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Laura Irons talks MS
United Kingdom
Registrace 1. 05. 2020
I was diagnosed with RRMS 16 years ago, I went onto a blinded trial in 2009 (Lemtrada) I currently take no medication for my MS and since 2010 have preferred to use alternative ways to relieve pain or ease the symptoms of my MS - it seems to be working so far.
I put videos out on Monday's (7.30pm GMT) and I share ways that help me to relieve my MS symptoms as well as updating you on my MS progress (possibly future progression) Much of my interest is about brain health.
Most of my experiences/knowledge comes from the professional help that I have received over the 14 years since being on my Lemtrada trial and I owe a great deal to my health care team at the Heath Hospital Cardiff.
All of the money raised from this channel will go to the MS Society. So I'd love you to subscribe so together we can help raise money for research.
I put videos out on Monday's (7.30pm GMT) and I share ways that help me to relieve my MS symptoms as well as updating you on my MS progress (possibly future progression) Much of my interest is about brain health.
Most of my experiences/knowledge comes from the professional help that I have received over the 14 years since being on my Lemtrada trial and I owe a great deal to my health care team at the Heath Hospital Cardiff.
All of the money raised from this channel will go to the MS Society. So I'd love you to subscribe so together we can help raise money for research.
Video
Why I'm taking a break from YouTube
zhlédnutí 642Před 5 měsíci
My Multiple Sclerosis Story experience is up to date. I will post on any major changes to my MS and health and I will of course still continue to post updates on my future MRI scan results. 0:00 intro 0:10 what is the reason 0:40 MRI report updates 1:02 smoldering lesions 1:23 thank you 1:46 mental health 2:00 last advice for your MS Thank you to everyone for your support, I wish everyone good ...
Optic Neuritis in Multiple Sclerosis: My Hospital Update
zhlédnutí 319Před 5 měsíci
Optic Neuritis in Multiple Sclerosis: My Hospital Update This video is an update on my hospital appointment for the reoccurring optic neuritis that I experience each year. Last year I put a video out on how I lost vision in one eye with an optic neuritis attack. I saw an eye specialist at the opticians who referred me to the eye hospital to see a doctor there. They advised that they were going ...
I Tried An Acupressure Mat For 5 Days For My MS Back Pain- Did It Work?
zhlédnutí 344Před 5 měsíci
I Tried An Acupressure Mat For 5 Days For My MS - Did It Work? I have quite severe intermittent lower back and hip pain down the right hand side of my body. When it's good it's good but when it's bad it's really quite immobilising and painful for me. I'm always looking for ways to relieve my back pain naturally as the only thing that does relieve it is naproxen - and I really don't want to beco...
PIP Assessment Questions Answered
zhlédnutí 15KPřed 6 měsíci
I have Multiple Sclerosis. This video answers some of the questions that you have asked around PIP in my last PIP outcome video. #PIP #msawareness #chronicillness #health #multiplesclerosis #disability 0:00 introduction 0:33 can I claim PIP for mental health 2:01 when will I get a decision 2:22 should I fill out my own application 3:20 phone or face to face what's better 4:47 should I prepare 5...
The Impacts Of Multiple Sclerosis on Work
zhlédnutí 812Před 6 měsíci
Talking about my personal experience and challenges with having MS whilst working 0:00 introduction 0:20 MS impacts our working life 1:06 why can't I find work? 1:24 my working background 2:43 being diagnosed with MS 4:16 MS takes its toll 5:50 I shouldn't need to justify my illness 7:00 deciding to get back into work 9:10 getting back into work scheme for disabled people #msawareness #employme...
Multiple Sclerosis Fatigue - How Cocoa helps 🍫
zhlédnutí 388Před 6 měsíci
Looking into the research on how Cocoa can help with fatigue in Multiple Sclerosis. Around 90% of people who have MS, have experienced or live with fatigue. It's often very debilitating and can be quite invisible to others but has a huge impact on people's lives. Looking for ways to help with symptoms and especially those which are natural is always something that interests me. I have been drin...
My MS Symptoms Before and After Lemtrada Treatment
zhlédnutí 558Před 7 měsíci
Should you take a DMT for your Multiple Sclerosis? My own personal answer to that question is yes. But it's down to everyone to make that decision - only you know what you feel comfortable with. In this video I explain about my MS symptoms pre and post Lemtrada Treatment. 00:00 introduction 00:15 MS statistics 00:47 daunting MS 01:52 my symptoms 03:26 how I feel now 06:32 track your MS 07:00 id...
Epsom Salts - A Miracle Mineral For Multiple Sclerosis?!
zhlédnutí 447Před 7 měsíci
I have been using Epsom Salts for years to help my multiple sclerosis. Magnesium is an important mineral for our bodies and it can be found in a variety of foods. The easiest way to get magnesium into your body is through the skin - hence the Epsom Salts bath. #msawareness It's kind enough for people with MS because the water doesn't have to be hot, sometimes rise in temperature can bring on MS...
Multiple Sclerosis Shorts - Thank You!! 😊💰 #msawareness #mssociety #multiplesclerosis #shorts
zhlédnutí 307Před 9 měsíci
A huge thank you to everyone, we've finally got our first payment. I've created a just giving page if you'd like to donate also You can find the link here: www.justgiving.com/page/laura-irons-youtube-ms #multiplesclerosis #msawareness #mssociety
Smoking And Its Harmful Effects On MS
zhlédnutí 422Před 9 měsíci
This video talks about smoking and the harmful effects on Multiple Sclerosis Link on smoking and the progression to secondary Multiple Sclerosis Here you will find the link to the Brain - the journal: academic.oup.com/brain/article/145/4/1368/6384574 I have smoked in my time socially but have not been a 'full time' smoker. I feel that having this understanding of the effects of smoking on Multi...
LIVING WITH DEPRESSION
zhlédnutí 383Před 10 měsíci
Learning To Live With Depression was diagnosed with depression officially in 2011, 3 years after my MS diagnosis. I believe this is a side effect of my Multiple Sclerosis, not of not being able to cope but a chemical imbalance and shift in mood of the brain. I don't recall having very low moods, however I do remember at a younger age (possibly 10 or 11) where I knew that sometimes things just d...
My First Month Monetized On YouTube 🙌🧡💰
zhlédnutí 447Před rokem
From Zero to Monetized: What It Means for Our MS Content This Multiple Sclerosis channel is finally monetised!! Thanks to everyone who watches, shares and subscribes. All the money raised will go to the MS Society to help with research into this often debilitating disease Nothing much to say here apart from Diolch yn fawr iawn (Thank you very much) 😊 0:00 introduction 0:12 The channel is now mo...
Lysine - The Super Supplement For Multiple Sclerosis?!!
zhlédnutí 23KPřed rokem
#lysine #multiplesclerosis #chronicillness The benefits of Lysine for Multiple sclerosis and other chronic health conditions. I started taking Lysine to help prevent and heal my coldsores about a year ago, and I've seen huge improvements in the amount of coldsores I get and the time they take to heal when I do get one. I started looking into Lysine to find out what it's benefits are and I was s...
From Struggle to Support: Government-Funded Exercise Scheme Revealed for WALES/CYMRU
zhlédnutí 288Před rokem
#multiplesclerosis #chronicillness #exercise #wales The National Exercise Referral Scheme is funded by the Welsh Government and managed centrally by Public Health Wales. It is designed for inactive adults who are either at risk of poor health or have a pre-existing medical condition. The purpose of the scheme is to promote health and wellbeing by encouraging long term physical activity. How do ...
15-Year Journey: My Life with Multiple Sclerosis
zhlédnutí 2,5KPřed rokem
I finally got my MRI results from April's scan after a long time on Lemtrada and today in this video I'm going to share what they are. MS is an unpredictable disease and in my experience of talking to others that have the condition, everyone has a different experience. It doesn't mean that we can't share our stories with each other and exchange information as that is what helps us to feel suppo...
Sending love 🧡
I have put in for pip for the 2nd time had my telephone assessment fingers crossed 2nd time lucky 🤞
Hi, Do you have to get naked at a assessment ?
I have Crohn’s disease on top of ppms and 45 years old, I can relate to so many things that Ed said. It’s scary.
My stuff all happens on the right side and I was right handed my whole life but eventually converted to left-handed. Always been pretty good about pain and I don't really get pain with MS as some do just numbness and lack of muscle control. Always got to Oxbridge from you but still surprised I was right. Dig the hair.
Hi how are you getting on LV
@@Lionhearttarot Are you meant to come into my life?? 🤔😛
@@lauraironstalksms well yeah.. now your gonna have to be cool with that 😁
Situation with PIP is expected to get worst and that's where the line is crossed the government should protect the vulnerable
So you understood the website and can make yoursef a cup of tea and they gave you pip . My mate got only 2 points and everything the woman got told on the phone she lied and twisted .
Yes I can! And if it helps ease your mind (again) I have a hot cup hot water dispenser to aid me. I scored 0 points in the communicating verbally section, because although MS causes cognitive impairment, luckily at this point in time it's still something I have
My mate was honest and all the dogs did was lie and gave her 2 points . . She told them and they ignored every reply .
Great video, keep sharing. Anecdotal evidence is always the best thing when studies are limited. Fortunately Lysine has a ton of studies proving it is a crucial nutrient required for optimal health 👍
Thank you very much 🤗
What kind of questions do they ask?
I’ve had PPMS for 30 years I figure, only diagnosed 7 years ago, last 3-4 it has really started to limit me. Only just started Ocrevus 2 weeks ago. I should have have been on it years ago, guess I could blame Covid but also my fault for not pushing for it and going along with Dr. Saying you’re not bad enough yet. So now I’m bad enough but damage is done and there is now going back. All I’m saying here is don’t sit back and take the let’s see attitude, it’s your body so push in a friendly way or see another Dr. That’s my truth. Keep your head up. 🙏
Is their any connection between L-lysine and Hashimoto thyroiditis and/encephalitis . I’m living my 51st year of hypothyroid, Hashimoto thyroiditis and possible encephalitis. And one day I read about my brain symptoms and the benefits of amino acids. Lysine was listed but I had a bottle in my arsenal of supplements and looked up their benefits. Inflammation, check; Anxiety, check. I think I stopped their and said I’ve taken them before let’s see… Mind you at this time I was having multiple absences seizures and probably just feeling overwhelmed and wreck less and tried it. And two weeks without a seizure and suddenly enjoying the productive side of me I haven’t seen since I was ten years old. I know the lysine didn’t transform my life but it did greatly improve it. The Superfood and plant-based protein smoothie, immune suppressant, acupuncture, regular castor oil pack for detoxing my liver and thyroid with exercise together ACTUALLY transformed my 51 year journey to that one moment in time I’ve held close because I didn’t want to stop until I could be that strength in me again.
Thanks so much *MR OBALAR* on CZcams for curing me from Herpes, keep saving lives.❤..
I went through the PIP process a couple years ago, got 0 points, then 0 for mandatory reconsideration and again 0 for tribunal... what a joke. I've now reapplied, this time with third-party help and I will be recording the phone assessment.
Are you sure it is not Lyme Disease?
I've been absolutely sure for the past 16 years that I've got MS
When you had a phone assessment did you spokes for your self or someone else spoke in your your behalf?
I have diagnosed with MS and have optic neuritis 😢 i am on steroids iv i am confuse i have severe pain back of my eye and head
OMS or Overcoming MS is amazing. If you haven't found this already Google George Jelinek, it has changed my life 🙂 Wishing you all the best 🙂
The most difficult task for me is to admit to myself my condition and explain to others. Years later even my wife does not have a clue what I am going through day in and day out. Thank you for encouragement.
Thank you so much for sharing I have Lyme, M.S. adn some new mass cell Hystamine, auto Imune also, thinking of Lemtrada doing tons of research this really helped hearing someone who went through it and not just Drs adn studies, Thank you soo much for sharing I'm in New Jersey in the U.S. your sharing helped someone that far the net is good for allot ;) Renn is a musician from Brighton near you his music speaks allot to diagnosis lie ours though he had Lyme like me first then autoimune, it's a crazy cycle
You're so welcome, Lemtrada was the best thing I ever did, keep researching because you need to make sure it's right for you. Thank you for watching, your watch contributed to helping out MS research as this is where the channels money goes to. I'll check out the musician 👌🎶
❤ all the best with your future.
After 6 months of waiting, I got my decision letter. They scored me 0 on everything, and on handwritten part, it literally just full of lies, stuff that I wasn't even asked about, and some that I was asked about, but they're claiming the opposite of what I said.
Iv written 10 pages detailing all the lies and what points I should have received and sent it of for a mandatory reevaluation. It's absolutely disgusting that they can just make up so much stuff. The person they've described is literally the opposite of me. That man should lose his job. If illegal for me to lie on these forms, so surley it is for them to? If the mandatory review and the tribunal fail, can I report him?
Thank you so much for your sharing. It means so much to me. I have Ms and just diagnosed 2023. Thank you so much.
I was taking it during covid.
Thanks so much *MR OBALAR* on CZcams for curing me from Herpes, keep saving lives.❤..
Today i had a 2nd pip assessment over the phone to get more information, it was about 2.30pm and lasted about 25 miniures, after it ended i turned off my phone to get some peace and chill out a bit, i put some music on, then banging on my door and i could hear shouting and radios, it was two paramedics, telling me i had been calling my GP threatening to kill myself, we never talked about low mood at all in the 2nd assesment and in the 1st i never said at anytime i was thinking of doing anything, all they asked me is if i'd ever had any suicidal thoughts, it was pretty embarressing, what my neighbours must think i dunno, i've no idea what the assessor has said to my GP sugery for this to happen, i was shocked, shaken and embarressed...They left and about 30 minutes later they were back banging on my door, this time with a member of the Crisis team on loudspeaker wanting to know why i had been calling my GP threatenin suicide when i had not, last time i called me GP was too book a nure app for a vitamin enjection...crazy...i have no record at my GP practice of suicide or threatening to do so, just some depression associated with long tern illness.
Few years ago i had a accessment i went there and it was full with people waiting, i was overcome with stress panic anxiety i had to get out of there, i phoned pip told them what happend they reccomenfed a home assessment which iv had helpd me big time fortunate to have understanding pip workers.🎉
So amazing! Came across your CZcams totally by fluke… I was a client of yours a few years ago. You inspired me to take a new career! Thank you and take care. Nye ❤
I'm so sorry to bother you, I applied for pip in march had my phone call 2nd may, had a txt on 3rd may saying my assessment is with the assessor and then a txt on the 20th saying the still haven't made a decision, so I requested my assessment letter and at the back page it says based on the claimant's likely future circumstances it would be appropriate to review the claim in 2 years what does that mean please? Thank you x
You are beautiful
Hi Laura, my name is Kerrick. I live in Pennsylvania. Have MS and similar story, had a very active lifestyle and rode motorcycles, a Black Beauty. 1981 Yamaha 650 Midnight Maxim. Noticed I was loosing my balance when riding, thought it may have something to do with blood pressure, fatigue, whatever. Quickly afterwards went numb from waist down. Went to family doctor about symptoms, he immediately sent me to hospital for testing. All of them including spinal tap, MRI, etc. I thought that it would be temporary at first. Was wrong. Immediately lost all balance in my mobility, walking, speaking, eating, bowels and bladder. Diagnosed 4 years ago, same as when you posted this video. Bummer it took that long for me to discover it especially since I've been doing not much of anything besides watching CZcams since I'm now disabled. Coping has been difficult, I miss the great lifestyle that I had and I'm sure that you do too.
You are better off being an illegal migrant you get everything on a plate no questions asked. England today
Are yoj ok?
When I went for a PIP Appeal, as soon as I reached the minimum necessary points, the assessment was stopped and I was awarded it. As a person might have a stroke or heart attack proceeding I can in one way understand it, but it also stops the person carrying on and being awarded the complete number of points relevant to their case. That is important as PIP could be stopped or questioned as valid if just one issue is reassessed in later interviews, when the person might have had many points more on their claim, rendering that as irrelevant to questioning PIP.
THANK YOU FOR GIVING US ALL THIS INFORMATION, THAT YOU RESEARCHED ABOUT L-LYSINE. I HOPE TO CONTINUE TO LISTEN TO YOUR VEDIO'S ..YOU HAVE A NICE AND CALM VOICE ....THANK YOU. BE BLESSED 🙂
You're welcome, thank you very much
*MR OBALAR* ON CZcams CURED ME TOTALLY
Thanks so much *MR OBALAR* on CZcams for curing me from Herpes, keep saving lives.❤..
I have optic neuritis in my left eye, i had intermittent vision issues and pain which grew in intensity and frequency over many months. Then it grew to a point where vision in the left eye was badly affected and it no longer hurt. I had lost my mum and dad in the space of four months, so i wasnt in the best of places mentally so didnt take action like i should have done. When i finally did go to the opticians all the layers of my eye had thinned out, the optic nerve was badly damaged and my left eye is not reactive to light. The optician told me there is little chance i will recover sight in that eye. Im now awaiting an urgent referral to eye department in hospital and referral for neurology as MS is suspected.
Oh no, sorry to hear this! Also sorry for the loss of your parents, emotional stress is always the toughest on the body (and unfortunately MS) I do hope that your appointment goes well for you 🙏
Thank you, at the moment I'm finding wearing an eye patch is better as the poor vision in the left eye throws my senses off if that makes sense? I feel like I can see better with the left eye blocked off.
I am always left confused when told to avoid stress. How does one do that? If life is sending so many dreadful and frightening things to navigate, how does one avoid the resulting stress?
When life is stressful and sending us challenging stuff to navigate, the simple answer is that you can't avoid stress. It's as simple as that. You can however step away from situations which might be causing that stress (where and if you can)
@@lauraironstalksms Thank you.
What other medications have you tried
No other medications
Totally cleared up shingles in me in 3 days.... outrageous ... I watched Dave Letterman wait 3 months to get rid of his shingles using some other treatment. Epstein Barr Virus is a Herpavirus ... so... L-Lysine is effective.... My wife has MS and is gaining ground against the symptoms of MS using LYsine
So nice to hear that! I gave a bottle to the lady who owns the manicure place cause she's been suffering from shingles since her second dose. I had a feeling from the little I've read that it would help! She promised to take them and hopefully I'll get some good news soon 😊
How much did you take? I got her the tablets from "now" there's 100tabs and told her to take one a day but perhaps she needs more?
@@aalliaandreadis5109 Its good to go as high as 3000mg per day. you want to be aggressive against such an invasive virus. If that's too much... 1500mg might do it. it depends on her weight and size.
*MR OBALAR* ON CZcams CURED ME TOTALLY
Hi Laura..hope you are ok?x
They are limited as to how many they let through AND get cash for turning you down. The Tory government are a criminal & terrorist organisation. They want to steal from the needy to feed greedy pensionscroungers. The generation that steals off everyone.
I’m looking at using these soon , cutting down my supplements and taking one multivitamin. The b1 and b2 seems quite high. I will only be taking one a day
The benefits of lysine supplementation are more related to its antiviral properties and less about directly influencing MS. There is no significant evidence to suggest that lysine can affect MS directly. On the other hand, BPC-157, a peptide with potential regenerative effects, is known for its healing properties in various tissues, including muscle, tendon, and nervous system tissues. Its regenerative capabilities suggest it could help in repairing the myelin sheath or nerve cells damaged by MS, although direct research on BPC-157 specifically for MS is limited.
*MR OBALAR* ON CZcams CURED ME TOTALLY
Hi, have you heard of low dose naltraxone (LDN)? It's not a normal ms drug but immune system modifier. I'm starting it tonight. There is lots of good results for different autoimmune conditions including ms
Hi, no I haven't, good luck for you though 🤞
@@lauraironstalksms thank you very much
A great deal of the process is how questions are answered, both written and verbal. Never say words like 'sometimes', this is a 50/50, we don't have our conditions 'sometimes'. If asked how many minutes you can walk for, your answer, if you have limited mobility, has to be i don't measure my walking in minutes, but steps. You have to bring your conditions into the environment and let them know what it is like 'most of the time'. The 'enemy' is not the assessor, but the person with no medical background who issues the points for each of the descriptors, from the information provided. Under all circumstances, get a brief summary from your GP's practice manager, this is free and legally should be made available to you and takes no more than a day or 2 to collect. The DWP will not contact your GP, or any other medical team, regardless of what the GP receptionist tells you. If you have no medical papertrail, you will receive 0 points
What a rude dog lol. That would get you 0 points lol
I had a liver transplant and did not get pips
The pips don’t want me to got again ..
Hi since my last assessment I have moved to a bungalow with a wet room , will this go against me ?
I got my decision less than 24 hours after my assessment, this week. Dodgy af