I WAS NOT PREPARED! | Actually Autistic TikToks
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- Äas pĆidĂĄn 2. 07. 2024
- I'd love to post more frequently on this channel because I have WAY too many ideas! To make the possible, I've started a Patreon. If you join, you'll get get 2 exclusive videos a month and access to the Discord server, even on the lowest tier:
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đ If you want to learn more about the Patreon & Discord community, I have a video tour! đ: âą Introducing... THE ANT...
I'm not crying...you're crying...
00:00 It's Actually Autistic TikTok time agains
00:13 Love on the Spectrum
03:50 It's SO easy to get a diagnosis!
07:00 You can't be autistic at 27 lool
09:35 The BEST question on the diagnosis form!!
13:16 ALL dancers are Autistic??
17:10 In the BPD mines
18:28 TW Meltdown
22:35 Squishmallowzzz
25:00 HEADPHONES ARE LYF
đ WATCH NEXT đ:
WHAT AM I LOOKING AT??? | Actually Autistic TikToks:
âą WHAT AM I LOOKING AT??...
More Actually Autistic TikToks:
âą Autistic Person Reacts...
HILARIOUS AuDHD TikToks:
âą Painfully Relatable Ne...
My Videos Mentioned:
What do you if you think you're autistic:
âą So you think you might...
Autistic Special Interests are NOT what you think:
âą Autistic Special Inter...
Sensory Traits of Autism in Women:
âą 10 Traits of Autism in...
đ *Books I'd Recommend about Autism:
Aspergirls by Rudy Simone:
amzn.to/3xSZ6Mg
Different not Less by Chloe Hayden (read if you want to cry):
amzn.to/40fKx2m
Unmasking Autism by Devon Price:
amzn.to/3LhMV3j
The TikToks:
www.tiktok.com/@kaelynn_vp/vi...
www.tiktok.com/@_thislineismi...
www.tiktok.com/@rubyofmyeye/v...
www.tiktok.com/@paigelayle/vi...
www.tiktok.com/@unmaskingwith...
www.tiktok.com/@unmaskingwith...
www.tiktok.com/@unmaskingwith...
www.tiktok.com/@venusfrogtrap...
References:
The Experiences of Late-diagnosed Women with Autism Spectrum Conditions: An Investigation of the Female Autism Phenotype:
link.springer.com/article/10....
Pre-diagnosis support - a guide for adults who think they might be autistic:
www.autism.org.uk/advice-and-...
NHS What to do while you wait:
www.nhs.uk/conditions/autism/...
DSM-5 Diagnostic Criteria for Autism:
embrace-autism.com/decoding-a...
Wired Differently Post:
blog.jkp.com/2022/05/wired-di...
BPD vs Autism:
neurodivergentinsights.com/mi...
Modifying DBT for ASD:
www.researchgate.net/profile/...
Information on Meltdowns from the National Autistic Society:
www.autism.org.uk/advice-and-...
Olivia Hops Meltdown Video:
âą Autistic Meltdowns in ...
DISCLAIMER: I am a second-year psychology student and a late-diagnosed #actuallyautistic individual. I am not a qualified healthcare professional.
*Links with a star are affiliate links. The channel will receive a small commission if you buy anything on Amazon after clicking through with this link. There's no extra cost to you and any money will go towards putting out more content. I'd love to post twice a week and put more time into research for these videos. Thank you so much - I really appreciate everyone sharing their stories in the comments.
20 mins fashionably late, but we made it! Hope youâve had a lovely week.
Were in for an emotional rollercoaster this time, but Iâm so grateful to the amazing autistic content creators putting this stuff out there. It could be lifesaving, in so many ways!
Thank you so much to everyone who is subscribed⊠just 300 away from 25k! Madness!
If you want to get in on the buttered sandwiches debate, hereâs the last TikTok reactionâŠ
WHAT AM I LOOKING AT??? | Actually Autistic TikToks: czcams.com/video/I_usLViKHUo/video.html
And if you want to watch the whole âso you think you might be autistic, now what do you do?â video, here it is:
czcams.com/video/sQ102wzqaXY/video.html
As a spectrumite, my mind goes "What?" When someone says, "I can't speak!" But then I run it through the mask filter.
random but have you watched A Kind Of Spark?
Congrats on the now >25K! đđ„ł Much deserved!
awe, I started crying too.. I felt that. I love you for sharing this..
My life is like a video game
Once I tried voicing my feelings about possibly being neurodivergent to a counsellor and was told âyou were able to articulate that very well so you probably donât need worry about any of those thingsâ which was so invalidating at the time cause iâd sat up all night beforehand rehearsing in my head what I was gonna say, thatâs why.
Itâs so hard to ask for help and then when we finally do theyre like nawh you good đ if I was âgoodâ I wouldnât have brought it up!
Awe :(
I've had a similar experience. I also practiced what I was going to say beforehand. I was talking to the school counselor about possibly being autistic, and she just dismissed the idea as a whole because 'I dont seem autistic because I have good grades and dont act out' like..
when you script so well that it sounds like you came up with it off the top of your head... damn, feel that.
Catch-22
I hate the autism assessment questions because every single one for me has me going "well it depends on -x- or -y- factor"
Theyre literally all would you rather questions which i have a bad track record with because i ask for too much information that the question does not provide but i feel like its really important information
if a diagnostic test is asking you if you do something or relate to something, and your answer is "sometimes" or "in some contexts" then the answer they want from you is "yes"!!!
â@@spirograffeIf the question is something like "Would you rather go to the library or a party," then you can't answer with a yes. In that case, it just depends on factors not given in the question. I think thats the issue people are having.
@@maxpowers9129 yes of course, but i was referring specifically to when you want to add nuance to yes or no questions :)
Yup
I really felt that woman's pain during her meltdown. I have had people try and hug me during my meltdowns and it has always made them worse so I will tell them "Dont touch me." And because Im not in the headspace to say things calmly it will come across very aggressively, and its not because I hate them, its just not what is needed in the moment and Im trying to protect myself đ
I 100% relate. Neurologically Iâm like a trapped animal, and a trapped animal is not able to tolerate a hug.
i've been this way my whole life and never knew why
I agree but in reverse. I need physical grounding from someone I trust so if anyone else touches me besides those handful of people my meltdown will only get worse
I always feel bad telling people to back off even though it's what I need.
I got diagnosed just before Christmas ( age 32) after a 4 year wait ( they kept forgetting to send the referral for 2 years) just to have my doctor turn around and say â well your autism isnât that bad and doesnât seem like itâs an issueâ
The rage I felt đŹ
I'm sooo sorry!! Glad you finally got your diagnosis!
My doc was the same way when I fought to be diagnosed with add in college. She eventually admitted she just didnât âlikeâ treating it everybody has it. Idk how to even get an autism diagnosis without hitting similar walls. Last time I brought it up I was sent to a website
One thing that sucks about special interests and being obsessive is when you feel a sense of ownership over the interest, and so when other people show interest in it it makes you really uncomfortable and you become competitive and it can get a bit toxic. I never like when i go into that state cause i don't want to stop people enjoying things just cause its "mine"
Especially as a kid I felt this way.
Interesting. I have a few pals who are way better than me at one of my interests. It comes down to personality; if theyâre nice people, they wonât rub it in and will help me along.
Oh god I relate but also sometimes Iâll accept a person having the same interests and they get told there not good enough at it or to stop while Iâm complimented by the same person and Its like what the hell man!?!? I also get this way when I have a connection to an object and someone else has the same kind or wants the same object because it holds a special meaning for me.
WAIIIIITTTTT, So this is why I get these weird agitated feelings whenever my friend starts liking my special interests and "knows more" about it or "is better" than me...
@@diediedice yyyyep it really really sucks lol
When I thought I might have Asperger's I collected up all the documents my parents had from my childhood assessments, took the Asperger's Criteria (DSM-4 then) and the _Australian Scale For Asperger's Syndrome_ and created a case study.
My number one rule was that I couldn't answer any question myself. All answers had to come from the documentation. I completely dissociated myself from the process as though I was analyzing someone else.
The results scored very high and I took my study to my GP who very patiently listened to my process and my findings.
His response was "You know that neurotypical people don't do this sort of thing, right? They don't remove themselves from the equation, they don't create case-studies with quite nice citations, as if the outcome wouldn't affect them. You know that, right?"
"Well how else do you figure out something like this?"
"Yeah, I don't think I even need to read this..."
Though the phrase comes from something else entirely, its mood does seem to perfectly fit what happened with your GP, "We hold these truths to be self evident" đ
@@scottfw7169 LoL!
I did the same !!
You have a great GP.
@@psychohist He was the best IMO. I was sad when he moved away.
I really got hung up on the theater or museum question, it was like âmovie theater or like theatre theater?â âwhat am I seeing?â âwhat kinda museum is it?â
Exactly!! They never seen to think about the target audience when making these tests...
Yes, I like both equally. And also dislike the actual experience of each of them for the same reason - too many other people. Itâs a stupid question imo.
@@tracik1277 i think the reaction to the question would say a lot more about our brains than the simple A or B answer.
@@Maryaminx I couldnât agree more!
Also, what are they showing at the theatre and what are the exhibits at the museums?
Neurotypicals think just because we can make it through life and mask well enough to not seem super different (they definitely know we're a bit different), that a diagnosis would be detrimental to us. That's not true at all! Figuring out that I'm autistic is the best thing that's ever happened to me. I live in rural eastern Kentucky in the states, so i don't have anywhere close to get a diagnosis. And I'm afraid that if I make a phone call (which is super difficult for me) and get an appointment somewhere 2 hours away, that I'll get there and they'll say that I've got through life well enough and that I don't need a diagnosis. And, of course, I would say okay and leave and never try again
Yes, completely agree.
I'm so sorry you're in that situation - I can see why you're apprehensive. Can you reach about by email to these places at all? If so, you could email around to check how experienced they are with diagnosing adults. You could also try posting or searching in Facebook groups for good professionals/diagnostic centres within travelling distance - if people with a similar presentation to you have had success, you might feel more confident. Do any offer video appointments at all? We have a few places in the UK that will. Wishing you all the best đđ
Are you in my head? Just swap Kentucky for Georgia and this is exactly the place Iâm in in my life too. Youâre not alone Celeste, plus us Americans have to seriously consider the monetary cost of a diagnosis unfortunately which is yet another barrier.
Random/irrelevant comment but I think that Celeste is such a lovely name đ
Finally got a mental health team that is doing their best to get me a "diagnostic clarification" but it's going to be 6 months to a year... Though that was a couple months ago they told me .. although my therapist was a bit hesitant about the plausible Autism until I finally felt comfortable enough to disclose dissociative symptoms of plurality ... Now my joint pain could be hypermobility cause comorbid with autism đ... I mean she's obviously NT so I can understand the "hope?" That it would be something that usual therapy works easily on? But I guess if I may be We... Autism is the least of the "obstacles" in our way... ( First time I mentioned plausibly being AuDHD cause my son is and taking the tests multiple times with the outcome never being in the NT range at all, she was "we can look into a diagnostic clarification, but let's not put "obstacles " in our way just yet"
"make it through life, " in my case, meant constant unemployment and low-paying jobs, while raising a child by myself. But if you're not in prison or homeless then obviously there's nothing wrong with you; you must be just lazy or undisciplined.
36 and self diagnosed here. The 'eye contact' thing would really count against me thanks to how well I'm able to mask it. My Dad taught me at a pretty early point to look at them be focus on a different part of their face, like their nose or forehead. I still have to look away if I'm trying to actually listen to someone though.
Yess - if I'm making eye contact my listening skills are poop.
My martial arts instructors taught me to look at peopleâs eyebrows. It gives them the sense that youâre looking them in the eye, but also THROUGH them (which con be intimidating) so use in moderation! â€
Same here with the eye contact thing, but it was my (awful, abusive, now thankfully passed away) mother who shamed me from an early age into always making eye contact with people. Her cruel, shaming, invalidating techique was to repeatedly tell me:
"LOOK AT ME WHEN I SPEAK TO YOU! I don't trust anyone who doesn't look me in the eye!...."
So like you, I learned to make eye contact as a matter of survival as a child. It's always felt too intimate and uncomfortable in all but the most intimate settings with people who I love and trust.
Unfortunately, psycho-narccistic mommy wasn't one of them. I suspect she knew this, and knew that it made her look bad in the eyes of others. So out came the shame hammer.
Thanks to this post, I realize that forcing myself to make eye contact draws focus from my ability to listen and process what the person is actually saying. This is no doubt part of the "social reciprocity / communication difficulties" I've experienced throughtout my life.
I tend to just focus on eye prettiness when I look at their eyes. Though, that can be distracting too. xD
I read somewhere, the 'natural' eye contact is a triangle:
eye 1 - eye 2- mouth - eye 1 -....
I often do that consciously but then it's hard to still listen lol
please don't stop pausing whenever you have something to say! seeing you process things and the places your brain goes with each little stop is so lovely and validating. i do the same thing when watching something with a safe person who i want to share my perspective with and recognizing it in you makes me so happy â€
"You're a smart person, figure it out!" is so common to hear. Because yes, I am. And it's absolutely terrible to be constantly called-out for difficulties and behaviors you cant help, and then kinda have it insinuated that I am doing what I do on purpose and should try harder to change and adapt to what they think is "normal", but have that happen all throughout my life until age 30...
Tbh you should try harder to be yourself, because youâre beautiful and nobody but you is entitled to defining your identity.
I was told ''you're too smart to be depressed'' by my therapist while I was in the psych ward for being su***dal. They pumped me up with benzos (hated them) and sent me home. For context, that happened in Eastern Europe, where mental health isn't really a thing. If it's not something related to psychosis, they'll tell you to stop feeling sorry for yourself. We're 8 years later and I now live in Canada đ
"You didn't try enough" is something I've been told so many times when failing and it's incredibly infuriating to hear especially when it comes to something you really cared about because it feels like you were already trying so hard and putting in so much effort but it's still not good enough for everyone else.
I am 48 and actually the autism issues have gotten a lot worse with menopause. Thatâs why I started doing a lot of research into figuring out what was going on with me. My ah ha moment was when my youngest son was diagnosed with ASD and ADHD..we are very, very similar. So yes..autism really affects people into adulthood and sometimes the struggles get worse with age and life changes!
It drives me insane that there are little to no studies on neurodivergant adults
There are some incredible connections between ASD and PMDD (Pre-menstrual Dysphoric Disorder) that I've only recently learned about - it started to affect me as I reached my late teens, and now as a 21yo I am dealing with a lot of difficulties related to my hormonal cycle.
The number of people with PMDD who have a comorbid diagnosis with ASD, ADHD, and other Neurodivergent conditions, is rather high. I do dread menopause, though I'm still young, but I hope just as you are managing and trying to help yourself that I will be able to do the same :)
@faeriesmak It's me being perimenopausal and its effect on my executive function and the horrendous brain fog and burnout that's kind of forced my hand, in regards to diagnosis.
I just got my confirmation of the AuDHD (that I had already figured out, thanks to two of my sons re the ADHD, and my father, another son, and a sister getting her kids diagnosed regarding the ASD) just two days ago. I'm 50.
I remember bringing up autism to my psychiatrist about 10 years ago when I was around 18 years old and he just smiled and said a diagnosis wouldnât be beneficial at this point, even though treating me for the other diagnoses wasnât working, but instead causing more issues. Iâve just felt like a leaf drifting in the wind my entire life with no direction or control. His smile still haunts me, it felt like he was saying âyes youâre autistic, but no resources or help for you, youâve drifted this far keep going.â
I'm sorry this has happened to you. I hope you can get one someday
So real, doctors are very dismisive of autistic adults, all of mine say that i wonât get any better anyway.
I had similar experiences. So many other dangerous labels and unnecessary medications to try first, after all.
This just reminds me of how much I hate that people get legit MAD at you for drifting along in life and just taking the opportunities that come at you instead of having life plans and goals and fighting your way places.
Re the part about meltdowns: I was diagnosed at 6 or 7 years old and just turned 32 this month. I have a lot of trauma and negative connotations around my autism diagnosis related to how my parents and others around me treated me when I was younger (basically until I moved to another country in my late 20s). Only recently I realised that the moments I was being annoying, unreasonable, difficult or having a tamper tantrum according to my parents or other adults/caregivers/teachers in my environment, were actually me having autistic meltdowns, stimming in socially unacceptable ways or other totally normal autistic traits. And by recently I mean in the last year or so, since I gained enough distance from my life back home, built up a new life where I am now, have started talking to those currently closest to me and to mental health professionals about my past. Also, the fact that more people online are coming out as autistic and sharing their stories, especially those that are not straight cis white boys, has really helped. For the first time in my more than 3 decades of life I have felt like I am human, and like I am not just stupid and should "act normal". It's so liberating to be allowed to stim, be allowed to have sensory issues and even to have meltdowns without people getting angry or me beating myself up about it.
if your neuro divergent CBT is the absolute worst
Me and mom are as of yet undiagnosed, but evidently have sensory and other issues that seem like neurodivergency, and years ago we had two CBT therapists or something visit us many times for 'help'. I told her once "Cognitive behavioral therapy is literally just judging the way you react to things, but put nicely", so with that context no wonder it's 'ineffective' on neurodivergents. It's literally masking school đ
The internet has ruined me, I didn't think you meant cognitive behavior therapy at first đ
Definitely the worst, try taking it in a foreign language. I did learn a lot of cursing in my husbands native language. A lot of new words. It felt more like a vocabulary lesson to me. The only thing I learned is that I cannot do everything perfect. The whole thing about getting in touch with your emotions, from Paul on Autism on the Inside, is pretty much a non-starter for autists and can be detrimental to more meltdowns.
I got labled as "resistant to treatment" over and over again because CBT wasn't working for me. I was diagnosed with general anxiety/depression/social anxiety at the time, but didn't have my ADHD or autism diagnosis yet.
I kept trying to tell the therapists that I was already doing everything they were telling me. Cognitive Behavior wasn't the problem. Instead of investigating why it wasn't working, which could have lead to my diagnosis a decade earlier, they faulted me with the fact it wasn't working.
I had to self diagnose myself with ADHD in order to get help. I had to really push just to be evaluated. One of the first things my GP told me was "You've been seeing mental health experts for years. If you were ADHD, they would have noticed." I had to explain that they didn't know they should have been looking for it.
I finally got refered to a specialist and it took her all of five minutes to realize I was ADHD. We went through the evaluation for formality's sake, and in that process, she also recognized I was autistic. She evaluated and diagnosed me for that as well.
I only saw that therapist for six months before I moved away, but it was the most life-changing treatment I ever had. She actually listened to me if I said something wasn't working. Instead of blaming me, she looked into why certain things wouldn't work, which is what lead to my autism diagnosis.
CBT never helped. Having a therapist who listened to me and didn't blame me for not fitting into their box did.
I just feel super lucky that my therapist is not only trained in neurodevelopmental disorders, but has ADHD herself. It's sooo much easier to communicate to her because we can relate to each other without having to explain things, whereas someone else looks at you like you're an alien when you try to describe your experience.
13:17 as someone who is also both autistic and ADHD, dancing is definitely how I have been getting by stimming in public. Never realized that was a possible trait, but it explains a lot
Don't worry about pausing to talk. My mind can't hold onto my thoughts well enough to wait until the end, so I get it!
Thank you so much - that's so kind đ
When I was misdiagnosed with BPD I did DBT and it did help me. The ways it helped were getting my life on schedule. I would stay up doing special interests all night frequently and forget to eat. They helped me get more on schedule (probably an ADHD problem more than an autism problem). The other thing that DBT helped with was emotional regulation. Autism can cause emotional regulation problems. Now in certain ways DBT was not a good fit. But some parts were very helpful. Actually my DBT therapist was the first person to realize that I was autistic. She was a good DBT therapist. I had a couple who were not good.
DBT can be quite good for autistic people, due to the emotional dysregulation. I wish I could get DBT, but Iâm not in the circumstances where I can, so I just do research on it.
Diagnosed with BPD here, currently questioning if I have autism instead or maybe both. DBT has been really helpful for me, especially the emotional regulation side of things. I was in therapy for a while and nothing seemed to do anything for me before starting DBT.
@@Link-dx1lx DBT helped me more than standard therapy as well. It is more practical. They hand out more specific steps about what to do when your emotions are overwhelming.
I'm autistic and I love ballet. Classical ballet.. not a huge fan of other types of dance. But classical ballet really just.. hits it for me. It's a little more difficult with my dyslexia.. ADHD+dyslexia= hard to remember combinations.. unfortunately. But it really tickles my autism. Very strict rules. Strict ways of doing things. There's no bending around in weird ways or rolling on the floor. Your posture has to be precise. Your movements have to be a certain way period. I love it, just expensive af đą
Same, I did ballet classes as an adult, I love the routine etc
I did ballet for years when I was young. I|t was definitely my special interest. Obsessed.
I have been suspecting my daughter has ADHD & Dyslexia (and trying to go through the motions in school to get her assessed) and one of the things she struggles with in Kickboxing and swimming is combinations
@@LG-Musique once I've had time to practice them, they're in my head forever. But unless it's super simple I'll make mistakes the first few times. It's incredibly frustrating with things I really enjoy
Good luck getting her assessed! And hopefully she can get help. It's good the issues were notice
@@natashasullivan4559 honestly itâs so frustrating. Iâve been told all through the infants that they have to wait until sheâs in the juniors to be assessed. Now that sheâs in juniors theyâre saying she needs to have a hearing test and be seen by SALT to rule out any other problems and also wait until sheâs had another term of in-house interventions, before they will even consider getting her assessed đ© meanwhile sheâs struggling and sheâs having a tough time in school. I looked into going private but was advised that the school are not obliged to do anything with a private diagnosis đŹđ
Oh the meltdown one brought back a buried memory...
I'm excellent at masking, so I was in my mid to late 30's the 1st time my mom witnessed a meltdown (not counting early childhood). It shocked her so much that she actually stepped out of character and tried to console me, the one time I needed her cold standoffish self LOL
She proceeded to do what any logical NT would do...called my NT best friend and the 2 of them proceeded to get me drunk to forget my troubles đ¶đ€Ł
I puked so much and felt like hell for 2 days after, haven't drank since (approx 8yrs).
At the time, I thought they were crazy but I was SO embarrassed to be caught in that state, I didn't argue with their idea of "help".
Now I realize, that while it was the absolute worst approach for me, they were just doing what they would have wanted someone to do for them.
It also makes me question my reaction to same friend having a breakdown after her mom passed unexpectedly. About a yr afterwards, I found her curled into a ball, crying in bed. I crawled in as big spoon and cried with her til her heart rate slowed back to normal, then let her be until she was ready to talk. I have no idea if my approach was the solution she needed, but it was what I would have needed in same situation. (Context: I can't ask because we grew apart and I gave up trying)
Great news. EVERY SINGLE NHS employee clinical and non-clinical has had to do Autism and Learning Difficulties training. It is called Oliver MacGowan training named after an autistic teen who tragically lost his life because he wasn't able to communicate his needs đą. His amazing parents have championed this training in his memory. â€
I had a meltdown the other day, I told my husband not to touch me when he reached out to comfort me. He took his hands away right away, and after a moment of silence asked me if I wanted my weighted blanket.
omg the theater and the museum question! for me it's the opposite: the theater is just right for me since i can sit in one spot and stim as much as i like without other people seeing it cause it's dark and only the stage is lit up, and if i don't concentrate on the stage for a while and look somewhere else listening to actors perform or the music then it's not big deal.
whereas in a museum, there are a lot of people around and they distract the hell out of me with all their noises and talk and i can't focus on the artworks i'm looking at; also i feel that i'm constantly being looked at too so i have to watch my body language and mask myself over-pretending to look and analyze an artwork (even though i look and analyze the artwork anyways, it's just that around people i feel the need to communicate clearer that i do that, which ends up distracting me)
I feel this so much. As gen-x, autism in girls wasnât even on the radar. A diagnosis wouldnât have made a difference for me (or even been possible), but knowing that there were others that were going through the same thing? That would have CHANGED MY WORLD. I wasnât diagnosed until I was in my mid 40âs.
As it stands now, my parents and even those in my generation still have a very old school, typical view of Autism (like a lot of people). Iâve never mentioned my diagnosis, because they would laugh and tell me I was being dramatic. Explaining masking would be too much for them to accept.
I am so thankful for people like you who are standing up and bravely sharing your experiences. For the first time in nearly 50 years, I am starting to feel like Iâm not some oddity of nature. It is still incredibly hard and exhausting every day, but at least I know Iâm not alone in feeling this way. That gives me hope. â€
Are your parents from the âweâre just a family of teachers that likes trains and insists on only one person speaking at a time, itâs perfectly great to be different as long as you donât call it autismâ crowd too?
Your channel is so special to me. Thank you. This past year I was formally diagnosed with ADHD, OCD and what my neuropsychologist described as showing many âautistic characteristicsâ (still wrapping my head around what exactly that means for me). It is so important to feel seen and heard through this, and that is exactly what your channel does
Musicians?... constructive creative repetitive flapping!
I just got diagnosed with OCD this past year as well.
So, I only self diagnosed this week and wow, the world itâs opened up to me is awesome . Without a doubt the highlight has been discovering the CZcams community. Love the channel, itâs had me in tears of joy. Keep up the great work.
Yay! I'm so so happy for you!
I'm really glad I could help a little. Thank you so much for being here!!
Welcome to the tribe. đ«
"So, I only self diagnosed this week"
An actual diagnosis would probably be preferable.
@@knrdvmmlbkknlol, thatâs the point of the big chunk of the videođ but yeah appointmentâs are booked. Now the wait.
@@knrdvmmlbkkn an official diagnosis wouldn't mean they didn't have it before. Self diagnosis often comes after weeks, months, or even years of extensive, self directed research, effectively doing the job the medical profession _should_ be doing. Yes, having all that research "signed off" so it's official can help when dealing with employers, and other areas of life, or people that may not believe, or minimise someone's struggle, but not having it doesn't mean it's not there.
I've taken several online questionnaires for autism (debating professional assessment), and I find most of the questions to be infuriating or confusing. And being able to predict what the psychologist thinks the "autistic answer" is can influence my response, especially when every single answer I want to give is "well it depends". A 20minute questionnaire takes me an hour to fill out, and even then I never feel confident that I was able to accurately express myself. And that's not even in a clinical setting. I'm terrified of being professionally assessed partially for this reason.
Regarding museum vs theater, I enjoy both, and it depends on my mood and energy level on any given day. I also suspect I have ADHD, and so I can feel very distracted and overwhelmed in museums because there are so many things to focus on / read / see, and it's a maze of exhibits all with different themes, and yeah it's echoey and loud. So a theatre would actually probably be better because you have a single stage to focus on, the lights in the auditorium go down, and it's an immersive and enriching artistic experience. So why professionals would assume "museum" is the autistic / neurodivergent answer, and "theatre" counts against you in autism points (which you have to accumulate enough of to be diagnosed) is STUPID and insulting. It's like they made up a game and you have to figure out how to hack it in order to get the results you need, and I hate that. I want to just be able to be honest. Sigh...
I'm just worried they will look at the results and go, oh he just choose those to make it look like he actually had it.
And sometimes museums/art galleries can be too quiet and the noise of shoes such as high heel type shoes drives me crazy
i had no sanctuary growing up. i was assailed from all quarters, so i started masking almost from birth--and yet i also rebelled against masking, insisting at some level on being who i was. i learned more of how to be in a society from true friendlies in college than i ever did from my birth family, who more focused on how not to look and what not to do. finally stopped pretending i don't have emotions at age 19 and started focusing on better behaviors while still trying to be authentic--i am still learning to lean into that. i am fortunate to have safe space now. very thankful indeed!
at 65 I am grateful for your videos and those others share too. I am self-diagnosed and it will likely stay that way because even trying to get a diagnosis would be more stress and less help than I am willing to deal with. I will TELL my doc I am autistic, tell her to put it in her record and if she refuses I will continue to remind her. I am glad to know and rely on various suggestions here to help me deal with and learn about it. Thanks to you and all the creators. You are a part of saving my life/soul/sanity.
Iâm sending you a lot of love â€ïžđ
Same here. Too old and too difficult to bother. But I'm easily willing to bet my life I'm autistic.
I've been thinking about the possibility of me being autistic for a while and even took the quizzes that you had recommended in a previous video. Both of my scores say I'm autistic, and a lot of people I know have told me that it would make sense if I was because it would explain why I'm so "weird". But anytime I bring up the possibility to a particular family member(I won't say who) they always brush the possibility aside and just say that I'm "weird and odd", and they can't seem to figure out why I can't just take that answer and be fine with it. Your videos help me a lot with trying to figure out how to put why I feel like I need an answer into words. Thank you so much, and I'm super happy I found your channel, thank you for creatingđ
identifying effects but not causes is kind of like having an electrical outlet that sets anything near it on fire. you can say the fires are weird, but itâs better to identify the outlet as the source. after that, the analogy breaks down; you can replace an outlet, but not your whole autistic brain.
hi, i'm not trying to make guesses about your situation but i thought sharing mine might help: for me one of the people who thought i couldn't be autistic was a parent, and i think it was because they also have a lot of the same traits as me that they'd learned to mask and work around, and so admitting that i could be autistic and could need supports was gonna be hard for my parent because that would have some difficult implications for my parent like maybe things didn't need to be so hard and maybe the struggles they survived wasn't just "the way things are"
@@hp8685 Thank you so much for sharing, and honestly that would make a lot of sense. I'm very close with the person that's having trouble acknowledging I might be autistic, and me and them have a lot of similarities when I actually think about it. Thank you, for sharing
â@@hp8685 Yeah, when my ADHD therapist told me she thought might be autistic, it was hard for me to swallow. My autistic traits were so common in my family. I thought they were normal. I actually had to take a step back and consider that if my family were a single person, would they get diagnosed? The answer was a resounding yes.
When I told my dad that he was probably autistic, he took it pretty well. He was able to look back on his life and recognize that a lot of things he struggled with fit the bill.
My mom was a lot harder to convince that she might be autistic. Don't get me wrong, my mom is an amazing mother through and through in so many different ways, but she was also the one who minimized my struggles as a kid. She spent so long struggling and having those struggles minimized that teaching me the same thing was just her default. She didn't know she was minimalizing my struggles. It's just what she was taught from a very young age.
So when I told my mom she is probably autistic as well, I think it might have triggered some PTSD. If she was truly autistic, then she wasn't as normal as she worked so hard to be every day of her life. In her mind, she would be flawed, just like she tried so hard to avoid being, even at the cost of her own mental health.
It's taken a while, but she's slowly coming around to the idea. It's taken months of "There's nothing wrong with being autistic," and "Being autistic just gives a person a different skill set than most have. It's not bad, just poorly handled by others." It was only this last week that she herself said that she was probably autistic.
I think those of us who work to seek the diagnosis sometimes forget that there are others who have made it through by becoming really good at denial. It's a coping mechanism. Maybe not a good one, but it is one. I'd be lying if I said I didn't struggle to work through the same barrier when my ADHD therapist told me I was autistic.
I guess this is all to say that a person shouldn't feel invalidated if someone tells them that they can't be autistic, and then goes on to use labels others use to describe autistic people instead. Their denial is probably far more about them than it is about you.
Same here bud
Yeah. I canât get behind that dance theory.
My experience with dance involved a lot of judgmental mean girls who thought I was a weirdo⊠I made zero friends and on top of that my poor proprioception, dyslexia, and difficulty processing instructions made it near impossible to learn a routine. It wasnât until I started going out to live music as an adult and I could move my body however I wanted that I realized how much I loved dancing!
YES. Funnily enough, I took a couple exhibit/experience/museum design classes at uni, back when I had no idea I could've been neurodivergent, and when discussing some techniques around pacing, timing and framing of the single exhibits, I was constantly skeptical about the likelihood that an actual person could perform this weird walk-stare-read-repeat dance effortlessly (also reading the room and taking other attendants and friends who you came with into count) and actually enjoy themselves. I mean, could I merely stand such experience? Of course. Would I've actually learned something about the actual exhibited content at the end of it? Highly doubt.
I'm forwarding this to a psychatrist and personal freind of mine. The fist clip had me in tears, just like you. I'm male. I'm 58. I was diagnosed last year at age 57.
You are doing very important work. Keep it up. I know how hard it can be to produce content regularly as an autistic muscian for my own channel.
I suggest including links to online self asessment tools for autism in your show-notes. Always - at or near the top. As a resource for people wondering if they are autistic. It's how my diagnositc journey began. Viewers can self screen, and can print out or email or text autism positive test results to mental health providers, who are then obligated by professional standards of care to follow-up with refferals to qualified autism diagnosis specialists - at least in America.
Thanks
I was diagnosed with BPD along with everything under the sun (depression, generalized anxiety, social anxiety, CPTSD, OCD, Seasonal Affective Disorder, panic disorder, and dermatillomania) without anyone stopping to think I might have Autism despite being diagnosed with ADHD since 8th grade. My psychologist does think I have BOTH Autism (not formally diagnosed yet), CPTSD, and BPD since I do have a history of loads of repeated childhood trauma, which is like the building blocks for CPTSD and BPD and I do have some symptoms from BPD that can be distinguished from my autism symptoms, but boy do I wish the autism part had been noticed well before I was 25 (now 26). Even just accommodating myself and researching more to understand myself better has made SUCH a huge difference in my life, my relationships, and my mental health.
I keep going back and forth on whether I think Iâm autistic or not. I want to say yes, because what Iâve heard is sooooo relatable to my experience of life. But I also want to say no, because⊠I donât know! Iâd feel fake and stupid if it turned out to not be true, I guess. But man, that first video was really relatable. My autistic friends are all so relatable. So many of my childhood issues growing up fit right in with autism. GOOOOSH.
I feel the same, and I also donât want the imposter syndrome that comes from my âCZcams diagnosisâ. My formal ADHD diagnosis was a huge changing point in my life for the better, so I think an autism diagnosis would only help!
Sorry for the rambling
If you feel like you're faking it, you're probably not faking it. Someone who's faking it KNOWS they're faking it.
I thought that I hated dancing because the first exposures I had to it were being forced to square dance in school and then later at a work event. But, then I took a waltz class to try and meet women. I didn't meet any women because everybody else was there as part of a couple, but it turns out that I like dancing, and I'm not terrible. Then again, I didn't think I'd like rocking, but somedays it is the only thing that gets my anxious thoughts and ruminations to stop other than medication.
It's amazing to me that some people grow up and have this connection to their own bodies, I was like a camera floating around without really interacting with the world. I'd look down and be like, I cut myself. When did I cut myself? Well, Iâm bleeding, so clearly I cut myself on something. I hope I didn't leave any blood somewhere that I won't find for 6 months.
My daughters got diagnosed very early. I have an awesome pediatric neurologist. My oldest was diagnosed at 4, my youngest was diagnosed not long after her. Iâm so grateful that theyâre going to grow up knowing there is nothing wrong with them, they just think differently. My daughters know theyâre autistic and theyâre not afraid of letting people know. This is how I am, and thatâs okay.
I was in tap-dance for several years as a kid. One of my school teachers came to one of the dance recitals and my parents to this day can remember how shocked my teacher was at seeing me perform. Apparently I looked like a different person onstage, not the shy, awkward kid that she knew in class.
I also knew a girl in school at that time that did ballet but went to a different dance studio. She was so excited when she got her first pair of toe shoes that she brought them to school to show me. I had the pleasure to see her perform in The Nutcracker at our local theater. Man, that brings back memories.
I was diagnosed with ADHD at age 37 after my 8-year-old boy and it's near world of difference for me I accept myself so much more now it makes everything just really make sense now my two-year-old is being assessed for autism
2:27 "Had I known about [autism], I think I'd have known that I'm more suggestible...and I might not have ended up in the situations that I did." Reading this drove me to tears. I never considered I could be autistic until well after I was done with university, and I expressed exactly this feeling to my partner not too long ago.
I loved the doctor scenes. Today I finally got to see my GP after fighting the office manager for a month over telephone versus a face to face appointment. He is going to refer me for diagnosis. I'm 63 and could have cried with relief. I'm not sure what he made of me as even after he said he'd refer me I was still pushing it. I took a few bits of well researched paperwork and a personal statement with me and I think it helped.
Iâve been self-diagnosed for a few years and still some content that gives me âahaâ moments like the meltdown video. I havenât had a meltdown in decades and forgot I ever had them (I surround myself with people who respect my needs and boundaries) but when I was a child I was constantly looking and feeling like the meltdown example because I was not allowed privacy and was not allowed to walk away from situations. It got so bad my mom thought I was possessed by a demon and performed two exorcisms on me. All I needed was to be alone. đą
I'm currently going through the diagnosis process after having a bit of a revelation about how I experience the world. I've also recently been through rehab where I finally came to terms with my alcoholism. It's really strange how many parallels there are between the two journeys. For a long time I told myself I wasn't an alcoholic and even though I correctly identified my drinking was a problem, I told myself I was just weird and had a different relationship with alcohol. Reluctantly going to rehab, I was almost immediately set straight when I heard many people say the same things I had been thinking. Obviously it was a heavy realization that I was different in a way that would affect me for the rest of my life, but it was also a relief to know I wasn't alone, and that many many people had the same issues as me.
I got diagnosed a couple months ago at 25. I love musicals. Theatre over Musium every day. Although I hate the crowds both entering and exiting the place, I love actual musicals. And at least if you're at the theatre, people are less likely to interrupt you while you're watching XD
I'm autistic and absolutely love to dance BUT I can't imagine it being a majority thing in dance classes... Because dance *classes* were a horrendously traumatizing experience for me personally. It could be down to bad teachers, but for me, the inability to copy and remember movements, the fact i just can't learn physically as fast as the rest of the group was really upsetting and stressing and invited ostracization. Which is really sad because I'd love to learn properly, but I can't ever face that nightmare again.
I normally start by telling people I'm autistic and people still said that, "I'm smart enough, you have to apply yourself." I had to learn that my problems aren't "bad enough". I never did well in a public space and now that I'm in online school, I can finally feel like me, that I was prohibited to feel for a good 5 years now. This video made me cry. I'm overjoyed to see people who actually care about my problems, and not punish me for being myself.
I think the dance hypothesis is pretty spot on. When I was first starting to research neurodivergence I focused on ADHD and used my passion for ballet as a way of discrediting the idea that I could have ADHD. I'd think "how could I have this condition known for short attention spans if I'm the one known for always remembering". Especially since the only person I danced with who was open with his ADHD at the time could never remember combinations. Then I looked into autism and then the two conditions existing comirbidly and realized that it's my special interest and very helpful for stimming.
Also, DBT isn't always group therapy. That's the most common version, but when I got out of my Intensive Outpatient DBT program in senior year of high school, part of my discharge plan was pairing me with an individual therapist who specializes in DBT, which was also super helpful
Oh, that's interesting! Thank you so much for sharing that & your story đđ
23:09 Yes, super relatable. This is how I burn out of hobbies and end up going cold-turkey because it's too hard to keep up. One of my "things" is not being able to skip an episode in a series, so if I end up too far behind, it just becomes a stressor and I'm more likely just to drop the series but also feel guilty about it. I remember doing that with CZcams as a whole around 2012 when I'd subbed to too many channels and couldn't keep up, and went about 2 years without watching anything before slowly starting back up again. Happened again in the last couple of years with Minecraft CZcams.
And now I'm feeling the same with work Slack where I'm following what's probably objectively too many channels but I feel I _need_ to know the work stuff and the social stuff and the news-y stuff etc etc, and annoyingly it's not something I can just drop entirely because it's my _work_ Slack. Still, I should probably redo my channel categories and mute entire categories of info I don't _need_ to follow or which don't spark enough joy (though still keeping channels like the ADHD channel which is hand-on-heart the _best_ ADHD resource I know to exist and it's a right shame the wider world doesn't have access to it. I guess the rest of the world has Reddit?). But it is stressful, and it'll take time to do that recategorising, time that I don't feel I have when there's more bolded, unread channels for me to read every message of! Did I mention how I can't skip messages?
Sorry, I feel like I vent a lot in your comments. Please know I'm not venting to you (well, technically I'm venting at anyone who'll read, but I don't expect any individual to read). These videos are just really good at triggering thoughts (in a good way) and synthesising thoughts into a comment is my way of processing them!
The BPD one hit me hard. I realized about a year ago that I'm autistic and I've been peeling back the layers of my life and finally understanding why CBT and DBT never worked for me, how my autistic burnout was misdiagnosed as depression for years, and why doctors started diagnosing me with BPD in my mid 20s.
The meltdown video also made me cry. Itâs so hard to express yourself in that state and when youâre not being heard in that vulnerable state itâs such a devastating feeling that also worsens the meltdown (at least for me it does). I could relate a lot and felt so bad for this person.
I know, right? That first one. I'm 62 and that was my life and feeling like a total f-up my entire life. I live in gratitude for other autistics giving me shelter even though I'm not formally diagnosed.Thank you for being so authentic, so real, so compassionate. Thank you!! đ
I've never lost it with someone like I did with my 7 year old son's teacher who sent me photos of him having a meltdown in class. She literally stood there in front of his entire class photographing my son at his most vulnerable. That is sickening behavior, especially when perpetrated by a figure of trust in a child's life.
Wow
3:30 I actually gasped and had to stop to compose myself when you said it's like being trapped behind glass. I've literally always described all my social connections/interactions as "being stuck behind a glass wall" and none of my therapists ever understood what I meant and thought I was just describing general loneliness... but it has to do with observation and understanding too, and I never knew how to describe this in full in a way they would understand. Thank you for casually validating my analogy!!
Speaking of meltdowns, I think I used to have them a lot as a kid, or at least it was really easy to make me cry. The response from adults and other kids was always telling me that I should just stop crying, as if crying was something under my control somehow? I remember the words I would use is that it "just popped out of me". I had no control over it yet was being told off for doing it, and as an adult I actually find it quite difficult to cry, even when it'd be emotionally healthy to do so and get that release, because I've learned to force myself to suppress crying throughout my life, and there's only a limited number of incredibly embarrassing incidents as an adult where I've gotten worked up over what should be trivial things to the point of having that crying pop out again despite it not being helpful and in fact extremely counterproductive and just made everything worse and... ugh, people who think that's something anybody can control, as opposed to suggesting we "take 5" or offer a hug (depending on the circumstance) is just flat out an idiot
Masking is exhausting, but a lot of times needed. I grew up in an abusive house, and made masking a necessity for survival. As I've been living outside the abusive house, my masking has relaxed a bit, and it helped me to realize how much I've been masking and how exhausting it is to do it so often for so long.
I canât say it enough, thank you for making your videos †my 7 year old was recently diagnosed, and I am trying to be a loving and understanding parent, and your content helps me so much . đ„°đ
10:05 "there are plenty of autistic actors" and like the part about that i was just sitting there like "hi im here, undiagnosed actor" and when you said "our tone" at 10:13 i thought you said artaud like the french playwright and my face lit up and i had to skip back to realise you werent talking about one of my hyperfixations inside of my special interest of theater
ive had a meltdown at a museum but never a theatre. everyone is sitting in assigned seats and i know what to expect (i mostly see musicals iâm fixated on)! museums can be CROWDED.
2:00 stop crying, you make me cryđĄđ„Č
Sorrry đđ It was hell to edit because I can't watch the damn thing without tearing up!! Witchcraft.
Loved to dance as a kid, was told "boys don't dance and anyway you are too clumpsy" and yeah cis-male with a spectrum diagnosis. Also thanks for your videos, I lately been doubting my diagnosis, because has job and not that main of the typical symptoms but then you say something and I go "oh that is me" .
I'm so sorry you were told that. I do feel like I'm seeing more boys performing as the years go by, which is reassuring. Still hugely outnumbered, unfortunately.
I'm glad I could help a little bit - the imposter syndrome is real sometimes. Thank you so much for watching đ
I had the same experience. My father, and kids and teacher at primary school told me the same words, but with a more derogative term. I feel anxious every time I hear any kind of dancing music (which is basically everywhere).
i think theaters are easier to navigate than museums???? i've been to neither on my own but i could easily go to the theatre by myself (you get a ticket, you show the ticket at the door, they give you back a piece of the ticket, you put it in your pocket and you go sit down. sometimes the ticket says where to sit and other times you just choose a seat but both are fine if you're early. then you just stay there for the whole thing, you enjoy it and when the lights are turned on and people start to leave, you leave. you can even wait until everyone's left so that you don't bump into people). museums however?? full of people, never know where to go, never sure where i've already been to. and you have to CONSTANTLY talk to people to ask them to move or apologise for being in the way yourself. and also sometimes you can't stay too long in the same place bc you bother other people. really overwhelming lol
How nice that people don't like the theatre or museum question, because that's where I got stuck for the longest, because I love both. It depends so much on the play or the exhibit and what exactly I feel like doing at the moment. I would say that museums are sometimes even worse, because in theatres you sit still and the audience is quiet, when in museums people often talk and they are moving around. I recently went to a museum and there were quite a few school groups running and yelling and it wasn't ideal. I would love to go to a lot of places, if there weren't other people around đ
I'm also a late-diagnosed adult and I love your channel!
Thank you!! đđđ
18:41 This actually happened to me yesterday, I was overstimulated, I was in a store and I kept walking around and my mom kept talking to me and talking to me. We were at a hotel and she kept talking as I was clearly saying I was overestimulated and clearly in distress, but she kept talking and I just cried and lashed out at her crying, i threw my bag and phone and started rocking back and forth, holding my headphones as music played. I just couldn't stop crying, I was just breathing really hard and I was so so tired after. Then when I finally calmed myself my mom called it a "tantrum". It made me angry again cause you're clearly seeing me at my worse and calling it a tantrum? It just irks me thinking about how she handled me being in that.
I haven't been diagnosed, and my family doesn't think I have it. I just want to understand why is this research that I see connecting to me? Why are these things that others that are diagnosed with it, why do I feel the same? It's just so irritating when I clearly am desprfor answers and can't get any for how I feel.
I'm autistic, and this has happened tons of times to me and they were meltdowns each time. processing speech takes up so much mental energy, and it sounds like you had a meltdown (which isn't always extremely physical) because of that overstimulation. I'm so sorry she immediately invalidated you - but your experiences track and you aren't alone.
@@gengarfluid Thank you, it's really hard to have these and deal with them alone but, I've found some comfort with my interests in music and art so, I get through them. I really appreciate it, I think having that view of someone with same experiences as me and deals with the same makes me feel some sort of comfort.
âThe word for this isnât weirdâŠthe word for this is autismâ
Yeah that hit me too đ
My special interests are usually making videos and creating music and I gotta get a job, but I feel like I need to finish the big parts before getting a job if not I'll be super stressed and burned out all the time. Sometimes just my life is enough to stress me out and burn me out that i can't work on my bigger projects so I really relate to the tiktok before the last one
Does anyone know how to tell the difference between a panic attack and a meltdown? I'm diagnosed with social anxiety disorder and generalized anxiety, and have had experiences that I've assumed are panic attacks/anxiety attacks (and some of them definitely were) but watching these videos I feel like some of them are very similar to what meltdowns are shown and described as. I've never seriously considered being autistic so I have no clue lol.
Perhaps thinking about what triggers the meltdowns/panic attacks for you? Is it sensory stuff in your environment? Is it ever caused by change or feeling out of control?
There's a lot of crossover for sure!
In my experience (although I'm also still learning about meltdowns and have had really intense anxiety but never panic attacks) meltdowns aren't caused by nor feel like anxiety (in my case I experience a feeling of my skin "lifting" from my body, a strong need to squeeze or claw at something, sometimes cry a little (I have extreme difficulty crying in general), might start yelling at others in frustration, lose awareness of anything outside my body, etc. Sometimes I also experience a sense of numbness/emptiness (emotional and physical, especially in my limbs), often paired with feelings of derealisation) while panic attacks have the typical symptoms of panic attacks (heart palpitations, laboured breathing, nausea, sense of impending doom, etc)
@@imautisticnowwhat Definitely can be environmental stuff/feeling out of control, but also the triggers are connected to things that make me anxious? I would have to really track when they happen and the circumstances surrounding it, but that makes sense! Love your videos btw!
â@@miglek9613 I can relate to that, especially the need to claw/kick something, but there's always anxiety involved to some degree for me! I definitely will have to research it more!
I am high-functioning autistic, and have never had meltdowns. But I have had a lot of garden variety panic attacks. Panic attacks cause shortness of breath, the heart skipping beats or beating irregularly, sometimes numbness in the arms or legs. The irregular heartbeat is the main thing. There is no behavioral component to a panic attack, outside of feeling very scared--that one might be dying or having a heart attack. By the way, I eliminated my panic attacks permanently by eliminating milk products from my diet. I was allergic to milk, and the panic attacks were a reaction to this allergy.
My sister and I are autistic (and maybe ADHD?) and we loved being in dance when we were younger. Idk how many of the other girls in my class were neurospicy, tho.
And on the meltdowns, mine used to resemble tantrums, but now they are a lot more like panic attacks.
Lovely video, as always!
I have a special interest in Theatre: in the Technical Theatre side. You get directions from the Director and then you do the thing your own way, be it lighting installations and operation, costuming, or set building. *I'm never onstage* except when the job for that particular show is onstage in the dark doing props and moving set pieces during scene changes. I love going to a theatre as long as I'm in the show and *hidden away backstage!*
the video of the woman having a meltdown was so relatable. my parents always thought i was being disrespectful and rude by saying "stop speaking to me/looking at me/touching me", when in reality i was actively having or about to have a meltdown. :/
It is sad that people donât like someone because theyâre autistic
Ehh⊠I love Paige dgmw but I thought that take of hers was iffy tbh. I agree that thereâs a heavy correlation and thereâs a case to be made that Au/DHDers are more likely to have the urge to dance, but to say that every single person who dances is like that is problematic when a lot of autists tend to take things very literally.
It's an interesting take but she has another similar vid about "all our dads are autistic" that I have similar issues with.
Yeah I agree. Itâs too much of a blanket statement and yes maybe they have one trait but autism isnât just that one trait. Itâs so much more than that so I donât think you can say âall dancers are autistic/adhdâ because itâs not just about movement and being understimulated, itâs routine, anxiety, social communication, meltdowns etc
@@MaryaminxAt least with that video though she began by saying that âthereâs a chance that he probably could be, maybeâ when talking about our dads being autistic. On the dance video though she just straight up says that she thinks that all people who feel the need to dance are autistic and/or have ADHD. If she even said that they âcould beâ then it wouldâve been better. Words make a world of difference sometimes.
I chose museum, but that doesn't mean I don't like the theater. I love stories, I love preformances like concerts, dance, and plays. I just have so many good memories of going to museums on school trips and with my family. Museums and historical sights are my favorite places to go on vacation.
I love concerts especially. You would think they would be over stimulating for me because they have a lot of things that do stress me out a lot, like noise, bright lights, and the smell of weed. And don't get me wrong, I never want to go in the mosh pit, but seeing art on stage in a controlled environment being able to fully emerse in the experience is amazing!
Iâve had episodes that Iâve called panic attacks, and episodes where I would have to leave the room and go to a quiet, dark, isolated space and attempt to regain a sense of composure (or panic till I fall asleep) since I was quite young, and Iâve been diagnosed with a severe social phobia and major depressive disorder. And yet, itâs never quite felt rightâŠ(especially since Iâve been speaking to mental health professionals in an effort to feel better,) Over the last bit of time Iâve been stuffing as much information, on multiple fronts (predominantly autism,) into my head, as can fit⊠honestly the more I study the more it feels like I am âmeetingâ people like me⊠Iâm still talking to doctors about the subject but Iâll find outđ? Hopefully soonâŠ
13:00 - reminds me of when I managed to convince my parents to let me go in for an ADHD assessment and I fell short of hyperactive presentation by 2 points and of inattentive by 1 point, so what did the psychs do? That's right: Nothing! Makes me nervous to go back in for an autism assessment, even though I'm gonna age out of parental insurance before the year is out. I don't wanna be told *again* that I'll be given no help for my brain functioning differently because it doesn't function differently *enough* or in the "right ways".
I'm also 100% the type to deconstruct and poke holes in and outright protest stupid questions in assessments like these, including the theater/museum question (I myself am a probably-autistic actor, and I'm also a huge nerd who loves museums), so I think it would help my case to take them with a licensed professional in the room to talk to so they could explain what the questions are getting at, but I was told I had to take the ADHD one alone, which annoyed me.
We have fun here.
I had (what I think is??) a meltdown in middle school in my science class, I had previous issues with this teacher which didnât help. I was crying and he kept telling me to come talk to him in the hall. When I continued to stay quiet or refuse he started yelling (something im extremely sensitive to) to me to come into the hall way. When I eventually calmed down enough to go outside I tried to explain to him that he shouldnât approach me or yell at me in that state, he kinda just said âyah but I was concerned and I needed to do something as a teacherâ I donât blame him necessary but itâs just frustrating thinking of me, undiagnosed with no proper accommodations and the amount of times I had meltdowns and it just seemed like they were always just skimmed over, and handled poorly.
Now I understand why I love my sleep headphones so much. They are an eye mask with embedded wireless headphones, and just shut out Everything. They also kind of hug my head softly. My second favorite is Bluetooth earbuds under a satin sleep cap pulled down over my eyes. Iâm a side sleeper, so regular can-style headphones wonât work for me at night. Hmm, but maybe I can try them during the day, especially on days where I feel disregulated.
Love them too!!! They are great ^^
yes yes yes yes yes yes yeeeessss to every single one! and this is the first time i hear talking about how a special interest can become so obsessive you wish you didn't have it! and that's so true about controlling the rest of your life through that special interest. i was going through some really hard time with uncontrollable things this summer, and my psy put me on medical leave because i couldn't cope with work on top of it all, and then being home more and trying to calm down i started doing some macrame and i just got so obsessive about it that i was sprouting projects in my head non stop and couldn't put them all in practice or even on paper and i couldn't even sleep anymore because all my brain was doing was thinking in knots and colors and fiber combinations! đ
Her melting down hit home. The way it comes out in the moment for me is âleave me aloneâ Iâve tried to be more conscious about it and say âplease donât talk to me right nowâ but when youâre melting down itâs hard to remember that kind of stuff.
My mother just wouldnât let me be to calm down. Which would make me worse. Which would then get me in trouble with my father and would result in physical punishment. I discovered only a year ago at 40 that Iâm autistic. My father thinks the doctors are âidiotsâ and that thereâs ânothing wrongâ with me. He is the entire reason I went so long undiagnosed (and in the closet! I didnât come out till I was in my mid 30s!) I was forced into a box. Not allowed to stem. Not allowed to be myself really. That mask had to stay on 24/7.
That caused me So Many problems as an adult. It hurts my heart thinking back on young me desperately needing acceptance, guidance and understanding.
Thank you for giving the gift of these things to us with your videos. You are very loved and appreciated.
The stuff you talked about at the start really spoke to me.
Ive always known I'm probably autistic but my parents treated me as 'normal' cause i could pretend i was 'normal' so id be judged for doing autistic things all the time even though they might make me happy.
What you went through with the first vid is how I reacted the first time it popped up on my feed. Watching her on love on the spectrum has really helped me see myself. I too am self diagnosed atm but the freeingness of having a diagnosis growing up wouldâve given me always makes me emotional and is still something Iâm grappling with now.
Thank you, thank you for talking through your tears!! It's so impactful for me when I see someone do that because I cry so easily and will just shut down when it happens. A lot can go unsaid. Thank you â€
First of all, it was really heartwarming watching you watch the first one. Just from having watched your videos before I knew you were going to see yourself in the little girl. The second thing was regarding the RAADS question about theatre vs. museum. I also had trouble with that one but I've also seen someone opine online that it may be by design, that if a clinician is administering the test, they're actually not looking for which answer you choose, but for whether you over explain why it's impossible for you to answer. I also had an experience on a very crowded day at the British Museum where after touring most of the rooms I finally said "I'm full" and had to leave, even though there were still things I wanted to see. This was decades before I had read or heard anything about autism or sensory overwhelm and started seeking a diagnosis.
Thanks to you sharing your experiences and those of others, it's helping me understand myself too. I'm just at the start of my journey for a diagnosis. On the list, but told 3 year wait for autism and 5years for adhd assesments. It is what it is. I am profoundly grateful to you, and others in the community having the courage to share as you do. Not joking when I say this is life changing and life saving. Thanks for all your hard work and sharing your journey and experiences đ
your videos (and many others') have brought me sooooo much comfort recently as well as bringing me to constant tears from how much I find it relatable..... even reading through comments on stuff, THANK YOU EVERYONE for what you share
It amazes me how I spent so much of my life, including my online life, never looking into the autism online community until very recently. Honestly this stuff helps so much. I logically knew I wasn't alone. But its seeing not only others deal with the exact same shit, but have even made memes about it it's common enough among us. Thank you.
Also hi from Liverpool 0/ glad to hear we've made such a good impression.
That museum/theatre tripped me up. Love me a good museum, but translated theatre to mean where I see bands live (as they are often in theatre buildings), which is often the most amazing thing for me ever, as, dancing (in particular, jumping up and down) is one of my lifelone special interests and I can do that there for the entire show and not look strange :D
I think I've been having autistic meltdowns my whole life that my family and partners have been attributing to "anger issues" and everything makes more sense now
When I watched the first video you played before I had even watched this yet I broke down crying just like you did, and seeing you have the same reaction as me feels so validating. Youâve helped me so much in so many ways Iâm so glad I found your channel thank youđ„șđ
It's your authenticity and hard work on this channel deserves more attention on Patreon. Such excellence and intelligence should be rewarded.
Very touching to see you react to these videos. I am 50 years old and working on getting a diagnosis. I am thankful that you are putting videos out and helping someone like me. I love Cheryl she is adorable,†I subscribed
I used to have a hyperfixation with Squishmallows - I have a small collection of them, from big ones to smaller ones. :3
And now, I'm hyperfixated on a plush company called Plushie Dreadfuls.
It is stressful, because I love all the designs for the bunnies. If I see one I really like, and one that describes me, I feel I need that bunny plush that exact moment, or it'll just fizzle away, or I'll be really sad if I don't have that exact bunny plushie.
I relate to the second to last TikTok so much.
You know the more I see about how hard an autism diagnosis is the more I realize how lucky I am that my mom initially thought I was deaf as a baby.
This video is so helpful , thank you! I'm 30 right now and been on a roller coaster for years. And now I'm standing up for myself, thanks to you! You feel like a soulmate.
"you can look at me in the eye it's all OK"đ with the zoomen in footage, is my favorite scene! Thank you for rattling to me, I love it!â€
Edit: I'm from the Netherlands btw. Lots of girls get mistaken by bpd (also me), and it made it worse, being locked up and corrected. But now my autistic self is coming alive again. I have been tested before, but yeah, damn right, those questions are weird! I love theater and art, and sometimes im very introvert and sometimes very extrovert. Im also a human, aside from being "weird". And I have good help now (she is amazing). But it might take some years or so, probably, to get the right diagnoses. Wich I kinda crave for, because I want to feel safe, validated, because I feel pretty afraid (of other people) to go to the doctor or a hospital for my health. I recognize so much in these video's, it gives me hope to keep fighting for my life. And I want to help our new youth. Anyway Ok bye đđ€
Very grateful for this video, Iâd never connected my love for and need to dance with being autistic (late diagnosed in 40âs) and had actually thought it was a reason I wouldnât be as I hear so much about the clumsy connection (though interestingly as much and as well as I can control my body via dance I canât navigate through a door frame without walking into it!) that it didnât occur to me this could also be a trait! I think the hardest thing is that their is so much rigour to the diagnosis process that it fails to account for the nuances and differences within the spectrum and how they can appear in an individual (especially after years of masking to try to fit in).
Also on the meltdowns side, I completely agree; I need to ârun awayâ or lock myself in a room when I have one and Iâve had so many occasions when me asking to be left alone or not spoken to was not respected that I would meltdown more and lash out and throw things or scream or hit because I was so overwhelmed, which always left me feeling embarrassed and stupid and ashamed of myself afterwards because I was undiagnosed and I didnât understand why I did it and it would leave me feeling even more different and like I donât belong anywhere because I couldnât behave like ânormalâ people do đą I understand that must also have been hard for those that cared about me to see it and go through it, but equally if someone tells you they need to be alone for a bit respecting that whether they are autistic or not (or havenât been diagnosed) is important as they are telling you what they need in that moment to cope. Iâm grateful I know now as I finally understand myself and I can mostly avoid triggers and also not be hard on myself if I am overwhelmed or overstimulated and meltdown or shutdown, and now can just allow myself to be alone and go through it; that has been the biggest help to my mental health and I canât explain properly here just how much knowing I am autistic has changed my life â€
To cope with the lack of services in my area and lack of diagnosis, Iâve found comfort in my degree path, education with a speciality of ASD.
The more I went through school the more I realized I relate to these life experiences and it explains so much of my life and the struggles Iâve been through.
While working in the field now will give me greater access to testing, Iâm also okay with not getting an official diagnosis because just knowing I have ASD is comforting
I was amazed to watch this video after I thought of the idea to slow it down to 85% speed. Suddenly I wasn't feeling like I couldn't give her my full attention, and I wasn't overwhelmed to watch the person having a meltdown! When I slowed the video down (with the CZcams settings), I could follow all her information. I re-watched the meltdown and felt very strong empathy, but I wasn't upset by it.
Finally a REAL reaction video!!!
Thank you for your comments⊠Iâm not autistic but I am neurodivergent and I get the same attitude from people and doctors⊠itâs crazy how much we suffer and never complain