A Tour of My Wheelchair

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  • čas přidán 24. 07. 2024
  • Learn about every part of Shane's well-loved wheelchair! What do we use the handle bars for? Why is one footrest higher than the other? What goodies live in the crack behind Shane's backrest? Find out!
    Hannah and I absolutely love making videos for you. If you would like to support our work so that we can continue sharing our life and relationship with you for years to come, you can do so on our Patreon: / squirmyandgrubs
    Thank you SO much!
    MORE INFO ABOUT US AND OUR CHANNEL:
    You can follow us on Instagram at:
    Shane: / shaneburcaw
    Hannah: / hannahayl
    Our address:
    Squirmy and Grubs
    PO Box 16411
    Minneapolis, MN 55416
    You can PREORDER Shane’s upcoming memoir, STRANGERS ASSUME MY GIRLFRIEND IS MY NURSE, featuring many never-before-told stories about Shane and Hannah’s relationship, right here: www.amazon.com/Strangers-Assu...
    SUBSCRIBE for more! 👉 / squirmyandg. .
    Intro animation made by Pinkietoons! Check out her Instagram page to see more of her awesome work: / pinkietoons
    Shane was born with a neuromuscular disease called Spinal Muscular Atrophy that requires him to use an electric wheelchair. He is the author of several award-winning books, the President of a nonprofit organization called Laughing At My Nightmare, and a renowned public speaker who has performed across the country at places such as Harvard University, The University of Florida, The University of Connecticut, Princeton University, and many more.
    Hannah is a senior at Carleton College, studying sociology and anthropology. She works as a researcher for an educational consulting firm. Her future aspirations include attending law school and owning a goat sanctuary. She films and edits the “Squirmy and Grubs” vlog.
    Shane and Hannah have been dating for over 2.5 years and living together in Minneapolis in recent months. Their interabled relationship often confuses people, because much of society still cannot fathom people with disabilities being involved in loving, intimate relationships. Anyone who watches these episodes will quickly see their relationship is just as “normal” as any other. Sure, Hannah helps Shane use the bathroom and brush his teeth, but those activities do not detract from the emotional, intellectual, and physical connection they experience together.
  • Krátké a kreslené filmy

Komentáře • 1,1K

  • @annabrabston2892
    @annabrabston2892 Před 5 lety +1725

    This video: Not sponsored by insurance

    • @SquirmyandGrubs
      @SquirmyandGrubs  Před 5 lety +109

      😂

    • @elmagnificodep
      @elmagnificodep Před 5 lety +7

      Anna Brabston We’re not all monsters. I over see the civil right issues and grievance letters our Medicaid members have. The main purpose of my job is to go the extra mile for the member since many Medicaid members lack the resources many of us take for granted. Before that I worked in long term care at a nursing home and rehabilitation facility.

    • @Judymontel
      @Judymontel Před 5 lety +19

      @@ryanawilson8549 And also we wouldn't get to see this video for several months

    • @bsworld2
      @bsworld2 Před 5 lety

      @@Judymontel 😄😄😄

    • @stephie640
      @stephie640 Před 5 lety

      😂😂😂😂

  • @thornlings
    @thornlings Před 5 lety +665

    This video is actually super helpful to me. I work for an insurance company and my main job is processing claims for durable medical equipment, such as wheelchairs. I know exactly what you mean about certain parts not being covered, or only being covered once every six months or some other arbitrary length of time. Seeing how those kinds of policies affect actual wheelchair users is really helpful to me and hopefully will be something I can address with the policy makers at my company.

    • @amiesparkle00
      @amiesparkle00 Před 5 lety +9

      Kelwyn wonderful!

    • @WhoShe1973
      @WhoShe1973 Před 5 lety +38

      Oh please do!!! What a wonderful way in which you can make huge, positive change in the lives of others for a long time to come, I love that!!!

    • @lisaakinlabi
      @lisaakinlabi Před 5 lety +3

      I hope you can make change happen!

    • @karenbonham1359
      @karenbonham1359 Před 5 lety +7

      That is great, one of the reasons for these vlogs is awareness! Go get those changes made thanks for caring!

    • @egg_emnor
      @egg_emnor Před 5 lety +5

      awesome - be part of the change!

  • @annabrabston2892
    @annabrabston2892 Před 5 lety +515

    13 minute long video??? friday night turn up

  • @michaelbennett7026
    @michaelbennett7026 Před 5 lety +505

    Fast and the Furious handicap edition. Shane needs to send his chair to get spinner rims, cool flames on the side, and a secret ejector seat.

    • @hilaryc3203
      @hilaryc3203 Před 5 lety +25

      My boss is in a power chair and I call it his command centre because across the front is telephone, computer and monitor, various gadgets. It's a big chair as well, so yeah...his "command centre".

    • @SIGSEGV1337
      @SIGSEGV1337 Před 5 lety +8

      ADD LASERS

    • @timonmyside6591
      @timonmyside6591 Před 5 lety +2

      Michael Bennett - Or for Shane's film: Amble & The Occasionally A Bit Miffed

    • @adagamba7203
      @adagamba7203 Před 5 lety +1

      Michael Bennett that would be awesome

    • @acrophobe
      @acrophobe Před 5 lety +6

      don't forget the gatling gun and the spikes that come out of the wheels in case he needs to take out a pursuing vehicle with a *sick* sideswipe

  • @cassiemiddles
    @cassiemiddles Před 5 lety +119

    Every single video makes me laugh so hard and I loved this so much. The cutest

    • @ZombiieLoveQuadCreations
      @ZombiieLoveQuadCreations Před 5 lety +2

      cassie middles I was thinking the same thing... It's always fun listening and watching them.

  • @jenna4678
    @jenna4678 Před 5 lety +36

    I really expected this wheelchair talk to bore me but you guys are just so entertaining!!! This is actually probably one of my favorite vids of yours. love you both soooo much!

  • @kanenine5838
    @kanenine5838 Před 5 lety +153

    This is not my normal type of channel. And honestly i would be the type to shy a way a bit(id like to think in a non noticable way) from people with disabilities. But between Shane and some of SBSK videos, my eyes have been opened a bit. Now i wanna get to know them and treat them just like anyone else.

    • @kathaa-b6972
      @kathaa-b6972 Před 5 lety +24

      I have social anxiety, so for me any interaction with anyone I don't know very well is awkward, or I fear it will be, and I try to shy away … and if someone is disabled, I have the feeling that the interaction is even more likely to be awkward - not because of the disabled person, but because of my own insecurities and nervousness to say or do something wrong or weird. So I definitely do shy away. Which is an explanation, not an excuse, so I'm trying to be better. I think Shane's videos are helping with that as well. :)

    • @kanenine5838
      @kanenine5838 Před 5 lety +6

      @@b8341 i could have just not admitted this at all. Thanks for the passive aggressive bash, good thing i dont get offended.
      It was more or less prolly a lack of understanding, toward people with disabilities.

    • @721rena
      @721rena Před 5 lety +10

      I truly love this comment! Watching someone grow as a person and evolve is the most beautiful thing to witness!

    • @kanenine5838
      @kanenine5838 Před 5 lety +9

      @@721rena thank you! It feels like a spiritual morning stretch the best i can describe. Not to steer anyone from this channel, SBSK has people with some super severe conditions, and the guy who does it is eye opening in how normally he treats everyone.
      Here Shanes such a cool dude you literally forget the wheelchair.
      And i see the one person deleted their commented.
      Thanks for understanding though and taking this the right way.
      Feels good to admit, despite it being just a comment section to strangers. And being able to discuss a bit. Not something people generally feel open to do.

    • @cassandraperry6688
      @cassandraperry6688 Před 5 lety +1

      Yeah im on my gfs phone watching this and its pretty cool watching something beside star wars theories and joe rogan podcasts.

  • @CodyAnderson333
    @CodyAnderson333 Před 5 lety +273

    that 1 thumb down is a representative of Shane's insurance company

    • @beaky3178
      @beaky3178 Před 5 lety +2

      Cody Anderson lol 😆

    • @karomcmufin9472
      @karomcmufin9472 Před 5 lety +6

      Right... I kind of hope one of them from the company is watching this and realizes how stupid their policies are... Shane is a great sport about everything I'm sure there are other people struggling as well with these issues

    • @fl0werz922
      @fl0werz922 Před 5 lety +1

      The 51 dislikes are Shane's insurance company too

    • @travisreed4070
      @travisreed4070 Před 5 lety +3

      I think if you do thumb down you need to explain before it let's you

    • @SallySueSinderellaSlayer
      @SallySueSinderellaSlayer Před 5 lety

      lol yep

  • @Nathj04
    @Nathj04 Před 5 lety +10

    Hi Shane and Hannah,
    I’m a 14 year old, and only recently starting watching your videos.
    I’m absolutely blown away by both of your stories, I really enjoy watching both of you go through your lives, (i know this may seem funny to hear lol), one thing i like the most is the sense of humour, every video i watch, even if it is serious intended, always leaves me laughing or with a giant smile on my face.
    Shane looks like someone who is really easy to get along with, and Hannah is really pretty :).
    I don’t know whether this will get read, but if so then i want you to know that your videos make me happier than any other, especially when i’m stressed or not feeling very good, but your motivation is almost as if passed on to me.
    Thanks guys, Nathan.

    • @SquirmyandGrubs
      @SquirmyandGrubs  Před 5 lety +4

      Thanks so much, Nathan! We both really appreciate your kind words :)

  • @rylanh2497
    @rylanh2497 Před 5 lety +166

    If I can be at least half as funny as Shane, that’d be great😂

  • @Vampiric_Kai
    @Vampiric_Kai Před 5 lety +350

    Shane: "It's almost like your in a wheelchair now."
    Me: Looks down "My god, I am in a wheelchair!" "What is happening!!"

  • @kimfischer7725
    @kimfischer7725 Před 5 lety +12

    When Shane said, “It’s almost impractically small.” I was actually waiting for Hannah to say, “Like you.” Lol I love their sense of humor and how they roast each other. Reminds me of me and my husband.

  • @Ajsegarra96
    @Ajsegarra96 Před 5 lety +109

    You two bring so much good energy to my life. Im moving soon, and it will be my first time living on my own... so needless to say, Ive been extremely stressed and depressed :/ but I found your channel and its been helping me so much. You guys are great... thank you so much.

    • @SquirmyandGrubs
      @SquirmyandGrubs  Před 5 lety +10

      We hope your move goes well!

    • @Ajsegarra96
      @Ajsegarra96 Před 5 lety +3

      @@SquirmyandGrubs Thank you so much!!!!!

    • @michellerobinson5677
      @michellerobinson5677 Před 5 lety +5

      I’m in the same position and will be on my own soon. It’s crazy and stressful! We got this 💪🏼

    • @Emmylikes
      @Emmylikes Před 5 lety +6

      Living alone is heaven. Don’t worry

    • @aircastles1013
      @aircastles1013 Před 5 lety +4

      Chalky butt is right, living alone is utter utter bliss! (Though pets are welcome)

  • @WhoShe1973
    @WhoShe1973 Před 5 lety +11

    Lololol! The part where Hannah talks about the number of changes she has made to Shane’s “set-up”; each of which no doubt improving his state of well-being exponentially AND the fact that he met each one with “stubbornness & resistance”...and I’m over here like, “so precisely the same situation as with EVERY male/female romantic relationship since the beginning of time??!!” 🤣🤣
    Shane’s disability simply provides for a highly specified manner through which Hannah is able to prioritize the needed changes!! Sounds about right!!!👍🏻
    I love you two, and have been sharing your channel with a lot of my friends and coworkers, who have also been enjoying your content. Keep up the good work you guys!😘🤣💑🐭🐭

  • @mariannejennisch9293
    @mariannejennisch9293 Před 5 lety +163

    If his insurance company is watching this. Please replace his wheels. He lives in snow country.

  • @debmac2
    @debmac2 Před 5 lety +35

    Holy crap I spit my drink out when you used the fork on the wheel...... love you two so much!

  • @alexandrastone3166
    @alexandrastone3166 Před 5 lety +29

    “Allowing my Boys to flap around in the wind” 😂

  • @ShyLuna44
    @ShyLuna44 Před 5 lety +3

    My grandfather had ms and the only way I knew him was in a wheelchair. Wheelchairs really have come a long way from when he was alive. He's been gone for 20 years now. He had ms in his 20's and they gave him a short amount of time to live but he shocked the doctors by living until he was 68. I remember when I was younger riding around on his wheelchair, I miss him terribly. Thank you for sharing your story with everyone. Medical advances have come so far in 20 years and so has technology. I know people are still uncomfortable around disabled individuals and there's no reason to be at all. I'm hoping one day for a world where there will be no stigma against the disabled, races, religions and people will just be able to live the way want to as long they are not hurting anyone. You two are adorable!

  • @marlamozzer9565
    @marlamozzer9565 Před 5 lety +38

    DUDE. Your voice and your breath control have improved SIGNIFICANTLY since I started watching. That spinraza is amazing! I’m so happy for you guys!!!!
    Also this video is everything. Hannah’s Vanna White moves are life.
    (When you pulled Ducky out of the chair. 😂🤣)

    • @jenna4678
      @jenna4678 Před 5 lety +1

      Marla Mozzer thank you for saying almost everything I wanted to in one comment. Couldn’t like it fast enough.

  • @SixBlindKids
    @SixBlindKids Před 5 lety +89

    You could use a set of snow chains for those wheels in Minnesota, Haha! Surely insurance will pay for that! Car insurance that is... Shane, thanks to your assistant, Vanna, who pointed out all of your interesting accessories and bonus goodies. Wait, there's more! More towels, velcro, styrofoam, and velour just to make your chair unique. I'm surprised there are no Eagles logo or other Philly paraphernalia. Some bumper stickers might add some color and style to it, and probably hold it together while insurance figures out how they will not pay for something else! Welcome to the fun world of DME and ME! You guys are way TOO much fun! 😂😂😂

    • @verom8657
      @verom8657 Před 5 lety +3

      Do you mean his girlfriend Hannah?

    • @shalacarter6658
      @shalacarter6658 Před 5 lety +6

      Yes, but she was doing an excellent Vanna imitation.

    • @SixBlindKids
      @SixBlindKids Před 5 lety +8

      @@verom8657 Hannah was doing a Vanna White impression. Hence the Vanna humor. Vanna White from Wheel of Fortune on TV.....

    • @SixBlindKids
      @SixBlindKids Před 5 lety +5

      Not sure that some people know who Vanna White is, lol!

    • @BethRazz
      @BethRazz Před 5 lety +4

      I love your comments. They're always very well said and sweet. ❤ I tried the say the alphabet in 1 word challenge and omg its so hard lol.

  • @jodiecostner7049
    @jodiecostner7049 Před 5 lety +71

    Love you guys! What is a typical date night?

  • @personallyvictimizedbylifelmao

    *video idea* since your chair was dusty and covered in food😉 do a deep clean of Shane’s chair! I’d totally watch that.

    • @wendybacon4949
      @wendybacon4949 Před 5 lety +5

      I was thinking the joy stick area could use a little scrub up as well.

    • @lisamaynard9304
      @lisamaynard9304 Před 5 lety +3

      YEEEESSS!!! GOD PLS CLEAN THE CHAIR!! YOU CAN END UP WITH STUFF YOU DO NOT WANT LIKE MRSA!!!!!! 🤢

  • @cassidystehley
    @cassidystehley Před 5 lety +18

    Hi, Shane and Hannah. I love your videos so much!! You guys are so sweet and kind. You guys are my inspiration. You guys show people all around the world that just because he’s in a wheel he can do anything. He’s unstoppable!! You Guys should set up a meet and greet!! I live in MN so it would be perfect! Pls keep making videos because you guys have made an amazing impact on my life❤️
    I love you guys so much🥰

  • @IcySync
    @IcySync Před 5 lety +15

    Cole and Charisma and you guys are my favourite couples to watch on CZcams! 💞

  • @bklife5086
    @bklife5086 Před 5 lety +52

    Who are yalls favorite CZcamsrs to watch??? That’s my question for daily vlog question

  • @miraclesforus2
    @miraclesforus2 Před 5 lety +64

    This was very interesting and presented so intelligently and humorously!
    I'm really horrified about the cost of replacements and maintainence.
    I feel as if both of you are part of my family.
    Grub..your adorableness makes me wild!
    And Hannah your beauty is breathtaking!
    Goodnight!

    • @SquirmyandGrubs
      @SquirmyandGrubs  Před 5 lety +5

      Thank you so much! Goodnight! :)

    • @kosannalukic5387
      @kosannalukic5387 Před 5 lety +9

      As an Australian, I was shocked by these things not being covered by medical insurance..it honestly seems healthcare/health insurance is TOUGH in parts of the USA :( a lot of people here in Australia both abled and disabled rely on government medical subsidies and cheap basic healthcare and a pharmaceutical benefit scheme so we can afford treatment, medications and ongoing health care and be able to not have to choose between food/rent or your medical needs. Good on you Hannah and Shane for DIYing where you can and reusing :)

    • @smithy2389
      @smithy2389 Před 5 lety +1

      Kosanna Lukic yes even in UK it’s not that bad.

    • @kosannalukic5387
      @kosannalukic5387 Před 5 lety

      @@smithy2389 its very saddening.

    • @daniellemccarter5706
      @daniellemccarter5706 Před 4 lety

      Kosanna Lukic It’s more than tough am disabled from endometriosis and SIJD. They keep refusing excison surgery I need for endo. I’m so sick I can barely walk most days and the doctors here are awful. They have no compassion and mock patients most the time. I don’t know why ppl think the USA is perfect Americans are suffering very much here. Here we have to choose between food and medicines because co-pays are so much. And forget going to the ER if you don’t have Ins you’ll go broke and homeless. The medical system here is thrashed pretty bad and so many are suffering cause of it. They even deny Meds for cancer to ppl or t he co-pays are so much ppl have to beg for help on Gofundme pages.

  • @avabee4116
    @avabee4116 Před 5 lety +2

    I used to be a bit shy with disabled people, (I was never rude to them and I always treated them with respect) but now I feel really comfortable with them. So, thank you, for what you do and thank you for posting videos and spreading awareness. I watch you every single day and you make me feel happy.
    -Ava

  • @JL0ndon
    @JL0ndon Před 5 lety +12

    Lol the name of this video should have been “what insurance won’t pay for on my wheelchair cuz they suck but i have buttons to remind me” 😂 I’m not going to lie i was cracking up when Hannah was on the floor after being taken out at the shins. Love you guys!
    Edit: omg the picture of Shane bringing groceries in is too much! I’m literally on the floor laughing!

  • @elviracarrales2580
    @elviracarrales2580 Před 5 lety +29

    Getting a new wheelchair next month! I'm so excited and I have a list of all my request!!! ♿😊

    • @lisamaynard9304
      @lisamaynard9304 Před 5 lety

      Where do you live? Because here in the states, requests are pretty much ignored for the actual requirements only. My cousin is a quad and he has fought the insurance company for over 40 yrs just to get things on his chair that would make his life more manageable. I seriously hope you get ALL of your requests but at least half!!!

  • @kerrigunter9275
    @kerrigunter9275 Před 5 lety +14

    Hannah is so funny and so is Shane. Y'all make the BEST couple because y'all compliment each other. Much love from Atlanta.
    💖💖

  • @jara224
    @jara224 Před 5 lety +3

    My husband has the same controller - with "Profile" he can use several gears. Its practically, when the children want to sit down on daddys lap and take the control. With the first gear they all will survive 😂

  • @jahmellesherman8224
    @jahmellesherman8224 Před 5 lety +6

    Shane you have no idea how curious I have been about your wheels! It’s really an extension of you so it’s like getting to know you better. Thanks for giving us a tour 🤗

  • @josephfogus6735
    @josephfogus6735 Před 5 lety +4

    Shane you should start a go fund me page to modify/customize your wheelchair. Headlights for safety/darkness, all terrain tires for snow etc..

  • @marys3127
    @marys3127 Před 5 lety +292

    I have a question for Shane: do you have pain due to the muscle contractures of your hands/wrists and/or hips/tush area due to very little fat padding? Sincere question.

    • @shalacarter6658
      @shalacarter6658 Před 5 lety +8

      I wanna know that, too.

    • @pr27038
      @pr27038 Před 5 lety +16

      I’m not sure about the hands, but yes they have mentioned pain with hips and his tailbone for that reason.

    • @sayswice5621
      @sayswice5621 Před 5 lety +2

      Good question!

    • @miraclesforus2
      @miraclesforus2 Před 5 lety +5

      This is an INAPPROPRIATE question!
      Are you medical professionals attempting to diagnose and present protocols ??
      Really.....how unbelievably intrusive!! This is not a question for a lay person to ask anyone!!!!
      This falks into the same idiotic category as to asking someone do or how they have sex!!
      Have some discretion and class!!

    • @rociosalinas9348
      @rociosalinas9348 Před 5 lety +100

      @@miraclesforus2 seriously?

  • @4815rue
    @4815rue Před 5 lety

    I love that you subtitle everything because not only is it helpful for the deaf and hearing impaired but its helpful for people like me that just simply concentrate on and process information better when simultaneously reading and hearing the words.

  • @quietmindstitcher9326
    @quietmindstitcher9326 Před 5 lety

    Guys, I found you recently and I am obsessed. I had to retire from a much loved career recently and have been feeling pretty sorry for myself. CZcams and other forms of social media have really helped me build a new start of a different type of life for myself and you two have brought some much needed laughter and joy. Thanks. There is a lightness and celebratory air about your videos that is refreshing and fun. You are clever funny which I like and you don’t apologise for being yourselves. I would be proud to have either of you as my son or daughter. Thanks for the much needed lightness.

  • @eduardopadilla5505
    @eduardopadilla5505 Před 5 lety +7

    Guys Guys!! You are already a litle bit known in México because of your video of the interview you had in the tv show This Morning, which was shown in a tv show called Venga la Alegria-> Let Happiness Come. They did a very good report about you!
    Excellent tour of your wheelchair Shane!!

  • @wslack
    @wslack Před 5 lety +136

    Please take care of yourselves! This is a LOT of video editing and captioning to do each day.

    • @CVo83
      @CVo83 Před 5 lety +3

      Will Slack Agree! I don’t want them to get burned out and resentful.

    • @lisamaynard9304
      @lisamaynard9304 Před 5 lety

      I'm pretty sure Shane does the editing while she works. It's his job pretty much.

    • @julih3963
      @julih3963 Před 5 lety

      @@kelseyjay3733 She's in college

    • @sinjon
      @sinjon Před 5 lety

      Kelsey Jay she’s in college, swims and is a lifeguard

  • @harrysnelling9225
    @harrysnelling9225 Před 5 lety +1

    You are the biggest inspiration that despite you can not do as much as many people you’re always making the most of everything you can do and also always making people smile and laugh. 😃

  • @leez2834
    @leez2834 Před 5 lety

    Thanks for being very patient and answering all of our inquisitive questions. You are two great people and really love to hear from you.

  • @Luke-tt7wx
    @Luke-tt7wx Před 5 lety +39

    I LITERALLY PEED MYSELF AT 2:20 😂😂😭😍

  • @highimjaycee
    @highimjaycee Před 5 lety +12

    I know shanes pain too well, my old wheelchair was the most basic wheelchair someone could be given without headlights or all the other “special” features. My seat also has gel in it too which is annoying but thankfully i have a new wheelchair that’s like the tesla of wheelchairs, it’s really fancy at least to me it is.

    • @katphyre
      @katphyre Před 5 lety +3

      Mine is like his. Barebones, nothing even remotely fancy. And now it's being held together with black duct tape in a couple of places. (The counselor at the accommodations department at my daughter's college saw my chair and called their maintenence guy. Hahahahaha. Such nice people!)
      The worst though...it has a poltergeist and once in a while it will just stop and shift to lockout mode. I can't use the controls until I turn it off and then on and go through the mode button back to drive. It's takes about 30 seconds which isn't a lot of time if you're safely on the side of the road, but it did this in a crosswalk on a busy road one day. I've never been so afraid of dying.

  • @matthewthomas7288
    @matthewthomas7288 Před 5 lety

    Never seen so much positivity!!! This channel never fails to impress me the two of you are so kind and positive, I hope the world treats you with the same amount of kindness that you give out to the world!

  • @sarahgrace9748
    @sarahgrace9748 Před 5 lety

    Currently bawling. Hannah, you are the sweetest, kindest, selfless person ever. I have a special needs brother and to know that someone like Hannah may be out there waiting for him gets me so emotional. Don't stop what you are doing. Love you guys

  • @LydiaSantiago
    @LydiaSantiago Před 5 lety +110

    I love all your videos. You make my day. You two are beautiful souls. Thanks for sharing with us.

  • @yugiohlegend
    @yugiohlegend Před 5 lety +42

    7:17 If Shane actually does this, I’m done 😂

    • @AnaDiaz-wz4cf
      @AnaDiaz-wz4cf Před 5 lety +3

      That was freaking great!!! The TSA agent would be shocked 😳😱 for life...

  • @madeleinegoodhew5718
    @madeleinegoodhew5718 Před 5 lety

    Hi!! When im having a hard day with my chronic illness i head straight to this channel, your humor never fails to pick me up and make me laugh... afterall laughter is the best medicine! You can feel the love you share through the screen and its a beautiful thing to witness so thankyou for letting us be apart of it. Keep thriving and keep smiling! Much love and light. 💕

  • @jessiejones907
    @jessiejones907 Před 5 lety

    I was recently showed a video of you guys by my sister and subscribed immediately. You guys are both Amazing & Hilarious. I don't have SMA but I'm a C5C6 Quadriplegic paralyzed from the chest down from a diving accident May 11th 2000 when I was 16. I have the front wheel drive Permobil C300 and can relate to a lot of your experiences. Like the foot plates as defense/food catchers, air filled tires going flat and switching to solid tires, even the pouch which I also use to carry other peoples items and so on. We may sit a little lower than everyone else but our outlook on life lets us rise above the rest. Thank you both for sharing your stories and giving others with disabilities including myself someone to admire.

  • @lisa-marie4938
    @lisa-marie4938 Před 5 lety +6

    Thanks for sharing! Positive vibes from Canada 🇨🇦

  • @inkandmoontv
    @inkandmoontv Před 5 lety +3

    Alternative title to this video: Shane Shades Insurance Company for 14 Minutes Straight

  • @zlandorf
    @zlandorf Před 5 lety

    Can't stop watching your videos. They're really fun, informative and positive. Your happiness is contagious!

  • @drstraange1
    @drstraange1 Před 5 lety

    I can't get enough of you both thank you for sharing your love and lives with us. My wife and I watch each time we check the channel she just reminded me to subscribe.

  • @Drewy62
    @Drewy62 Před 5 lety +3

    Would love for you to do a follow up video on the process of getting a wheelchair replaced. Willing to bet most people would assume you could do it without getting independent insurance verification that you are indeed still disabled and they would be WRONG. I'm due for a new chair this year and I am dreading the inevitable fight to the death with my insurance company.

  • @michaelburry8332
    @michaelburry8332 Před 5 lety +4

    I'm betting that some real thought went into "foot/feet rests" during this video. I bet there was a discussion on which is correct. 🤣👍💙

  • @cvd1991
    @cvd1991 Před 5 lety +1

    i love you guys so much, the love you have for each other shows in incredible ways. i am not physically disabled but have mental health issues that contribute to me believing nobody could ever "put up" with me because of it. seeing a healthy loving relationship between a disabled person and an able bodied is beautiful and makes me want to try love myself more, and not doubt my worth as much. i would never call any other disabled/mentally ill person a burden, because they are not, and i don't know why i'd do that to myself! i am only just realising this.
    p.s so glad to see your channel expanding everyday

  • @anniem.8803
    @anniem.8803 Před 5 lety

    I totally understand you with the snow, I live in Quebec (Montreal) and here we had such a year, there's like 5 inches of ice under 2 feets of snow! You'd probably struggle here too unless you have winter tires on your chair!!! Didn't mention... Really love your blog, so refreshing compared to most, just natural which is rare as many try to change to "fit" what they believe people will like, but you actually seem like if I'd met you anywhere, you'd be exactly as I see you on CZcams. Really nice, I am mostly alone most of the time besides the moments I am alone but surrounded by other people (mostly ignoring me which I understand), but watching your videos gives me an impression that whoever I am, you'd accept me, which is such a feeling I rarely feel, keep doing your funny videos, you really bring sunshine in my life and I'm sure in other people's life!!

  • @feliciatowner5334
    @feliciatowner5334 Před 5 lety +10

    I love you two ❤️

    • @lisamaynard9304
      @lisamaynard9304 Před 5 lety

      Holy shit, this used to be MY profile pic! The same exact crop even. Where'd you get it cause it's very uncommon and why I used it to begin with. Now, I just change mine all the time to one of my 14 cats and bird. Crazy as Hell tho!

  • @bluecomet6356
    @bluecomet6356 Před 5 lety +14

    Just watched your tv interview it was great!

    • @SquirmyandGrubs
      @SquirmyandGrubs  Před 5 lety

      Thanks so much!

    • @bluecomet6356
      @bluecomet6356 Před 5 lety

      @@SquirmyandGrubs Your Welcome

    • @rowanb2355
      @rowanb2355 Před 5 lety

      we need a link to it online somewhere! >_

    • @bluecomet6356
      @bluecomet6356 Před 5 lety +1

      @@rowanb2355 search this morning on CZcams the title of the video is "Strangers think my girlfriends my nurse"

    • @bluecomet6356
      @bluecomet6356 Před 5 lety

      @@rowanb2355 czcams.com/video/QYbzK6yjegc/video.html

  • @caitilarson2406
    @caitilarson2406 Před 5 lety

    I love all the videos you have been posting lately!!! It’s so exciting to learn more about your lives together. Definitely the highlight of my day

  • @Maalin.
    @Maalin. Před 5 lety

    You guys are soo amazing! Love watching your videos when I’m starting to go into a depression. Love you Hannah and Shane! ❤️

  • @juanbarrera1356
    @juanbarrera1356 Před 5 lety +15

    I wish my chair lifted up. It only tilts back

    • @HighTen_Melanie
      @HighTen_Melanie Před 5 lety

      Juan Barrera Same with mine and it’s so annoying!

  • @katiehilton5667
    @katiehilton5667 Před 5 lety +23

    Shane, how often do you feel like you need to get out of your chair? Or how long is too long to be in your chair? I’m a special ed teacher and I have a couple students in wheelchairs, they’re nonverbal though and I wonder if I need to give them more breaks out of their chairs throughout the day?

    • @smithy2389
      @smithy2389 Před 5 lety +4

      Katie Hilton it depends on their age. When I was 11 I just wanted to be in my chair all day so I could move around with my friends. Physio Therapy and hydro are good excuses for getting out of the chair with productive time. That said soft play areas are good. Ideally you want to be getting them out of chair once a day for 20mins or more. Tummy crawling is good for the back.

    • @StraightZzzStudent
      @StraightZzzStudent Před 5 lety +2

      I used to work with adults with disabilities and I would take each of them out twice. Once at the beginning of the day and then after lunch. A lot of wheelchair users like their chair and don't mind being in it but they should be taken out just like someone laying in bed at the hospital should get up for walks or should be rotated if they've been laying for a while.

  • @ees122490
    @ees122490 Před 5 lety

    I love how in-sync y’all are! It’s wonderful to have the connection with someone♥️

  • @melbe8158
    @melbe8158 Před 5 lety

    Hannah you are so well spoken. I know you've mentioned getting nervous for TV interviews, etc., but you speak clearly and with confidence and I enjoy listening to you explain things.

  • @cassyluvsanchez4005
    @cassyluvsanchez4005 Před 5 lety +4

    My cheer can tilt back to do you know that my chair has different kinds of moods

  • @rakiahkellahan8285
    @rakiahkellahan8285 Před 5 lety +5

    when I watched the interview, Shane wasn’t wearing *his* beanie!🤪🤪

  • @morganherman8465
    @morganherman8465 Před 5 lety

    So happy I woke up to a new video! Put me in a good mood for the day. Plan on stopping by the library later to get Shane's book. Can't wait to read it!!

  • @annaquillfeldt5598
    @annaquillfeldt5598 Před 5 lety

    You guys always make me smile with your banter. Thanks for brightening my day xx

  • @BrianVelez
    @BrianVelez Před 5 lety +4

    Muhaha now we know how to defeat Shane!
    -Slides to neutral-

  • @kelcro3333
    @kelcro3333 Před 5 lety +4

    You need chains for your wheelchair tires.
    Well, if anyone doubted ya'll were legit, this proves it. Shane essentially carries Hannah's purse (lipstick, medications, candy, receipts lol).

  • @samkablaminator
    @samkablaminator Před 5 lety

    You guys are breathing fresh air into CZcams!! I LOVE everything about your channel, your personalities, and I literally look forward to your videos more than ANY other channel out there. Continue being absolutely awesome, relatable, and funny as hell. :D

  • @sereanacook5056
    @sereanacook5056 Před 5 lety +2

    I love you guys! I can’t imagine why people who comment mean things because you both are just such wonderful people and you have such positive looks on life. I wish I could embody your guys positive and loving nature! I hope you are a having a wonderful day.

  • @cassyluvsanchez4005
    @cassyluvsanchez4005 Před 5 lety +5

    Hannah Shane Juice Guy start thinking about children in the future? Because I'm picking your boyfriend and your soon-to-be husband Shane is going to be a great dad someday

  • @tylerquayle2952
    @tylerquayle2952 Před 5 lety +3

    First

  • @heidiburke6340
    @heidiburke6340 Před 5 lety

    Thank you for every video that you do. Everyday I look forward to watching you both. You have such a positive and funny sense of humor.

  • @tsommers3284
    @tsommers3284 Před 5 lety

    You guys rock! Only the two of you could keep me glued to a video about wheelchairs. Keeping me laughing at every turn!

  • @BeccaNick
    @BeccaNick Před 5 lety

    I look forward to these videos everyday! Thanks for keeping it up Hannah & Shane! You've become a part of my nightly routine and I am so happy you are getting the attention you deserve, because your videos rock especially with the CC.

  • @eilidh9572
    @eilidh9572 Před 5 lety

    The photo of Shane carrying all the shopping had me floored! So funny! 😂 great video guys, very interesting :). Love Eilidh in Scotland x

  • @mrbluemonkeys
    @mrbluemonkeys Před 5 lety +1

    I love you guys so much!! Every time you post I get so excited

  • @corneliusmccann6239
    @corneliusmccann6239 Před 4 lety

    Shane at the beginning of your vid i saw hannah looking at you with so much love i am overwhelmed by that gift you have be safe and happy brother

  • @tiffanydellapenna5629
    @tiffanydellapenna5629 Před 5 lety

    You guy's are so cute together
    It shows that love has no boundaries. Love you guys

  • @mel_pnw
    @mel_pnw Před 5 lety

    You've got a new subscriber! Your channel has been an excellent source for my 10 year old daughter to learn about others with disabilities. We love watching you two together. ❤

  • @mbvlogs6023
    @mbvlogs6023 Před 5 lety

    They are so happy after all, with all the hardships , it teaches me a great lessons and i love to see both of you. GOD BLESS

  • @L33tinfusion
    @L33tinfusion Před 5 lety

    Your guys humor is literally the best. I am so glad I found your guys channel cause you guys always have me laughing my ass off.

  • @Rfvansaun
    @Rfvansaun Před 5 lety

    When I am at work, I always look forward to getting home and watching your videos...They have been very informative.

  • @pizzafanaticforlife1386

    This is why I love you guys sooooo much! I mean how do you make a tour of a wheelchair fun & entertaining?..... ask Shane & Hannah! Interesting & fun! Love love love!!

  • @bobbihammett7823
    @bobbihammett7823 Před 5 lety

    Thanks for the tour of your chair! My son is 19 and has a quantum eyelevel power chair. He drives it with head controls. He also communicates with a device that works with his eyes! It tracks his retinas on a screen and verbalizes for him. So thankful for technology!!

  • @freekimsurr
    @freekimsurr Před 5 lety

    I THINK SHANE IS SO LUCKY TO HAVE YOU IN HIS LIFE, AND I ALSO THINK YOU ARE VERY LUCKY TO HAVE SHANE IN YOUR LIFE. HE IS SO SMART, FUNNY, AND VERY ENTERTAINING

  • @nicolekim4022
    @nicolekim4022 Před 5 lety

    Thank you for giving us a glimpse into this very private part of your lives. I have never met anyone in a wheelchair, so it was cool to see how everything works.

  • @greenpyro
    @greenpyro Před 5 lety

    I found out about you guys through SBSK and seriously you're both so precious and amazing that it just makes my day to watch your videos. Thank you guys both so much for being amazing!

  • @craftgrrl14
    @craftgrrl14 Před 5 lety

    I have a bike bell that I mounted on my wheelchair so I can tell people to get out of the way. I also glued a ton of fun patches to the back of it.
    My friends love to use me as a pack mule when we go shopping too! I'm cool with it so long as they push me around when my arms get tired. A symbiotic relationship!

  • @Chynnalovestocook
    @Chynnalovestocook Před 5 lety

    You both bring such happiness to me in my mornings ❤️ you both are so perfect in so many ways! Im very glad true love exist . Every video is full of laughs and smiles.

  • @heatherpretty7575
    @heatherpretty7575 Před 5 lety +1

    i cannot explain how much i look forward to your videos ahhhhh !!!!

  • @erinjay8431
    @erinjay8431 Před 5 lety

    I love the joy you guys share. From someone who has had mostly abusive boyfriends your respect and love for eachother is inspiring.

  • @justinlovebug12
    @justinlovebug12 Před 5 lety

    Wow!! Shane looks like he has a lot more strength in his neck!!! Your head is up more and your looking around with more ease!!!! Looks like the spinal medications have been helping! Glad to be able to watch and notice this progress. Love your guys channel!!!

  • @claudiawatenpuhl8170
    @claudiawatenpuhl8170 Před 5 lety

    This is just a big "thank you" to the family that donated their own back up seat to Shane and Hannah for his chair. It takes amazing people like you to make this world a better place. What a genuinely kind, thoughtful and beautiful thing to do for such a great young couple.

  • @LiamMagan
    @LiamMagan Před 5 lety

    I love that you call your grandfather Poppop. That’s what I called my grandfather too and no one around where I live did. Everyone was always like “whats a Poppop?!” So that made me smile! I love this video! You guys are awesome

  • @donisickles755
    @donisickles755 Před 5 lety +1

    Hannah had acting skills and Vanna White moves too!! Keep these videos coming! The dilemma of replacement parts is real and so ridiculous -- you are educating the world. 👏🏻👏🏻

  • @deannaharby5677
    @deannaharby5677 Před 5 lety

    You two had me cracking up-!--and I noticed I had a big smile on my face--that doesn't happen a whole bunch watching utube,,lol,,,,, - listening to you both is good for the soul---blessings....

  • @tippythop
    @tippythop Před 5 lety

    Hey Shane! Came across your channel randomly when surfing youtube. You are such an amazing person and I am in awe of you and Hannah's bond and her patience with your disability. I have a suggestion about your "Profile" button on your chair which I believe is a memory setting for different situations being in your chair which probably stores a certain number of settings for tilting and raising your chair with the touch of a button. Love your videos! I am so thankful for today's advancements in medicine like Spinraza that will help and others live out a longer life.