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International Autoimmune Encephalitis Society
United States
Registrace 22. 11. 2016
The International Autoimmune Encephalitis Society, (IAES), CZcams channel strives to raise awareness and education about this group of diseases to ensure patients are identified early. We provide science-based information backed by trusted medical experts in the field of autoimmune neurology. Funny as well as emotionally impactful educational videos are included. Of noteworthy mention is the video introducing AE Trivia Playing cards, a ground breaking educational and rehabilitation tool for AE Warriors® created by IAES and renown AE expert, Dr. Josep Dalmau.
IAES is an established family/patient-centered non-profit organization with a history of supporting AE patients through their journey from diagnosis to recovery.
IAES is an established family/patient-centered non-profit organization with a history of supporting AE patients through their journey from diagnosis to recovery.
Paraneoplastic Autoimmune Encephalitis
UCB sponsors the 2024 Speaker Series celebrating Autoimmune Encephalitis Awareness Month.
Hesham Abboud, MD, PhD is the Director of the Multiple Sclerosis and Neuroimmunology Program at University Hospitals Cleveland Medical Center and a staff neurologist in the Parkinson’s & Movement Disorders Center. He is an Assistant Professor of Neurology at Case Western Reserve University School of Medicine.
This is an engaging presentation with helpful visuals throughout that allow both clinician and family member, or patient to follow along and absorb a complex topic with ease. If you are a patient with a diagnosis of autoimmune encephalitis, paraneoplastic or not, you will gain a greater understanding of the disease as Dr. Abboud has a distinct talent as an educator.
Dr. Abboud begins by defining Paraneoplastic AE, which is thought to impact 1 in 300 cancer patients. By reviewing how the clinician arrives at the diagnosis, he reviews several MRIs showing grey matter and white matter-focused examples explaining that inflammation in paraneoplastic cases is caused by T-cells, not the antibody. B cells in this situation do not cause harm. The difference between intracellular and extracellular antibodies is illustrated with clear slides. Specific treatments are utilized in these cases. Dr. Abboud explains why some common treatments in non-paraneoplastic cases are not required, such as Rituxan and plasma exchange. 3 cases, including video footage, are presented illustrating the wide spectrum of presentations and challenges treatment decisions clinicians are faced with to ensure the best possible outcomes.
Visit our website: www.autoimmune-encephalitis.org
Your donations help us continue our important work.
autoimmune-encephalitis.org/donate/
Autoimmune Encephalitis is a group of inflammatory brain diseases characterized by prominent neuropsychiatric symptoms. These patients are often believed to have psychiatric presentations, but they do NOT. Common clinical features include a change in behavior, psychosis, seizures, memory, and cognitive deficits, abnormal movements, dysautonomia, and a decreased level of consciousness. Psychiatrists and Emergency Room Physicians are often the first medical professionals who see these patients. Clinicians must consider the possibility of an autoantibody-related etiology and become familiar with the red flags suggestive of synaptic autoimmunity as the underlying cause in all cases of first-onset, out-of-the-blue psychosis. A high level of suspicion is necessary as autoimmune encephalitis is treatable with immunotherapy. Firm evidence shows that earlier recognition and treatment lead to improved outcomes. It is important to note, that the disorder is refractory to antipsychotics; indeed, antipsychotic agents make affected patients much worse, even to the point of developing something akin to neuroleptic malignant syndrome.
The International Autoimmune Encephalitis, (IAES), is a registered 501 C 3 non-profit and is the only Family/Patient-centered organization for people diagnosed with Autoimmune Encephalitis. Leading with integrity, IAES strives to advance services, education, increased awareness, and research for this group of diseases. IAES provides science-based information backed by trusted medical experts in the field of autoimmune neurology. IAES is the only organization that provides all-inclusive services from diagnosis to recovery and the many challenges experienced in that journey.
Hesham Abboud, MD, PhD is the Director of the Multiple Sclerosis and Neuroimmunology Program at University Hospitals Cleveland Medical Center and a staff neurologist in the Parkinson’s & Movement Disorders Center. He is an Assistant Professor of Neurology at Case Western Reserve University School of Medicine.
This is an engaging presentation with helpful visuals throughout that allow both clinician and family member, or patient to follow along and absorb a complex topic with ease. If you are a patient with a diagnosis of autoimmune encephalitis, paraneoplastic or not, you will gain a greater understanding of the disease as Dr. Abboud has a distinct talent as an educator.
Dr. Abboud begins by defining Paraneoplastic AE, which is thought to impact 1 in 300 cancer patients. By reviewing how the clinician arrives at the diagnosis, he reviews several MRIs showing grey matter and white matter-focused examples explaining that inflammation in paraneoplastic cases is caused by T-cells, not the antibody. B cells in this situation do not cause harm. The difference between intracellular and extracellular antibodies is illustrated with clear slides. Specific treatments are utilized in these cases. Dr. Abboud explains why some common treatments in non-paraneoplastic cases are not required, such as Rituxan and plasma exchange. 3 cases, including video footage, are presented illustrating the wide spectrum of presentations and challenges treatment decisions clinicians are faced with to ensure the best possible outcomes.
Visit our website: www.autoimmune-encephalitis.org
Your donations help us continue our important work.
autoimmune-encephalitis.org/donate/
Autoimmune Encephalitis is a group of inflammatory brain diseases characterized by prominent neuropsychiatric symptoms. These patients are often believed to have psychiatric presentations, but they do NOT. Common clinical features include a change in behavior, psychosis, seizures, memory, and cognitive deficits, abnormal movements, dysautonomia, and a decreased level of consciousness. Psychiatrists and Emergency Room Physicians are often the first medical professionals who see these patients. Clinicians must consider the possibility of an autoantibody-related etiology and become familiar with the red flags suggestive of synaptic autoimmunity as the underlying cause in all cases of first-onset, out-of-the-blue psychosis. A high level of suspicion is necessary as autoimmune encephalitis is treatable with immunotherapy. Firm evidence shows that earlier recognition and treatment lead to improved outcomes. It is important to note, that the disorder is refractory to antipsychotics; indeed, antipsychotic agents make affected patients much worse, even to the point of developing something akin to neuroleptic malignant syndrome.
The International Autoimmune Encephalitis, (IAES), is a registered 501 C 3 non-profit and is the only Family/Patient-centered organization for people diagnosed with Autoimmune Encephalitis. Leading with integrity, IAES strives to advance services, education, increased awareness, and research for this group of diseases. IAES provides science-based information backed by trusted medical experts in the field of autoimmune neurology. IAES is the only organization that provides all-inclusive services from diagnosis to recovery and the many challenges experienced in that journey.
zhlédnutí: 928
Video
Prognostic Indicators for Functional and Cognitive Outcomes with Dr. Sergio Muñiz-Castrillo
zhlédnutí 437Před 6 měsíci
Dr. Sergio Muñiz-Castrillo is a Stanford University Scholar and specialist in autoimmune encephalitis and paraneoplastic neurological syndromes. He provides an excellent overview of the prognostic factors and cognitive, and functional outcomes and indicators around relapses in autoimmune encephalitis patients. UCB sponsors the 2024 Speaker Series celebrating Autoimmune Encephalitis Awareness Mo...
Seronegative (or antibody-negative) Autoimmune Encephalitis with Josep Dalmau, MD, PhD
zhlédnutí 2,5KPřed 6 měsíci
UCB sponsors the 2024 Speaker Series celebrating Autoimmune Encephalitis Awareness Month. Josep Dalmau, MD, PhD IDIBAPS-Hospital Clinic, University of Barcelona, and Caixa Research Institute, Barcelona (Spain). Adjunct Professor of Neurology, University of Pennsylvania, Philadelphia, USA Dr. Dalmau is a neurologist specializing in Neuro-oncology, paraneoplastic syndromes, and autoimmune encepha...
Pediatric Autoimmune Encephalitis with Dr. Mellad Khoshnood
zhlédnutí 1,7KPřed 6 měsíci
UCB sponsors the 2024 Speaker Series celebrating Autoimmune Encephalitis Awareness Month. Dr. Mellad Khoshood has invited clinicians to reach out and consult with him on any case where Autoimmune Encephalitis is suspected. He can be reached at mmkhoshnood@gmail.com or mkhoshnood@chla.usc.edu Dr. Mellad Khoshnood is a Clinical Assistant Professor of Neurology (Clinician-Educator), and Child Neur...
The Treatments for Autoimmune Encephalitis with Dr. Grace Gombolay
zhlédnutí 1,7KPřed 6 měsíci
This is the first of a 5-part Speaker Series celebrating Autoimmune Encephalitis Awareness Month 2024 hosted by IAES and sponsored by UCB. Dr. Gombolay begins her presentation with an overview of how Autoimmune Encephalitis is diagnosed, the many disorders that mimic the presentation, and the various antibody tests conducted. She takes us on a deep dive of the treatments. Reviews what each trea...
We Won't Stop Dreaming
zhlédnutí 697Před 6 měsíci
This is the 8th annual AE awareness video IAES has produced. IAES holds the rights to the song, ‘We Won’t Stop Dreaming” by Pink Zebra. Autoimmune Encephalitis Awareness Moth is sponsored by UCB. Your donations help us continue our important work. autoimmune-encephalitis.org/donate/ Visit our website: www.autoimmune-encephalitis.org We hope you enjoy our awareness videos featuring AE Warriors (...
12 Daze of Christmas
zhlédnutí 78Před 8 měsíci
Originally created in 2015, this spoof version of The 12 Days of Christmas kicks off some holiday fun while educating the public about Autoimmune Encephalitis. Sung by Barbara Layt Vujaklija and written by Barbara Layt Vujaklija and Tabitha Orth. The 12 Daze of Christmas takes you through the challenge of finding a neurologist familiar with this rare group of diseases, the difficult testing the...
Understanding Clinical Trials For Autoimmune Encephalitis
zhlédnutí 289Před 9 měsíci
Dr. Daria Muir of the International Autoimmune Encephalitis Society hosts this wonderfully informative presentation with Jeffrey Gelfand MD, MAS, FANN, at the University of California San Francisco (UCSF) about Clinical Trials in Autoimmune Encephalitis. Dr. Gelfand begins the discussion by explaining how brain inflammation is currently treated using treatments that have been successful in othe...
My Month in Hell - Autoimmune Encephalitis Misdiagnosed as a Psychiatric Disorder
zhlédnutí 7KPřed 10 měsíci
Ryann Henn is an ambassador for the International Autoimmune Encephalitis Society. Diagnosed with anti-NMDA receptor encephalitis, she shares her very personal story of how she was misdiagnosed and mistreated by staff at a well-known rural local hospital. The goal of this video is to help bring awareness of Autoimmune Encephalitis to medical professionals by shedding light on the repercussions ...
If You Could Share 1 Thing with Your Neurologist, What Would It Be?
zhlédnutí 270Před rokem
IAES’ “Tuesday Tries” meets on Zoom on the last Tuesday of every month. Moderated by Tessa McKenzie, IAES' Chief Resilience Officer, caregivers, and patients gather to celebrate their critical milestones in recovery and care and build a more resilient network! "Tuesday Tries" is about practicing a strengths-based approach by “normalizing the try.” Tessa provides prompts for reframing perceived ...
Autoimmune Epilepsy
zhlédnutí 3KPřed rokem
Dr. Claude Steriade is a neurologist from the New York University School of medicine and is affiliated with the NYU Langone Hospitals. She is a published researcher on the topic and has fast become an expert in her field and one her peers rely on. Learning objectives: • Discuss conceptual definitions of autoimmune seizures and epilepsies and their practical implication in clinical practice. • D...
The Role of Behavioral Medicine in Autoimmune Encephalitis
zhlédnutí 603Před rokem
Dr. Grace Tworek addresses the vital topic of ongoing supportive services AE patients, and family members require that is largely absent in our journey. Patients & caregivers learn of the support services and tools they can incorporate into their daily lives to aid them in recovery, rehabilitation, and reclaiming their lives in goal-oriented, practical ways with a focus on self-care. Dr. Tworek...
Pediatric Autoimmune Encephalitis
zhlédnutí 3,2KPřed rokem
Autoimmune Encephalitis is a group of inflammatory brain diseases that are characterized by prominent neuropsychiatric symptoms. These patients are often believed to have psychiatric presentations, but they do NOT. Common clinical features include a change in behavior, psychosis, seizures, memory, and cognitive deficits, abnormal movements, dysautonomia, and a decreased level of consciousness. ...
Autoimmune Encephalitis Diagnosis & Misdiagnosis
zhlédnutí 5KPřed rokem
Dr. Eoin Flanagan, Associate Professor of Neurology and Consultant in the departments of Neurology and Laboratory Medicine and Pathology at the Mayo Clinic (Rochester, MN), gives an outstanding presentation on how autoimmune encephalitis is diagnosed and red flags clinicians can look for that may indicate another culprit is at play. Whether you are a clinician treating this group of diseases or...
Autoimmune Encephalitis
zhlédnutí 7KPřed rokem
This keynote presentation by Marianna Spatola, MD, PhD is the 2nd presentation in the 2023 Speaker Series celebrating Autoimmune Encephalitis Awareness Month. Dr. Spatola reviews the disease process from the prodromal stage to relapse/recovery and lasting deficits. The difference between intracellular and cell surface antibodies is explained and focus is given to the two most common types of AE...
Heroes And Dreamers ~ 2023 Autoimmune Encephalitis Awareness Month
zhlédnutí 1,2KPřed rokem
Heroes And Dreamers ~ 2023 Autoimmune Encephalitis Awareness Month
How to Make the Most out of Your Doctor's Appointment
zhlédnutí 251Před 2 lety
How to Make the Most out of Your Doctor's Appointment
IAES Distinguished Service Award 2022 -Surprise Event
zhlédnutí 86Před 2 lety
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Autoimmune Encephalitis: What Psychiatrists Need to Know
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See Me Brain Injury Awareness Month 2022
zhlédnutí 1,2KPřed 2 lety
See Me Brain Injury Awareness Month 2022
Long term Cognitive Outcomes anti-NMDAr Autoimmune Encephalitis
zhlédnutí 1,6KPřed 2 lety
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Autoimmune Encephalitis (including Sero-negative) and Treatments with Dr. Mastura Monif
zhlédnutí 3,9KPřed 2 lety
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Dr. Justin Abbatemarco AE Need for Comprehensive Care
zhlédnutí 638Před 2 lety
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Dr. Ming Lim ~ Treatment and Best Outcomes for Pediatric Autoimmune Encephalitis
zhlédnutí 3,2KPřed 2 lety
Dr. Ming Lim ~ Treatment and Best Outcomes for Pediatric Autoimmune Encephalitis
Unconditional ~ AE Awareness Month 2022
zhlédnutí 436Před 2 lety
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Pulling Through ~Help for Families Navigating Life-Changing Illness with Catherine Jessop
zhlédnutí 221Před 2 lety
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