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My diagnosis came after failed spinal fusion and the shock that came with increased chronic pain and disability leading to drop foot twitcing sensory pain and overload. My treatment was a website and cbt I try everything medication for pain and depression got me out of bed with some ability to face being like this but nothing to really help me and its cost me everything I have a 7 year old son so i continue to fight for him. I cant imagine this going on much longer its been 5 years now and im giving up when i try to engage in exercise my skin burns my legs twitch and lock up and my mind just gets all confused. im in upstate NY if anyone has ideas please share

My 79-year-old husband was just diagnosed with major functional neurological disorder. I had been studying fronto temperol lobe dementia, ALZ, Lewy Body Dementia and others to try to see what his cognition and body neurological disorder could be. I knew there were 120 different kinds of ALZ but I had never heard of FND. I am studying this condition now. Do you feel that your young age and you amazing health condition previous to the FND diagnosis worked in your favor?

I feel seen. Thank you.

I was a professional dancer and got diagnosed in 2011-2012. They told me it was psychological and conversion disorder which baffled me. I have had months and years of no symptoms and then they come back. I had no symptoms for 2 years and now they came back. You’re lucky you just kept getting better. Mine keeps coming and going.

I was also a professional dancer and cant walk now I danced with NYC ballet. Now I am in a wheel chair.

ive had ~5 years of heavy seizures feeling like a scrambled egg evrytime id go to the ER or call the ambulance id be looked like .... "K ... you can stop now " not once has any professional replace my arms/shoulders or nerves or shoulder blade im given an Ibuprophene and sent home my FND is based off a bad operation , i have scoliosis due to a fracture femur the way the doc streatch it back in place. i have 2.5 inch OVER my right leg as an adult , im not suppose to be 6'3 my seazure got worst as an adult when my body born normal couldnt take the deformity it was given by a bad operation ( NUTS/BOLTS in Knee *traction* its called

💕

I have just been diagnosed, with FND. It started with left side of my mouth drooping causing spasms and body weakness and bad speech. Thank you for sharing this.

Thanks so much for sharing. My daughter was diagnosed with FND last year. She's 21 and its been a very difficult journey but the physio is definitely helping. Blessings of healing to all those diagnosed with FND and any other illnesses.❤❤❤❤

Thank you so so much for this Video of hope!

I'd just like to say how much this made me smile. I've just been diagnosed with FND and I feel so alone. The physio is taking weeks before I even get an appointment, I'm stuck at home away from my own freedom and my car etc and to just know that someone who clearly had it way worse than me has gotten over it so well means so much

Showin off now doing kart wheels 😂

What kind of meds

I have FND too. Just a new line of dance for us. I half wondering if this is part of COVID-19 or the vaccines.Because now my friend has it.

I’ve been diagnosed with FND 2 weeks ago after pointing it out to my psychiatrist. I’ve been undiagnosed for over 15 years and no one could find out what was wrong with me. I’ve been to so many doctors and psychologists.. I get dizzy a lot and feel like the ground is shaking. I get so scared watching these type of videos wondering if it could get like this losing the ability to walk..

I just got put of the hospital this week ( currently learning to walk again.) Its scary i sm sorry this happened to you too. For years have had small type issues i didn't even know were conversion disorder. Last week i went unresponsive during some stressful stuff snd couldn't move or😮 feel anything below my belly button. Some feeling came back in a few hours but couldn't coordinate my legs or feel my left leg. Er doctors were kinda mean then finally a psych doc believed me . Along with the lower leg problems i sm hsving a hsrd time thinking quickly too. Its scary. I have to actually think to walk. If it dont think i just stumble around like i am drink looking

Thanks Jamie, It's videos like your that give me hope to get back to a some sort of normal life and do the things I love doing. Only diagnosed a couple of months ago I have been struggling with the lack of information about FND. I also have a great physio, Krystle, who has been a godsend to me and restoring my beliefs that I will get better. Hard not to get FRUSTATED at times, the simple things that I used to take for granted have turned into hard or impossible tasks. Thanks again and take care, Shane

I've just been formally diagnosed after living with it for years. Your video though frightening was very inspirational. Thankyou for raising awareness x

I run a PNEE clinic here in the US. It is actually the highlight of my career in many ways. Thank you so much for sharing your story, what a brave and strong soul you are. ❤

Thank you 😢🙏🏼

I’m on my 4th episode of FND, I classifies it as I wake up and I have it, then wake up and it’s gone

Thank you for sharing so many to tell about FND much appreciated 🙏🏼

This is more useful than I expected it to be.

Watching this was literally like watching a video of myself. The violent and debilitating leg tremors. My FND “happened” in July this year, I was totally okay, collapsed due to adrenal crisis, came around and couldn’t feel my left arm and both legs. Couldn’t walk since then. I too am in the UK and have had NO care, follow up, physio or anything from our “wonderful” NHS, just a website for FND scrawled onto a piece of paper upon my discharge from hospital whilst my dad physically carried me off the ward. This is what terrifies me, how will I ever get better without any correct intervention? I am so glad that you have received care, and were so unbelievably strong to power through such a horrible affliction. Wishing you continued health, healing and happiness! 💕💕💕

FND is the Medical lie for an untreated injury! The issue in each FND is characterised by ATAXIA ALWAY from an spinal/girdle or neck/girdle (shoulder) INJURY and, yes, can take your life easily. Exercise is not the answer. Selah

We just found my mom has FND and your video it's helping us too understand better thank you for sharing your story 🙏

Thank you! Struggling with my symptoms today but feeling so much more positive after watching your video.

Thank you so much for this video! My 11 year old daughter was just diagnosed with FND :(( she’s mostly okay during the day, but at night, her tremor episodes get really bad. Uncontrollable kicking and flinging of arms. It’s so scary for us, so I know it’s terrifying for her. This video was so inspiring!!! Any tips for helping her get through these episodes quickly? We’ve found that drawing, being on her iPad, and counting backwards from 100 sometimes help, but we’ll take any help we can get!

Thank you so much for sharing your story! im in medical school and seeing what this condition presents like is very helpful!! good luck with your continued recovery💝

Omg i cant believe i used to move like that. And doctors thought it was anxiety and chronic pain. Fortunately developing routines similar to your physio program woeked. Stuff like walking barefoot in the woods is what really helped me reconnect... lots of music and dance and such as well. Definitely yoga and meditation too! And psychedelics of course

Thank for this I’ve been Diagnosed today with FND it has answered so many questions originally diagnosed with TIA But seeing amazing dr at queens sq hospital all fall into place

it has recemtly been proposed to me that i might have this after 1 1/2 years of tests and 9 months of being stuck in bed dont know what to do i have been looking at all the syptoms and that and it doesnt feel like whats going on the panflit i was given insits im not crazy (very reasuring) aside from that nothing else lol

Im so glad you got improvement. 💜 Do you know if it can progress again?

I have a question? If you have fibromyalgia, Ibs, migraines, and pelvic pain weakness in the leg, does this mean you definitely have FND? Is FND curable? How is it diagnosed? Thank you for sharing your story. I hope you continue to get better.

I’m living this exactly, and I feel the same way, thank you for sharing.

Watching this just brought me to happy tears for you! I can now be more determined to face my own challenges with FND - mine is absolutely less severe than your experience. Your video will helps 100s if not 1000s of people and hope it reaches more people like myself. I hope by now you are still recovering and doing those cart-wheels over and over! So inspiring to watch you brave through this tremendous challenge. The sad part is that until you start walking, talking or going out - no one sees your issue but thinks you are drunk because I walk so awkwardly. I never give up hope and work with both a physical therapist and vision therapy. Thank you so much Jamie - you are brave soul and you have given me hope! 😍

Hallo Jamie, ich habd die FND genau wie es bei dur war, mit Nacken und Kopf Beteiligung. Es ist wirklich hart und schmetmrzhaft. Und kostet viel Zeit und kraft, sowie Geduld 😊 Derzeit bin ich in einer Neurologischen Reha zur Therapie und kämpfe gegen die FND an. Glg aus germany

I’ve finally been diagnosed with FND after 5 years of dizziness, nausea, foot drop, hand weakness, brain fog, and more. I’m a 55-year-old female. First, after head to toe MRIs, a spinal tapping, countless blood tests, and numerous specialist visits, they told me I have MS, then they said it’s Benign MS, migraine, and then “it’s all in my head”. Then, after five years of a lot of disappointment, despair, and suffering, they say it’s FND, for which none of the Drs and specialists gave me a treatment plan. A psychiatrist even called it a “non-existent” condition. My life has been turned upside down. I’m a chiropractor but unable to see any patients since I’ve lost my left hand’s strength and am unable to stand up without wobbling. I have to use a cane to take any steps. Most of the time I use a walker around the house and a wheelchair outside. I also can not wash or blow dry my hair, drive, cook, go for a walk, or dance. I’ve had physical therapy but my weakness is not from my muscles but it’s neurological. I’m so glad you’ve recovered. Your story gave me hope. Thanks for sharing.

How long did it take to get diagnosed?? I'm struggling getting a diagnosis

If you have this disorder, if you’re looking to pull the root cause vs. treating symptoms with drugs, start being an investigator of everything that goes into your body. The nutrition facts on the labels of foods, why would you not investigate the bean and seed oils, sugars, and complex carbohydrates

I have just been diagnosed with FND. I found your video was very inspiring, thank you.

Thank you so much for this video. 😭😭😭😭😭 My boyfriend has suffered with FND for six years and never got a diagnosis until this year. He is still not getting proper care here in the States in Augusta, GA. He has racked up so much medical debt and is where he was six years ago. I'm begging God for support like what you have received, for medical staff who truly care and are actually helping, and I am so incredibly happy for you. Thank you so much, again, for sharing this, and may God bless you so much.

I have trained my whole life to be a lab based scientist. Now I have this thing that's stopping me being safe in a lab. This really sucks, I hope we all make it though this

Hi all yeah I my self Ave been told I've got fnd....sounds like a name of timber..back in November 2020 I ad covid pneumonia..then I was in a induced coma for 3 months..I woke up in February 2021...after coming out from the coma I was told I e got ptsd..plus now I've got fnd...which is new to me ..but its been there since February 2021..but only been diagnosed with it..I'm doing good ..well I've got long covid since 2021..ptsd plus fnd brilliant what else is heading my way ...life go's on just thought I share with the world 🌎 😊 just be positive

I just found this video. I was diagnosed after balance issues and tremors on one side. Thanks for this, it was so hopeful!! I hope you are still doing well!!

This is so inspiring!!

Hey you've already done enough, but if you see this are there any support groups or a direction you could point me in to get some support? Its been really isolating and I can't do this alone anymore. Thanks and so proud of you!

I’m crying. I just got diagnosed with FND 3 weeks ago and I’m hopeless. A lot of it is walking difficulties. Like my legs stutter step. Or they’ll crisscross and with no balance. The first time yesterday, I blacked out a bit while walking to the car. My shaking is a massive problem. I do have a hereditary shake in my hands, but this is obviously way worse and it’s my whole body. Me head will jerk up and down. The world spins sometimes and I throw up and have to medicate myself to sleep because it’s so, honestly, painful. I can’t hold a cigarette, typing is hard, minute movements are impossible. I can’t take a picture with my phone. I’m sorry for How long this post is but I’m really hopeless right now and have no idea to fix this in in my apple up tall edges isn’t sure either and we’re desperately searching for something when it gets really bad I should go to the hospital but then the doctors just say I’m having a panic attack so the hospital is no help

I was just diagnosed with FND yesterday. After being tested for MS over and over again, I get to have all the symptoms, but a diagnosis of crazy lady syndrome. My family thinks I'm faking, and has all along. 😢

After going everywhere since 2007 and becoming exhausted without a correct diagnosis, I'll try a FND specialist! Thank you for this , may God bless you!