I wish I had the patients and tenacity to seek a diagnosis. I have NEVER had a doctor who listens to me or believes me. Even though my daughter was diagnosed as a young child. When they belittle me and just try to give me another pill, it sends me further into the dark pit I already live in. Then I feel even more broken and worthless than before. I have developed a huge mistrust with the medical community. I’m so thankful for these videos! I finally feel like I’m NOT BROKEN.
Great video. I'm 61 year old female. Have all the characteristics but used to be better at masking. Lots of therapy. Got diagnosed as bipolar and PTSD. Took the AQ test and got 44 out of 50. LoL. I could be the poster child for ASD females that slip under the radar. 😄 Thanks. Keep up the great work. 👍
63 and research on my own believe I am, mom was, sisters are. Finally hear back from my older sister that yes, our mother was autistic, she is, my other sister is, and her firstborn is. Why didn't she tell me? She doesn't think I am, but I have epilepsy too and that can be comorbid with autism.
I never bothered with getting an official diagnosis because by this point in my life, I know how to deal with my traits; I know what to do in different scenarios for myself. But when you pointed out that it would help future generations, that really resonated with me. I have a female friend with Duchenne's Muscular Dystrophy, which is REALLY rare in girls\women, and she's uncomfortable with being a part of research, which I find frustrating. I said to her once "Think of the help that would be to girls in the future!" So now it's my turn to put my money where my mouth is, I suppose. 😊
You did a 4D chess move on yourself lol. I know that feeling when it almost feels like; immediately after you’ve said something, your perception expands. Almost like a consciousness dolly-zoom effect. Edit: Dolly-zoom effect is used in Jaws, where Chief Brody sees the shark on the beach for the first time. Focus, yet expanding peripheral vision. I got side tracked. Sorry.
17:11- would have been good to see you both acknowledge that official diagnosis isn’t possible for everyone due to finances, lack of access to healthcare and many other reasons. Yes, it would be wonderful if more women could get diagnosed, but it’s not always possible.
@@NotNeurotypical I have been listening to your podcast and wanted to tell you that it was Tania Marshall who diagnosed me in 2018 at 50 years of age! I remember thinking, "How did I get to 50 without knowing this? And.. if I didn't know I was autistic, then what else do I not know about myself or anything else for that matter?" I'm half way through your podcast series and am extremely appreciative of your content. Thanks.
jenlovesthisstuff many women misdiagnosed or not diagnosed due to the bias of research on males only. Thank goodness this is changing. Women present differently.
Why would you go to your medical doctor to get a psych evaluation? Medical doctors aren't competent in these matters, since it's not their field. Go see a psychologist or perhaps a psychiatrist since they specialize in mind matters.
I was diagnosed as being bipolar at 28, and ASD at 32. The diagnosis of bipolar didn't make sense to me. As soon as I was told I was on the autism spectrum, everything in my life clicked into understanding. It was amazing, and freeing. I stopped having nightmares about social situations I had had in real life that I replayed over and over in my mind and fixated on. I was finally able to let it go. I still struggle with sleep, but at least now when I find it my dreams aren't as scary and stressful.
D. Leighann Batemon So happy for you! Same here. They thought I was bipolar as well, and I got a bit mad, because that was just not it. And when I talked about autism, that I suspected that I was on the spectrum, they tested me for months. This week I got the ASD diagnosis. I’m a 26 year old female. It’s so weird.. and exactly as you say: everything clicked into understanding.
I am diagnosed with ASD, ADHD, OCD and anxiety disorder. Life is a struggle, especially when you haven't been diagnosed until later. I was diagnosed this spring.
I enjoyed this podcast thank you to both of you. Sorry I have to push back a little but I feel that asking undiagnosed women to get a diagnosis to make it “official” is too big of an ask. I can only speak for myself but I’m in my 40’s and I have no trust or faith in healthcare based on my life experience of being treated very badly by those who should help me. I’m sure my experience is not unique. This isn’t even going into the costs associated for those in America who do not have a right to healthcare. As much as I would love a diagnosis I have to accept the reality that it isn’t feasible.
No positive change comes without a fight. Even in England where we have the NHS, it is painfully hard to get a diagnosis as an adult because of lack of funding for assessments. I started the process for getting assessed a year ago now but my funding and assessment was recently accepted and although it could be another year before I get an evaluation, I know it’ll be worth it! Our general practices have very little knowledge of ASD with many turning people away including me. I had to really speak out and fight to get this far...if you lack hope, take small steps. Even if that means saving a little money every month toward your assessment. No matter how dire the situation seems, never give up. Benefit is procured from effort. I’m sure there are a million stories out there about lack of support/help from healthcare. So many people on the spectrum are experiencing this today. I do think it’s getting better though and we can continue to improve it with our own voice and story.
There is a lot of overlap with various diagnoses. I avoid eye contact, stim, have sensory issues, have difficulties communicating, was selectively mute as a child (and sometimes as an adult), am picky with foods, have shutdowns, prefer being alone researching topics of interest, anxiety etc etc. Officially diagnosed bipolar 1 disorder, PTSD, social anxiety disorder. All those things explained by those diagnoses. Was told that I have autistic-like traits but not sufficient to meet criteria for DSM-V. Not enough repetitive behaviours and understand pragmatics of language too much. I have learned my social skills intellectually and still make mistakes. I was told that even if I did meet the criteria, I would not be given an official diagnosis anyway as it is only for children. They will only diagnose an adult if 'severe' and rarely because it 'should have been picked up in childhood'. I was just the odd child who did her school work but didn't speak.
Just thought something should be mentioned here... It is possible for autistic males to mask their traits, me being one of them. I have a bad feeling that this is way more common than people think, which would mean it is also getting overlooked if true. This is because autism often overlaps with social anxiety, and with social anxiety comes the pressure to mimic acceptable behavior due to the fear of rejection. It does not seem exclusive to males or females. There's virtually nothing I could find on the internet about males and masking. It left me confused and even in denial for a large portion of my journey to get an accurate diagnosis.
I agree too - my partner masks heavily and clearly has PTSD because he was raised in a really strict household and basically stopped from being himself! This is dangerous.
I have been diagnosed, first by a therapist I was seeing, who suggested I should get an official diagnosis, and so then by my doctor. I never thought about being an advocate for it. Taking off the mask is hard to do, but easier after I had a baby and no longer had the energy to put on and wear that mask. Being a mother on the spectrum is a tough job, and I just pray one day my daughter will understand that I'm doing the best I can, even though I know she gets hurt when I tell her that I need alone time.
D. Leighann Batemon When you need alone time, you can do that without making it seem like you’re distancing yourself from your child. Just tell your child you’re going to take a break for a little while and still be in ear and eye shot of the child. Therefore, the child also learns to mention when she or he needs to take a break then they can voice his/her needs too. The good way to teach communication skills.
I think it is very very important to get diagnosed as a kid, or as soon as possible because having Asperger and not having support, understanding and help from others may lead you through very difficult situations in life. I am 35, I am heroin addict (now on substitution therapy), but if I knew before about this, maybe I would never become what I am today. I almoust ruined my life, my health is ruined, my reputation is ruined, I have been in prison for something I didn't do because of my guillibility and being naive.... it is pity, I am very talented person, I am an artist, I am able to draw in photorealistic way, I speak 6 languages, I am able to focus on anything that interest me, but I am social case now, don't go to work 'cause I never leave house any more...
Agreed - early diag is key. I got an early diag on a.d.h.d / learning difficulties/ slight cerebral paulsy but sadly the Dr's in my country didn't have the knowledge to inform my fam of how serious a.d.d is... We just needed love and support from parents as a kid, to train our brains.. I wish you the best on your journey.. :)
I think there are both pros and cons to early diagnosis, personally I feel like some aspects of growing up undiagnosed helped prepare me for how little fucks most people give about my personal problems in adult life and helped me take responsibility for myself better, Having said that, I can't deny that the idea of a childhood where I was supported and my difficulties were addressed sounds so wonderful, I doubt I would have walked the path I have if I knew there were alternatives
Diagnosed a year ago at 69, female. I am still learning how undiagnosed autism has affected me since childhood. I am healthy, active and shy. Shy as in socially awkward, though I married and had three children. Sensory processing disorder explains so much about my likes and dislikes. Thankfully, I have had excellent access to doctors and therapists that were open to such a late in life diagnosis. I wish for the same for all who suspect ASD, even though they may be seniors like myself.
I don't know if I am fully diagnosed. I went through VA and army for structure. But as an adult the therapist started to think I was showing Aspie signs. My recent therapist from. VA immediately thought I was Aspie almost 10 years after therapist VA started seeing it. So my therapia validated it with her not having those medical records. So I am almost 40 and just learning how to communicate with my family.
I self-diagnosed as an adult and it was such a relief, it explained everything. Learning about ASD and masking (I'm female) has been a two-edged sword. I find myself "unmasking" and becoming more genuine, but that is also making me more visible to others and is revealing more of my difficulties with the neurotypical world. My biggest problem has been to get a medical diagnosis. Everything through my medical group seems to be for the diagnosis for children. I think its great to diagnose kids and get them help during their formative years, but those of us that had never heard of autism until adulthood could also be helped by diagnosis and possibly services. My doctor has no expertise in anything mental health or developmental disabilities and the only referral he can do is to send me to stand in line during "psychiatrist day" and be seen by who knows who with who with an unknown level of expertise. I get overwhelmed and discouraged easily, so I've never made it though the hours-long wait. I've checked out ASAM, and its an advocacy group that does lots of good things, but I see nothing regarding links to diagnostic sources. I'd love to see responses from other adults in the States that were successful at finding resources to get a medical diagnosis. Dan, your channel has been such a help and comfort. I've gotten more information and understanding her than anywhere else--and yes, I'm subscribed.
i'm 21 and i was finally diagnosed last week, i feel like it is really important because it makes you know more about yourself , and for me , i accept myself more now because of this , of knowing that i'm autistic ..
I am 27 and suspect I have autism and some learning disorders. I currently don’t like my job but also feel I have been stuck in low skilled jobs that don’t utilise my ability mainly because I haven’t managed to get diagnosed and actually look into my problems or way of thinking.
I have been taking a natural supplement called Ashwagandha for over a year because of Aspergers. I felt that this has helped massively with my focus and stress levels among other things. Can I suggest you look into it and let me know your opinion? Thanks for these videos, they really help me feel like it is ok to have this condition and that ppl are becoming more aware of it.
I just took the AQ test, and scored 41/50. It would explain a lot. However, I will most likely never get an actual diagnosis... I'm 57, and it's not going to change anything.
I agree with what Laura says about the importance of girls/women getting diagnosed because there is definitely a genetic component so these ladies are more likely to have autistic children in the future so at least if they have a dx themselves then their kids may be diagnosed earlier and have more support from when they are younger.
Most of women are diagnosed as ADHD. AspergeR is a "boy thing". BUT for my researches much better saying that girls are high functiong. The description on google is not the truth for girls. Different brains. More intelligence in masking.
I've seen your videos here and there, commented how I think I might have autism and how you've helped me see that. I now have my diagnosis at 18 :) I dont feel the need to mask any longer, I feel free even if the autism will make me be stuck in some areas for the rest of my life. Thatll take time to accept but I've never gotten a diagnosis that felt so right
I’m 35 and was diagnosed with bipolar disorder, ptsd, and ADHD as a teen. I literally had to break out the AQ test and the DSM to have the doctor even consider me for a diagnosis. They acknowledged that my AQ scores and symptoms meet diagnostic criteria for ASD but my psychiatrist isn’t a “specialist“ so it’s technically not official even though we talk about it like it is official.
hi this is Tracey from autisticwoman.com excellent video and I shared on our fb page. Will also share her channel. Always enjoy watching videos about females in the spectrum. Thanks for the time you take creating these videos.
Thank you for your channel because I always felt there was something more to me than my ADHD and always wondered if I was on the spectrum, but brushed it off because I never looked like what they portrayed autism to be on TV. Having seen your channel and others has really been enlightening and has given everything in my life meaning and a reason. Knowing now what I know I'm pursuing an evaluation and hope to find out whether I am or not on the spectrum. thank you sooo much for everything
I started watching your videos because my daughter is autistic. I was trying to learn more about it. The more I learn, the more I'm ticking off symptoms that I personally have. I am 35. I have always been "different" than other girls my age, all throughout my life. I have social anxiety. I have many many texture issues with foods. I hate talking on the phone or paying for anything in a store, and I will always ask someone else to do it for me (I rely on my husband A LOT). I have a few interests, and will always try to talk about those, and none of my interests are "typical girl interests" apparently. Music (70's and 80's mostly), Video games (I am obsessed with Zelda), and fantasy/fantasy romance books. That's pretty much it. If those topics don't go over well, I'm out of stuff to talk about. I am perfectly fine with not having friends, and I am horrible at making and keeping friends. I think that I'm autistic. I now need to talk to my doctor about it.
Yep, kids (2 diagnosed, 1 that refuses to get the diagnosis) got diagnosed. I saw similarities. They saw similarities. They asked for me to get tested. Their doc recommended a doc who specializes in women. Yep, 38 years of masking. It's been difficult, but so enlightening for me. Thank you both for this video.
I live in Norway and after my boyfriend brought it up to me that I might have autism, I then noticed a lot of similarities (after doing some research into it) and was agreeing with him that there's a possibility for that. So I then decided to get some help and maybe figure it out, but I have gotten rejected for a diagnose twice now only because I have a higher education degree and because I could function in work (keep in mind they have never looked at me nor do they even want to look at me, even if a psychologist referred me with him agreeing that it could be autism). And that is completely rediculous if you ask me. They do not care if I function well or anything, just as long as I work, and that is really annoying me.
As a middle aged female, how do you really get a psychologist to consider ASD instead of just going back to previous psychiatric diagnoses? In my 30s, I was diagnosed with depression, psychotic depression, Bipolar, OCD, borderline d/o,PTSD, schizophrenia and finally schizoaffective d/o. It kept changing because I never fit neatly into any DSMIV condition. I have taken every online Aspie/ASD test and they all say I am probably neuro diverse. I have been taken to psych doctors since age 4, however anyone that could give info on my childhood is dead. I meet the diagnostic criteria in every area in DSM5 for ASD, but there is no psych doctors in my area that work with adults with ASD. The previous misdiagnoses and treatments were a nightmare that destroyed 10 years of my life.
When you would like to get help getting a diagnosis, what are the steps to get a diagnosis? Do we contact a therapist, a medical doctor, or who do you reach out to you first? And how do you know you’re being pointed in the right direction to get the right help without accidentally been diagnosed with a mental illness?
Most of the cases people are at least ADHD. Its really difficult to be recognized as a high functioning person or ASPERGER (that is more common for boys).
Thank you so much for sharing this! I have 3 kids 2 out of 3 have autism and my youngest is being reassessed for autism. For a few years now I have been struggling as I have been diagnosed with ADHD but like you pointed out I felt that wasn’t all it. As I am digging deeper in preparing a case for my youngest I have seen all these Autism flags in myself.
Yes, I agree and I'd like to get an official asd assessment to see if that's what I've been struggling with or if it's something else I haven't looked into yet. I'm fairly confident that I have more than enough of the traits to warrant an autism diagnosis and have learned how to manage most of them on my own through online resources and channels such as yours, but I think having an official diagnosis would be super helpful in helping my spouse and his NT family understand why I am the way I am a little better. Especially when it comes to my meltdowns and things I have to go through when I get overwhelmed. I want people to be able to understand that I'm not "doing it on purpose" or 'looking for attention" (quite the opposite because they're quite embarrassing and I don't want anyone to see that).
It has lifted a huge burden of self doubt and self derision from me. I first suspected when my son was diagnosed (he was 14, I was 45) but it took another 20 years of therapy, marital issues, and then youtube to actually spur me into getting the diagnosis.
I am almost 40 and I am currently struggling with the VA to get my concerns for autism. My youngest daughter had been diagnosed at the age of 10. Watching my children get through life reminds me too much of how I grew up. I don't do well socially. Am I the only adult, better yet, woman, as frustrated by no one wanting to help?
Wow!!! It's been three years since your comment. Did you ever make any progress with the VA? I'm 50, female and a veteran with a 100% disability rating for "Borderline Personality Disorder" (I believe this is a misdiagnosis because I've never feared "abandonment"), along with Anxiety and Major Depressive Disorder. I've always been very different from others. My son was diagnosed with ADHD back in 2005. I never even had ASD on my radar until an Aspie friend told me that I should look into it because, according to her, I had more of the traits than she did. I was actually offended when she told me this but she was right. I don't do well socially either. I never have. My mom ALWAYS called me "honest to a fault". No, you are definitely NOT the only one. I had an acquaintance, a male, who was diagnosed with ASD by the VA beyond age 50. I don't know if it happens with women. I haven't been in the VA "Mental Health" system since 2016 but I have an intake scheduled for October to see if I can be connected with a therapist who has any special knowledge about ASD and women on the spectrum. I don't have high expectations but it seems like it's worth a try for now. Previous "therapy" was never helpful to me at all but instead, it made things exponentially worse. I was labeled "Treatment Resistant".
@@LittleSeasonSojourner The VA never did it. I found a research project. They were looking for adults that suspected that they might be on the spectrum but were undiagnosed. It turns out that I am on the Spectrum, like my children. I also deal with Bi Polar Depression and Anxiety.
Thank you both so much for talking about this! I fall into this topic in a big way! One of my children was diagnosed with ADHD as a child but it doesn't entirely fit, my other child was diagnosed ASD. The specialist team we took him to told both of us we too are ASD. That was enough for their dad (to just know). However, for me, I've been back & forth ever since; debating about pursuing an actual diagnosis, to have it on paper. I don't expect it to be easy since we're also in the US, but thanks to this podcast... You're right! I am going to look for someone to test me. Getting the information out there to help other people and future generations is very important. Thank you both!! 🤗♥️
My son is on the waiting list for autism and when looking at your video some of them were me to a T. I’m nervous about going to the doctors to ask them to refer me for it. I’m in the uk and I also did the test online and I just hit it
Hey Dan, thanks for the content! I've been watching your stuff for quite a while and enjoy it a lot! I'd be really interested to see you do an episode on the overlap of symptoms between ADD and Autism and C-PTSD. In case you don't see what I am getting at I can also recommend you check out Gabor Mates book on ADD called Scattered Minds. It connects ADD with attachment styles and early life relationships. I didn't see myself as having something that could be mapped out as ADD until I read that book. I also see how a lot of my traits that could come of as autistic really makes a lot more sense the more I started looking into C-PTSD and Childhood Emotional Neglect especially. A psychiatrist tried to convince me that my depression and social anxiety was just because of high functioning autism (which I wasn't and am still not diagnosed with) but since I know my childhood and the relationship to my parents I knew there was more to the story than simply genetics. Uncomfortable topic for many I am sure but for the people who find it relevant it could literally help them find a meaningful way to make sense of their lives.
I was diagnosed as Bipolar as a teen, and it never seemed to fit me correctly. I was diagnosed with ADHD as an adult. It has been confirmed that I am also Autistic by my therapist. Both my kids are autistic as well. I agree that there are pros and cons of being diagnosed as an adult vs a kid.
My daughter also, I do not think she will meet the diagnostic criteria RIGHT NOW... but she is Autistic, and we need to watch to see when she does meet it. Social stuff for a 4 year old is easier, but she is also surrounded by ND people, and people who understand autism and ADHD (my kids also have both).
I was formally diagnosed in adulthood, but I’ve found it very hard to tell people. I think mainly because the post diagnosis support in the UK is absent and because the few people I have told haven’t recieved the revelation very well. I’ve had: “I don’t think you’re autistic, you’re just depressed. Maybe bipolar?” “If you are then I must be as well.” “Everybody is a little bit autistic” So really instead of achieving the aim of undoing decades of damage & finding acceptance, all that’s happened is I got more rejection heaped on top of it all. I haven’t told many people and don’t talk about it, fearing what they will think or say. 🤦♀️
I was diagnosed June 2023 (42) after GP refused my request for a referral out of disbelief. Even when my referral application was sent with support of my psychologists, NHS Autism Spectrum Service denied it until I sent a 🔥 letter of my life from childhood until now for them to change their mind.🤣🤣
Thank you for your work! Diag w/a.d.d as a young kid, had to attend a specific school til grade5 As an adult I'm feeling more and more like I may have autism aswell. My fam sadly just see the a.d.d symptoms as me making nagative choices on purpose.. :( Even asking them for simple things like helping me budget / manage cashflow is met with "I thought you could do that / were not good with that, ask someone else"...
Thank you this was an excellent video. I am 55 and struggling now and wish I had started getting answers because it is such a struggle. I appreciate the information and love the channel. Thank you
Laura, I have some many questions for you being a female growing up on spectrum, now that you have your diagnosis. My granddaughter is 6 and I'm trying to help her in every way possible.
I am 47 years old and just found out I have Autism and have no support was just given names or organisations with websites and phone numbers. I have also got memory issues. I was diagnosed with PTSD. I was also diagnosed with Dyslexia when I was in my late 20s. I was said i might have ADD in my early 30s.
My 6 yr old son was diagnosed with high functioning autism and I did not know what that was. After all the research I did, I came across autism in women. Every article I read and video I saw, described me! Where do I start? Who do I talk to?
Miriam Rodriguez get a referral to a clinical psychologist who specialises in autism spectrum disorders in adults especially women for testing. Takes about 3 hrs but you get an answer straight away.
More males are diagnosed - simple females are conditioned during childhood to socialise which is probably the biggest masking \ barrier to diagnosis. Laymen's (GP's etc) then assume because they're not low functioning with social skills they're not ASD. Also, the male brain (and social skills conditioning) are automatically aligned to ASD behaviours.
I am 26 and I have been pretty sure I have autism for the last year. I am about to lose my health insurance so I don’t know if I will ever be diagnosed. It is sort of depressing because I don’t know if I will be able to handle a job outside of the family business where I work now Sometimes I don’t respond well to directions if they are not clear
I have no problem as some appear to have with labeling my condition as Asperger's Syndrome despite animosity towards the guy and his reputation simply because it explicitly details my particular characteristics. ASD is kind of hazy by comparison. Oh and BTW, I don't care. I don't need or want help. I am a loner by nature. I am comfortable with what I am and don't need the company of others even though I once wanted to fit in as much as anyone could. Having failed miserably in earlier life it no longer matters. I botched more than 20 potential dates back then and my genes will be buried with me. The world turned its back on me and I learned to reciprocate.
Thank you for this video! I tried getting diagnosed earlier this year but was told that my symptoms weren’t that severe to warrant an evaluation :/ super frustrating because it’s like why would you change the name to autism spectrum disorder if you’re going to ignore certain people on the spectrum? Anyway, I was pretty heartbroken to hear that news. Do you have any advice on how I can try getting diagnosed again?
AQ test for me 46/50 - I’ve been informally diagnosed but there was a 22+ month wait for my official diagnosis. About 12 months left now for the earliest assessment 🤞
I really believe I have asperger's and would love a diagnosis, but my counselor doesn't think it's important to get a specific diagnosis for anything because she only thinks treating the problems is what's important, but getting a real diagnosis for what I have would give me so much relief. I'm not sure what to do about this.
Are they a counsellor or a pyschiatrist/psychologist? From my experiences, counsellors will focus more on fixng problems than labels. It might be better to see someone else for proper assessment and diagnosis. Counsellors have different education and qualifications.
I found out because when I went to school a few kids came up to me and asked my name, then was like "oh, you're slow!" Then 9 knew I was ASD because all my family is as well. Id read encyclopedias, maps, study new words in the dictionary.
Hi I'm 20 years old and have recently been diagnosed with autism. I got the diagnosis but I've struggled to get any help do you have any advice. It would be appreciated ☺️
it’s not a spectrum, linear- so much overlap with “different diagnosable” conditions... its not even a box. it’s trying to fix a moving point in space and time. there are “traits” and “symptoms” but i have actually had to say, “YOU ARE ASKING ME THE WRONG QUESTIONS “. given, most “authorities” on the subject are trying to place people’s experiences in a “schema” - but i’ve yet to find any one who appreciates how everything is part of something. tilt the table and like a hologram you will see different hues of different manifestation and “LABEL” People with ASD can evolve, grow and change just like any other person. in fact for some of us the adaptation and re-configuration is more than NTs could manage
It’s near impossible as a woman to get adequate health care for anything let alone an autism diagnosis. It’s exhausting navigating the process and my PDA subtype makes me suicidal everytime I have a setback. I do not know what else to do. And I don’t want to die but I don’t know if I have it in me to keep fighting
HEY MAX! Love your channel! Your videos are so amazing! A collaboration, eh? Anamated or not? Although it would be pretty cool to actually see the real you... It would be awesomely cool to see the pair of you animatedmated. Can't wait! .
Great vid! You guys work well together. But it begs the question for senior citizens: "Why bother at this point in life?" I would love to know what you think.
Hi, I am on the waiting list for a diagnosis. I'm a trans guy and I've heard there are separate traits for males and females but I have traits for both. I live in the UK. Is there anything I specifically need to be aware of? Is there something in place for me? Thank you for taking the time to read this comment.
While I agree that getting the actual diagnosis is important, we really need to be advocating to fix this broken-down healthcare system, at least in the US. I self-diagnosed in 2012, but I've been trying to get the blasted diagnosis but doctors won't even talk to me. I'm finally on a waiting list, but they don't take insurance and I'm on a very fixed income. This is why a lot of people who live in the US just self-diagnose.
I'm 66 and had to diagnose myself then had a assessment. Theripst don't ask about everyday habits reactions ive been in therapy for 30 yrs no one caught it.
Two weeks ago I found out that in Bulgaria (my country) autism is defined as a "child autism" so no one can diagnose an adult. When diagnosed kids grow up they're considered to have some sort of mental retardation. I'm sooooooooo MAD! Not only because I'm absolutely sure I am autistic, but also because of all the children and adults that are completely neglected! I can't believe this is possible in The 21st Century... :_(
🎯 Key Takeaways for quick navigation: 00:00 🎙️ *Introduction to the Podcast and Personal Experiences* - The host introduces the podcast episode and guest Laura, discussing the unique journey of late diagnosis of autism spectrum disorder (ASD). - Laura shares her personal experience of discovering her ASD after her son's diagnosis, leading her to start the "Not Neurotypical" podcast to document her journey. 01:09 🧠 *Self-Discovery and Realization of Autism Spectrum Disorder* - After learning about her son's autism, Laura recognizes similar traits in herself, leading her to take an Autism Spectrum Quotient test. - Laura emphasizes the importance of sharing her story, especially for women, as she noticed a lack of female voices discussing their experiences with autism. 03:27 🌍 *Positive Impact of Sharing Personal Autism Stories* - Both speakers discuss the value of sharing personal autism stories, providing support, understanding, and guidance to others in the community. - They acknowledge the challenges and polarizing opinions within the autism community but emphasize the importance of advocacy and understanding. 05:04 🚸 *Importance of Late Autism Diagnosis and Access to Support* - The discussion delves into the significance of late autism diagnosis, providing access to necessary support, understanding, and interventions. - Laura and the host share personal experiences and emphasize that understanding one's condition allows for effective self-advocacy and access to appropriate support systems. 06:10 🤝 *Self-Advocacy and Growth Post-Diagnosis* - Laura highlights the importance of self-advocacy and growth after receiving an autism diagnosis, emphasizing the need for understanding and support to navigate challenges effectively. - The conversation underscores that a clear diagnosis provides a foundation for self-awareness, communication skills, and accessing appropriate resources. 07:36 🧩 *Understanding Autism and ADHD Overlaps and Differences* - The discussion explores the complexities of distinguishing between autism spectrum disorder (ASD) and Attention-Deficit/Hyperactivity Disorder (ADHD), highlighting overlapping symptoms and unique characteristics. - Both speakers share personal insights and experiences, emphasizing the need for individualized understanding and support tailored to each person's unique profile. 09:23 🧒🏻 *Autism Diagnosis in Women and the Importance of Advocacy* - Laura discusses the challenges and differences in diagnosing autism in women, emphasizing the need for increased awareness, understanding, and advocacy. - The conversation highlights the importance of official diagnosis, recognizing the unique presentation of autism in females, and supporting early identification and intervention. 11:16 📣 *Advocacy, Community Engagement, and Personal Reflections* - The hosts encourage community engagement, discussion, and sharing personal reflections on autism spectrum disorder (ASD) experiences. - Both speakers emphasize the importance of awareness, education, and support within the autism community, encouraging listeners to share their stories and perspectives. 12:40 🎥 *ADHD and Autism: Diagnosis, Understanding, and Community Discussion* - The discussion delves into the complexities of diagnosing ADHD and autism, exploring overlapping traits, challenges, and unique characteristics. - The hosts share personal experiences, insights, and reflections on navigating diagnosis, understanding individual profiles, and advocating for appropriate support and resources. 19:11 📚 *Importance of Self-Advocacy and Support for Adults on the Spectrum* - Emphasis on the organization that promotes self-advocacy. - The organization provides toolkits and resources for various scenarios and needs. - Specific focus on adults, offering support across the spectrum. 20:34 🧠 *The Process and Importance of Adult Diagnosis for Women* - Acknowledgment of the concerns women might have about seeking diagnosis. - The importance of taking time for self-awareness and understanding one's traits. - Recommendation to prepare adequately for evaluations with notes and self-awareness tools. 22:10 ⏳ *Timing and Preparation for a Successful Diagnosis* - Stressing the significance of being prepared and not rushing into the diagnosis. - The benefits of bringing detailed notes and self-awareness insights to evaluations. - Avoiding the "masking" behavior during evaluations to ensure accurate diagnosis. Made with HARPA AI
While I agree with your points about the benefits of getting diagnosed, both for for self and the community, I wish y'all had said something about it not being entirely risk-free and being a personal decision. Autistic people aren't only white and middle class -- what is safe for one demographic is not always safe universally. I have known people who have lost their job, their health insurance, their children because of an adult diagnosis. Seeking diagnosis is a personal decision and no one should feel guilty or ashamed for not seeking official confirmation. Could your diagnosis have helped the community? Absolutely yes. That does not mean you owe your life and safety to others. You are not required to set yourself on fire to keep others warm. I say this as a twice diagnosed Autist who is completely out everywhere in my life about my diagnosis: there are risks and there are potential negative consequences to diagnosis and to disclosing that diagnosis. I have been listening to other Autists for a long time and so much that is relatively safe for me as a white person from a middle class upbringing is absolutely not safe for all Autists.
I had a hard enough time finding a clinical psych that took my insurance. Now she’s trying to tell me I just have adhd, anxiety, and depression, and can be trained to get better in social situations because my EI score was so low. She has a son on the spectrum. She says there isn’t really any way to diagnose adults. Who do I need to see around here? Is there a clinic or secret handshake?
ADD acording to DSM 5 is ADHD with autistic traits now. In some cases the person is high functiong and not ADHD. In 2020 things are going to be better about all these things. Knowing yourself as an ADHD person is a great relief at least.
I'm wondering if ones with autism especially aspies. Do we tend to? or not to believe in a god thingy? I just took the test mentioned @1:35 and; "Your score was 28 out of a possible 50. Scores in the 26-32 range indicate some Autistic traits (Aspergers Syndrome).." I'm 56 and just figuring this out.
18:11 - just because there are more females in the world, does not mean there will be more females with autism. As you stated earlier, genetics play a clear role in determining whether a person will have autism-ADHD or be neuro divergent in some way. There is no reason to think that genetic difference might not be linked to the XY chromosome pair which would cause a significant difference in the rates between genders. Beyond that, hormone levels can have very significant effects on all sorts of medical conditions or traits. That's another reason there may be a discrepancy in the prevalence among men and women. It is not necessarily the case that neuro divergence will be equally common in different genders. But, clearly, we need more data and more research on the subject to understand it fully.
Anyone know of adult diagnostic services for undiagnosed adults in texas? Near San Antonio? As one would predict, being that 80% of us are currently unemployed … I have no finances And it’s hard to find that one organization or that one charity or that one unmentioned service where you legit have to be a health and human service scholar to have knowledge of it? I need help :( Anyone !?
My therapist said Autism signs of biology is a large forehead. I have the same high forehead and it seems the guest looks like me. So that's interesting.
“Especially women …” unmasking awetism by Devon Price is a good book and moves away from ‘female awetism.’ I know I resonate with the ‘female presentation,’ but am a trans woman
My sister has been diagnosed with bipolar and I’ve sent a bunch of stuff to her (including the above book) under the guise of ‘knowing me better,’ in hopes that if they felt asd fit them better they could direct their care, but they seem happy with their diagnosis … not sure if bipolar treatment helps us asd folk though, I haven’t learned much about bipolar
I'm not sure it's worth my while chasing after an official diagnosis at 71. I'm worried that even if I went privately I would be diverting resources from those who truly need a diagnosis for access to support and accommodations. Emma Newman's NHS experience czcams.com/video/aHHv4jI7w3Q/video.html is a little off-putting (and heart-wrenching) and I'm guessing the NHS is inclined to not offer full assessments to those who can probably sort themselves out (ASD support level 0 anyone?). I may change my mind - but a long wait is not an option at my age.
That breaks my heart to hear. I think the more people who claim their health taken seriously the more research is gonna come. Never let age come in your way. Your story is super important for the next generation. Too many allready took their diagnoses with them into their graves ❤️
4 to 1 male to female diagnosed. But NAS see the number as 3 to 1 male to female. If ever female who has autism was diagnosed. Is it better to not autism all together? Well yes. But you can't help the hand your dealt. I do and everyone does in a time in your life why me? Why did I get autism? But that only on bad, bad days. On good days it why not me. I have gifts that NT will never have, not just the focus and memory. But a ability to sense negative emotions. Using channels that NT are not born luckier to have. I'm inbetween aspergers/autism is not as positive as Dan says. I know your don't want to show you crying or having meltdown on the channel. Because it's to much of a sterotype of the medical model of autism I get that. But on good days, weeks or even a good month it not a disability and there are worst neurological condition you can be born with.
I wish I had the patients and tenacity to seek a diagnosis. I have NEVER had a doctor who listens to me or believes me. Even though my daughter was diagnosed as a young child. When they belittle me and just try to give me another pill, it sends me further into the dark pit I already live in. Then I feel even more broken and worthless than before. I have developed a huge mistrust with the medical community. I’m so thankful for these videos! I finally feel like I’m NOT BROKEN.
Doctors don’t diagnose autism doctors perscribe medications
Great video. I'm 61 year old female. Have all the characteristics but used to be better at masking. Lots of therapy. Got diagnosed as bipolar and PTSD. Took the AQ test and got 44 out of 50. LoL. I could be the poster child for ASD females that slip under the radar. 😄 Thanks. Keep up the great work. 👍
Rudy Simone book Aspergirl. Is very good. My daughter and I found it eye opening .
@@neyisek6928 thanks I will check it out ☺👍
Same. I was in my late 40's.
Ney Isek she’s great
63 and research on my own believe I am, mom was, sisters are. Finally hear back from my older sister that yes, our mother was autistic, she is, my other sister is, and her firstborn is. Why didn't she tell me? She doesn't think I am, but I have epilepsy too and that can be comorbid with autism.
I never bothered with getting an official diagnosis because by this point in my life, I know how to deal with my traits; I know what to do in different scenarios for myself.
But when you pointed out that it would help future generations, that really resonated with me. I have a female friend with Duchenne's Muscular Dystrophy, which is REALLY rare in girls\women, and she's uncomfortable with being a part of research, which I find frustrating. I said to her once "Think of the help that would be to girls in the future!"
So now it's my turn to put my money where my mouth is, I suppose.
😊
I agree as there is a strong genetic element to autism so your child and future grandchildren would benefit from knowing younger.
You did a 4D chess move on yourself lol. I know that feeling when it almost feels like; immediately after you’ve said something, your perception expands. Almost like a consciousness dolly-zoom effect.
Edit: Dolly-zoom effect is used in Jaws, where Chief Brody sees the shark on the beach for the first time. Focus, yet expanding peripheral vision. I got side tracked. Sorry.
17:11- would have been good to see you both acknowledge that official diagnosis isn’t possible for everyone due to finances, lack of access to healthcare and many other reasons. Yes, it would be wonderful if more women could get diagnosed, but it’s not always possible.
Just finding the appropriate dr/resource can be near impossible. At least that has been our experience in small town
Sometimes an autism diagnosis has to be fought for
For me in UK private itd cost me up to 3K. On a long waiting list for now. Hopefully I'm assessed correctly.
How do you get doctors to take you seriously as a female? How do you find a good doctor that isn’t biased?
I bypassed the doctor and found a published psychologist who specialises in females (primarily adults) who are on the spectrum.
@@NotNeurotypical I have been listening to your podcast and wanted to tell you that it was Tania Marshall who diagnosed me in 2018 at 50 years of age! I remember thinking, "How did I get to 50 without knowing this? And.. if I didn't know I was autistic, then what else do I not know about myself or anything else for that matter?" I'm half way through your podcast series and am extremely appreciative of your content. Thanks.
jenlovesthisstuff that’s the only way to go
jenlovesthisstuff many women misdiagnosed or not diagnosed due to the bias of research on males only. Thank goodness this is changing. Women present differently.
Why would you go to your medical doctor to get a psych evaluation? Medical doctors aren't competent in these matters, since it's not their field.
Go see a psychologist or perhaps a psychiatrist since they specialize in mind matters.
I was diagnosed as being bipolar at 28, and ASD at 32. The diagnosis of bipolar didn't make sense to me. As soon as I was told I was on the autism spectrum, everything in my life clicked into understanding. It was amazing, and freeing. I stopped having nightmares about social situations I had had in real life that I replayed over and over in my mind and fixated on. I was finally able to let it go. I still struggle with sleep, but at least now when I find it my dreams aren't as scary and stressful.
Oh my god... we are all so very similar. Same. My ASD came later (in late 40's)
D. Leighann Batemon So happy for you! Same here. They thought I was bipolar as well, and I got a bit mad, because that was just not it. And when I talked about autism, that I suspected that I was on the spectrum, they tested me for months. This week I got the ASD diagnosis. I’m a 26 year old female. It’s so weird.. and exactly as you say: everything clicked into understanding.
I am diagnosed with ASD, ADHD, OCD and anxiety disorder. Life is a struggle, especially when you haven't been diagnosed until later. I was diagnosed this spring.
I enjoyed this podcast thank you to both of you. Sorry I have to push back a little but I feel that asking undiagnosed women to get a diagnosis to make it “official” is too big of an ask. I can only speak for myself but I’m in my 40’s and I have no trust or faith in healthcare based on my life experience of being treated very badly by those who should help me. I’m sure my experience is not unique. This isn’t even going into the costs associated for those in America who do not have a right to healthcare. As much as I would love a diagnosis I have to accept the reality that it isn’t feasible.
No positive change comes without a fight. Even in England where we have the NHS, it is painfully hard to get a diagnosis as an adult because of lack of funding for assessments. I started the process for getting assessed a year ago now but my funding and assessment was recently accepted and although it could be another year before I get an evaluation, I know it’ll be worth it! Our general practices have very little knowledge of ASD with many turning people away including me. I had to really speak out and fight to get this far...if you lack hope, take small steps. Even if that means saving a little money every month toward your assessment. No matter how dire the situation seems, never give up. Benefit is procured from effort. I’m sure there are a million stories out there about lack of support/help from healthcare. So many people on the spectrum are experiencing this today. I do think it’s getting better though and we can continue to improve it with our own voice and story.
I hear you and feel this deeply. Our healthcare policies must change.
Thanks for your help, I recieved my diagnosis yesterday
There is a lot of overlap with various diagnoses. I avoid eye contact, stim, have sensory issues, have difficulties communicating, was selectively mute as a child (and sometimes as an adult), am picky with foods, have shutdowns, prefer being alone researching topics of interest, anxiety etc etc. Officially diagnosed bipolar 1 disorder, PTSD, social anxiety disorder. All those things explained by those diagnoses. Was told that I have autistic-like traits but not sufficient to meet criteria for DSM-V. Not enough repetitive behaviours and understand pragmatics of language too much. I have learned my social skills intellectually and still make mistakes. I was told that even if I did meet the criteria, I would not be given an official diagnosis anyway as it is only for children. They will only diagnose an adult if 'severe' and rarely because it 'should have been picked up in childhood'. I was just the odd child who did her school work but didn't speak.
I've only just been diagnosed Aperger's (UK) in March 2020 at 42. People would have sworn I was ADHD as a child. This has been super helpful. thanks
Just thought something should be mentioned here...
It is possible for autistic males to mask their traits, me being one of them. I have a bad feeling that this is way more common than people think, which would mean it is also getting overlooked if true.
This is because autism often overlaps with social anxiety, and with social anxiety comes the pressure to mimic acceptable behavior due to the fear of rejection. It does not seem exclusive to males or females.
There's virtually nothing I could find on the internet about males and masking. It left me confused and even in denial for a large portion of my journey to get an accurate diagnosis.
I agree too - my partner masks heavily and clearly has PTSD because he was raised in a really strict household and basically stopped from being himself! This is dangerous.
I have been diagnosed, first by a therapist I was seeing, who suggested I should get an official diagnosis, and so then by my doctor. I never thought about being an advocate for it. Taking off the mask is hard to do, but easier after I had a baby and no longer had the energy to put on and wear that mask. Being a mother on the spectrum is a tough job, and I just pray one day my daughter will understand that I'm doing the best I can, even though I know she gets hurt when I tell her that I need alone time.
D. Leighann Batemon When you need alone time, you can do that without making it seem like you’re distancing yourself from your child. Just tell your child you’re going to take a break for a little while and still be in ear and eye shot of the child. Therefore, the child also learns to mention when she or he needs to take a break then they can voice his/her needs too. The good way to teach communication skills.
I think it is very very important to get diagnosed as a kid, or as soon as possible because having Asperger and not having support, understanding and help from others may lead you through very difficult situations in life. I am 35, I am heroin addict (now on substitution therapy), but if I knew before about this, maybe I would never become what I am today. I almoust ruined my life, my health is ruined, my reputation is ruined, I have been in prison for something I didn't do because of my guillibility and being naive.... it is pity, I am very talented person, I am an artist, I am able to draw in photorealistic way, I speak 6 languages, I am able to focus on anything that interest me, but I am social case now, don't go to work 'cause I never leave house any more...
Agreed
Agreed - early diag is key. I got an early diag on a.d.h.d / learning difficulties/ slight cerebral paulsy but sadly the Dr's in my country didn't have the knowledge to inform my fam of how serious a.d.d is... We just needed love and support from parents as a kid, to train our brains.. I wish you the best on your journey.. :)
I think there are both pros and cons to early diagnosis, personally I feel like some aspects of growing up undiagnosed helped prepare me for how little fucks most people give about my personal problems in adult life and helped me take responsibility for myself better,
Having said that, I can't deny that the idea of a childhood where I was supported and my difficulties were addressed sounds so wonderful, I doubt I would have walked the path I have if I knew there were alternatives
Diagnosed a year ago at 69, female. I am still learning how undiagnosed autism has affected me since childhood. I am healthy, active and shy. Shy as in socially awkward, though I married and had three children. Sensory processing disorder explains so much about my likes and dislikes. Thankfully, I have had excellent access to doctors and therapists that were open to such a late in life diagnosis. I wish for the same for all who suspect ASD, even though they may be seniors like myself.
"Where does adhd end and autism begin?" 😂 Story of my life. The eternal question. 😂
I don't know if I am fully diagnosed. I went through VA and army for structure. But as an adult the therapist started to think I was showing Aspie signs. My recent therapist from. VA immediately thought I was Aspie almost 10 years after therapist VA started seeing it. So my therapia validated it with her not having those medical records. So I am almost 40 and just learning how to communicate with my family.
I self-diagnosed as an adult and it was such a relief, it explained everything. Learning about ASD and masking (I'm female) has been a two-edged sword. I find myself "unmasking" and becoming more genuine, but that is also making me more visible to others and is revealing more of my difficulties with the neurotypical world. My biggest problem has been to get a medical diagnosis. Everything through my medical group seems to be for the diagnosis for children. I think its great to diagnose kids and get them help during their formative years, but those of us that had never heard of autism until adulthood could also be helped by diagnosis and possibly services. My doctor has no expertise in anything mental health or developmental disabilities and the only referral he can do is to send me to stand in line during "psychiatrist day" and be seen by who knows who with who with an unknown level of expertise. I get overwhelmed and discouraged easily, so I've never made it though the hours-long wait. I've checked out ASAM, and its an advocacy group that does lots of good things, but I see nothing regarding links to diagnostic sources. I'd love to see responses from other adults in the States that were successful at finding resources to get a medical diagnosis. Dan, your channel has been such a help and comfort. I've gotten more information and understanding her than anywhere else--and yes, I'm subscribed.
i'm 21 and i was finally diagnosed last week, i feel like it is really important because it makes you know more about yourself , and for me , i accept myself more now because of this , of knowing that i'm autistic ..
I am 27 and suspect I have autism and some learning disorders. I currently don’t like my job but also feel I have been stuck in low skilled jobs that don’t utilise my ability mainly because I haven’t managed to get diagnosed and actually look into my problems or way of thinking.
I have been taking a natural supplement called Ashwagandha for over a year because of Aspergers. I felt that this has helped massively with my focus and stress levels among other things. Can I suggest you look into it and let me know your opinion? Thanks for these videos, they really help me feel like it is ok to have this condition and that ppl are becoming more aware of it.
I just took the AQ test, and scored 41/50. It would explain a lot. However, I will most likely never get an actual diagnosis... I'm 57, and it's not going to change anything.
I agree with what Laura says about the importance of girls/women getting diagnosed because there is definitely a genetic component so these ladies are more likely to have autistic children in the future so at least if they have a dx themselves then their kids may be diagnosed earlier and have more support from when they are younger.
Most of women are diagnosed as ADHD. AspergeR is a "boy thing". BUT for my researches much better saying that girls are high functiong. The description on google is not the truth for girls. Different brains. More intelligence in masking.
I've seen your videos here and there, commented how I think I might have autism and how you've helped me see that. I now have my diagnosis at 18 :) I dont feel the need to mask any longer, I feel free even if the autism will make me be stuck in some areas for the rest of my life. Thatll take time to accept but I've never gotten a diagnosis that felt so right
I’m 35 and was diagnosed with bipolar disorder, ptsd, and ADHD as a teen. I literally had to break out the AQ test and the DSM to have the doctor even consider me for a diagnosis. They acknowledged that my AQ scores and symptoms meet diagnostic criteria for ASD but my psychiatrist isn’t a “specialist“ so it’s technically not official even though we talk about it like it is official.
hi this is Tracey from autisticwoman.com excellent video and I shared on our fb page. Will also share her channel. Always enjoy watching videos about females in the spectrum. Thanks for the time you take creating these videos.
Thank you for your channel because I always felt there was something more to me than my ADHD and always wondered if I was on the spectrum, but brushed it off because I never looked like what they portrayed autism to be on TV. Having seen your channel and others has really been enlightening and has given everything in my life meaning and a reason. Knowing now what I know I'm pursuing an evaluation and hope to find out whether I am or not on the spectrum. thank you sooo much for everything
I started watching your videos because my daughter is autistic. I was trying to learn more about it. The more I learn, the more I'm ticking off symptoms that I personally have. I am 35. I have always been "different" than other girls my age, all throughout my life. I have social anxiety. I have many many texture issues with foods. I hate talking on the phone or paying for anything in a store, and I will always ask someone else to do it for me (I rely on my husband A LOT). I have a few interests, and will always try to talk about those, and none of my interests are "typical girl interests" apparently. Music (70's and 80's mostly), Video games (I am obsessed with Zelda), and fantasy/fantasy romance books. That's pretty much it. If those topics don't go over well, I'm out of stuff to talk about. I am perfectly fine with not having friends, and I am horrible at making and keeping friends. I think that I'm autistic. I now need to talk to my doctor about it.
I just took a Quotient Test, I got 42/50.
Yep, kids (2 diagnosed, 1 that refuses to get the diagnosis) got diagnosed. I saw similarities. They saw similarities. They asked for me to get tested. Their doc recommended a doc who specializes in women. Yep, 38 years of masking. It's been difficult, but so enlightening for me. Thank you both for this video.
I live in Norway and after my boyfriend brought it up to me that I might have autism, I then noticed a lot of similarities (after doing some research into it) and was agreeing with him that there's a possibility for that. So I then decided to get some help and maybe figure it out, but I have gotten rejected for a diagnose twice now only because I have a higher education degree and because I could function in work (keep in mind they have never looked at me nor do they even want to look at me, even if a psychologist referred me with him agreeing that it could be autism). And that is completely rediculous if you ask me. They do not care if I function well or anything, just as long as I work, and that is really annoying me.
As a middle aged female, how do you really get a psychologist to consider ASD instead of just going back to previous psychiatric diagnoses? In my 30s, I was diagnosed with depression, psychotic depression, Bipolar, OCD, borderline d/o,PTSD, schizophrenia and finally schizoaffective d/o. It kept changing because I never fit neatly into any DSMIV condition. I have taken every online Aspie/ASD test and they all say I am probably neuro diverse. I have been taken to psych doctors since age 4, however anyone that could give info on my childhood is dead. I meet the diagnostic criteria in every area in DSM5 for ASD, but there is no psych doctors in my area that work with adults with ASD. The previous misdiagnoses and treatments were a nightmare that destroyed 10 years of my life.
When you would like to get help getting a diagnosis, what are the steps to get a diagnosis? Do we contact a therapist, a medical doctor, or who do you reach out to you first? And how do you know you’re being pointed in the right direction to get the right help without accidentally been diagnosed with a mental illness?
Most of the cases people are at least ADHD. Its really difficult to be recognized as a high functioning person or ASPERGER (that is more common for boys).
It’s very important in the job world too
Thank you so much for sharing this! I have 3 kids 2 out of 3 have autism and my youngest is being reassessed for autism. For a few years now I have been struggling as I have been diagnosed with ADHD but like you pointed out I felt that wasn’t all it. As I am digging deeper in preparing a case for my youngest I have seen all these Autism flags in myself.
Yes, I agree and I'd like to get an official asd assessment to see if that's what I've been struggling with or if it's something else I haven't looked into yet. I'm fairly confident that I have more than enough of the traits to warrant an autism diagnosis and have learned how to manage most of them on my own through online resources and channels such as yours, but I think having an official diagnosis would be super helpful in helping my spouse and his NT family understand why I am the way I am a little better. Especially when it comes to my meltdowns and things I have to go through when I get overwhelmed. I want people to be able to understand that I'm not "doing it on purpose" or 'looking for attention" (quite the opposite because they're quite embarrassing and I don't want anyone to see that).
So happy you did this collab!! I started listening to Laura's podcast a few weeks ago and relate to her so much!! I was only diagnosed at 26
That sounds like me?! I’ve been questioning things myself too. My son has ASD but I’ve been wondering the same thing about myself.
Daddy Scribbles it’s possible you might have
I got diagnosed 2015 with Aspergers syndrome at 33.
It has lifted a huge burden of self doubt and self derision from me.
I first suspected when my son was diagnosed (he was 14, I was 45) but it took another 20 years of therapy, marital issues, and then youtube to actually spur me into getting the diagnosis.
I am almost 40 and I am currently struggling with the VA to get my concerns for autism. My youngest daughter had been diagnosed at the age of 10. Watching my children get through life reminds me too much of how I grew up. I don't do well socially. Am I the only adult, better yet, woman, as frustrated by no one wanting to help?
As an adult you would have to pay privately for a dx, that's what puts people off.
Tia Payne it runs in families
@@Dancestar1981 Thank you. I can say I don't deal with this one alone.
Wow!!! It's been three years since your comment. Did you ever make any progress with the VA? I'm 50, female and a veteran with a 100% disability rating for "Borderline Personality Disorder" (I believe this is a misdiagnosis because I've never feared "abandonment"), along with Anxiety and Major Depressive Disorder.
I've always been very different from others. My son was diagnosed with ADHD back in 2005. I never even had ASD on my radar until an Aspie friend told me that I should look into it because, according to her, I had more of the traits than she did. I was actually offended when she told me this but she was right. I don't do well socially either. I never have. My mom ALWAYS called me "honest to a fault". No, you are definitely NOT the only one. I had an acquaintance, a male, who was diagnosed with ASD by the VA beyond age 50. I don't know if it happens with women.
I haven't been in the VA "Mental Health" system since 2016 but I have an intake scheduled for October to see if I can be connected with a therapist who has any special knowledge about ASD and women on the spectrum. I don't have high expectations but it seems like it's worth a try for now. Previous "therapy" was never helpful to me at all but instead, it made things exponentially worse. I was labeled "Treatment Resistant".
@@LittleSeasonSojourner The VA never did it. I found a research project. They were looking for adults that suspected that they might be on the spectrum but were undiagnosed. It turns out that I am on the Spectrum, like my children. I also deal with Bi Polar Depression and Anxiety.
Thank you so much both of you! Sharing is caring. Saving lifes educating ourselves 🙌❤️❤️🙌
Thank you both so much for talking about this! I fall into this topic in a big way! One of my children was diagnosed with ADHD as a child but it doesn't entirely fit, my other child was diagnosed ASD. The specialist team we took him to told both of us we too are ASD. That was enough for their dad (to just know). However, for me, I've been back & forth ever since; debating about pursuing an actual diagnosis, to have it on paper. I don't expect it to be easy since we're also in the US, but thanks to this podcast... You're right! I am going to look for someone to test me. Getting the information out there to help other people and future generations is very important. Thank you both!! 🤗♥️
Heyy you are more than welcomed!! Thank you so much for the comment! Please subscribe to my channel to see more videos from me :).
Thank you, Dan. Just got diagnosed today, after being prompted, in part, by your videos.
My son is on the waiting list for autism and when looking at your video some of them were me to a T. I’m nervous about going to the doctors to ask them to refer me for it. I’m in the uk and I also did the test online and I just hit it
Hey Dan, thanks for the content! I've been watching your stuff for quite a while and enjoy it a lot!
I'd be really interested to see you do an episode on the overlap of symptoms between ADD and Autism and C-PTSD. In case you don't see what I am getting at I can also recommend you check out Gabor Mates book on ADD called Scattered Minds. It connects ADD with attachment styles and early life relationships. I didn't see myself as having something that could be mapped out as ADD until I read that book. I also see how a lot of my traits that could come of as autistic really makes a lot more sense the more I started looking into C-PTSD and Childhood Emotional Neglect especially.
A psychiatrist tried to convince me that my depression and social anxiety was just because of high functioning autism (which I wasn't and am still not diagnosed with) but since I know my childhood and the relationship to my parents I knew there was more to the story than simply genetics.
Uncomfortable topic for many I am sure but for the people who find it relevant it could literally help them find a meaningful way to make sense of their lives.
I score 48 in the AQ. Dont have a diagnosis yet. I am 35 and live in Canada.
Yes, thanks for your story and the resources
My daughter is "driven." and focuses so we never even thought of ADHD. A bad meltdown got her to the therapist who diagnosed her
I was diagnosed as Bipolar as a teen, and it never seemed to fit me correctly. I was diagnosed with ADHD as an adult. It has been confirmed that I am also Autistic by my therapist. Both my kids are autistic as well. I agree that there are pros and cons of being diagnosed as an adult vs a kid.
My daughter also, I do not think she will meet the diagnostic criteria RIGHT NOW... but she is Autistic, and we need to watch to see when she does meet it. Social stuff for a 4 year old is easier, but she is also surrounded by ND people, and people who understand autism and ADHD (my kids also have both).
I was formally diagnosed in adulthood, but I’ve found it very hard to tell people. I think mainly because the post diagnosis support in the UK is absent and because the few people I have told haven’t recieved the revelation very well.
I’ve had:
“I don’t think you’re autistic, you’re just depressed. Maybe bipolar?”
“If you are then I must be as well.”
“Everybody is a little bit autistic”
So really instead of achieving the aim of undoing decades of damage & finding acceptance, all that’s happened is I got more rejection heaped on top of it all.
I haven’t told many people and don’t talk about it, fearing what they will think or say. 🤦♀️
I was diagnosed June 2023 (42) after GP refused my request for a referral out of disbelief. Even when my referral application was sent with support of my psychologists, NHS Autism Spectrum Service denied it until I sent a 🔥 letter of my life from childhood until now for them to change their mind.🤣🤣
Thank you for your work! Diag w/a.d.d as a young kid, had to attend a specific school til grade5 As an adult I'm feeling more and more like I may have autism aswell. My fam sadly just see the a.d.d symptoms as me making nagative choices on purpose.. :( Even asking them for simple things like helping me budget / manage cashflow is met with "I thought you could do that / were not good with that, ask someone else"...
Thank you this was an excellent video. I am 55 and struggling now and wish I had started getting answers because it is such a struggle. I appreciate the information and love the channel. Thank you
It can be lifesaving honestly
Laura, I have some many questions for you being a female growing up on spectrum, now that you have your diagnosis. My granddaughter is 6 and I'm trying to help her in every way possible.
I am 47 years old and just found out I have Autism and have no support was just given names or organisations with websites and phone numbers. I have also got memory issues. I was diagnosed with PTSD. I was also diagnosed with Dyslexia when I was in my late 20s. I was said i might have ADD in my early 30s.
I understand that. I posted places that have helped me in this journey at autisticwoman.com I was diagnosed finally at 46.
@@EveryoneIsEqual101 Thank you will look at this site now. :)
Also try thegirlwiththecurlyhair.co.uk/ Alis was diagnised aged 23. She is a mine of information which you might find usefuk
Autistics can have executive function issues too
@@jmk1962 thank you
My 6 yr old son was diagnosed with high functioning autism and I did not know what that was. After all the research I did, I came across autism in women. Every article I read and video I saw, described me! Where do I start? Who do I talk to?
The party(ies) who diagnosed your son. Explain the situation to them, and ask for their direction.
Miriam Rodriguez get a referral to a clinical psychologist who specialises in autism spectrum disorders in adults especially women for testing. Takes about 3 hrs but you get an answer straight away.
More males are diagnosed - simple females are conditioned during childhood to socialise which is probably the biggest masking \ barrier to diagnosis. Laymen's (GP's etc) then assume because they're not low functioning with social skills they're not ASD. Also, the male brain (and social skills conditioning) are automatically aligned to ASD behaviours.
I am 26 and I have been pretty sure I have autism for the last year.
I am about to lose my health insurance so I don’t know if I will ever be diagnosed.
It is sort of depressing because I don’t know if I will be able to handle a job outside of the family business where I work now
Sometimes I don’t respond well to directions if they are not clear
Can you do a video on negative stigma around autism/revealing your diagnosis and tips on how to combat negative reactions/comments/banter ?
I will be checking out the podcast😘 Thanks guys
I have no problem as some appear to have with labeling my condition as Asperger's Syndrome despite animosity towards the guy and his reputation simply because it explicitly details my particular characteristics. ASD is kind of hazy by comparison. Oh and BTW, I don't care. I don't need or want help. I am a loner by nature. I am comfortable with what I am and don't need the company of others even though I once wanted to fit in as much as anyone could. Having failed miserably in earlier life it no longer matters. I botched more than 20 potential dates back then and my genes will be buried with me. The world turned its back on me and I learned to reciprocate.
Thank you for this video! I tried getting diagnosed earlier this year but was told that my symptoms weren’t that severe to warrant an evaluation :/ super frustrating because it’s like why would you change the name to autism spectrum disorder if you’re going to ignore certain people on the spectrum? Anyway, I was pretty heartbroken to hear that news. Do you have any advice on how I can try getting diagnosed again?
Think you might have to pay for it privately.
AQ test for me 46/50 - I’ve been informally diagnosed but there was a 22+ month wait for my official diagnosis. About 12 months left now for the earliest assessment 🤞
I really believe I have asperger's and would love a diagnosis, but my counselor doesn't think it's important to get a specific diagnosis for anything because she only thinks treating the problems is what's important, but getting a real diagnosis for what I have would give me so much relief. I'm not sure what to do about this.
Are they a counsellor or a pyschiatrist/psychologist? From my experiences, counsellors will focus more on fixng problems than labels. It might be better to see someone else for proper assessment and diagnosis. Counsellors have different education and qualifications.
They are a counselor. Thank you for the info :)
I found out because when I went to school a few kids came up to me and asked my name, then was like "oh, you're slow!"
Then 9 knew I was ASD because all my family is as well. Id read encyclopedias, maps, study new words in the dictionary.
Hi I'm 20 years old and have recently been diagnosed with autism. I got the diagnosis but I've struggled to get any help do you have any advice. It would be appreciated ☺️
Still not sure if I want to get diagnosed.
it’s not a spectrum, linear- so much overlap with “different diagnosable” conditions... its not even a box. it’s trying to fix a moving point in space and time. there are “traits” and “symptoms” but i have actually had to say, “YOU ARE ASKING ME THE WRONG QUESTIONS “. given, most “authorities” on the subject are trying to place people’s experiences in a “schema” - but i’ve yet to find any one who appreciates how everything is part of something. tilt the table and like a hologram you will see different hues of different manifestation and “LABEL”
People with ASD can evolve, grow and change just like any other person. in fact for some of us the adaptation and re-configuration is more than NTs could manage
It’s near impossible as a woman to get adequate health care for anything let alone an autism diagnosis. It’s exhausting navigating the process and my PDA subtype makes me suicidal everytime I have a setback. I do not know what else to do. And I don’t want to die but I don’t know if I have it in me to keep fighting
This will be nice to hear from !
Yes!!
Hey mate! Good to see you doing this. When are we going to collab? :P
Hit me uk in email dude
HEY MAX!
Love your channel!
Your videos are so amazing!
A collaboration, eh? Anamated or not? Although it would be pretty cool to actually see the real you... It would be awesomely cool to see the pair of you animatedmated.
Can't wait!
.
She sounds like Tati (the makeup guru)! Such a nice voice. (In case you react, I subscribed already).
Hey thank you :) for subscribing!! Yeah Laura is awesome.
14:25 Totally relate.
The stats are more 1:1 it’s just that because of the male bias of research this isn’t reflected in female diagnosis
I totally agree!
Great vid! You guys work well together. But it begs the question for senior citizens: "Why bother at this point in life?" I would love to know what you think.
Hi, I am on the waiting list for a diagnosis. I'm a trans guy and I've heard there are separate traits for males and females but I have traits for both. I live in the UK. Is there anything I specifically need to be aware of? Is there something in place for me? Thank you for taking the time to read this comment.
No disrespect, but could transitioning be a form of masking?
I missed this because of your overuse of "premieres" so now I don't bother to click immediately.
Very useful discussion.
Hey Dan I had a silly idea for a video. Would you ever do video about what kind of collectables is best for people autism?
What do ypu think ?
While I agree that getting the actual diagnosis is important, we really need to be advocating to fix this broken-down healthcare system, at least in the US. I self-diagnosed in 2012, but I've been trying to get the blasted diagnosis but doctors won't even talk to me. I'm finally on a waiting list, but they don't take insurance and I'm on a very fixed income. This is why a lot of people who live in the US just self-diagnose.
I'm 66 and had to diagnose myself then had a assessment.
Theripst don't ask about everyday habits reactions ive been in therapy for 30 yrs no one caught it.
What happened to Laura? Her twitter, facebook, and blog have all disappeared. Her last podcast was back in january.
You should read the book, "The Complete Guide to Asperger's", by Dr Tony Atwood.
Getting diagnosed in my 20s was the best and worst thing to ever happen to me
Two weeks ago I found out that in Bulgaria (my country) autism is defined as a "child autism" so no one can diagnose an adult. When diagnosed kids grow up they're considered to have some sort of mental retardation. I'm sooooooooo MAD! Not only because I'm absolutely sure I am autistic, but also because of all the children and adults that are completely neglected! I can't believe this is possible in The 21st Century... :_(
Omg
🎯 Key Takeaways for quick navigation:
00:00 🎙️ *Introduction to the Podcast and Personal Experiences*
- The host introduces the podcast episode and guest Laura, discussing the unique journey of late diagnosis of autism spectrum disorder (ASD).
- Laura shares her personal experience of discovering her ASD after her son's diagnosis, leading her to start the "Not Neurotypical" podcast to document her journey.
01:09 🧠 *Self-Discovery and Realization of Autism Spectrum Disorder*
- After learning about her son's autism, Laura recognizes similar traits in herself, leading her to take an Autism Spectrum Quotient test.
- Laura emphasizes the importance of sharing her story, especially for women, as she noticed a lack of female voices discussing their experiences with autism.
03:27 🌍 *Positive Impact of Sharing Personal Autism Stories*
- Both speakers discuss the value of sharing personal autism stories, providing support, understanding, and guidance to others in the community.
- They acknowledge the challenges and polarizing opinions within the autism community but emphasize the importance of advocacy and understanding.
05:04 🚸 *Importance of Late Autism Diagnosis and Access to Support*
- The discussion delves into the significance of late autism diagnosis, providing access to necessary support, understanding, and interventions.
- Laura and the host share personal experiences and emphasize that understanding one's condition allows for effective self-advocacy and access to appropriate support systems.
06:10 🤝 *Self-Advocacy and Growth Post-Diagnosis*
- Laura highlights the importance of self-advocacy and growth after receiving an autism diagnosis, emphasizing the need for understanding and support to navigate challenges effectively.
- The conversation underscores that a clear diagnosis provides a foundation for self-awareness, communication skills, and accessing appropriate resources.
07:36 🧩 *Understanding Autism and ADHD Overlaps and Differences*
- The discussion explores the complexities of distinguishing between autism spectrum disorder (ASD) and Attention-Deficit/Hyperactivity Disorder (ADHD), highlighting overlapping symptoms and unique characteristics.
- Both speakers share personal insights and experiences, emphasizing the need for individualized understanding and support tailored to each person's unique profile.
09:23 🧒🏻 *Autism Diagnosis in Women and the Importance of Advocacy*
- Laura discusses the challenges and differences in diagnosing autism in women, emphasizing the need for increased awareness, understanding, and advocacy.
- The conversation highlights the importance of official diagnosis, recognizing the unique presentation of autism in females, and supporting early identification and intervention.
11:16 📣 *Advocacy, Community Engagement, and Personal Reflections*
- The hosts encourage community engagement, discussion, and sharing personal reflections on autism spectrum disorder (ASD) experiences.
- Both speakers emphasize the importance of awareness, education, and support within the autism community, encouraging listeners to share their stories and perspectives.
12:40 🎥 *ADHD and Autism: Diagnosis, Understanding, and Community Discussion*
- The discussion delves into the complexities of diagnosing ADHD and autism, exploring overlapping traits, challenges, and unique characteristics.
- The hosts share personal experiences, insights, and reflections on navigating diagnosis, understanding individual profiles, and advocating for appropriate support and resources.
19:11 📚 *Importance of Self-Advocacy and Support for Adults on the Spectrum*
- Emphasis on the organization that promotes self-advocacy.
- The organization provides toolkits and resources for various scenarios and needs.
- Specific focus on adults, offering support across the spectrum.
20:34 🧠 *The Process and Importance of Adult Diagnosis for Women*
- Acknowledgment of the concerns women might have about seeking diagnosis.
- The importance of taking time for self-awareness and understanding one's traits.
- Recommendation to prepare adequately for evaluations with notes and self-awareness tools.
22:10 ⏳ *Timing and Preparation for a Successful Diagnosis*
- Stressing the significance of being prepared and not rushing into the diagnosis.
- The benefits of bringing detailed notes and self-awareness insights to evaluations.
- Avoiding the "masking" behavior during evaluations to ensure accurate diagnosis.
Made with HARPA AI
While I agree with your points about the benefits of getting diagnosed, both for for self and the community, I wish y'all had said something about it not being entirely risk-free and being a personal decision.
Autistic people aren't only white and middle class -- what is safe for one demographic is not always safe universally. I have known people who have lost their job, their health insurance, their children because of an adult diagnosis.
Seeking diagnosis is a personal decision and no one should feel guilty or ashamed for not seeking official confirmation. Could your diagnosis have helped the community? Absolutely yes. That does not mean you owe your life and safety to others. You are not required to set yourself on fire to keep others warm.
I say this as a twice diagnosed Autist who is completely out everywhere in my life about my diagnosis: there are risks and there are potential negative consequences to diagnosis and to disclosing that diagnosis.
I have been listening to other Autists for a long time and so much that is relatively safe for me as a white person from a middle class upbringing is absolutely not safe for all Autists.
Make a video about ADD X HIGH FUNCTIONING AUTISM. DSM 5 its ADHD with autistic traits
I wish you would discuss autism in males and dating. I may just not see it on your list!
I had a hard enough time finding a clinical psych that took my insurance. Now she’s trying to tell me I just have adhd, anxiety, and depression, and can be trained to get better in social situations because my EI score was so low. She has a son on the spectrum. She says there isn’t really any way to diagnose adults. Who do I need to see around here? Is there a clinic or secret handshake?
ADD acording to DSM 5 is ADHD with autistic traits now. In some cases the person is high functiong and not ADHD. In 2020 things are going to be better about all these things. Knowing yourself as an ADHD person is a great relief at least.
I see the DSM 5 was published in 2013. Why should anyone have to wait till 2020?
I'm wondering if ones with autism especially aspies.
Do we tend to? or not to believe in a god thingy?
I just took the test mentioned @1:35 and;
"Your score was 28 out of a possible 50.
Scores in the 26-32 range indicate some Autistic traits (Aspergers Syndrome).." I'm 56 and just figuring this out.
18:11 - just because there are more females in the world, does not mean there will be more females with autism.
As you stated earlier, genetics play a clear role in determining whether a person will have autism-ADHD or be neuro divergent in some way.
There is no reason to think that genetic difference might not be linked to the XY chromosome pair which would cause a significant difference in the rates between genders.
Beyond that, hormone levels can have very significant effects on all sorts of medical conditions or traits. That's another reason there may be a discrepancy in the prevalence among men and women.
It is not necessarily the case that neuro divergence will be equally common in different genders.
But, clearly, we need more data and more research on the subject to understand it fully.
Wait... Theres a test for that??? Why didnt they do that during my eval before deciding "I have too much trauma to make a diagnosis"
I'm from Philly! Are you from Philly?
Anyone know of adult diagnostic services for undiagnosed adults in texas? Near San Antonio?
As one would predict, being that 80% of us are currently unemployed … I have no finances
And it’s hard to find that one organization or that one charity or that one unmentioned service where you legit have to be a health and human service scholar to have knowledge of it?
I need help :(
Anyone !?
My therapist said Autism signs of biology is a large forehead. I have the same high forehead and it seems the guest looks like me. So that's interesting.
Hmm that IS interesting but I never heard it before
I've read that before, too! I've got a 5 head.
Just get the gemone gene test.thank goodness for biology
💚
“Especially women …” unmasking awetism by Devon Price is a good book and moves away from ‘female awetism.’ I know I resonate with the ‘female presentation,’ but am a trans woman
My sister has been diagnosed with bipolar and I’ve sent a bunch of stuff to her (including the above book) under the guise of ‘knowing me better,’ in hopes that if they felt asd fit them better they could direct their care, but they seem happy with their diagnosis … not sure if bipolar treatment helps us asd folk though, I haven’t learned much about bipolar
I'm not sure it's worth my while chasing after an official diagnosis at 71. I'm worried that even if I went privately I would be diverting resources from those who truly need a diagnosis for access to support and accommodations. Emma Newman's NHS experience czcams.com/video/aHHv4jI7w3Q/video.html is a little off-putting (and heart-wrenching) and I'm guessing the NHS is inclined to not offer full assessments to those who can probably sort themselves out (ASD support level 0 anyone?). I may change my mind - but a long wait is not an option at my age.
That breaks my heart to hear. I think the more people who claim their health taken seriously the more research is gonna come. Never let age come in your way. Your story is super important for the next generation. Too many allready took their diagnoses with them into their graves ❤️
4 to 1 male to female diagnosed.
But NAS see the number as 3 to 1 male to female.
If ever female who has autism was diagnosed.
Is it better to not autism all together? Well yes.
But you can't help the hand your dealt.
I do and everyone does in a time in your life why me?
Why did I get autism?
But that only on bad, bad days.
On good days it why not me.
I have gifts that NT will never have, not just the focus and memory.
But a ability to sense negative emotions.
Using channels that NT are not born luckier to have.
I'm inbetween aspergers/autism is not as positive as Dan says.
I know your don't want to show you crying or having meltdown on the channel. Because it's to much of a sterotype of the medical model of autism I get that.
But on good days, weeks or even a good month it not a disability and there are worst neurological condition you can be born with.