells me I can work. They don't even see me day after day,when i can't even do the most simple of household tasks, if any.

    • @MariaM-fu6wm
      @MariaM-fu6wm Před rokem

      It is very upsetting, people don't understand the effects of this syndrom. My daughter has it and thank God it didn't take long for us to figure out what she has. People around here thought don't get it.

  • @matildapurtill9388
    @matildapurtill9388 Před rokem

    Amazing 😲. Don't get left behind > *promosm*.

  • @moonsharn
    @moonsharn Před rokem

    I wonder whether in some people it’s an infection. I had something like this for 3 years and was continually declining in ability to the point where I became bedridden. My doctor put me on antidepressants and just continually increased them until I had serotonin syndrome. He didn’t believe me, nor listen to what was happening. I felt like a mental case, but also knew there was something really wrong. The symptoms were non-specific, every part of me was affected. Fortunately I developed early stage cervical cancer and had an infection in the uterus, that was life changing, because a gyno put me on 3 different forms of antibiotic for 7 weeks prior to surgeries. I had also told the gyno what I had been experiencing and he said he had a theory on this himself, and called it fibromyalgia, so I wonder whether the extensive and long course of antibiotics were maybe him experimenting with his theory. At week 4 on antibiotics I noticed I was able to get up and around again and do more day to day tasks, more energy and less pain. At week 5 a black, and puss blood stained discharge began to be released from the top of my sinuses and the dizziness went away. By week 6 my constant migraine had ceased. By week 7 on those antibiotics I had normal energy levels, which felt like super human energy because it had been so long since I had been able to even function. Once I had the hysterectomy to remove the cancer I then weaned myself off those terrible antidepressants under the supervision of a better gp, and then I got fit and started growing all of my own food organically to get the maximum nutrient content possible, I’ve never looked back.

  • @RSEFX
    @RSEFX Před rokem

    Kratom can help a lot. Doesn't cause anxiety but gives an energy boost. Also helps to nullify pain quite well,, and can help with sleep---depending on which type of leaf you take, red, green or white. It is legal in most states and not terribly expensive, and one need not take a lot of it to receive its benefits. I know a number of people who take it to deal with ME/CFS, and it has served them well. Very low tendency for addiction, but you need to be informed about this area: Addicts have also used Kratom to help them get off of hard drugs. Kratom is a leaf/can be considered a herb. (For more info look up the American Kratom Association.) It has helped me: I've suffered with ME/CFS aka SEID, since 1986.

  • @anniebalsbaugh2093
    @anniebalsbaugh2093 Před rokem

    You randomly popped up on my CZcams, how is your life today? Have you remained well? And do you still help in the ME/CFS community?

  • @terriealabama7612
    @terriealabama7612 Před rokem

    The story of his daughter is so much like me! Even the food allergies. Thank you so much.

  • @RSEFX
    @RSEFX Před rokem

    Prof. Tate may not want to consider the following, but...a number of friends with ME/CFS (and I might include this writer in this group) have found a great deal of relief by taking Kratom, a powder derived from leaves of a tree grown in Indonesian countries that is being studied in the US. The American Kratom Association and some of the chemists/biologists connected to that group can provide quite a bit of background re this plant. It doesn't cure ME/CFS, but makes life more tolerable, and can provide quite a degree of energy and better sense of well-being. I've had to deal with this illness since 1987, and Kratom is the only thing that has worked consistently (I've run the gammet of doctors, and treatments, to very little avail). I think it well worth looking into its chemical workings in the human body. (This plant is legal in most states in the US, but there are groups here that are making efforts to ban its use as some kind of drug, which it is not. It's an herb which has been used for hundreds, if not thousands of years to help people work and tolerate difficult living circumstances.)

  • @RSEFX
    @RSEFX Před rokem

    Was there ever positive outcomes of studies done with MitoQ that was talked about back in 2017?

  • @RSEFX
    @RSEFX Před rokem

    THANKS for posting Prof. Tate's 2022 update! This means a lot to me.

  • @myhealthobs5290
    @myhealthobs5290 Před rokem

    Great update, please keep up the great work.

  • @suzannethompson9261

    Let me just say thank you. In the Midwest there are no doctors that will even acknowledge the diagnosis of cfs. And as a disabled nurse practitioner I have had to diagnose and treat myself. I finally read about NADH and magnesium and vitamin D which has really helped. Then I got Ambien so I could at last sleep.. and I started to use TED hose to help with the POTS . Also I discovered that the keto diet helped a little. I also began to get support from my local priest. it is so much a relief that someone believes that this illness is real.