PKD Foundation of Canada
PKD Foundation of Canada
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Living Kidney Donation (June 11, 2024)
Because polycystic kidney disease (PKD) can eventually lead to kidney failure, many of those affected by PKD are interested in learning about kidney transplantation as a possible life-extending treatment for PKD.
In this webinar on the topic of living kidney donation, experts answered a number of questions about the living kidney donation process, such as:
What are the rules regarding living kidney donors?
What is the testing process like, to determine my compatibility to become a living kidney donor?
Can I get a living kidney donor from outside of Canada?
Additional resources mentioned during the webinar, including links to websites and information: conta.cc/3VAWy0H
About the Speakers
Darlene Jagusic is a program manager for Canadian Blood Services and leads the Kidney Paired Donation (KPD) Program and the Highly Sensitized Patient (HSP) registry. She is a critical care trained register nurse spending many years in the Intensive care units in BC and SK. She has organ and tissue experience working for the Saskatchewan provincial transplant program both as a living and deceased organ coordinator prior to her current role at CBS. Darlene was also a speaker at our prior webinar on the Kidney Paired Donation Program.
www.blood.ca/en
Alexandra Freund is the Provincial Coordinator for the Transplant Ambassador Program (TAP). She is also a living kidney recipient, and a peer support provider for TAP.
transplantambassadors.ca/
Amanda Armstrong is a living kidney donor from Tillsonburg, ON. She grew up knowing that PKD affected her aunt, Mary Banman, and when Mary needed a kidney transplant for kidney failure from PKD, Amanda got tested and became a kidney donor through the Kidney Paired Donation Program. (Mary was also present with her niece during the webinar.)
www.endpkd.ca/mary_amanda_2024
Learn more about the Kidney Paired Donation program here: www.blood.ca/en/organs-tissues/living-organ-donation/kidney-paired-donation
Learn more about highly sensitized patients here: professionaleducation.blood.ca/en/organs-and-tissues/programs/highly-sensitized-patient-hsp-program
Learn more about becoming a living organ donor through the Kidney Paired Donation program here: www.blood.ca/en/organs-tissues/living-donation
Find more information about blood, organ and tissue donation here: www.endpkd.ca/blood_organ_and_tissue_donation
Are you trying to find a living organ donor? Learn more about Having Your Donor Find YOU!, a free video series that educates patients about transplant and gives them the tools to mount a successful living donor campaign here: www.endpkd.ca/findyourlivingdonor
Are you looking for peer support as you go through your living donation journey? Learn more about the Transplant Ambassador Program here: www.endpkd.ca/tap
Read more about Mary and Amanda's living kidney donation story here: www.endpkd.ca/mary_amanda_2024
Learn more about the PKD Foundation of Canada on our website: www.endpkd.ca/
Our Facebook account: endpkd
Our Instagram: endpkd.ca
Our X / Twitter account: endPKD
zhlédnutí: 153

Video

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Jeff Robertson, Executive Director, walks us through the history of the PKD Foundation of Canada and highlights past, present and future goals for the organization. During this presentation, Jeff also discusses the many ways the Foundation’s mission to promote programs of research, education, support, awareness and advocacy positively impact the national PKD community, and how you can get invol...
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2023 PKD Summit - Closing Remarks - Jeff Robertson
zhlédnutí 34Před 7 měsíci
Jeff Robertson, Executive Director for the PKD Foundation of Canada, wraps up the day with some brief closing remarks. Jeff Robertson has been involved with the PKD Foundation of Canada for many years, beginning as a volunteer for his local chapter, and Walk Coordinator in Toronto. His life has been deeply impacted by polycystic kidney disease (PKD) - both his mother and grandmother were diagno...
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